scholarly journals Monitoring for change: the role of family and friends in helping older adults manage personal health information

2018 ◽  
Vol 25 (8) ◽  
pp. 989-999 ◽  
Author(s):  
Jean O Taylor ◽  
Andrea L Hartzler ◽  
Katie P Osterhage ◽  
George Demiris ◽  
Anne M Turner
Keyword(s):  
Older Adults ◽  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Medication Management ◽  
Well Being ◽  
Physical Distance ◽  
Personal Health Information ◽  
Personal Health ◽  
Health Maintenance

Abstract Objective Although family and friends (FF) often play a significant support role in the health of older adults (OA), we know little about their role in personal health information management (PHIM). To address this gap and inform the design of PHIM tools, we describe the work, needs, and barriers of FF in the context of PHIM for OAs. Methods We conducted semi-structured telephone interviews with 52 FF identified by OA as being important in their health and PHIM. We analyzed interview transcripts for themes about FF information work, barriers, and support needs. Results FF play a supportive role in OA health maintenance, medical encounters, decision making, and daily activities. Monitoring, the ongoing process of seeking information related to the OA status, emerged as a key activity comprised of 3 phases: detection, interpretation, and action. Barriers to monitoring included OA choices and constraints, FF constraints, and difficulty with technological tools, resources, health information exchange between providers, social network dynamics, and physical distance. Conclusions FF frequently monitor for change in OA well-being, seeking up-to-date information to facilitate support of OA PHIM. Health information technology tools designed for FF can support all phases of monitoring by providing: (1) timely and granular levels of access to OA health information as the OA ages; (2) tailored health education for FF that is based on OA clinical data; and (3) networking platforms that integrate delegation, volunteering, and relevant resources, along with tools to facilitate support of OA appointment calendars and medication management. Such tools could reduce the burden of PHIM for OA and their loved ones.

scholarly journals Preparing Nursing Homes for the Future of Health Information Exchange

2015 ◽  
Vol 06 (02) ◽  
pp. 248-266 ◽  
Author(s):  
M. Rantz ◽  
C. Galambos ◽  
A. Vogelsmeier ◽  
M. Flesner ◽  
L. Popejoy ◽  
...  
Keyword(s):  
Nursing Homes ◽  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Use Cases ◽  
Personal Health Information ◽  
Personal Health ◽  
Structured Interviews ◽  
Resident Care ◽  
External Stakeholders

SummaryObjective: Our purpose was to describe how we prepared 16 nursing homes (NHs) for health information exchange (HIE) implementation.Background: NH HIE connecting internal and external stakeholders are in their infancy. U.S. initiatives are demonstrating HIE use to increase access and securely exchange personal health information to improve patient outcomes.Method: To achieve our objectives we conducted readiness assessments, performed 32 hours of clinical observation and developed 6 use cases, and conducted semi-structured interviews with 230 participants during 68 site visits to validate use cases and explore HIE.Results: All 16 NHs had technology available to support resident care. Resident care technologies were integrated much more with internal than external stakeholders. A wide range of technologies were accessible only during administrative office hours. Six non-emergent use cases most commonly communicated by NH staff were: 1) scheduling appointments, 2) laboratory specimen drawing, 3) pharmacy orders and reconciliation, 4) social work discharge planning, 5) admissions and pre-admissions, and 6) pharmacy-medication reconciliation. Emerging themes from semi-structured interviews about use cases included: availability of information technology in clinical settings, accessibility of HIE at the point of care, and policies/procedures for sending/receiving secure personal health information.Conclusion: We learned that every facility needed additional technological and human resources to build an HIE network. Also, use cases help clinical staff apply theoretical problems of HIE implementation and helps them think through the implications of using HIE to communicate about clinical care.Citation: Alexander GL, Rantz M, Galambos C, Vogelsmeier A, Flesner M, Popejoy L, Mueller J, Shumate S, Elvin M. Preparing nursing homes for the future of health information exchange. Appl Clin Inf 2015; 6: 248–266http://dx.doi.org/10.4338/ACI-2014-12-RA-0113

Use of health information exchange in the continuity of care as viewed by patients and nurses (Preprint)

