scholarly journals Supporting Persons With Severe Dementia in Communicating Their Preferences

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 454-454
Author(s):  
Vanessa Burshnic ◽  
Michelle Bourgeois
Keyword(s):  
Care Plan ◽  
Preference Assessments ◽  
Severe Dementia ◽  
Person Centered Care ◽  
Government Mandates ◽  
Centered Care ◽  
Communication Challenges ◽  
External Supports ◽  
Validity Measure ◽  
Everyday Living

Abstract Government mandates require US nursing homes to provide preference-based, person-centered care. Persons with dementia (PWD) are less likely to have a role in preference assessments (PAs) used for care planning due to communication challenges associated with the disease. Thus, PWD are at risk of receiving de-personalized treatments. External supports (photograph and text cues) are known to improve communication in PWD. Yet these cues have never been studied with widely used PAs, such as the MDS 3.0 Section F and Preferences for Everyday Living Inventory (PELI). This study examined the effect of two PA conditions (externally supported; standard verbal) on preference consistency and response types (off-topic, clarification requests, elaboration) of residents with severe dementia (N=21) (BIMS < 7) when assessed twice, one-week apart. PA questions were derived from the MDS 3.0 Section F and PELI. As a social validity measure, naïve judges (N=10) listened to interviews and rated residents’ communication clarity and their confidence understanding residents’ preferences. Results showed that neither condition promoted significantly greater levels of consistency over time. Residents’ ‘clarification requests’ were significantly fewer with use of external supports. Other response types were not significantly different across conditions. Judges’ ratings were not significantly different across conditions; however, they rated residents’ communication as clear and understandable overall. This study addresses a gap in current research and holds important implications for helping providers meet government mandates and enhance care plan participation by residents with severe dementia and other communication challenges.

scholarly journals We're Still Very Much in Limbo: Providers' Perspectives on Implementing a Person-Centered Project

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 270-270
Author(s):  
Megan Kelley ◽  
Alex Heppner ◽  
Kimberly Van Haitsma ◽  
Katherine Abbott ◽  
Miranda Corpora
Keyword(s):  
Nursing Home ◽  
Thematic Analysis ◽  
Implementation Process ◽  
Barriers And Facilitators ◽  
Future Thinking ◽  
Person Centered Care ◽  
Centered Care ◽  
Everyday Living ◽  
Recreation And Leisure

Abstract Background The Preferences for Everyday Living Inventory assists nursing home (NH) providers in assessing residents’ preferences and can be used to make Preferences for Activity and Leisure (PAL) Cards, which are personalized 5x7 laminated cards that reflect a resident’s recreation and leisure preferences. We sought to understand the barriers and facilitators to implementing PAL Cards in NH communities during COVID-19. Methods NH providers from five states (n=29) were recruited to create PAL Cards in their communities. Monthly coaching calls with project champions assessed the implementation process. Calls were recorded, transcribed verbatim, checked for accuracy, and coded via thematic analysis. Results Four themes emerged: Adapting to COVID, Preoccupied with COVID, Future Thinking, and PAL Cards Filling the Gaps. Conclusion Some providers were successful adapting to COVID, while others struggled to implement a new program during the pandemic. Those that were successful expressed how PAL Cards helped promote person-centered care.

scholarly journals The Consistency of Self-Reported Preferences for Everyday Living: Implications for Person-Centered Care Delivery

2014 ◽  
Vol 40 (10) ◽  
pp. 34-46 ◽  
Author(s):  
Kimberly Van Haitsma ◽  
Katherine M. Abbott ◽  
Allison R. Heid ◽  
Brian Carpenter ◽  
Kimberly Curyto ◽  
...  
Keyword(s):  
Care Delivery ◽  
Person Centered Care ◽  
Centered Care ◽  
Everyday Living

scholarly journals I’m Completely Satisfied But…: Barriers and Facilitators to Fulfilling Nursing Home Residents’ Preferences

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 836-837
Author(s):  
Caroline Madrigal ◽  
Liza Behrens ◽  
Vanessa Burshnic ◽  
Julie Murpy ◽  
Katherine Abbott ◽  
...  
Keyword(s):  
Nursing Home Residents ◽  
Secondary Data ◽  
Preference Assessment ◽  
Person Centered Care ◽  
Government Mandates ◽  
Centered Care ◽  
Physical Abilities ◽  
Us Federal Government ◽  
Social Support Systems

