Role of Patient and Public Involvement in The Process of Health Services Development

AimsTo develop an evidence based, patient centred treatment pathway for people experiencing symptoms of bipolar disorder (BD), modifiable to include local resources.MethodThis project was developed in line with current approaches to service development such as coproduction, with patient and public involvement (PPI) and enhancing personalisation of treatment in medicine. As part of a local initiative, a multi-disciplinary team was brought together to understand and analyse the current local pathway for those affected by BD. It was found that the approach to assessment and management was not consistent between locality teams. Two experts by experience who have a diagnosis of BD were invited to become involved with the development of the pathway. Meetings were set up to enable coproduction and elicit information from those with the diagnosis. The responses provided insight into the effectiveness of different approaches used nationally to inform the methods and resources that are most helpful and appropriate to comprehensively support those with the illness.NICE guideline evidence was used to create two algorithms to streamline the care of those with BD in both primary and secondary care. These algorithms include pharmacological, psychological and social approaches. It also considers the junctions at which referrals should be made and the criteria on which decisions are based.ResultOne algorithm was designed for use in primary care and will be distributed to local GPs to clarify the initial steps for assessment and management of BD and the criteria for referral. A second decision tree will be made available to all doctors working in mental health services with detailed medication options, when they are appropriate and whether additional psychological intervention should be considered e.g. post-discharge groups. Other specialist options such as Early Intervention for Psychosis and Perinatal Mental Health Services were also included. An information pack was created to be offered to all those with a diagnosis or possible diagnosis of BD. This contains useful resources such as skills and exercises that patients may find of benefit, external resources and websites regarding additional support and further information on BD, its nature and management.ConclusionThe approach and resources collated here will help to streamline the management of those with bipolar disorder whilst also ensuring a more consistent approach. The involvement of experts by experience and the incorporation of NICE guidelines ensures a well-rounded and comprehensive set of documents that will be helpful to both clinicians and patients.

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Patient and public involvement in healthcare

Oxford Handbook of Adult Nursing ◽

10.1093/med/9780198743477.003.0031 ◽

2018 ◽

pp. 613-624

Author(s):

Maria Flynn ◽

Dave Mercer

Keyword(s):

Health Policy ◽

Health Services ◽

Power Relations ◽

Public Involvement ◽

Nursing Practice ◽

Patient And Public Involvement ◽

Practice Research ◽

Democratic Participation ◽

Governance Systems ◽

Research And Education

The impulse for patient and public involvement (PPI) in health services reflects wider societal and policy concerns with citizenship and democratic participation. A consumerist turn in health policy has opened the door to advances in involvement initiatives, with nurses often playing a lead role. These involvement practices have developed in the interlinked areas of nursing practice, research, and education. Effective involvement is predicated upon emancipatory values and, as such, involvement practices are concerned with prevailing power relations. The actual form that involvement takes can be thorough, systematic, and empowering or partial, tokenistic, and subsumed under oppressive governance systems. Ultimately, involvement poses key questions for professional nursing identity, allowing for a re-imagining of professionalism that is essentially democratized and cooperative.

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The role of patient and public involvement in oral health and HIV/AIDS research, practice and policy

Oral Diseases ◽

10.1111/odi.13584 ◽

2020 ◽

Vol 26 (S1) ◽

pp. 117-122 ◽

Cited By ~ 1

Author(s):

Vaishali Sharma Mahendra ◽

Amitha Ranauta ◽

Anandi Yuvraj ◽

Anthony J. Santella ◽

Aditia Taslim ◽

...

Keyword(s):

Oral Health ◽

Public Involvement ◽

Patient And Public Involvement ◽

Research Practice ◽

Aids Research ◽

Hiv Aids

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Patient and public involvement in data collection for health services research: a descriptive study

Research Involvement and Engagement ◽

10.1186/s40900-015-0006-7 ◽

2015 ◽

Vol 1 (1) ◽

Cited By ~ 5

Author(s):

Sara Garfield ◽

Seetal Jheeta ◽

Ann Jacklin ◽

Anna Bischler ◽

Christine Norton ◽

...

Keyword(s):

Data Collection ◽

Health Services Research ◽

Health Services ◽

Public Involvement ◽

Descriptive Study ◽

Patient And Public Involvement ◽

Services Research

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‘Patient Zero’

Social Work and Social Sciences Review ◽

10.1921/swssr.v17i1.545 ◽

2013 ◽

Vol 17 (1) ◽

pp. 5-21

Author(s):

Stephen J. Macdonald ◽

David Taylor-Gooby

Keyword(s):

General Practitioners ◽

Public Involvement ◽

Patient And Public Involvement ◽

North East ◽

The North ◽

Advisory Groups ◽

Healthcare It ◽

Health Practitioners ◽

Major Shift

Over the last three years, there has been a major shift in healthcare policy within England. This has radically altered the relationship between General Practitioners (GPs) and patients. This article examines the role of patient and public involvement within the National Health Service (NHS) from the perspective of volunteers and health practitioners. The aim of the study is to explore how different models of patient and public involvement (PPI) are characterised through ideological perspectives which construct the goals and motivations of service users and health practitioners. This article draws on data from a small qualitative study of 16 participants analysing different narratives and experiences of patient and public involvement within the North East of England. The study analyses data from health professionals, including General Practitioners and health managers, and patient volunteers who make up part of a range of different health advisory groups in the NHS. Whilst all respondents agree about the importance of public involvement to assist localised NHS healthcare, it should be noted that what is meant by patient and public involvement in this study is somewhat unclear for people involved in the process. The research concludes by illustrating how practitioners’ and volunteers’ interpretations of patient and public involvement diverge in terms of their expressed motivations, aims, goals and expectations.

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Understanding the role of patient and public involvement in renal dietetic research

Patient Experience Journal ◽

10.35680/2372-0247.1155 ◽

2017 ◽

Vol 4 (2) ◽

pp. 23-32 ◽

Cited By ~ 2

Author(s):

Andrew Morris ◽

Deborah Biggerstaff ◽

Nithya Krishnan ◽

Deborah Lycett

Keyword(s):

Public Involvement ◽

Patient And Public Involvement

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Individuals’ Decision to Disclose a Diagnosis of Dementia and the Development of an Online Empowerment Intervention

Innovation in Aging ◽

10.1093/geroni/igab046.2249 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 589-590

Author(s):

Mauricio Molinari Ulate ◽

Jem Bhatt ◽

Jennifer Lynch ◽

Katrina Scior ◽

Georgina Charlesworth ◽

...

Keyword(s):

Public Involvement ◽

Adverse Reactions ◽

Psychosocial Health ◽

Patient And Public Involvement ◽

Dementia Diagnosis ◽

Factors Influencing ◽

People With Dementia ◽

Complex Process ◽

Diagnosis Of Dementia

Abstract Learning to live with a diagnosis of dementia is a complex process. Many people affected by dementia choose not to disclose the diagnosis to others and avoid social activities due to fear of others’ adverse reactions. This in turn can limit their social participation and negatively affect their psychosocial health. A systematic review explored factors influencing the decision to disclose or conceal a dementia diagnosis to one’s social network, including individuals’ attitudes and experiences regarding this decision. The sixteen studies included reveal the complexity of this decision. Findings highlight the role of stigma and individuals’ wishes to remain ‘normal’, but also the need of explaining what has changed. Results were further discussed with people with dementia and informal caregivers as part of patient and public involvement. End users expressed their attitudes, needs, and wishes towards the design of an online empowerment intervention supporting disclosure decision-making in people affected by dementia.

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