scholarly journals Engaging Isolated Hispanic and Latino Older Adult Caregivers in Remote Behavioral Interventions

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 129-129
Author(s):  
Caroline Silva

Abstract Recruiting Hispanic/Latino older adults for behavioral clinical trials is challenging, particularly those who are isolated. This presentation describes the recruitment process and feasibility/acceptability outcomes for the adaptation of two interventions (Connect for Caregivers and Engage Coaching) aimed at improving the social relationships and supports of older adult Hispanic/Latino caregivers of a family member with dementia. We compare online and community-based recruitment methods for English and Spanish-speaking Hispanic/Latino caregivers across the United States and present recruitment challenges during COVID-19. Of eligible participants, 82% were identified via online (e.g., research registry) and 18% via community-based (including snowball sampling) methods. Of participants recruited via online methods, 22% were Spanish-speaking, versus 100% of those recruited by community-based methods. Overall, 91% of all eligible/interested participants enrolled in at least one of the interventions. We discuss further the feasibility/acceptability of study procedures and the interventions, as the study was conducted remotely (via phone/Zoom) due to COVID-19.

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 344-344
Author(s):  
Cainnear Hogan ◽  
Mary Janevic ◽  
Rebecca Courser ◽  
Kristi Allgood ◽  
Cathleen Connell ◽  
...  

Abstract Few studies report best practices for recruiting older adults from minority, low SES communities for behavioral interventions. In this presentation, we describe recruitment processes and numbers for Take Heart, a randomized controlled trial testing the effectiveness of an adapted heart disease self-management program for primarily African American, low SES adults 50 years or older in Detroit. Community-based (CB), electronic medical record (EMR), and in-person hospital clinic (HC) recruitment methods were implemented. Within 22 months, 453 participants were enrolled, with an overall recruitment yield of 37%. The CB method had the highest yield (49%), followed by HC (36%) and EMR (16%). The average cost of recruiting and enrolling one participant was $142. Face-to-face interactions and employing a community health worker were particularly useful in engaging this population. Further research is needed to confirm these findings in other minority and low SES populations and share lessons learned about recruitment challenges and successes.


SAGE Open ◽  
2017 ◽  
Vol 7 (1) ◽  
pp. 215824401668723
Author(s):  
Nicole Ruggiano ◽  
Janice O’Driscoll ◽  
Andreja Lukic ◽  
Linda Schotthoefer

Diversity among the older adult population is expected to increase significantly. In addition, economic, demographic, and social trends in the United States have led to growing interest in understanding attitudes, behaviors, and plans regarding retirement among middle-aged and older adults. However, there is currently little knowledge about minorities’ interests and expectations for retirement. This community-based participatory study addressed gaps in knowledge by asking a diverse sample of adults about their experiences and expectations for retirement. Data collection involved focus groups with Hispanics, Haitians, African Americans, and immigrants living in Miami-Dade County, Florida. The findings indicate that productive activity in later life was desired by participants across racial and ethnic groups, though higher income participants reported having greater opportunities for pursuing desired productive activities later in life. Implications for policy and services are discussed.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 631-631
Author(s):  
Katherine Marx ◽  
Laura Gitlin

Abstract In the United States, over 5 million people are living with Alzheimer’s disease or a related dementia. Providing care are an estimated 16 million unpaid caregivers and millions of paid caregivers. Neuro-psychologic symptoms (NPS) such as agitation, aggression, depression, rejection of care, and apathy are almost universal in persons living with dementia (PLwD). Caring for NPS often leads to poor physical, mental and financial outcomes. There have been hundreds of non-pharmacologic interventions tested and found efficacious to help caregivers with NPS and daily care challenges. However, very few of these interventions have been widely adopted in different languages and settings. One promising intervention used in various countries is the Tailored Activity Program (TAP). TAP, delivered by occupational therapists, customizes activities to PLwD’s current capabilities and prior roles and interests and instructs caregivers in their use. This session will examine TAP’s reach and how it has been translated and adapted. First, Ms. Sokha Koeuth will present modifications needed to the program to facilitate widespread dissemination including placing training in the program online and virtual. The next two presentations will discuss adaptations to TAP in different countries and cultures; Dr. Marcia Novielli will present TAP-Brazil, and Dr. Jean Gajardo Jauregui will present TAP-Chile. Finally, Dr. Katherine Marx will examine the adaptations needed to place TAP into a long-term care setting with both family and paid caregivers. These papers highlight the cross-cultural adaptations that need to be considered in taking a program from research to different real world clinical and community-based settings. Behavioral Interventions for Older Adults Interest Group Sponsored Symposium.


