scholarly journals Current genetic service delivery models in Europe: interim results of a cross-sectional study

2018 ◽  
Vol 28 (suppl_4) ◽  
Author(s):  
B Unim ◽  
T Lagerberg ◽  
E Pitini ◽  
G Adamo ◽  
C De Vito ◽  
...  
2015 ◽  
Vol 15 (1) ◽  
Author(s):  
Ramón Escuriet-Peiró ◽  
Josefina Goberna-Tricas ◽  
Maria J Pueyo-Sanchez ◽  
Neus Garriga-Comas ◽  
Immaculada Úbeda-Bonet ◽  
...  

10.2196/23523 ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. e23523
Author(s):  
Melissa Raspa ◽  
Rebecca Moultrie ◽  
Danielle Toth ◽  
Saira Naim Haque

Background Advances in diagnostics testing and treatment of genetic conditions have led to increased demand for genetic services in the United States. At the same time, there is a shortage of genetic services professionals. Thus, understanding the models of service delivery currently in use can help increase access and improve outcomes for individuals identified with genetic conditions. Objective This review aims to provide an overview of barriers and facilitators to genetic service delivery models to inform future service delivery. Methods We conducted a scoping literature review of the evidence to more fully understand barriers and facilitators around the provision of genetic services. Results There were a number of challenges identified, including the limited number of genetics specialists, wait time for appointments, delivery of services by nongenetics providers, reimbursement, and licensure. The ways to address these challenges include the use of health information technology such as telehealth, group genetic counseling, provider-to-provider education, partnership models, and training; expanding genetic provider types; and embedding genetic counselors in clinical settings. Conclusions The literature review highlighted the need to expand access to genetic services. Ways to expand services include telehealth, technical assistance, and changing staffing models. In addition, using technology to improve knowledge among related professionals can help expand access.


Author(s):  
MN Anusha ◽  
KS Sathveeka ◽  
J Maria ◽  
G Sangeetha ◽  
G Saranyaa

Introduction: The global Coronavirus Disease 2019 (COVID-19) outbreak has resulted in numerous difficulties and drawbacks in our daily life. Despite causing mortality, it has halted the therapeutic facilities because of the in-person interaction involved in it. Communication difficulties have been aggravated which seeks for immediate attention as it can lead to a lack of improvement in communication delays observed in children with Hearing Impairment (HI). Aim: To highlight the communication challenges faced by children with hearing impairment and consequently investigate the effectiveness and need for telepractice during the Lockdown. It also aims to improve the service delivery models. Materials and Methods: A cross-sectional descriptive study was conducted in MERF Institute of Speech and Hearing, Chennai from July 2020 to August 2020. A convenience sampling was opted for enrolling the participants in the study.The questionnaire was administered to the parents in two modalities- telephonic survey and electronic format. The data analysis was done by frequency counting and percentage calculation. Results: The findings of the current study suggest that the speech and language performances have worsened for 35% (due to lack of formal stimulation, device malfunction, etc.,), improved for 35% (due to intensive home training, adequate stimulation, etc.,) and no difference has been noted for 30% of children with HI during the lockdown. 23 (57.5%) parents were aware of the Telepractice services, and those unaware were oriented. 12 (40%) respondents opted for other modalities of assistance instead of Telepractice services. Conclusion: The communication challenges faced, calls for seamless intervention during the lockdown. The introduction of Teletherapy proves to be beneficial and hence, the ultimate goal is to integrate telerehabilitation services into clinical facilities. Alternatives of service delivery models should be utilised optimally.


2021 ◽  
Author(s):  
Keith Baleeta ◽  
Augustin Muhwezi ◽  
Nathan Tumwesigye ◽  
Betty Nsangi Kintu ◽  
Sara Riese ◽  
...  

Abstract Background The World Health Organization and Uganda Ministry of Health recommend differentiated service delivery models (DSDM) as patient-focussed approaches for delivering antiretroviral therapy for people living with HIV/AIDS (PLHIV) who have undetectable viral loads. We sought to determine the factors significantly associated with patient satisfaction with ART services amongst PLHIV enrolled in DSDMs. Methods This was a cross-sectional study of a random sample of PLHIVs accessing ART within DSDMs at nine facilities in East Central Uganda. Eligible patients were adult PLHIVs active on ART and enrolled in a DSDM (Community Client Led ART Delivery (CCLAD), Community Drug Distribution Points (CDDP) and Fast-Track Drug Refill (FTDR) models) for at-least twelve months. Data was collected over two months (June-July 2019). A validated tool was used to assess PLHIV satisfaction with service delivery in DSD. Logistic regression was used to establish factors associated with patient satisfaction with DSD services. Results Overall out of the 842 participants enrolled onto the study, 530(63.5%) accessed HIV care through CDDPs, 166(20.1%) through CCLAD, and 146 (16.3%) through FTDR DSDMs. Generally, 541 (64.2%) were satisfied with DSDM services : 78.7% in CDDP, 42.8% in CCLAD and 36.3% in CCLAD. The factors associated with patient satisfaction were being on CDDP [aOR = 3.42, 95% CI = 2.15–5.44] and FTDR[aOR = 2.92, 95% CI = 1.34–6.31] DSDMs relative to CCLAD, greater than three years on DSDM [aOR = 2.32, 95% CI = 1.12–4.87], lower transport costs (< $ 1.35) per clinic visit [aOR = 2.39, 95% CI = 1.59–3.60] being employed either in agriculture[aOR = 4.41, 95% CI = 2.62–7.41] or any other employment sector [aOR = 4.22, 95% CI = 2.46–7.27]relative to being unemployed, participation of a friend/relative [aOR = 1.79, 95% CI = 1.22–2.61] and not drinking alcohol [aOR = 2.33, 95% CI = 1.24–4.29]. Conclusions The study highlighted that 64.2% of the patients are satisfied with services in DSDM. Service delivery factors (DSDM model type, time spent in DSDM, and having friend or relative enrolled at the ART point providing social support), social factors (employment, and alcohol consumption), and transport costs were all associated with patient satisfaction with DSDM. Implementers of DSDMs need to further adapt services to address these factors to improve patient satisfaction in DSDMs.


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