scholarly journals Dementia care providers’ delivery of family caregiver support during COVID-19

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 941-941
Author(s):  
Emma Quach ◽  
Emily Franzosa ◽  
Rachael Scali ◽  
Lauren Moo ◽  
Christine Hartmann
Keyword(s):  
New England ◽  
Support Groups ◽  
Support Services ◽  
Family Caregiver ◽  
Ad Hoc ◽  
Skills Training ◽  
Dementia Care ◽  
Future Research ◽  
Care Providers ◽  
Caregiver Support

Abstract Family caregiver support is a cornerstone of dementia care. Yet the transition to virtual care during COVID raised questions about the ability of dementia care teams to maintain caregiver support services. We surveyed Veterans Affairs clinicians about dementia caregiver support delivery following the COVID surge in the six New England states. 38 out of 68 (55%) clinicians from 6 states responded in June and July 2020. We found: 1) Clinicians continued providing the same types of support services for family caregivers before and after COVID, with over 50% of providers interacting with caregivers daily or multiple times per week. The most prevalent services were caregiver needs assessments, information and referrals, and assistance with accessing services. Two-thirds reported continuing to offer caregiver skills training and counseling, including peer support groups. 2) Caregiver support modality changed, most frequently through the combined use of phone and video, followed by only phone, and rarely, by only video. 3) Providers indicated that phone, more than video, increased to replace in-person interactions, because of multiple factors: caregivers (who continued to call for support on an as-needed basis but declined video encounters), providers (who began to provide group support via phone), and service factors (ad hoc versus scheduled encounters). Results suggest clinicians continued providing caregiver support despite suspension of in-person interactions, but future research is needed to assess the impacts of caregiver support delivery mostly by phone and factors underlying the limited use of video in delivering caregiver support.

Evaluation of Community-Based Support Services for Families of Persons with Developmental Disabilities

1989 ◽  
Vol 14 (4) ◽  
pp. 312-323 ◽  
Author(s):  
George H. S. Singer ◽  
Larry K. Irvin ◽  
Blair Irvine ◽  
Nancy Hawkins ◽  
Elizabeth Cooley
Keyword(s):  
Family Support ◽  
Support Groups ◽  
Support Services ◽  
Small Sample Size ◽  
Skills Training ◽  
Severe Disabilities ◽  
Respite Care ◽  
Small Sample ◽  
Community Based ◽  
Training Support

This article presents an evaluation of a multi-element parent and family support intervention for parents of school-aged persons with severe disabilities. Using an experimental design, we compared two randomly assigned groups of parents: one group received a modest level of support consisting of respite care and case management, and the second group received an intensive intervention that consisted of stress management and parenting skills training, support groups, and additional community-based respite care. Separate MANCOVA analyses were conducted for mothers and fathers. Mothers showed significant improvement on measures of depression and anxiety. Further analysis of the data revealed that a significantly greater number of intensive support group members also achieved clinically significant improvement on measures of anxiety and depression. Fathers participated in smaller numbers than mothers. A power analysis revealed large treatment effects for fathers as well as mothers although, due to the small sample size, the results for fathers were significant at p = 0.07. Analyses of 1-year follow-up data revealed that treatment gains maintained for mothers. We discuss the results and limitations of this study in light of current efforts to create family support services nationwide.

Family caregiver support groups: spiritual reflections’ impact on stress management

2016 ◽  
Vol 22 (1) ◽  
pp. 70-76 ◽  
Author(s):  
Thecla Damianakis ◽  
Kimberley Wilson ◽  
Elsa Marziali
Keyword(s):  
Stress Management ◽  
Support Groups ◽  
Family Caregiver ◽  
Caregiver Support

Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program

2019 ◽  
Vol 39 (4) ◽  
pp. 368-376 ◽  
Author(s):  
Rebecca Bruening ◽  
Nina Sperber ◽  
Katherine Miller ◽  
Sara Andrews ◽  
Karen Steinhauser ◽  
...  
Keyword(s):  
Support Groups ◽  
Rural Areas ◽  
Lessons Learned ◽  
Support Program ◽  
Future Research ◽  
Structured Interviews ◽  
Supportive Services ◽  
Caregiver Support ◽  
National Priority ◽  
Caregiver Interventions

