Introduction

Author(s):  
Ronald M. Green ◽  
George A. Little

There is evidence that religious beliefs strongly influence families’ treatment decisions about their loved ones, especially when difficult life-and-death choices must be made. This becomes important in the context of neonatal intensive care units (NICUs) committed to family-centered care because families’ beliefs will influence their decision making. To assist NICU professionals, families, and students of bioethics, the chapters in this book seek to address the question, “What are the teachings of the world’s major religious traditions about the status and care of the newborn?” This introduction presents six “take-home” insights derived from the discussions that follow.

What are the teachings of the major world religious traditions about the status and care of the premature or sick newborn? This question becomes important in the context of neonatal intensive care units (NICUs) committed to the ideals of family-centered care, which encourages shared decision making between parents and NICU caregivers. In cases of infants with conditions marked by high mortality, morbidity, or “great suffering,” family-centered care affirms the right of parents to assist in decisions regarding aggressive treatment for their infant. But while there is evidence that families’ religious beliefs often profoundly shape their approach to medical decision making, few studies have tried to understand what major religious traditions teach about the care of the newborn or how these teachings may bear on parents’ decisions. This volume seeks to address this need, providing information on religious teachings to the multidisciplinary teams of NICU professionals (neonatologists, advance practice nurses, social workers), parents of NICU patients, and students of bioethics. In chapters dealing with Judaism, Catholicism, Denominational Protestantism, Evangelical Protestantism, African American Protestantism, Sunni and Shi’a Islam, Hinduism, Buddhism, Navajo religion, and Seventh-day Adventism, leading scholars develop the teachings of these traditions on the status, treatment, and ritual accompaniments of care of the premature or sick newborn.


2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.


PEDIATRICS ◽  
2003 ◽  
Vol 111 (Supplement_E1) ◽  
pp. e450-e460
Author(s):  
Kimberly A. Cisneros Moore ◽  
Kara Coker ◽  
Allison B. DuBuisson ◽  
Betsy Swett ◽  
William H. Edwards

Objective. Multidisciplinary teams from 11 medical center neonatal intensive care units collaborated in a quality improvement project with a focus on family-centered care. Methods. Through a process of self-analysis, literature review, benchmarking site visits, and expert consultation, 10 potentially better practice (PBP) areas were defined. Improvement activities in 4 of the 10 areas are given as examples of successes and challenges that individual centers encountered. The 4 areas are vision and philosophy, unit culture, family participation in care, and families as advisors. Results. Centers were at different places for all of the PBPs at the beginning and throughout the collaboration. Seven centers developed or revised their vision or philosophy of care statements about family-centered care. Incorporating the vision and philosophy of care into performance appraisals, hiring of new personnel, and changing unit culture to a more family-centered practice were more challenging than developing the statements. Full parent participation in care requires unrestricted access to the neonatal intensive care unit. The shift from considering parents to be “visitors” to being partners in caring for their child was more difficult for centers with restricted visitation policies. All centers developed, expanded, or started plans for establishing family advisory councils. The experience of 2 centers is described. Conclusions. Family-centered care is more of a journey than a destination. Collaborating centers in this project found themselves at different places in that journey. Through perseverance in implementing the PBPs, all have moved further along the path.


2017 ◽  
Vol 39 (3) ◽  
pp. 235-240
Author(s):  
Shunsuke ARAKI ◽  
Tomoko SAITO ◽  
Saori ICHIKAWA ◽  
Kaori SAITO ◽  
Tsuzumi TAKADA ◽  
...  

2020 ◽  
Vol 88 (3) ◽  
pp. 421-428 ◽  
Author(s):  
Mirka Toivonen ◽  
Liisa Lehtonen ◽  
Eliisa Löyttyniemi ◽  
Sari Ahlqvist-Björkroth ◽  
Anna Axelin

Abstract Background The quality of family-centered care and parental participation in care in neonatal units differ widely across the world. Appropriate education might be an effective way to support medical staff in neonatal units to collaborate with parents and implement family-centered care. The aim of this study was to evaluate the effects of the educational intervention on the quality of family-centered care in eight Finnish neonatal intensive care units from both the staff and parent perspectives. Methods A mixed-method pre–post intervention study was conducted in eight neonatal intensive care units in Finland. Data were collected from staff and parents using the Bliss Baby Charter audit tool and semi-structured interviews. Results The quality of family-centered care, as assessed by staff and parents, increased significantly after the intervention in all eight units. The intervention was able to help staff define and apply elements of family-centered care, such as shared decision making and collaboration between parents and staff. In interviews, staff described that they learned to support and trust the parents’ ability to take care of their infant. Conclusions The educational intervention increased the quality of family-centered care and enabled mutual partnership between parents and staff. Impact This study shows that the educational intervention for the whole multi-professional staff of the neonatal unit improved the quality of family-centered care. The Close Collaboration with Parents intervention enabled mutual partnership between parents and staff. It also provides evidence that during The Close Collaboration with Parents intervention staff learned to trust the parents’ ability to take care of their infant.


Author(s):  
Sagrario Gómez-Cantarino ◽  
Inmaculada García-Valdivieso ◽  
Eva Moncunill-Martínez ◽  
Benito Yáñez-Araque ◽  
M. Idoia Ugarte Gurrutxaga

Family-centered care (FCC) currently takes a greater role in health care, due to the increasing empowerment parents experience. Within neonatal intensive care units (NICUs), family participation has an impact on the humanized care of the preterm newborn (PN). This integrative review conducted according to Whittemore and Knafl investigated current knowledge of the FCC model and its application in PN care in specific units. The data were collected from PubMed, Cochrane, CINHAL, Scopus, and Google Scholar. A total of 45 articles were used, of which 13 were selected which met inclusion criteria. Their methodological quality was evaluated using the mixed method appraisal tool (MMAT), and after they were analyzed and grouped into four thematic blocks: (1) parental participation; (2) health parental training; (3) benefits of family empowerment; and (4) humanized care. The results revealed that FCCs promote the integration of health equipment and family. In addition, parents become the primary caregivers. The benefits of the family–PN binomial enable an earlier hospital discharge. Humanized care involves an ethical approach, improving health care. Changes are still needed by health managers to adapt health services to the needs of the family and PNs.


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