Cocreating an Evaluation Approach for a Healthy Relationships Program With Community Partners: Lessons Learned and Recommendations

Community-based partnerships are integral to mental health programming and research. However, there are limited published guidelines that apply the principles of community-based participatory research (CBPR), especially within the context of supporting vulnerable youth populations. This article demonstrates the application of the CBPR principles in cocreating an evaluation approach for a healthy relationships program for vulnerable youths with community partners. We present our research procedures and activities and highlight the importance of having a trauma-informed lens and flexibility with the research process and outcomes. We conclude the article by sharing our lessons learned and providing recommendations for future CBPR with vulnerable youths.

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Enhancing racial equity in LIS research by increasing representation of BIPOC

Education for Information ◽

10.3233/efi-211530 ◽

2021 ◽

Vol 37 (2) ◽

pp. 247-256

Author(s):

Charles R. Senteio ◽

Kaitlin E. Montague ◽

Bettina Campbell ◽

Terrance R. Campbell ◽

Samantha Seigerman

Keyword(s):

Social Justice ◽

Participatory Research ◽

Community Based Participatory Research ◽

Health Inequity ◽

Lessons Learned ◽

Social Injustice ◽

Racial Equity ◽

Community Based ◽

Community Partners ◽

Racial Injustice

The escalation of discourse on racial injustice prompts novel ideas to address the persistent lack of racial equity in LIS research. The underrepresentation of BIPOC perspectives contributes to the inequity. Applying the Community Based Participatory Research (CBPR) approach meaningfully engages BIPOC to help guide LIS investigations that identify evolving needs and concerns, such as how systematic racism may contribute to social justice issues like environmental and health inequity. Engaging with BIPOC, using the CBPR approach, can help address racial equity in LIS because it will result in increased racial representation which enables incorporation of the perspectives and priorities of BIPOC. This shift to greater engagement is imperative to respond to escalating attention to social injustice and ensure that these central issues are adequately reflected in LIS research. The discipline is positioned to help detail the drivers and implications of inequity and develop ways to address them. We underscore the importance of working across research disciplines by describing our CBPR experience engaging with BIPOC in LIS research. We highlight the perspectives of community partners who have over two decades of experience with community-based LIS research. We offer lessons learned to LIS researchers by describing the factors that make these initiatives successful and those which contribute to setbacks.

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Voices of Community Partners: Perspectives Gained from Conversations of Community-Based Participatory Research Experiences

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph17145245 ◽

2020 ◽

Vol 17 (14) ◽

pp. 5245 ◽

Cited By ~ 1

Author(s):

Heather J. Williamson ◽

Carmenlita Chief ◽

Dulce Jiménez ◽

Andria Begay ◽

Trudie F. Milner ◽

...

Keyword(s):

Participatory Research ◽

Community Based Participatory Research ◽

Lessons Learned ◽

Cultural Humility ◽

Consensus Method ◽

Community Partner ◽

Open Communication ◽

Community Based ◽

Community Partners ◽

Underserved Communities

Community-based participatory research (CBPR) has been documented as an effective approach to research with underserved communities, particularly with racial and ethnic minority groups. However, much of the literature promoting the use of CBPR with underserved communities is written from the perspective of the researchers and not from the perspective of the community partner. The purpose of this article is to capture lessons learned from the community partners’ insight gained through their experiences with CBPR. A multi-investigator consensus method was used to qualitatively code the transcripts of a CBPR story-telling video series. Seven major themes were identified: (1) expectations for engaging in research, (2) cultural humility, (3) respecting the partnership, (4) open communication, (5) genuine commitment, (6) valuing strengths and recognizing capacities, and (7) collaborating to yield meaningful results. The themes drawn from the community partner’s voice align with the tenets of CBPR advanced in the academic literature. More opportunities to include the community voice when promoting CBPR should be undertaken to help introduce the concepts to potential community partners who may be research cautious.

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Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

Action Research ◽

10.1177/1476750318818875 ◽

2018 ◽

Vol 17 (2) ◽

pp. 186-207 ◽

Cited By ~ 2

Author(s):

Sabra L Katz-Wise ◽

Annie Pullen Sansfaçon ◽

Laura M Bogart ◽

Milagros C Rosal ◽

Diane Ehrensaft ◽

...

Keyword(s):

Participatory Research ◽

Community Based Participatory Research ◽

Well Being ◽

Research Process ◽

Lessons Learned ◽

Community Partner ◽

Community Members ◽

Community Based ◽

Gender Nonconforming ◽

And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

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Growing a Community-Academic Partnership: Lessons Learned in Forming a Qualitative Interview Team for the Community Partners in Care Study

Ethnicity & Disease ◽

10.18865/ed.28.s2.365 ◽

2018 ◽

Vol 28 (Supp) ◽

pp. 365-370

Author(s):

Gera L. Anderson ◽

S. Megan Heller ◽

Esmeralda Pulido ◽

Phuscedia Williams ◽

Alisa Orduna ◽

...

