Patient and public involvement in healthcare

2018 ◽  
pp. 613-624
Author(s):  
Maria Flynn ◽  
Dave Mercer
Keyword(s):  
Health Policy ◽  
Health Services ◽  
Power Relations ◽  
Public Involvement ◽  
Nursing Practice ◽  
Patient And Public Involvement ◽  
Practice Research ◽  
Democratic Participation ◽  
Governance Systems ◽  
Research And Education

The impulse for patient and public involvement (PPI) in health services reflects wider societal and policy concerns with citizenship and democratic participation. A consumerist turn in health policy has opened the door to advances in involvement initiatives, with nurses often playing a lead role. These involvement practices have developed in the interlinked areas of nursing practice, research, and education. Effective involvement is predicated upon emancipatory values and, as such, involvement practices are concerned with prevailing power relations. The actual form that involvement takes can be thorough, systematic, and empowering or partial, tokenistic, and subsumed under oppressive governance systems. Ultimately, involvement poses key questions for professional nursing identity, allowing for a re-imagining of professionalism that is essentially democratized and cooperative.

Nursing Practice, Research and Education in the West

2017 ◽  
Vol 66 (3) ◽  
pp. 262-270 ◽  
Author(s):  
Heather M. Young ◽  
Susan Bakewell-Sachs ◽  
Linda Sarna
Keyword(s):  
Nursing Practice ◽  
Practice Research ◽  
The West ◽  
Research And Education

scholarly journals Demystifying the pathway of assessment and treatment for bipolar disorder – utilising co-production and algorithms to personalise the approach

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S150-S150
Author(s):  
Jessica Nicholls-Mindlin ◽  
Digby Quested ◽  
Matthew Taylor ◽  
Lauren Fuzi ◽  
David Gee
Keyword(s):  
Mental Health ◽  
Bipolar Disorder ◽  
Mental Health Services ◽  
Health Services ◽  
Public Involvement ◽  
Psychological Intervention ◽  
Patient And Public Involvement ◽  
Service Development ◽  
Post Discharge ◽  
Nice Guideline

AimsTo develop an evidence based, patient centred treatment pathway for people experiencing symptoms of bipolar disorder (BD), modifiable to include local resources.MethodThis project was developed in line with current approaches to service development such as coproduction, with patient and public involvement (PPI) and enhancing personalisation of treatment in medicine. As part of a local initiative, a multi-disciplinary team was brought together to understand and analyse the current local pathway for those affected by BD. It was found that the approach to assessment and management was not consistent between locality teams. Two experts by experience who have a diagnosis of BD were invited to become involved with the development of the pathway. Meetings were set up to enable coproduction and elicit information from those with the diagnosis. The responses provided insight into the effectiveness of different approaches used nationally to inform the methods and resources that are most helpful and appropriate to comprehensively support those with the illness.NICE guideline evidence was used to create two algorithms to streamline the care of those with BD in both primary and secondary care. These algorithms include pharmacological, psychological and social approaches. It also considers the junctions at which referrals should be made and the criteria on which decisions are based.ResultOne algorithm was designed for use in primary care and will be distributed to local GPs to clarify the initial steps for assessment and management of BD and the criteria for referral. A second decision tree will be made available to all doctors working in mental health services with detailed medication options, when they are appropriate and whether additional psychological intervention should be considered e.g. post-discharge groups. Other specialist options such as Early Intervention for Psychosis and Perinatal Mental Health Services were also included. An information pack was created to be offered to all those with a diagnosis or possible diagnosis of BD. This contains useful resources such as skills and exercises that patients may find of benefit, external resources and websites regarding additional support and further information on BD, its nature and management.ConclusionThe approach and resources collated here will help to streamline the management of those with bipolar disorder whilst also ensuring a more consistent approach. The involvement of experts by experience and the incorporation of NICE guidelines ensures a well-rounded and comprehensive set of documents that will be helpful to both clinicians and patients.

scholarly journals Patient and public involvement in general practice research

2020 ◽  
Vol 70 (694) ◽  
pp. 220-221
Author(s):  
Ben Bowers ◽  
Roberta Lovick ◽  
Kristian Pollock ◽  
Stephen Barclay
Keyword(s):  
General Practice ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
Practice Research

scholarly journals The Lived Experience of Discontinuing Hormonal Contraception Among Women in Rural Uganda

2011 ◽  
Vol 15 (1) ◽  
pp. 56-64
Author(s):  
Joseph Mwizerwa, ◽  
Rozzano C. Locsin,
Keyword(s):  
Content Analysis ◽  
Lived Experience ◽  
Nursing Practice ◽  
Contraceptive Use ◽  
Hormonal Contraception ◽  
Hormonal Contraceptive ◽  
Unprotected Sex ◽  
Practice Research ◽  
Research And Education

The purpose of the study was to describe the experience of discontinuing hormonal contraceptive use among women in rural Uganda. Asignificant number of women in Uganda discontinue hormonal contraception even though such method has been effective. Consequently, these women have unprotected sex, although not wanting to conceive. Narrative descriptions of the experiences by eight women were analyzed using content analysis. The findings describe the experience as Frustration and Helplessness, Living in Fear of Uncertainty, Ingenuity of using other methods of contraception, thus fostering the Accomplishments of being a wife, mother, and woman. Implications for nursing practice, research, and education are described.

scholarly journals Representing the ‘Voice’ of Patients: How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development

2020 ◽  
Author(s):  
Marjaana Jones ◽  
Piia Jallinoja ◽  
Ilkka Pietilä
Keyword(s):  
Health Services ◽  
Public Involvement ◽  
Third Sector ◽  
Patient And Public Involvement ◽  
Knowledge Bases ◽  
Experiential Knowledge ◽  
Service Development ◽  
Individual Interviews ◽  
Third Sector Organisations ◽  
Development Processes

AbstractThe growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in different ways, and due to a lack of inherent authority, it can be dismissed by health professionals. Thus, drawing on individual interviews with organisation representatives, we explore the definitions and uses of as well as the ‘filters’ placed upon experiential knowledge. The analysis suggests that whilst experiential knowledge is seen as all-encompassing, practical and transformative, the organisations need to engage in actions that can tame experiential knowledge and try to balance between ensuring that the critical and authentic elements of experiential knowledge were not lost whilst retaining a position as collaborators in health care development processes.

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