Development and evaluation of supportive caregiver interventions has become a national priority. This study’s aim was to evaluate how caregivers participating in the Department of Veterans Affairs (VA) Caregiver Support Program (CSP) use and value supportive services. Qualitative semi-structured interviews ( N = 50 caregivers) were the core of a mixed-methods design, and surveys ( N = 160) were supplemental. Caregivers who had used CSP services valued emotional, functional, and health care navigational support, calling support groups and the program coordinator their “lifeline.” However, many described a lack of connection with the program—not knowing about or successfully engaging in program services—and needed more information about available resources. Caregivers in rural areas or caring for individuals with specific diseases reported needing tailored services to meet their unique needs. Policy makers and practitioners should proactively promote supportive services for caregivers. Future research should explore strategies for reducing barriers to accessing tailored support to meet the needs of a diverse caregiver population.

China

2019 ◽  
pp. 29-32
Author(s):  
Huali Wang ◽  
Hengge Xie
Keyword(s):  
Support Groups ◽  
Community Services ◽  
Dementia Care ◽  
Ageing Population ◽  
Caregiver Support ◽  
Care Community ◽  
Dementia Screening ◽  
Dementia Prevention ◽  
Memory Clinics

With an ageing population, dementia care has become a great challenge in China. This chapter reviews the current major resources in dementia care in China. Memory clinics are the primary setting for diagnosis and management. Caregiver support groups and social media provide mainstream support to caregivers. This chapter also highlights the role of the community in dementia care. Community services are essential to health education, dementia screening, and home care support. In addition, the chapter discusses the role of collaborative research networks and point out that both research on services and dementia prevention are important. The chapter concludes by calling for action to address the priorities of dementia care.

scholarly journals Perspectives on Dementia Service Use and Family Caregiving Among the Oneida Nation of Wisconsin

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 710-710
Author(s):  
Mary Wyman ◽  
Nickolas Lambrou ◽  
Debra Miller ◽  
Sunshine Wheelock ◽  
Florence Petri ◽  
...  
Keyword(s):  
Family Caregiver ◽  
Family Caregiving ◽  
Service Use ◽  
Care Service ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Dementia Care ◽  
Community Based ◽  
Caregiver Support ◽  
The Family

Abstract Prevalence of dementia among American Indian/Alaska Natives (AI/AN) is higher than in white populations, and AI/AN communities experience dementia care service gaps. This study explored perspectives within AI/AN communities regarding dementia, the family caregiver role, and home and community-based service use. Using tenets of Community-Based Participatory Research, qualitative interviews and a brief survey were conducted with 22 members of the Oneida Nation of Wisconsin (mean age 71 years, 73% female). Of the sample, 63.6% identified as a past or current family caregiver for a loved one with dementia. Awareness of services varied; 82% were aware of memory cafes, 75% knew of the caregiver support group, and 43% were familiar with dementia care specialist services. Thematic analysis revealed shared values of involving the family and community in dementia care, and offer guidance to support greater engagement in services. Implications for culturally-tailored service provision within AI/AN communities are discussed.

scholarly journals SUPPORT AND EDUCATION NEED FULFILLMENT IN INFORMAL DEMENTIA CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S286-S286
Author(s):  
Nicholas James ◽  
Daniel Paulson
Keyword(s):  
Support Groups ◽  
Caregiver Burden ◽  
Support Services ◽  
Distance Perception ◽  
Mental Healthcare ◽  
Respite Care ◽  
Unique Contribution ◽  
Management Skills ◽  
Caregiver Support ◽  
Financial Counseling

Abstract Caregivers vary widely in their need for and utilization of support services, and there are many reasons for this (e.g., time or financial cost, distance, perception of need). This study explored the disparity between services that are desired and those that are utilized, and examined the hypothesis that unmet needs are a determinant of caregiver burden. An online sample of informal caregivers (N=151) responded to a questionnaire containing a list of common caregiver support services: sharing duties, professional transportation, respite care, non-profit community organizations, financial counseling, caregiver education programs, support groups. Participants were presented with a list of support services and information and asked to indicate A) which they desired and B) which they had received while providing care. Respite care and financial counseling were identified as support that caregivers were unable to obtain, while caregiving education and family/friend support were most commonly fulfilled. A linear regression model controlling for demographic variables was constructed. Unfulfilled support needs accounted for 40.6% of variance in caregiver burden, however the final model included only total ratio of unfulfilled services, transportation services, stress management skills, professional treatment for the caregiver, and behavioral management skills. Results highlight the unique contribution of certain support services in burden reduction. These findings imply a need to improve accessibility to caregiver support, especially those which require payment (e.g., transportation aids and mental healthcare). Further implications and actionable changes related to caregiver support services are discussed.