2020 ◽  
Vol 14 (4) ◽  
pp. 155798832093893 ◽  
Author(s):  
Scott D. Rhodes ◽  
Lilli Mann-Jackson ◽  
Jorge Alonzo ◽  
Jennifer Nall ◽  
Florence M. Simán ◽  
...  

Latinx men in the southern United States are affected disproportionately by HIV and other sexually transmitted infections (STIs). However, few evidence-based prevention interventions exist to promote health equity within this population. Developed by a well-established community-based participatory research partnership, the HoMBReS por un Cambio intervention decreases sexual risk among Spanish-speaking, predominately heterosexual Latinx men who are members of recreational soccer teams in the United States. Scale-up and spread, an implementation science framework, was used to study the implementation of this evidence-based community-level intervention within three community organizations that represent typical community-based providers of HIV and STI prevention interventions (i.e., an AIDS service organization, a Latinx-serving organization, and a county public health department). Archival and interview data were analyzed, and 24 themes emerged that mapped onto the 12 scale-up and spread constructs. Themes included the importance of strong and attentive leadership, problem-solving challenges early, an established relationship between innovation developers and implementers, organizational capacity able to effectively work with men, trust building, timelines and incremental deadlines, clear and simple guidance regarding all aspects of implementation, appreciating the context (e.g., immigration-related rhetoric, policies, and actions), recognizing men’s competing priorities, and delineated supervision responsibilities. Scale-up and spread was a useful framework to understand multisite implementation of a sexual risk reduction intervention for Spanish-speaking, predominately heterosexual Latinx men. Further research is needed to identify how constructs, like those within scale-up and spread, affect the process across the implementation continuum, given that the uptake and implementation of an innovation is a process, not an event.


2016 ◽  
Vol 1 (5) ◽  
pp. 41-49
Author(s):  
Ellen Moore

As the Spanish-speaking population in the United States continues to grow, there is increasing need for culturally competent and linguistically appropriate treatment across the field of speech-language pathology. This paper reviews information relevant to the evaluation and treatment of Spanish-speaking and Spanish-English bilingual children with a history of cleft palate. The phonetics and phonology of Spanish are reviewed and contrasted with English, with a focus on oral pressure consonants. Cultural factors and bilingualism are discussed briefly. Finally, practical strategies for evaluation and treatment are presented. Information is presented for monolingual and bilingual speech-language pathologists, both in the community and on cleft palate teams.


2008 ◽  
Author(s):  
Patricia H. Manz ◽  
Ageliki Nicolopoulou ◽  
Catherine B. Bracaliello ◽  
Allison N. Ash

Author(s):  
Brianna R. Cornelius

Although a notable body of work has emerged describing gay male speech (GMS), its overlap with African American language (AAL) remains comparatively understudied. This chapter explores the assumption of whiteness that has informed research on gay identity and precluded intersectional considerations in sociolinguistic research. Examining the importance of racial identity, particularly Blackness, to the construction of gay identity in the United States, the chapter investigates the treatment of GMS as white by default, with the voices of gay men of color considered additive. The desire vs. identity debate in language and sexuality studies contributed to an understanding of gay identity as community-based practice, thereby laying a necessary framework for the study of GMS. However, this framework led to a virtually exclusive focus on white men’s language use. Although efforts to bring a community-based understanding to gay identity have been groundbreaking, the lack of consideration of intersectionality has erased contributions to GMS from racially based language varieties, such as AAL.


2021 ◽  
Author(s):  
Kyle Wilhelm ◽  
Lindsey Wilhelm

Abstract As a music therapy private practice is both a business and a healthcare service, it should adhere to ethical standards from both disciplines. However, this topic has rarely been examined in the music therapy literature. The purpose of this phenomenological study was to explore ethical dilemmas experienced by music therapy business owners (MTBOs) in their private practice and how MTBOs avoid or address ethical dilemmas. Utilizing convenience and snowball sampling techniques, 21 MTBOs in the United States were interviewed using semi-structured interviews. To answer the two areas of inquiry, we identified three themes and 12 subthemes: (1) Ethical issues related to client welfare, (2) Ethical issues related to business relationships and operation, and (3) Strategies to address or avoid ethical dilemmas. MTBOs also shared how they ensure ethical behavior in themselves, with their employees or independent contractors, and when interacting with professionals outside the private practice. These findings provide a better understanding of MTBOs’ lived experiences of ethics in their private practice and may benefit other music therapists who are in private practice or are wanting to go into private practice. Limitations and recommendations for further research are provided.


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