Translation, cultural adaptation, and validation of the mindful self-care scale among Brazilian palliative care providers

2021 ◽  
pp. 1-7
Author(s):  
Ana Cláudia Mesquita Garcia ◽  
Laura Soares Rodrigues Silva ◽  
Ana Cristina Gonçalves Ferreira ◽  
Vander Monteiro da Conceição ◽  
Everson Meireles ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cultural Adaptation ◽  
Self Care ◽  
Well Being ◽  
Future Research ◽  
Care Providers ◽  
Cross Sectional ◽  
Reliability Indices ◽  
Self Compassion ◽  
Hospice And Palliative Care

Abstract Objective This study aimed to translate, culturally adapt, and validate the Mindful Self-Care Scale (MSCS, 33-item) in a Brazilian hospice and palliative care context. Method This was a cross-sectional study with a sample of 336 Brazilian hospice and palliative care providers. The European Organisation for Research and Treatment of Cancer — Quality of Life Group Translation Procedure protocol was used for the translation and the cultural adaptation process. Psychometric properties supporting the use of the MSCS were examined through confirmatory factor analysis (CFA) and correlation analysis with other instruments to assess congruence to related constructs (resilience and self-compassion). The reliability of the Brazilian-Portuguese version of the MSCS was assessed using Cronbach's α and composite reliability coefficients. Results The six-factor (33-item) model showed a good fit to the data, with satisfactory reliability indices and adequate representation of the scale's internal structure. Further validity is evidenced in the significant, positive correlations found between the MSCS, and similar well-being constructs, namely the Self-Compassion and Resilience scales. Significance of results The findings reveal that the MSCS (33-item) is a valid, reliable, and culturally appropriate instrument to examine the practice of mindful self-care by hospice and palliative care providers in Brazil. More broadly, it represents a promising instrument for future research into self-care practices and well-being among Brazilian healthcare providers.

scholarly journals EXPERIENCE OF LGBT PATIENTS AND FAMILY WITH HOSPICE AND PALLIATIVE CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S623-S624
Author(s):  
Gary L Stein ◽  
Cathy Berkman
Keyword(s):  
Palliative Care ◽  
Staff Training ◽  
Online Survey ◽  
Research Policy ◽  
Cross Sectional Study ◽  
Care Staff ◽  
Future Research ◽  
Policy And Practice ◽  
Cross Sectional ◽  
Hospice And Palliative Care

Abstract This study examines the degree to which hospice and palliative care staff observe or perceive inadequate, disrespectful, or abusive care to LGBT patients and family members. A cross-sectional study using an online survey completed by 865 providers, including social workers, physicians, nurses, and chaplains. Among respondents, 55% reported that LGB patients were more likely to experience discrimination at their institution than non-LGB patients; 24% observed discriminatory care; 65% reported that transgender patients were more likely than non-transgender patients to experience discrimination; 20% observed discrimination to transgender patients; 14% observed the spouse/partner of LGBT patients having their treatment decisions disregarded or minimized; and 13% observed the spouse/partner being treated disrespectfully. Findings reported also include: institutional non-discrimination policy, staff training, intake procedures, and comfort in assessing LGBT status. Implications for future research, policy, and practice will be presented.

scholarly journals Predicting Professional Quality of Life and Life Satisfaction in Spanish Nurses: A Cross-Sectional Study

2020 ◽  
Vol 17 (12) ◽  
pp. 4366
Author(s):  
Noemí Sansó ◽  
Laura Galiana ◽  
Amparo Oliver ◽  
Macià Tomás-Salvá ◽  
Gabriel Vidal-Blanco
Keyword(s):  
Quality Of Life ◽  
Structural Equation ◽  
Self Care ◽  
Well Being ◽  
Practice Environment ◽  
Professional Quality Of Life ◽  
Cross Sectional ◽  
Self Compassion ◽  
Professional Quality

Background: Dealing with suffering, grief, and death on a daily basis, together with the particular working conditions, may produce high levels of burnout in nurses, and hinder their well-being. The purpose of this research is to study the effect of self-care and self-compassion on nurses’ professional quality of life and well-being. Methods: The research had a cross-sectional design, used correlational methodology and a structural equation model was hypothesized. Along the study, 210 nurses from the Healthcare Public System of the Balearic Islands, participated. The study took place from June to September 2018. Results: The hypothesized model showed an overall adequate fit. Practice environment predicted both self-care and self-compassion, whereas nursing stress did not. Self-care and self-compassion predicted nurses’ professional quality of life, whereas the practice environment and nursing stress were not predictors. Finally, professional quality of life showed a positive relationship with life satisfaction. Conclusions: The study presents a comprehensive structural equation model in which self-care and self-compassion are the best predictors of nurses’ professional quality of life. A direct relation of professional quality of life and nurses’ well-being has also been found, while controlling for the effects of nurses’ practice environment and stress.

