scholarly journals Self-Care in Palliative Care Nursing and Medical Professionals: A Cross-Sectional Survey

2017 ◽  
Vol 20 (6) ◽  
pp. 625-630 ◽  
Author(s):  
Jason Mills ◽  
Timothy Wand ◽  
Jennifer A. Fraser
Keyword(s):  
Palliative Care ◽  
Self Care ◽  
Medical Professionals ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Care Nursing

Self-Perceived Competence of Nurses and Care Aides Providing a Palliative Approach in Home, Hospital, and Residential Care Settings: A Cross-Sectional Survey

2019 ◽  
pp. 084456211988104
Author(s):  
Richard Sawatzky ◽  
Della Roberts ◽  
Lara Russell ◽  
Ami Bitschy ◽  
Sean Ho ◽  
...  
Keyword(s):  
Palliative Care ◽  
Residential Care ◽  
Perceived Competence ◽  
Dimensional Structure ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Palliative Approach ◽  
Competence Scale ◽  
Care Aides ◽  
Care Nursing

Background and purpose A palliative approach involves adapting and integrating palliative care knowledge and expertise earlier on and across sectors of care for people who have life-limiting chronic conditions. This study explored the extent to which nurses’ and care aides’ self-perceived palliative care competence may explain variation in the application of a palliative approach across nursing care settings that do not specialize in palliative care. A secondary objective was to psychometrically evaluate an instrument for measuring self-perceived palliative care competence. Methods and procedures: Data were collected via a cross-sectional survey (N = 1468) of registered nurses, licensed practical nurses, and care aides at 114 randomly selected hospital-based medical units, home care offices, and residential care facilities. The questionnaire included the Palliative Care Nursing Self-Competence Scale. Multilevel logistic regression and multigroup confirmatory factor analyses were conducted. Results In addition to self-perceived competence, factors associated with a palliative approach include identification of patients who have life-limiting conditions and who would benefit from a palliative approach, and work environment. The psychometric analyses of the Palliative Care Nursing Self-Competence Scale confirmed a 10-dimensional structure, strong internal consistency reliability, and measurement equivalence. Discussion and conclusion: This study provides information for future development and research on interventions for integrating a palliative approach.

Distress and self-care among chaplains working in palliative care

2019 ◽  
Vol 17 (5) ◽  
pp. 542-549 ◽  
Author(s):  
Kelsey B. White ◽  
Patricia E. Murphy ◽  
Jane Jeuland ◽  
George Fitchett
Keyword(s):  
Palliative Care ◽  
Self Care ◽  
Bivariate Analysis ◽  
Clinical Experiences ◽  
Spiritual Beliefs ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Low Levels

AbstractBackgroundThe prevalence of burnout and distress among palliative care professionals has received much attention since research suggests it negatively impacts the quality of care. Although limited, research suggests low levels of burnout or distress among healthcare chaplains; however, there has been no research among chaplains working in specific clinical contexts, including palliative care.ObjectiveThis study explored the distress, self-care, and debriefing practices of chaplains working in palliative care.MethodExploratory, cross-sectional survey of professional chaplains. Electronic surveys were sent to members of four professional chaplaincy organizations between February and April 2015. Primary measures of interest included Professional Distress, Distress from Theodicy, Informal Self-care, Formal Self-care, and debriefing practices.ResultMore than 60% of chaplains working in palliative care reported feeling worn out in the past 3 months because of their work as a helper; at least 33% practice Informal Self-care weekly. Bivariate analysis suggested significant associations between Informal Self-care and both Professional Distress and Distress from Theodicy. Multivariate analysis also identified that distress decreased as Informal and Formal Self-care increased.Significance of resultsChaplains working in palliative care appear moderately distressed, possibly more so than chaplains working in other clinical areas. These chaplains also use debriefing, with non-chaplain palliative colleagues, to process clinical experiences. Further research is needed about the role of religious or spiritual beliefs and practices in protecting against stress associated with care for people at the end of life.

scholarly journals Diagnósticos e intervenções de enfermagem para pacientes cardiológicos em cuidados paliativos

