How was the IDEAL schedule developed and tested?

2019 ◽  
pp. 3-6
Author(s):  
Maya Semrau ◽  
Alistair Burns ◽  
Antonio Lobo ◽  
Marcel Olde Rikkert ◽  
Philippe Robert ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Pilot Study ◽  
Integrated Assessment ◽  
Large Scale ◽  
Developmental Stages ◽  
Process Of Care ◽  
Rater Reliability ◽  
Validity Testing ◽  
People With Dementia ◽  
The Ideal

This chapter provides information on how the International Schedule for the Integrated Assessment and Staging of Care for Dementia (IDEAL schedule) was developed and tested. It includes information on the three developmental stages of the IDEAL schedule: 1) a series of focus groups, which involved convening stakeholders who were engaged in the process of care for people with dementia to assess the need for a new dementia staging schedule, and to identify the ideal design, necessary items, and characteristics for such a staging schedule; 2) a pilot study with the draft schedule and using case histories to assess inter-rater reliability of assessments obtained using the schedule; and 3) a large-scale cross-country field study to test the schedule’s inter-rater reliability when used to assess patients in clinical practice. Information about the feasibility/acceptability and validity testing of the IDEAL schedule is also included in this chapter.

Assessment and Staging of Care for People with Dementia

2019 ◽  
Author(s):  
Maya Semrau ◽  
Alistair Burns ◽  
Antonio Lobo ◽  
Marcel Olde Rikkert ◽  
Philippe Robert ◽  
...  
Keyword(s):  
Integrated Assessment ◽  
Case Histories ◽  
People With Dementia ◽  
Severity Of Dementia ◽  
The Ideal

Assessment and Staging of Care for Dementia: The IDEAL schedule and its user manual gives a detailed overview of the International Schedule for the Integrated Assessment and Staging of Care for Dementia (IDEAL schedule) and provides all information that is needed when learning how to use the schedule and when using it. This includes details on the aims of the schedule; a description of how the schedule was developed and tested; instructions on how to use the schedule; the IDEAL schedule itself; the glossary of terms used in the schedule; and suggestions about the interventions that are recommended for consideration at different stages of severity of dementia. The book also includes four case histories, which are recommended for use when training in the use of the schedule.

Staff training using STAR: a pilot study in UK care homes

2012 ◽  
Vol 24 (6) ◽  
pp. 911-920 ◽  
Author(s):  
Judith Goyder ◽  
Martin Orrell ◽  
Jennifer Wenborn ◽  
Aimee Spector
Keyword(s):  
Pilot Study ◽  
Behavioral Problems ◽  
Staff Training ◽  
Large Scale ◽  
Controlled Trial ◽  
Care Home ◽  
Care Staff ◽  
Care Homes ◽  
People With Dementia ◽  
Star Program

ABSTRACTBackground: Symptoms such as depression, anxiety, and behavioral problems are very common in people with dementia living in care homes. Staff training has been identifed as a promising psychosocial intervention. This pilot study investigated the feasibility of implementing the Staff Training in Assisted Living Residences (STAR) program in UK care homes.Methods: The eight-week STAR program was delivered in two care homes. Twenty-five care staff attended the training. Thirty-two residents, with dementia and clinically significant anxiety, depression, or behavioral problems, were included in the study. Residents and staff were assessed at baseline and eight-week follow-up.Results: Residents demonstrated significantly reduced symptoms of depression and behavioral problems following the implementation of the program, although resident-rated quality of life and anxiety symptoms did not improve significantly. Staff sense of hopefulness towards people with dementia also improved significantly and staff rated themselves as significantly more competent at forming relationships with residents.Conclusion: Delivering the STAR program to care staff can have an impact on the behavioral and psychological symptoms of dementia displayed by care home residents. The program was feasible to implement and was rated highly by care staff. A large-scale randomized controlled trial is now required to evaluate the effectiveness of this training intervention.

scholarly journals Technology for Large-Scale Translation of Clinical Practice Guidelines: A Pilot Study of the Performance of a Hybrid Human and Computer-Assisted Approach

2015 ◽  
Vol 3 (4) ◽  
pp. e33
Author(s):  
Stijn Van de Velde ◽  
Lieve Macken ◽  
Koen Vanneste ◽  
Martine Goossens ◽  
Jan Vanschoenbeek ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Pilot Study ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Large Scale ◽  
Computer Assisted

Glossary for the IDEAL schedule

2019 ◽  
pp. 17-22
Author(s):  
Maya Semrau ◽  
Alistair Burns ◽  
Antonio Lobo ◽  
Marcel Olde Rikkert ◽  
Philippe Robert ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Integrated Assessment ◽  
Healthcare Professionals ◽  
Anchor Point ◽  
Correct Application ◽  
Definition Of ◽  
The Ideal

This chapter provides a definition of the terms used in the International Schedule for the Integrated Assessment and Staging of Care for Dementia (IDEAL schedule) and provides further details for each of the schedule’s seven dimensions and how these should be rated. It also gives examples for each anchor point of the IDEAL schedule’s dimensions to help healthcare professionals who have experience working with people living with dementia in the correct application of the schedule in clinical practice and research. The glossary is a key component of the IDEAL schedule and should be used alongside the schedule, including within training.