2019 ◽  
Author(s):  
Michal Itzhaki ◽  
Ella Koren ◽  
Khaled Abu Hussien ◽  
Liron Levy ◽  
Irit Gantz ◽  
...  
Keyword(s):  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Health Maintenance Organization ◽  
Personal Health Information ◽  
Direct Care ◽  
Intention To Use ◽  
Cross Sectional ◽  
Health Maintenance ◽  
Share Information

BACKGROUND Patients' attitudes towards sharing their personal health information are critical for implementation of Health Information Exchange (HIE). Nurses contribute significantly to information sharing within the care continuum in hospitals and community. OBJECTIVE The purpose of this study was to examine the awareness and readiness of patients and nurses to use HIE. METHODS A cross sectional study among 312 inpatients with a chronic illness, 110 nurses working in internal wards, and 55 contact nurses working in a large Health Maintenance Organization. Multiple linear regressions were performed to assess the associations between knowledge, attitudes, socio-demographics, and both the readiness and intention to use HIE. RESULTS Mean levels of awareness were low across all three groups. The readiness to share information with medical healthcare providers was higher than the readiness to share information with agents not involved in direct care. Contact nurses expressed a more positive attitude than internal ward nurses or patients and were more willing than patients to share information with health care workers. All nurses (Internal ward and contact) were more willing to share information with medical agents not involved in direct care as compared to patients. Contact nurses expressed a significantly greater intention to use HIE than did internal ward nurses or patients CONCLUSIONS Before implementation of an HIE system, it is important to raise awareness, readiness, and intention to use HIE among the general public, nurses, and other medical staff. Policy makers should organize national campaigns under the auspices of the Ministry of Health, in order to present the advantages of HIE and provide detailed information about the systems. CLINICALTRIAL None

scholarly journals The Potential of Blockchain Technology for Health Information Exchange: Experimental Study From Patients’ Perspectives (Preprint)

2019 ◽  
Author(s):  
Pouyan Esmaeilzadeh ◽  
Tala Mirzaei
Keyword(s):  
Health Care ◽  
Health Information ◽  
Information Exchange ◽  
Health Care Organizations ◽  
Health Information Exchange ◽  
Health Care Industry ◽  
Personal Health Information ◽  
Personal Health ◽  
Web Based ◽  
Blockchain Technology

BACKGROUND Nowadays, a number of mechanisms and tools are being used by health care organizations and physicians to electronically exchange the personal health information of patients. The main objectives of different methods of health information exchange (HIE) are to reduce health care costs, minimize medical errors, and improve the coordination of interorganizational information exchange across health care entities. The main challenges associated with the common HIE systems are privacy concerns, security risks, low visibility of system transparency, and lack of patient control. Blockchain technology is likely to disrupt the current information exchange models utilized in the health care industry. OBJECTIVE Little is known about patients’ perceptions and attitudes toward the implementation of blockchain-enabled HIE networks, and it is still not clear if patients (as one of the main HIE stakeholders) are likely to opt in to the applications of this technology in HIE initiatives. Thus, this study aimed at exploring the core value of blockchain technology in the health care industry from health care consumers’ views. METHODS To recognize the potential applications of blockchain technology in health care practices, we designed 16 information exchange scenarios for controlled Web-based experiments. Overall, 2013 respondents participated in 16 Web-based experiments. Each experiment described an information exchange condition characterized by 4 exchange mechanisms (ie, direct, lookup, patient-centered, and blockchain), 2 types of health information (ie, sensitive vs nonsensitive), and 2 types of privacy policy (weak vs strong). RESULTS The findings show that there are significant differences in patients’ perceptions of various exchange mechanisms with regard to patient privacy concern, trust in competency and integrity, opt-in intention, and willingness to share information. Interestingly, participants hold a favorable attitude toward the implementation of blockchain-based exchange mechanisms for privacy protection, coordination, and information exchange purposes. This study proposed the potentials and limitations of a blockchain-based attempt in the HIE context. CONCLUSIONS The results of this research should be of interest to both academics and practitioners. The findings propose potential limitations of a blockchain-based HIE that should be addressed by health care organizations to exchange personal health information in a secure and private manner. This study can contribute to the research in the blockchain area and enrich the literature on the use of blockchain in HIE efforts. Practitioners can also identify how to leverage the benefit of blockchain to promote HIE initiatives nationwide.