2018 ◽  
Vol 12 (11) ◽  
pp. 3038 ◽  
Author(s):  
Thais Gassi Pedrão ◽  
Evelise Helena Fadini Reis Brunori ◽  
Eloiza Da Silva Santos ◽  
Amanda Bezerra ◽  
Sérgio Henrique Simonetti
Keyword(s):  
Diabetes Mellitus ◽  
Palliative Care ◽  
Self Care ◽  
Cross Sectional ◽  
Health Maintenance ◽  
Insuficiencia Cardiaca ◽  
Sociodemographic Profile ◽  
Terapia Intensiva ◽  
Nursing Diagnoses ◽  
Care Nursing

RESUMOObjetivo: caracterizar o perfil clínico e sociodemográfico e identificar os principais diagnósticos e intervenções de Enfermagem. Método: trata-se de estudo quantitativo, transversal, retrospectivo e descritivo com 23 pacientes cardíacos com indicação de cuidados paliativos. Realizou-se a coleta de dados com um questionário. Submeteu-se o banco de dados à análise estatística. Resultados: caracterizou-se a amostra por pacientes do sexo feminino, com 70 anos, casados e com ensino fundamental completo, portadores de doença renal crônica, infarto agudo do miocárdio, miocardiopatia, hipertensão arterial e Diabetes Mellitus. Revela-se que os diagnósticos de Enfermagem “Deficit no autocuidado para a alimentação” e “Deficit no autocuidado para o banho” foram os mais frequentes. Detalha-se que suas intervenções foram o controle da nutrição, do ambiente, os cuidados com alimentação enteral, o posicionamento no leito, a massagem de conforto, os cuidados com unhas, cabelo e couro cabeludo, a manutenção da saúde oral e a realização de banho no leito. Conclusão: evidenciaram-se uma assistência pouco focada em aspectos espirituais e psicológicos e a falta de evidências, na literatura, que fortaleçam alguns diagnósticos e intervenções de Enfermagem específicos para a população estudada. Descritores: Enfermagem de Cuidados Paliativos; Insuficiência Cardíaca; Cuidado Paliativo; Enfermagem; Cardiologia; Unidade de Terapia Intensiva.ABSTRACT Objective: to characterize the clinical and sociodemographic profile and to identify the main Nursing diagnoses and interventions. Method: this is a quantitative, cross-sectional, retrospective and descriptive study with 23 cardiac patients with indication of palliative care. Data was collected with a questionnaire. The database was submitted to statistical analysis. Results: the sample was characterized by female patients, 70 years old, married and with complete primary education, with chronic kidney disease, acute myocardial infarction, myocardiopathy, hypertension and Diabetes Mellitus. It is revealed that the Nursing diagnoses "Deficit in self-care for eating" and "Deficit in self-care for bathing" were the most frequent. Their interventions included control of nutrition, the environment, enteral feeding care, bed placement, comfort massage, nail care, hair and scalp care, oral health maintenance, and bath in bed. Conclusion: there was a lack of care focused on spiritual and psychological aspects and the lack of evidence in the literature that strengthens some specific Nursing diagnoses and interventions for the studied population. Descriptors: Nursing Palliative Care; Heart Failure; Palliative Care; Nursing; Cardiology; Intensive Care Unit.RESUMEN Objetivo: caracterizar el perfil clínico y sociodemográfico, identificar los principales diagnósticos e intervenciones de enfermería. Método: estudio cuantitativo, transversal, retrospectivo y descriptivo, con 23 pacientes cardiacos con indicación de cuidados paliativos. Se realizó la recolección de datos con un cuestionario. Se sometió la base de datos al análisis estadístico. Resultados: se caracterizó la muestra por pacientes del sexo femenino, con 70 años, casados, y con enseñanza fundamental completa, portadores de enfermedad renal crónica, infarto agudo de miocardio, miocardiopatía, hipertensión arterial y diabetes mellitus. Los diagnósticos de enfermería "Déficit en el autocuidado para alimentación" y "Déficit en el autocuidado para baño", fueron los más frecuentes. Sus intervenciones fueron el control de la nutrición, del ambiente, cuidados con alimentación entera, colocación en el lecho, masaje de confort, cuidados con uñas, cabello y cuero cabelludo, mantenimiento de la salud oral y realización de baño en el lecho. Conclusión: se evidenció una asistencia poco enfocada en aspectos espirituales y psicológicos y falta de evidencias en la literatura que fortalezcan algunos diagnósticos e intervenciones de enfermería específicas para la población estudiada. Descriptores: Enfermería de Cuidados Paliativos; Insuficiencia cardíaca; Cuidado Paliativo; Enfermería; Cardiología; Unidad de terapia intensiva.