Keyword(s):

Participatory Research ◽

Community Based Participatory Research ◽

Lessons Learned ◽

Community Members ◽

Community Based ◽

Community Partners ◽

Building Trust ◽

Study Participants ◽

Interview Team ◽

Care Study

By engaging, partnering, and building trust with community members, research on vulnerable populations may offer opportunities to improve population health in communities that suffer from health disparities. While the literature on participatory and partnered approaches offers techniques and strategies for forming community-academic partnerships, less information is available about how partnerships can grow and evolve over time. In this article, we describe the expansion of a long-standing partnership that uses principles of community partnered participatory research (CPPR), a variant of community-based participatory research (CBPR). We outline the preparation and executive phases of conducting qualitative interviewing with highly vulnerable study participants who have already been participants in a longitudinal survey. We describe the challenges and concerns at each phase of the research and summarize some lessons learned. To grow and evolve, the partnership must constantly be reaffirmed in the experiences of new members.Ethn Dis. 2018;28(Suppl 2):365- 370; doi:10.18865/ed.28.S2.365.

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Case Study in Chamorro Community and Academic Engagement for a Community-Partnered Research Approach

Californian Journal of Health Promotion ◽

10.32398/cjhp.v8isi.2041 ◽

2010 ◽

Vol 8 (SI) ◽

pp. 39-51 ◽

Cited By ~ 3

Author(s):

Diana M. Tisnado ◽

Lola Sablan-Santos ◽

Linda Guevara ◽

Lourdes Quitugua ◽

Keith Castro ◽

...

Keyword(s):

Research University ◽

Local Community ◽

Academic Research ◽

Community Based Participatory Research ◽

Research Process ◽

Lessons Learned ◽

Relationship Building ◽

Research Approach ◽

Community Based ◽

High Quality Research

Objective: We describe the development of a community and academic research partnership, share reflections on processes for collaborations, and identify key factors for establishing strong and effective relationships to foster high-quality research. Background: A community-based participatory research (CBPR) effort evaluating a community-based patient navigation program assisting Chamorro women to access breast cancer services in Southern California served as the foundation for the development of the community-academic partnership. Methods: Using a CBPR approach focusing on active involvement of community members, organizational representatives, and academic researchers in all aspects of research process, faculty from a research university and a local community-based organization were brought together to build a partnership. Community and academic partners engaged in a series of meetings where dialogue focused on developing and nurturing trust and shared values, respect for community knowledge, and establishing community-defined and prioritized needs and goals. Partners have also focused on defining and developing explicit structures and policies to implement an equal partnership. Results: Experiences and lessons learned are shared, reflecting the processes of relationship building, and planning and implementing preliminary research steps. Lessons Learned: Adequate time for relationship-building, open and honest communication, flexibility, and ongoing examination of assumptions are keys to developing successful CBPR partnerships.

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Preventing cardiovascular disease: Participant perspectives of the FAITH! Program

Journal of Health Psychology ◽

10.1177/1359105317695878 ◽

2017 ◽

Vol 24 (12) ◽

pp. 1710-1723 ◽

Cited By ~ 5

Author(s):

LaPrincess C Brewer ◽

Eleshia J Morrison ◽

Joyce E Balls-Berry ◽

Patrick Dean ◽

Kandace Lackore ◽

...

Keyword(s):

Cardiovascular Disease ◽

African Americans ◽

Participatory Research ◽

Disease Risk ◽

Cardiovascular Disease Risk ◽

Community Based Participatory Research ◽

Research Process ◽

Community Based Interventions ◽

Community Based ◽

Behavior Change Interventions

Striking cardiovascular health disparities exist among African-Americans in Minnesota compared to Whites; however, community-based interventions to address cardiovascular disease risk are lacking. This study explored participant perceptions of a culturally tailored, cardiovascular disease prevention program developed using a community-based participatory research process. Research participation perceptions, program benefits, and program satisfaction/acceptability were analyzed using a mixed-methods approach. Overall, acceptability was high. Findings highlight the favorable inclusion of African-Americans (research perception), knowledge gained about healthy lifestyle practices (benefits), and quality of the curriculum/speakers (satisfaction). Community-based participatory research may be useful in fostering the acceptability of behavior change interventions among marginalized African-American communities.

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A Socially Just Leadership Approach to Community-Partnered Research for Reducing Health Disparities

The Counseling Psychologist ◽

10.1177/0011000017722213 ◽

2017 ◽

Vol 45 (6) ◽

pp. 781-809 ◽

Cited By ~ 8

Author(s):

Carolyn M. Tucker ◽

Jaime L. Williams ◽

Julia Roncoroni ◽

Martin Heesacker

Keyword(s):

Health Disparities ◽

Community Based Participatory Research ◽

Lessons Learned ◽

Research Approach ◽

Community Based ◽

Guiding Principles ◽

University Partnership ◽

Partnership Approach ◽

Leadership Approaches ◽

Counseling Psychologists

Significant health disparities continue to plague many groups of people who have been systematically oppressed and largely unrepresented in health research. Community-based participatory research (CBPR) is a collaborative research approach that has been shown to be effective in addressing health disparities; a community–university partnership approach can be used to conduct this research. Counseling psychologists are well suited to establish and lead CBPR partnerships, yet there is a paucity of research to guide them in utilizing effective leadership approaches when conducting CBPR for reducing health disparities. Therefore, the aims of the present study were to (a) review existing leadership models applicable to conducting CBPR; (b) identify guiding principles of socially just leadership that emerged from the aforementioned review; (c) offer an example of how the guiding principles were used in a community–university partnership, highlighting challenges, solutions, and lessons learned; and (d) discuss the benefits of socially just leadership for counseling psychologists.

