scholarly journals Prioritizing Community in Research Decision-Making Through Partnership

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 473-474
Author(s):  
Maia Ingram ◽  
Aileen Wong ◽  
Rosie Piper ◽  
Sonia Colina ◽  
Scott Carvajal ◽  
...  
Keyword(s):  
Health Workers ◽  
Critical Role ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Lessons Learned ◽  
Cultural Humility ◽  
Research Approach ◽  
Recruitment And Retention ◽  
Southwest Borderlands ◽  
Research Decision

Abstract In behavioral intervention research, taking a community-based participatory research approach enhances recruitment and retention while facilitating the transfer of research findings into social change. Successes with recruitment and retention are secondary to enacting fundamental principles of trust, reciprocity, cultural humility, empowerment, and respect. This presentation will describe a longitudinal clinical trial in a Southwest borderlands community, Oyendo Bien. The study was co-developed and implemented with community partnership throughout the research process. Dyads were recruited to participate in a community-delivered group education and support program addressing hearing loss for Spanish-speakers age 50+ years (n=132 participants randomized). We highlight the critical role that community health workers (promotoras) held as members of the research team. Furthermore, we describe an innovative approach for language mediation that integrates and empowers community participation. This presentation will include examples of lessons learned from the community in collaborating to conduct research in a way that truly serves.

scholarly journals Case Study in Chamorro Community and Academic Engagement for a Community-Partnered Research Approach

2010 ◽  
Vol 8 (SI) ◽  
pp. 39-51 ◽  
Author(s):  
Diana M. Tisnado ◽  
Lola Sablan-Santos ◽  
Linda Guevara ◽  
Lourdes Quitugua ◽  
Keith Castro ◽  
...  
Keyword(s):  
Research University ◽  
Local Community ◽  
Academic Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Lessons Learned ◽  
Relationship Building ◽  
Research Approach ◽  
Community Based ◽  
High Quality Research

Objective: We describe the development of a community and academic research partnership, share reflections on processes for collaborations, and identify key factors for establishing strong and effective relationships to foster high-quality research. Background: A community-based participatory research (CBPR) effort evaluating a community-based patient navigation program assisting Chamorro women to access breast cancer services in Southern California served as the foundation for the development of the community-academic partnership. Methods: Using a CBPR approach focusing on active involvement of community members, organizational representatives, and academic researchers in all aspects of research process, faculty from a research university and a local community-based organization were brought together to build a partnership. Community and academic partners engaged in a series of meetings where dialogue focused on developing and nurturing trust and shared values, respect for community knowledge, and establishing community-defined and prioritized needs and goals. Partners have also focused on defining and developing explicit structures and policies to implement an equal partnership. Results: Experiences and lessons learned are shared, reflecting the processes of relationship building, and planning and implementing preliminary research steps. Lessons Learned: Adequate time for relationship-building, open and honest communication, flexibility, and ongoing examination of assumptions are keys to developing successful CBPR partnerships.

A Socially Just Leadership Approach to Community-Partnered Research for Reducing Health Disparities

2017 ◽  
Vol 45 (6) ◽  
pp. 781-809 ◽  
Author(s):  
Carolyn M. Tucker ◽  
Jaime L. Williams ◽  
Julia Roncoroni ◽  
Martin Heesacker
Keyword(s):  
Health Disparities ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Research Approach ◽  
Community Based ◽  
Guiding Principles ◽  
University Partnership ◽  
Partnership Approach ◽  
Leadership Approaches ◽  
Counseling Psychologists

Significant health disparities continue to plague many groups of people who have been systematically oppressed and largely unrepresented in health research. Community-based participatory research (CBPR) is a collaborative research approach that has been shown to be effective in addressing health disparities; a community–university partnership approach can be used to conduct this research. Counseling psychologists are well suited to establish and lead CBPR partnerships, yet there is a paucity of research to guide them in utilizing effective leadership approaches when conducting CBPR for reducing health disparities. Therefore, the aims of the present study were to (a) review existing leadership models applicable to conducting CBPR; (b) identify guiding principles of socially just leadership that emerged from the aforementioned review; (c) offer an example of how the guiding principles were used in a community–university partnership, highlighting challenges, solutions, and lessons learned; and (d) discuss the benefits of socially just leadership for counseling psychologists.

scholarly journals Voices of Community Partners: Perspectives Gained from Conversations of Community-Based Participatory Research Experiences