scholarly journals Locking it down

2016 ◽  
Vol 150 (1) ◽  
pp. 60-66 ◽  
Author(s):  
Kelly Grindrod ◽  
Jonathan Boersema ◽  
Khrystine Waked ◽  
Vivian Smith ◽  
Jilan Yang ◽  
...  
Keyword(s):  
Health Information ◽  
Personal Information ◽  
Medication Management ◽  
Kappa Statistic ◽  
Personal Health Information ◽  
Third Party ◽  
Personal Health ◽  
Privacy And Security ◽  
Standard Data ◽  
Android Apps

Objective: To explore the privacy and security of free medication applications (apps) available to Canadian consumers. Methods: The authors searched the Canadian iTunes store for iOS apps and the Canadian Google Play store for Android apps related to medication use and management. Using an Apple iPad Air 2 and a Google Nexus 7 tablet, 2 reviewers generated a list of apps that met the following inclusion criteria: free, available in English, intended for consumer use and related to medication management. Using a standard data collection form, 2 reviewers independently coded each app for the presence/absence of passwords, the storage of personal health information, a privacy statement, encryption, remote wipe and third-party sharing. A Cohen’s Kappa statistic was used to measure interrater agreement. Results: Of the 184 apps evaluated, 70.1% had no password protection or sign-in system. Personal information, including name, date of birth and gender, was requested by 41.8% (77/184) of apps. Contact information, such as address, phone number and email, was requested by 25% (46/184) of apps. Finally, personal health information, other than medication name, was requested by 89.1% (164/184) of apps. Only 34.2% (63/184) of apps had a privacy policy in place. Conclusion: Most free medication apps offer very limited authentication and privacy protocols. As a result, the onus currently falls on patients to input information in these apps selectively and to be aware of the potential privacy issues. Until more secure systems are built, health care practitioners cannot fully support patients wanting to use such apps.

Consumer Support for Health Information Exchange and Personal Health Records: A Regional Health Information Organization Survey

2010 ◽  
Vol 36 (3) ◽  
pp. 1043-1052 ◽  
Author(s):  
Vaishali N. Patel ◽  
Rina V. Dhopeshwarkar ◽  
Alison Edwards ◽  
Yolanda Barrón ◽  
Jeffrey Sparenborg ◽  
...  
Keyword(s):  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Personal Health Records ◽  
Information Organization ◽  
Personal Health ◽  
Regional Health ◽  
Health Records

scholarly journals A Statewide Medication Management System: Health Information Exchange to Support Drug Therapy Optimization by Pharmacists across the Continuum of Care

2018 ◽  
Vol 09 (01) ◽  
pp. 001-010 ◽  
Author(s):  
Karen Pellegrin ◽  
Francis Chan ◽  
Natalie Pagoria ◽  
Sheena Jolson-Oakes ◽  
Reece Uyeno ◽  
...  
Keyword(s):  
Drug Therapy ◽  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Medication Management ◽  
Community Pharmacists ◽  
Strategic Approach ◽  
Management Processes ◽  
Risk Patients

Background While evidence generally supports the use of medication management technology, systems are typically implemented and evaluated piecemeal rather than as part of a comprehensive model for medication management. Systems to support drug therapy optimization, increasingly a key role of pharmacists in our healthcare system, have not yet been reported. Objective Our objective is to describe the design, implementation, and use of health information technology to support the hospital and community pharmacists' management of medications for high-risk patients statewide in the “Pharm2Pharm” model of care. Our aims were to make it easier for the pharmacists to access information needed to identify and resolve drug therapy problems using best practices for medication management and communicate with other members of the care team. Methods The pharmacist's roles and the medication management processes guided the design of the supporting technology, which was implemented after the Pharm2Pharm model was launched and the pharmacists' technology needs were assessed. Priorities for technology included sending care transition documents from hospital to community pharmacist securely and efficiently, access to medical records, including medications and laboratory results, documentation, and patient tracking. Implementation and use of the technology were documented. Results Communications, medication management, and population management solutions were implemented to support the Pharm2Pharm model. The pharmacists delivering services through this model adopted and meaningfully used this technology to support their work. Conclusion Implementing technology with value outside of the Pharm2Pharm model was a strategic approach to investment. This work emphasizes the importance of shifting the focus of technology from supporting a specific piece of the medication management process to supporting the goal of optimizing medication regimens. Health information exchange systems can provide important technology needed to integrate pharmacists into care teams as they are deployed to improve patient outcomes.