scholarly journals THU0642-HPR EVOLUTION OF THE PERCEPTIONS OF RA PATIENTS AFTER EDUCATION PATIENT SESSION TEACHING METHOTREXATE SELF-INJECTION A PROSPECTIVE PILOT STUDY

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 566.1-566
Author(s):  
S. Afilal ◽  
H. Rkain ◽  
B. Berchane ◽  
J. Moulay Berkchi ◽  
S. Fellous ◽  
...  
Keyword(s):  
Pilot Study ◽  
Patient Education ◽  
Median Duration ◽  
Large Scale ◽  
Education Session ◽  
Prospective Pilot Study ◽  
Mean Delay ◽  
Lack Of Information ◽  
Level Of Satisfaction ◽  
Before And After

Background:Methotrexate is a gold standard for treatment of RA. In our context, RA patients prefer to be injected by paramedics rather than self-injecting. This can be explained by patients’ bad perceptions of self-injection or lack of information. Appropriate self-injection education can therefore be an important element in overcoming these obstacles and improving disease self-management.Objectives:Compare the RA patients’ perceptions on methotrexate self-injection before and after a patient education session.Methods:Prospective pilot study that included 27 consecutive patients (81.5% female, mean age 44.4 years, illiteracy rate 40.7%) with RA (median duration of progression of 4 years, mean delay in referral for specialist of 6 months, median duration of methotrexate use of 1 year). The patients benefited from an individual patient education session to learn how to self-inject with methotrexate subcutaneously. The patient education session was supervised by a nurse and a rheumatologist with a control a week later. Perceptions of the reluctance to self-inject and the difficulties encountered by patients were assessed before the patient education session, after the 1st and 2nd self-injection of methotrexate using a 10 mm visual analog scale. Patients also reported their level of satisfaction (10 mm VAS) after the 1st and 2nd self-injection.Results:The mean duration of patient education session is 13 min.Table I compares the evolution of the degrees of reluctance to self-injection, the difficulties encountered, and the satisfaction experienced by the patients.Table 1.Evolution of RA patients’ perceptions on the methotrexate self-injection. (N = 27)BeforeAfter the 1stself-injectionAfter the 2end self-injectionpVAS reluctance (0-10mm)6,5 ± 3,62,2 ± 2,91,0 ± 2,3<0,0001VAS difficulty (0-10mm)7,5 ± 2,62,5 ± 2,71,0 ± 1,9<0,0001VAS satisfaction (0-10mm)-8,9 ± 1,89,5 ± 1,50,002Conclusion:This study suggests the effectiveness of a methotrexate self-injection patient education session in RA patients. It also highlights the value of patient education in rheumatologic care. A large-scale study is necessary to better interpret and complete these preliminary results from this pilot study.Disclosure of Interests:None declared

scholarly journals Piloting the Play Cycle Observation Method in ‘real time’: Recording children’s Play Cycles in pre-school provision

2020 ◽  
pp. 1476718X2096985
Author(s):  
Pete King ◽  
LaDonna Atkins ◽  
Brandon Burr
Keyword(s):  
Pilot Study ◽  
Real Time ◽  
School Setting ◽  
Early Years ◽  
Good Reliability ◽  
Rater Reliability ◽  
Children's Play ◽  
Observational Tool ◽  
Observation Method ◽  
And Training

The Play Cycle Observation Method (PCOM) is an observational tool developed to focus on the process of play and has shown good reliability when watching videos of children playing. This study piloted use of the PCOM in ‘real time’ in a pre-school setting where 3-year-old children play. The results from two independent observers not familiar with the concept of the Play Cycle or the PCOM found good inter-rater reliability using Cohen Kappa (k) when observing play cues to form play cycles, as well as observing play cues within established play cycles. In addition, the recording of the nature of the play cues and play returns, the play frame and how the play cycle finishes (annihilation) were shown to be consistent between the two inter-rater observers. The results of this pilot study indicate the PCOM can be used as an observational tool to record the process of play by both students and practitioners working in a range of contexts including playwork, childcare, early years and statutory education. The PCOM can also be used as a teaching and training aid for trainers and lecturers.

scholarly journals 411 - Implementing the STrAtegies for RelaTives (START) intervention in Portugal – preliminary findings

2020 ◽  
Vol 32 (S1) ◽  
pp. 127-127
Author(s):  
Fatima Urzal ◽  
Ana Quintão ◽  
Catarina Santos ◽  
Nuno Moura ◽  
Ana Banazol ◽  
...  
Keyword(s):  
Pilot Study ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Clinical Training ◽  
Unmet Needs ◽  
Depression Scale ◽  
Subjective Impression ◽  
Implementation Challenges ◽  
People With Dementia ◽  
The Uk