2020 ◽  
Vol 17 (14) ◽  
pp. 5245 ◽  
Author(s):  
Heather J. Williamson ◽  
Carmenlita Chief ◽  
Dulce Jiménez ◽  
Andria Begay ◽  
Trudie F. Milner ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Cultural Humility ◽  
Consensus Method ◽  
Community Partner ◽  
Open Communication ◽  
Community Based ◽  
Community Partners ◽  
Underserved Communities

Community-based participatory research (CBPR) has been documented as an effective approach to research with underserved communities, particularly with racial and ethnic minority groups. However, much of the literature promoting the use of CBPR with underserved communities is written from the perspective of the researchers and not from the perspective of the community partner. The purpose of this article is to capture lessons learned from the community partners’ insight gained through their experiences with CBPR. A multi-investigator consensus method was used to qualitatively code the transcripts of a CBPR story-telling video series. Seven major themes were identified: (1) expectations for engaging in research, (2) cultural humility, (3) respecting the partnership, (4) open communication, (5) genuine commitment, (6) valuing strengths and recognizing capacities, and (7) collaborating to yield meaningful results. The themes drawn from the community partner’s voice align with the tenets of CBPR advanced in the academic literature. More opportunities to include the community voice when promoting CBPR should be undertaken to help introduce the concepts to potential community partners who may be research cautious.

scholarly journals A novel recruiting and surveying method: Participatory research during a Pacific Islander community’s traditional cultural event

2015 ◽  
Vol 8 (1) ◽  
pp. 150-59 ◽  
Author(s):  
Grace Donoho ◽  
Pearl McElfish ◽  
Rachel Avants ◽  
Emily Hallgren
Keyword(s):  
Participatory Research ◽  
Service Providers ◽  
Minority Group ◽  
Pacific Islander ◽  
Health Assessment ◽  
Community Based Participatory Research ◽  
The United States ◽  
Research Process ◽  
Lessons Learned ◽  
Cultural Event

Little is known about the health status of Marshallese, a Pacific Islander subpopulation living in the United States. The Marshallese have established a growing community in Northwest Arkansas, providing a unique opportunity for increasing knowledge regarding the health of this minority group. This article describes how a community-based participatory research process was used by a community and university coalition to identify and refine questionnaires and recruit study participants. Questionnaires were self-administered on computers during a one-week traditional cultural event. A total of 874 Marshallese from Arkansas completed the questionnaire, exceeding the goal of 600 respondents. Lessons learned, including the level and timing of involvement of both the leadership and the community at large, are discussed in detail. This approach enhanced communication and collaboration between the Marshallese community, service providers and researchers, resulting in higher participation and interest among the Marshallese community.Keywords: participatory research, minority populations, community health assessment, community coalition, Marshallese

Innovating for Transformation in First Nations Health Using Community-Based Participatory Research

2018 ◽  
Vol 28 (7) ◽  
pp. 1036-1049 ◽  
Author(s):  
Grace Kyoon-Achan ◽  
Josée Lavoie ◽  
Kathi Avery Kinew ◽  
Wanda Phillips-Beck ◽  
Naser Ibrahim ◽  
...  
Keyword(s):  
First Nations ◽  
Participatory Research ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Study Data ◽  
Lessons Learned ◽  
Research Approach ◽  
Sustainable Change ◽  
Community Based ◽  
Participatory Research Approach

Community-based participatory research (CBPR) provides the opportunity to engage communities for sustainable change. We share a journey to transformation in our work with eight Manitoba First Nations seeking to improve the health of their communities and discuss lessons learned. The study used community-based participatory research approach for the conceptualization of the study, data collection, analysis, and knowledge translation. It was accomplished through a variety of methods, including qualitative interviews, administrative health data analyses, surveys, and case studies. Research relationships built on strong ethics and protocols to enhance mutual commitment to support community-driven transformation. Collaborative and respectful relationships are platforms for defining and strengthening community health care priorities. We further discuss how partnerships were forged to own and sustain innovations. This article contributes a blueprint for respectful CBPR. The outcome is a community-owned, widely recognized process that is sustainable while fulfilling researcher and funding obligations.

