scholarly journals Adapting an Advance Care Planning Website for Persons With Dementia in Nursing Homes During the COVID-19 Pandemic

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 103-103
Author(s):  
Brianna Morgan ◽  
Liza Behrens ◽  
Sonia Talwar ◽  
Emily Summerhayes ◽  
Mary Ersek ◽  
...  
Keyword(s):  
Data Collection ◽  
Advance Care Planning ◽  
Controlled Trial ◽  
Care Planning ◽  
Research Staff ◽  
For Profit ◽  
Randomized Controlled ◽  
Advance Care ◽  
Beta Testing ◽  
Comparable Population

Abstract We partnered with a national for-profit nursing home (NH) organization to test the acceptability and use of an advance care planning (ACP) website for people living with dementia using a randomized controlled trial (RCT) design. Concurrently, the COVID-19 pandemic disproportionately impacted NHs and halted in-person research. We will present challenges, opportunities, and adaptations in site engagement, recruitment, and data collection. Initially, NHs were overwhelmed by pandemic efforts and research staff were unable to enter sites. We capitalized on time and available resources by beta-testing the website in a comparable population and designing surveys to elicit COVID-19’s impact on ACP. Once able, NH staff took on recruitment and data collection efforts intended for research staff. We supported NHs by pivoting to remote data collection, providing technology on site, and offering flexible communication. Flexibility is key in supporting site engagement, recruitment, and data collection and has implications for designing pragmatic RCTs.

Utilizing advance care planning videos to empower perioperative cancer patients and families: Results from a randomized controlled trial.

2017 ◽  
Vol 35 (31_suppl) ◽  
pp. 5-5
Author(s):  
Rebecca Aslakson ◽  
Sarina Isenberg ◽  
Norah L. Crossnohere ◽  
Alison M. Conca-Cheng ◽  
Madeleine Moore ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Interaction Analysis ◽  
Controlled Trial ◽  
Tertiary Care ◽  
Care Planning ◽  
Care Hospital ◽  
Patient Centeredness ◽  
Goals Of Care ◽  
Randomized Controlled ◽  
Advance Care

5 Background: The feasibility and impact of integrating advance care planning (ACP) in surgical oncologic populations is unknown. We hypothesized that an ACP video could be integrated into surgical oncologic care and that patients who preoperatively viewed the video would engage in more ACP and patient-centered communication with their surgeon. Methods: Randomized controlled, phase II trial with two study arms: intervention ACP video and control (no ACP) video; and four data collection periods: enrollment, presurgical consent, postoperative one week, and postoperative one month. Participants included patients undergoing major cancer surgery recruited from nine surgical oncology clinics at a single, academic, inner city, tertiary care hospital. Main Outcomes and Measures: Primary Outcome - Content of ACP and patient-centeredness during the presurgical consent visit as measured through the Roter Interaction Analysis System (RIAS). Secondary patient outcomes – mood; goals of care; and video helpfulness. Results: Ninety-two patients (target enrollment of ninety) were enrolled over 15 months. The ACP video was successfully integrated into the intervention arm and no study-related harms were noted. Patient-centeredness was unchanged between the study arms (IRR=1.06, CI [0.87,1.3], p=0.545) and there was a trend of increased ACP content in the intervention arm (23% intervention vs. 10% control, p=0.182). There were no differences in secondary outcomes other than patients found the intervention video more “helpful” (p=0.007). There was a statistically significant increase in mood symptoms in both groups one week post-operative as compared to enrollment (p=0.01). Patients in both groups most frequently noted cure-related goals of care. Conclusions: The ACP video was integrated successfully into surgical care, well-tolerated, and thought helpful by patients, but did not significantly change the nature or ACP content in patient-surgeon pre-operative conversation. Future studies could increase the “dose” of ACP through modifying video content and/or how or who presents that content prior to surgery. Clinical trial information: NCT02489799.

A Randomized, Controlled Trial to Improve Advance Care Planning Among Patients Undergoing Cardiac Surgery

Medical Care ◽  
2005 ◽  
Vol 43 (10) ◽  
pp. 1049-1053 ◽  
Author(s):  
Mi-Kyung Song ◽  
Karin T. Kirchhoff ◽  
Jeffrey Douglas ◽  
Sandra Ward ◽  
Bernard Hammes
Keyword(s):  
Randomized Controlled Trial ◽  
Cardiac Surgery ◽  
Advance Care Planning ◽  
Controlled Trial ◽  
Care Planning ◽  
Randomized Controlled ◽  
Advance Care
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