scholarly journals WISDOM FROM BEREAVED CAREGIVERS WHO RECEIVED NATIONAL FAMILY CAREGIVER SUPPORT SERVICES: NETWORK OPPORTUNITIES

2018 ◽  
Vol 2 (suppl_1) ◽  
pp. 924-924
Author(s):  
C Gruman ◽  
H Menne ◽  
N Vij ◽  
R Montwill ◽  
G Link
Keyword(s):  
Support Services ◽  
Family Caregiver ◽  
Caregiver Support ◽  
National Family

Acceptance of the HPV Vaccine in a Multiethnic Sample of Latinx Mothers

2021 ◽  
Vol 31 (3) ◽  
pp. 472-483
Author(s):  
Ana Cristina Lindsay ◽  
Madelyne J. Valdez ◽  
Denisse Delgado ◽  
Emily Restrepo ◽  
Yessica M. Guzmán ◽  
...  
Keyword(s):  
Health Care Providers ◽  
Thematic Analysis ◽  
Hpv Vaccine ◽  
Female Adolescents ◽  
Future Research ◽  
Care Providers ◽  
Foreign Born ◽  
Structured Interviews ◽  
Direct Benefits ◽  
Multiethnic Sample

This descriptive qualitative study explored Latinx mothers’ acceptance of the human papillomavirus (HPV) vaccine for their adolescent children. Data were collected through individual, semi-structured interviews and analyzed using a hybrid method of thematic analysis that incorporated deductive and inductive approaches. Twenty-two ( n = 22), mostly foreign-born, Latinx mothers of male and female adolescents participated in the study. Three main themes and nine subthemes emerged from the analyses. Findings identified the need for increased efforts to raise awareness and knowledge among Latinx mothers of the direct benefits of the HPV vaccine for sons, including stressing prevention of HPV-associated cancers in males. Findings also underscore the need for improved health care providers’ communication and recommendation of the HPV vaccine for Latinx adolescent males. Future research should intervene upon the study’s findings to address barriers that remain and affect Latinx mothers’ acceptance and uptake of the HPV vaccine for their children, in particular their sons.

Ways that nurse practitioner students self-explain during diagnostic reasoning

Diagnosis ◽  
2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Leah Burt ◽  
Susan Corbridge ◽  
Colleen Corte ◽  
Laurie Quinn ◽  
Lorna Finnegan ◽  
...  
Keyword(s):  
Problem Solving ◽  
Health Care Providers ◽  
Nurse Practitioner ◽  
Descriptive Analysis ◽  
Diagnostic Errors ◽  
Diagnostic Reasoning ◽  
Knowledge Structures ◽  
Future Research ◽  
Biological Knowledge ◽  
Care Providers

Abstract Objectives An important step in mitigating the burden of diagnostic errors is strengthening diagnostic reasoning among health care providers. A promising way forward is through self-explanation, the purposeful technique of generating self-directed explanations to process novel information while problem-solving. Self-explanation actively improves knowledge structures within learners’ memories, facilitating problem-solving accuracy and acquisition of knowledge. When students self-explain, they make sense of information in a variety of unique ways, ranging from simple restatements to multidimensional thoughts. Successful problem-solvers frequently use specific, high-quality self-explanation types. The unique types of self-explanation present among nurse practitioner (NP) student diagnosticians have yet to be explored. This study explores the question: How do NP students self-explain during diagnostic reasoning? Methods Thirty-seven Family NP students enrolled in the Doctor of Nursing Practice program at a large, Midwestern U.S. university diagnosed three written case studies while self-explaining. Dual methodology content analyses facilitated both deductive and qualitative descriptive analysis. Results Categories emerged describing the unique ways that NP student diagnosticians self-explain. Nine categories of inference self-explanations included clinical and biological foci. Eight categories of non-inference self-explanations monitored students’ understanding of clinical data and reflect shallow information processing. Conclusions Findings extend the understanding of self-explanation use during diagnostic reasoning by affording a glimpse into fine-grained knowledge structures of NP students. NP students apply both clinical and biological knowledge, actively improving immature knowledge structures. Future research should examine relationships between categories of self-explanation and markers of diagnostic success, a step in developing prompted self-explanation learning interventions.

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