Self-Care

2019 ◽  
pp. 817-823
Author(s):  
Kathy G. Kravits
Keyword(s):  
Palliative Care ◽  
Life Satisfaction ◽  
Stress Response ◽  
Compassion Fatigue ◽  
Emotional Labor ◽  
Secondary Traumatic Stress ◽  
Self Care ◽  
Well Being ◽  
Care Providers ◽  
Stress Symptoms

Self-care is growing as a topic for scientific inquiry. In this chapter, the biological basis of the stress response and the recent evidence of the consequences of persistent and ongoing stressors overwhelming the individual’s resources will be discussed. Secondary to the growing awareness of the destructive consequences of persistent stress, palliative care providers are affected by both stress inherent in the emotional labor of the work and lack of self-care. The result is risk for the development of compassion fatigue, burnout, and secondary traumatic stress symptoms. Martin Seligman’s work in positive psychology and Happiness Theory will be used to explore well-being and the intentional creation of greater life satisfaction.

scholarly journals Experiences of LGBT Patients and Families With Hospice and Palliative Care: Perspectives of the Palliative Care Team

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 67-67
Author(s):  
Cathy Berkman ◽  
Gary Stein
Keyword(s):  
Palliative Care ◽  
Social Services ◽  
Online Survey ◽  
Healthcare Providers ◽  
Cross Sectional Study ◽  
Care Providers ◽  
Cross Sectional ◽  
Term Care ◽  
Lgbt Community ◽  
Hospice And Palliative Care

Abstract The lesbian, gay, bisexual, and transgender (LGBT) community experiences discrimination and stigma in accessing health care and social services – including palliative, hospice, and long-term care. Healthcare providers not recognize or address disparities in care. Providers and institutions may be uncomfortable with sexual orientation and gender identity and expression issues, and often don’t inquire about these. LGBT patients fear being open about their identities, not receiving equal or safe treatment, and having their family of choice and designated surrogates disrespected or ignored by healthcare staff. This study examines the degree to which hospice and palliative care providers report inadequate, disrespectful, or abusive care to LGBT patients and family members. A cross-sectional study using an online survey was completed by 865 providers, including social workers, physicians, nurses, and chaplains. Among respondents, 55% reported that LGB patients were more likely than non-LGB patients to experience discrimination at their institution; 24% observed discriminatory care; 65% reported that transgender patients were more likely than non-transgender patients to experience discrimination; 20% observed discrimination to transgender patients; 14% observed the spouse/partner of LGBT patients having their treatment decisions disregarded or minimized; and 13% observed the spouse/partner being treated disrespectfully. Qualitative data are presented to illustrate discomfort with LGBT patients and spouses/partners, disrespectful care, gossip and ridicule, inadequate care, and denial of care. Implications and suggestions for implementing non-discriminatory and respectful institutional and public policy, and for staff education and training to provide competent and respectiful care to this population are presented.

scholarly journals Go soft or go home? A review of empirical studies on the role of self-compassion in the competitive sport setting

2019 ◽  
Author(s):  
Philipp Röthlin
Keyword(s):  
Research Question ◽  
Well Being ◽  
Qualitative Studies ◽  
Future Research ◽  
Original Research ◽  
Competitive Sport ◽  
Cross Sectional ◽  
Self Compassion ◽  
Study Results

Self-compassion describes a supportive attitude towards oneself. Research outside the sport context suggests that self-compassion might be beneficial in terms of psychological processes that are helpful for athletic performance. At the same time, there are reasons to assume that athletes may fear a negative influence of SC on their self-improvement motivation. Therefore, it seemed worthwhile to clarify the role of self-compassion in the competitive sport setting by reviewing the current research. A literature search was conducted using PsycINFO, PsycARTICLES, PSYNDEX, and SPORTDiscus. Eligibility criteria were peer-reviewed publication, publication in English, original research and research investigating self-compassion in competitive athletes. From 17 publications that met the inclusion criteria, we identified 19 studies, most of which were quantitative, employing a cross-sectional design. Additionally, we found only one intervention study, one experimental study and four qualitative studies using interviews. We provided an integrative narrative description of the study aims, hypotheses, methodological characteristics and study results. Based on the reviewed findings we concluded that future research should relate their research question more often to existing theoretical models and that more intervention and longitudinal studies are needed. Thus far, qualitative studies highlight the potential ambivalence of athletes towards SC. Quantitative research indicates that SC is beneficial for athletes’ well-being and their ability to deal with adversities in sports, whereas the role of self-compassion for self-improvement motivation remains unclear.

scholarly journals Kesejahteraan Spiritual Keluarga Pasien Stroke dan Kaitannya dengan Depresi