Cannabis and End-of-Life Care: A Snapshot of Hospice Planning and Experiences Among Illinois Medical Cannabis Patients With A Terminal Diagnosis

2021 ◽  
pp. 104990912110186
Author(s):  
James Alton Croker ◽  
Julie Bobitt ◽  
Sara Sanders ◽  
Kanika Arora ◽  
Keith Mueller ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Fast Track ◽  
Hospice Care ◽  
Cannabis Use ◽  
Care Plan ◽  
Medical Cannabis ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Eol Care

Introduction: Between 2013 and 2019, Illinois limited cannabis access to certified patients enrolled in the Illinois Medical Cannabis Program (IMCP). In 2016, the state instituted a fast-track pathway for terminal patients. The benefits of medicinal cannabis (MC) have clear implications for patients near end-of-life (EOL). However, little is known about how terminal patients engage medical cannabis relative to supportive care. Methods: Anonymous cross-sectional survey data were collected from 342 terminal patients who were already enrolled in ( n = 19) or planning to enroll ( n = 323) in hospice for EOL care. Logistic regression models compare patients in the sample on hospice planning vs. hospice enrollment, use of palliative care vs. hospice care, and use standard care vs non-hospice palliative care. Results: In our sample, cancer patients ( OR = 0.21 (0.11), p < .01), and those who used the fast-track application into the IMCP ( OR = 0.11 (0.06), p < .001) were less likely to be enrolled in hospice. Compared to patients in palliative care, hospice patients were less likely to report cancer as their qualifying condition ( OR = 0.16 (0.11), p < .01), or entered the IMCP via the fast-track ( OR = 0.23 (0.15), p < .05). Discussion: Given low hospice enrollment in a fairly large EOL sample, cannabis use may operate as an alternative to supportive forms of care like hospice and palliation. Clinicians should initiate conversations about cannabis use with their patients while also engaging EOL Care planning discussions as an essential part of the general care plan.

Translation, cultural adaptation, and validation of the mindful self-care scale among Brazilian palliative care providers

2021 ◽  
pp. 1-7
Author(s):  
Ana Cláudia Mesquita Garcia ◽  
Laura Soares Rodrigues Silva ◽  
Ana Cristina Gonçalves Ferreira ◽  
Vander Monteiro da Conceição ◽  
Everson Meireles ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cultural Adaptation ◽  
Self Care ◽  
Well Being ◽  
Future Research ◽  
Care Providers ◽  
Cross Sectional ◽  
Reliability Indices ◽  
Self Compassion ◽  
Hospice And Palliative Care

Abstract Objective This study aimed to translate, culturally adapt, and validate the Mindful Self-Care Scale (MSCS, 33-item) in a Brazilian hospice and palliative care context. Method This was a cross-sectional study with a sample of 336 Brazilian hospice and palliative care providers. The European Organisation for Research and Treatment of Cancer — Quality of Life Group Translation Procedure protocol was used for the translation and the cultural adaptation process. Psychometric properties supporting the use of the MSCS were examined through confirmatory factor analysis (CFA) and correlation analysis with other instruments to assess congruence to related constructs (resilience and self-compassion). The reliability of the Brazilian-Portuguese version of the MSCS was assessed using Cronbach's α and composite reliability coefficients. Results The six-factor (33-item) model showed a good fit to the data, with satisfactory reliability indices and adequate representation of the scale's internal structure. Further validity is evidenced in the significant, positive correlations found between the MSCS, and similar well-being constructs, namely the Self-Compassion and Resilience scales. Significance of results The findings reveal that the MSCS (33-item) is a valid, reliable, and culturally appropriate instrument to examine the practice of mindful self-care by hospice and palliative care providers in Brazil. More broadly, it represents a promising instrument for future research into self-care practices and well-being among Brazilian healthcare providers.

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