Addressing Mental Health Disparities in Refugee Children Through Family and Community-Based Prevention

2018 ◽  
pp. 137-164
Author(s):  
Theresa S. Betancourt ◽  
Rochelle L. Frounfelker ◽  
Jenna M. Berent ◽  
Bhuwan Gautam ◽  
Saida Abdi ◽  
...  
Keyword(s):  
Mental Health ◽  
New England ◽  
Home Visiting ◽  
Intervention Program ◽  
Health Workers ◽  
Lessons Learned ◽  
Research Approach ◽  
Pilot Phase ◽  
Community Based ◽  
Family Based

This chapter presents an overview of a family-based intervention program and the impact it has on outcomes of parent-child relationships, family functioning, and child mental health among Bhutanese and Somali Bantu refugees in New England. The program uses a Community Based Participatory Research approach, emphasizing strong community engagement, support from community advisory boards, and the use of refugee community health workers to implement the home-visiting Family Strengthening Intervention (FSI). The FSI uses a strengths-based approach to focus on prevention, resilience, and overcoming barriers, while improving linkages to important community resources. The program is currently in its pilot phase (n=80 families) and preparing for scaling-up (n=300 families) with adaptations based on preliminary findings and lessons learned. A mixed-methods design is used to assess the effectiveness of the FSI and inform next stages of the research. This chapter presents preliminary findings of formative work and from the pilot phase of the program.

Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

2018 ◽  
Vol 17 (2) ◽  
pp. 186-207 ◽  
Author(s):  
Sabra L Katz-Wise ◽  
Annie Pullen Sansfaçon ◽  
Laura M Bogart ◽  
Milagros C Rosal ◽  
Diane Ehrensaft ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Research Process ◽  
Lessons Learned ◽  
Community Partner ◽  
Community Members ◽  
Community Based ◽  
Gender Nonconforming ◽  
And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

scholarly journals A Cohesive Research Approach to Assess Care-Related Quality of Life: Lessons Learned From Adapting an Easy Read Survey With Older Service Users With Cognitive Impairment

2019 ◽  
Vol 18 ◽  
pp. 160940691985496 ◽  
Author(s):  
Lyn Phillipson ◽  
Louisa Smith ◽  
James Caiels ◽  
Ann-Marie Towers ◽  
Susan Jenkins
Keyword(s):  
Quality Of Life ◽  
Cognitive Impairment ◽  
Service Providers ◽  
Research Process ◽  
Lessons Learned ◽  
Cognitive Interviewing ◽  
Research Approach ◽  
Service Users ◽  
Life Lessons

New or adapted methods and tools are needed to ensure the voices of older people with cognitive impairment and dementia are included in evaluations of care services which aim to support their quality of life (QoL). In this study, cognitive interviewing practices were used with a group of 26 older service users with cognitive impairment from two service providers in New South Wales, Australia, to test and modify the Adult Social Care Outcomes Toolkit Easy Read (ER) survey to improve its suitability for this cohort. We used Antonovsky’s “sense of coherence” framework to describe our research approach and how it was adapted to provide a manageable, meaningful, and comprehensible experience for our participants. While the modified ER format made the survey more comprehensible and meaningful, it was the techniques of cognitive interviewing that made the research approach manageable. We argue that while ER does support the research process for older service users with cognitive impairment, combining ER pictorials with the qualitative interactions with the researcher, in particular cognitive interviewing strategies, is needed to support a cohesive approach to assess care-related QoL in this vulnerable group.

scholarly journals Cocreating an Evaluation Approach for a Healthy Relationships Program With Community Partners: Lessons Learned and Recommendations

2021 ◽  
pp. 109821402199757
Author(s):  
Maisha M. Syeda ◽  
Meghan Fournie ◽  
Maria C. Ibanez ◽  
Claire V. Crooks
Keyword(s):  
Community Based Participatory Research ◽  
Research Process ◽  
Lessons Learned ◽  
Community Based ◽  
Community Partners ◽  
Healthy Relationships ◽  
Vulnerable Youth ◽  
Evaluation Approach ◽  
Trauma Informed ◽  
Health Programming

Community-based partnerships are integral to mental health programming and research. However, there are limited published guidelines that apply the principles of community-based participatory research (CBPR), especially within the context of supporting vulnerable youth populations. This article demonstrates the application of the CBPR principles in cocreating an evaluation approach for a healthy relationships program for vulnerable youths with community partners. We present our research procedures and activities and highlight the importance of having a trauma-informed lens and flexibility with the research process and outcomes. We conclude the article by sharing our lessons learned and providing recommendations for future CBPR with vulnerable youths.

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