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Modeling the Principles of Community-Based Participatory Research in a Community Health Assessment Conducted by a Health Foundation

Health Promotion Practice ◽

10.1177/1524839906294419 ◽

2009 ◽

Vol 10 (1) ◽

pp. 67-75 ◽

Cited By ~ 12

Author(s):

Karen Jaynes Williams ◽

Patricia Gail Bray ◽

Carrie K. Shapiro-Mendoza ◽

Ilana Reisz ◽

Jane Peranteau

Keyword(s):

Community Health ◽

Participatory Research ◽

Health Assessment ◽

Community Based Participatory Research ◽

Local Area ◽

Lessons Learned ◽

Assessment Model ◽

Community Based ◽

Community Health Assessment ◽

Practical Applications

The authors discuss strategies used and lessons learned by a health foundation during development of a community health assessment model incorporating community-based participatory research (CBPR) approaches. The assessment model comprises three models incorporating increasing amounts of CPBR principles. Model A combines local-area analysis of quantitative data, qualitative information (key informants, focus groups), and asset mapping. Model B, a community-based participatory model, emphasizes participatory rural appraisal approaches and quantitative assessment using rapid epidemiological assessment. Model C, a modified version of Model B, is financially more sustainable for our needs than Model B. The authors (a) describe origins of these models and illustrate practical applications and (b) explore the lessons learned in their transition from a traditional, nonparticipatory, quantitative approach to participatory approaches to community-health assessment. It is hoped that this article will contribute to the growing body of knowledge of practical aspects of incorporating CBPR approaches into community health assessments.

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Community-Based Research: Perspectives of Psychology Researchers and Community Partners

10.31234/osf.io/cxrmt ◽

2021 ◽

Author(s):

Nicole Racine ◽

Sheri Madigan ◽

Shelley Cardinal ◽

Cailey Hartwick ◽

Margaret Leslie ◽

...

Keyword(s):

Lessons Learned ◽

Community Context ◽

Central Component ◽

Community Based ◽

Conceptual Foundation ◽

Community Partners ◽

Psychology Programs ◽

Community Based Research ◽

Learning Gap ◽

Research Perspectives

There is now a growing understanding that translational research must be co-created in collaboration with community partners and that solutions to real-world social problems require stepping outside the academic silo. Fewer than half of psychology programs in Canada, however, offer courses in community-based research or evaluation, leaving a gap in skill development amongst the next generation of scholars. In an effort to partially fill this learning gap, the current paper provides insights into lessons learned from the perspectives of researchers and community partners alike, who have been mutually engaging in community-based research over the last 25 years. Ultimately this paper seeks to provide a roadmap for conducting community-based research and illustrates why it should be a central component to research seeking to answer critical questions in psychological science. First, we provide a conceptual foundation of community-based research. Next, using three specific community-based research projects as examples, we share the challenges and benefits of conducting research in the community context. Finally, we highlight future directions for increasing the uptake of community-based research in Canada.

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The Milwaukee Continuum: Older Veterans and Nonveterans Use Housing First to Exit Homelessness

Journal of Humanistic Psychology ◽

10.1177/0022167819866523 ◽

2019 ◽

pp. 002216781986652

Author(s):

David A. Nelson ◽

Jeff Morzinski ◽

Mark Flower

Keyword(s):

Healing Process ◽

Community Based Participatory Research ◽

Research Process ◽

Public Health Issue ◽

Community Based ◽

Deep Time ◽

Homeless Veterans ◽

Process Understanding ◽

Formerly Homeless

Background: Homelessness is about survival and more than an issue of bricks and mortar. It is not a static dimension and alludes to a troubled age and brokenness of society. Despite dramatic declines in numbers of people presently homeless, the issue continues to be a public health issue. The number of veterans currently homeless continues to be of national concern despite application of resources. More needs to be done to better understand the concerns of veterans, once homeless and now housed. Method: Qualitative research in the form of interviews provided insights from the veterans on their experience around achieving housing. Qualitative methods are often used in evaluations as they speak of the experience of the program being evaluated by capturing and then communicating the narratives of the participants. This study was grounded in community-based participatory research where a member of community was a part of all phases of the research process. Results: Seven interviews with formerly homeless veterans were conducted. Themes included the following: Burnt Brides and Regrets, Survival, Spirituality, Recovery and Stress, Supportive Care, Reunite Family, and Sickness and Health. Discussion: The themes provide insight into the experience of the veterans and a means to better understand the healing process. Understanding of the healing process includes the following: Acknowledging the Courage to go Deep, Time, Veterans Giving Back, and Recovery is Ongoing. Despite what was learned, further research is needed to better understand the long-term implications of people formerly homeless now housed.

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