To Tell or Not to Tell? Professional and Lay Perspectives on the Disclosure of Personal Health Information in Community-Based Dementia Care

2004 ◽  
Vol 23 (3) ◽  
pp. 203-215 ◽  
Author(s):  
C. Shawn Tracy ◽  
Neil Drummond ◽  
Lorraine E. Ferris ◽  
Judith Globerman ◽  
Philip C. Hébert ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Health Information ◽  
Information Exchange ◽  
Early Stage ◽  
Personal Health Information ◽  
Best Interests ◽  
Personal Health ◽  
Care Providers ◽  
Health And Social Care ◽  
Strong Control

ABSTRACTDevelopments in information technology and the ongoing restructuring of health services to increase provision in community settings militate in favour of a streamlining of communications and the exchange of information about patients among health and social care providers. Yet the principles of confidentiality and privacy appear to inhibit this process. In order to explore the practical, ethical, and legal imperatives attendant upon personal health information exchange, we conducted a series of interviews with professional care providers, persons with early-stage dementia, and their family caregivers. The findings indicate some degree of discordance. Professionals reported valuing disclosure both to colleagues and family caregivers on the basis of its being in the patients' best interests. Patients also valued inter-professional exchange, but sought strong control over disclosure to family members. Family caregivers valued being kept informed of the patient's condition, even without the latter's consent. Implications for research and policy are discussed.

scholarly journals Best Paper Selection

2018 ◽  
Vol 27 (01) ◽  
pp. 071-073
Keyword(s):  
Health Information ◽  
Information Exchange ◽  
Health Information Exchange ◽  
Controlled Trial ◽  
Personal Health ◽  
Medication Discrepancies ◽  
Health Records ◽  
Architecture Model ◽  
Randomized Controlled ◽  
Cluster Randomized

Roehrs A, da Costa CA, da Rosa Righi R. OmniPHR: A distributed architecture model to integrate personal health records. J Biomed Inform 2017 Jul;71:70-81 https://www.sciencedirect.com/science/article/pii/S1532046417301089?via%3Dihub Klein DM, Pham K, Samy L, Bluth A, Nazi KM, Witry M, Klutts JS, Grant KM, Gundlapalli AV, Kochersberger G, Pfeiffer L, Romero S, Vetter B, Turvey CL. The veteran-initiated electronic care coordination: a multisite initiative to promote and evaluate consumer-mediated health information exchange. Telemed J E Health 2017 Apr;23(4):264-27 https://www.liebertpub.com/doi/abs/10.1089/tmj.2016.0078?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed& Boockvar KS, Ho W, Pruskowski J, DiPalo KE, Wong JJ, Patel J, Nebeker JR, Kaushal R, Hung W. Effect of health information exchange on recognition of medication discrepancies is interrupted when data charges are introduced: results of a cluster-randomized controlled trial. J Am Med Inform Assoc 2017 Nov 1;24(6):1095-101 https://academic.oup.com/jamia/article-abstract/24/6/1095/3826531?redirectedFrom=fulltext Downing NL, Adler-Milstein J, Palma JP, Lane S, Eisenberg M, Sharp C; Northern California HIE Collaborative, Longhurst CA. Health information exchange policies of 11 diverse health systems and the associated impact on volume of exchange. J Am Med Inform Assoc 2017 Jan;24(1):113-22 https://academic.oup.com/jamia/article/24/1/113/2631458

Sign in / Sign up

Export Citation Format

Share Document