Abstract The US federal government mandates nursing homes (NHs) provide preference-based, person-centered care for residents. Yet only 2% of NHs successfully implement person-centered care. The Care Preference Assessment of Satisfaction (ComPASS) is a 16-item tool that facilitates residents’ preference fulfillment (i.e., satisfaction with quality of daily care and activities). This study examines barriers/facilitators to preference fulfillment from the perspective of residents who completed ComPASS. Secondary data analysis from an R21 (NR011334-01) provided qualitative data from 196 residents across 28 NHs on why residents were satisfied (or not) with the fulfillment of their individual preferences. Most residents were female (70.4%) and white (80.1%) with a range of cognitive/physical abilities. Content analysis revealed six thematic codes classifying barriers/facilitators to preference fulfillment: resident agency, values, and physical characteristics; social support systems; staff competence; communication success; built environment; access to resources. Discussion will include implications for ameliorating barriers to preference fulfillment while meeting government mandates. Part of a symposium sponsored by the Research in Quality of Care Interest Group.

scholarly journals A Machine Learning Recommender System to Tailor Preference Assessments to Enhance Person-Centered Care Among Nursing Home Residents

2018 ◽  
Vol 59 (1) ◽  
pp. 167-176 ◽  
Author(s):  
Gerald C Gannod ◽  
Katherine M Abbott ◽  
Kimberly Van Haitsma ◽  
Nathan Martindale ◽  
Alexandra Heppner
Keyword(s):  
Machine Learning ◽  
Nursing Home ◽  
Recommender System ◽  
Nursing Home Residents ◽  
Preference Assessments ◽  
Person Centered Care ◽  
Centered Care

scholarly journals Continuity of Health, Citizen Empowerment as Key Driver

2020 ◽  
Author(s):  
Jacob Hofdijk ◽  
Felix Cillessen
Keyword(s):  
Significant Role ◽  
Social Determinants ◽  
Care Plan ◽  
Self Management ◽  
Person Centered Care ◽  
Citizen Empowerment ◽  
Centered Care ◽  
Key Driver

Self-management for prevention and care will play a significant role in the transition to apply person-centered care. Interoperability requirements, an overarching care plan, integration of social determinants, and the focus on prevention are important ingredients in the vision on its implementation.

scholarly journals CARE BASED ON PREFERENCES: EXPERIENCES OF RESIDENTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S74-S74
Author(s):  
Martina Roes ◽  
Daniel Purwins ◽  
Tobias Stacke ◽  
Christina Manietta ◽  
Johannes Bergmann
Keyword(s):  
Cognitive Interview ◽  
Care Recipient ◽  
Institutional Barriers ◽  
Individual Preferences ◽  
Person Centered Care ◽  
Centered Care ◽  
Level Of Understanding ◽  
The Individual ◽  
Close Relatives ◽  
Everyday Living

Abstract To provide person-centered care, professional caregivers need to know about the individual preferences of the persons being cared for. Since there were no comparable instruments available, we translated the PELI (Preferences for Everyday Living Inventory) and tested the culturally translated version in German nursing homes. Besides testing for reliability and feasibility in German care settings, were are asking for satisfaction in fulfilling of the preferences and reasons for personal or institutional barriers that hinder adherence to the preferences. Furthermore, to determine the level of understanding and meaning of preferences, we interview a few residents and their close relatives in a cognitive interview. Preliminary results of the perspective of the care recipient will be presented.

scholarly journals Person-Centered Care Coordination Next Steps in a Long Journey

2021 ◽  
Author(s):  
Jacob Hofdijk ◽  
Felix Cillessen
Keyword(s):  
Age Groups ◽  
Care Plan ◽  
Integrated Network ◽  
Person Centered Care ◽  
The Social ◽  
Health And Social Care ◽  
Centered Care ◽  
Health And Disease ◽  
Excellent Care ◽  
Huge Challenge

Citizens of the Netherlands receive excellent care, when they need it, insurance based funded according to the solidarity principle. Maintaining this system is a huge challenge, as we live longer and the demand for care is growing. With an increasing percentage of multi-morbidity in all age groups the need for integrated network organized care is growing at equal pace. Gradually the need to shift focus to prevention is increasingly understood, but a challenging business model is still lacking. The involvement of citizens in maintaining their health requires a focus on managing the social determinants of health. The concept of the holistic problem list and the overarching care plan provides a unique way to combine both health and disease management. Our vision is to bring control to the patient and promote coordination of all active problems across the health and social care network.

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