2016 ◽  
Vol 3 (3) ◽  
pp. 129
Author(s):  
Muhamad Zulfatul A’la ◽  
Komarudin Komarudin ◽  
Defi Efendi
Keyword(s):  
Palliative Care ◽  
Family Caregiver ◽  
Depression Scale ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional ◽  
The Family ◽  
Spiritual Well Being ◽  
Depression Assessment ◽  
Cross Sectional Design

<p>Stroke is a one of major problem in palliative care. Spiritual and depression assessment of the family is an important element in the process of palliative care for stroke survivors. The purpose of this study was to know the description of the spiritual well-being among stroke family caregiver family and its relationship with depression. This study used cross-sectional design. Spiritual well-being scale (SWBS) was used to see the spiritual well-being of the family and the Center for Epidemiologycal Studies Depression Scale (CES-D) to measure depression and was filled in by 44 Stroke families. The results of the study reported that the spiritual well-being of stroke family caregiver was in the high category and depression in the medium category. There was a relationship between the spiritual well-being of the family and depression in stroke patients (p=0.000). This study suggest a comprehensive assessment of the spiritual well-being and depression in stroke family and the need for future research about family interventions to decrease depression and increase spiritual well-being.</p>

scholarly journals Examining the Range and Scope of Artists’ Professional Practices With Individuals With Palliative Care Needs: An International, Cross-Sectional Online Survey

2021 ◽  
Vol 12 ◽  
Author(s):  
Jenny Baxley Lee ◽  
Sonja McIlfatrick ◽  
Lisa Fitzpatrick
Keyword(s):  
Palliative Care ◽  
Online Survey ◽  
Research Policy ◽  
Well Being ◽  
Professional Practices ◽  
Future Research ◽  
Care Needs ◽  
Cross Sectional ◽  
Wide Range ◽  
Palliative Care Needs

Background: Internationally, it is recognized that artists facilitate arts engagement with individuals with palliative care needs. There is a gap in the literature describing the range and scope of artists’ professional practices in palliative care. The aim of this study was to examine an international range of professional practices among artists who work in palliative care including key professionals’ perceptions of these practices.Methods: An international, cross-sectional, online survey was conducted with health professionals, artists, and program coordinators with experience with artists working in palliative care. This survey was part of a larger mixed methods study. An instrument was systematically developed to examine artists’ professional practices. Descriptive statistics were reported for the total sample including frequencies, means and standard deviations and open-ended items were analyzed thematically.Results: 101 valid surveys were analyzed. Findings outlined: (1) who delivers the arts; (2) where and with whom; (3) practice descriptors; and (4) perceptions of practice. Themes identified from open-ended items on benefits and risks of practice revealed impacts on patients and artists alike, including: (1) enhanced well-being; (2) vulnerabilities; and (3) facilitators and barriers.Conclusion: Findings demonstrated a wide range of artists’ practices in palliative and end-of-life care, featuring notable consistencies in international practice worth further exploration. Ongoing and international efforts examining artists’ practices in palliative care contribute to the development of future research, policy and practice.

scholarly journals Felt Needs of Cancer Palliative Care Professionals Working in India: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-8
Author(s):  
Amanpreet Kaur ◽  
Mahendra P. Sharma ◽  
Santosh K. Chaturvedi
Keyword(s):  
Palliative Care ◽  
Self Care ◽  
Structured Interview ◽  
Psychological Needs ◽  
Direct Patient Care ◽  
Future Research ◽  
Spiritual Needs ◽  
Cross Sectional ◽  
Professional Experiences ◽  
Interview Guide

Objectives: Cancer palliative care professionals face a plethora of challenges related to death, dying and suffering apart from limited workforce and other resources in India. However, the grief held by them is underappreciated and psychological needs are under explored. The aim of the present study was to explore felt needs of cancer palliative care professionals working in India. Materials and Methods: The study was cross-sectional, qualitative and in-depth in nature. It was conducted across four cancer palliative care centers in Bengaluru city of India. sample consisted of 15 professionals (mean age = 42 years and standard deviation = 8.41) with at least six months of experience, involved in direct patient care who gave an additional consent for audio-recording. The tools used were sociodemographic and professional datasheet and semi-structured interview guide, which were developed for the present study and validated from five experts. Thematic analysis was used to generate and analyze patterns within the qualitative data. Results: Five themes were identified, namely, death and grief; challenges in practice; strategies for self-care; positive professional experiences; and vision for palliative care. Conclusion: The cancer palliative care professionals need regular support in coping with death and grief, regular trainings and supervision across workplace to deal with occupational challenges, and to address their self-care and spiritual needs. The study highlights need to introduce more specialized training courses in handling pediatric patients, increase palliative care workforce, and hospice units. This can have implications in future research and training with development of innovative interventions to address these needs and challenges.

Sign in / Sign up

Export Citation Format

Share Document