IntroductionAs in other countries, Portuguese family caregivers have unmet needs regarding information and distress. START (STrAtegies for RelaTives) is a manual-based coping intervention for families of people with dementia, including coping strategies and stress-management components, by Livingston and colleagues (https://www.ucl.ac.uk/psychiatry/research/mental-health-older-people/projects/start). In the UK, START has been clinically effective, immediately and continuing even after 6-years, without increasing costs. Clinical training and supervision ensures treatment fidelity. In Portugal, these kind of interventions are less available and, when provided, are mostly supportive and fail to address coping strategies. Paradoxically, recruitment may also prove challenging.ObjectivesWe describe the development of the Portuguese translation of START, incorporating guidance from the UK team, and a pilot study of delivery to family caregivers of people with dementia. We will also discuss the challenges of recruiting participants and delivering the intervention.MethodWe translated the START intervention and recruited family caregivers from neurology and psychiatry outpatients, in a central hospital in Lisbon. Our baseline assessment included the Hospital Anxiety and Depression Scale and the Zarit Burden Interview. The pilot is still ongoing at time of submitting, so we focus on recruitment, baseline assessments and process issues.ResultsDuring a three-month period, we recruited six caregivers. Five were primary caregivers (spouses or adult children) who had been caring for their relatives for 2 up to 10 years. Two caregivers met the international cutoff for clinically relevant affective disorder . The most frequent motivators for taking part were learning to communicate with their relatives and increasing knowledge to build community resources. Overall, the subjective impression of the therapist in charge is that the intervention seems acceptable and promising.Discussion/ConclusionsThis pilot study will eventually lead to an improved version of the Portuguese version of the START manual. So far, the intervention seems appropriate for selected caregivers in Portugal. However, response to striking unmet needs, particularly basic home support, may need to precede interventions like START. We look forward to concluding the intervention study and analyzing the implementation challenges, as a basis to inform a wider-scale trial.

scholarly journals What Are the Benefits of Pet Ownership and Care Among People With Mild-to-Moderate Dementia? Findings From the IDEAL programme

2020 ◽  
pp. 073346482096261
Author(s):  
Carol Opdebeeck ◽  
Michael A. Katsaris ◽  
Anthony Martyr ◽  
Ruth A. Lamont ◽  
James A. Pickett ◽  
...  
Keyword(s):  
Positive Outcomes ◽  
Pet Ownership ◽  
Active Life ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Self Reports ◽  
Key Factor ◽  
Person With Dementia ◽  
The Ideal

Pet ownership has been associated with positive outcomes in many populations, yet the associations with physical and psychological wellbeing in people with dementia remain unclear. The current study used baseline data from 1,542 people living at home with mild-to-moderate dementia from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) programme. Regression analyses investigated associations of pet ownership and pet care with self-reports of walking, loneliness, depression, and quality of life (QoL). After adjusting for covariates, having any pet was associated with higher likelihood of walking over 3 hr in the last week. Those with a dog and who were involved in its care were less likely to be lonely than those with no dog. Having any pet but no involvement in its care was associated with increased depression and decreased QoL compared with those without a pet. The key factor in the associations was involvement in the care of the pet by the person with dementia.

THE FOREST FOR THE TREES: SOCIETY AND THE HOUSEHOLD IN EARLY MODERN EUROPE

1998 ◽  
Vol 41 (4) ◽  
pp. 1161-1172 ◽  
Author(s):  
JOEL F. HARRINGTON
Keyword(s):  
Large Scale ◽  
University Of Pennsylvania ◽  
Italian Renaissance ◽  
German History ◽  
Early Modern Europe ◽  
Cambridge University ◽  
Johns Hopkins University ◽  
Big Picture ◽  
To Come ◽  
The Ideal

Gender relations in German history: power, agency, and experience from the sixteenth to the twentieth century. Edited by Lynn Abrams and Elizabeth Harvey. London: UCL, 1996. Pp. x+262. ISBN 1-85728-485-2. £12.95.Adultery and divorce in Calvin's Geneva. By Robert M. Kingdon. Cambridge, Mass., and London: Harvard UP, 1995. Pp. ix+214. ISBN 0-674-00520-1 (hb). £18.50.Housecraft and statecraft: domestic service in Renaissance Venice, 1400–1600. By Dennis Romano. Baltimore: Johns Hopkins University Press, 1996. Pp. xxvi+333. ISBN 0-8018-5288-9. £37.00.The European nobility, 1400–1800. By Jonathan Dewald. New approaches to European history, ix. Cambridge: Cambridge University Press, 1996. Pp. xvii+209. ISBN 0-521-42528-x (pb). £12.95.Garden and grove: the Italian Renaissance garden in the English imagination, 1600–1750. By John Dixon Hunt. Philadelphia: University of Pennsylvania, 1996. Pp. xix+268. ISBN 0-8122-1604-0 (pb). £23.50.Like an ancient woodsman or a guide through the Amazonian jungle, the ideal historian possesses at least two kinds of expertise: enough familiarity with the general terrain to plan successful expeditions and enough experience in the field to make inevitable adjustments to ‘the big picture’ when underway. Of course in the real world (of both geography and history) the tasks of exploration and cartography are often bifurcated, without necessarily disastrous results. The historian who is equally skilled at both close-up description and large-scale theorizing is consequently celebrated as a rare and valued anomaly. Meanwhile, for most of us stumbling scouts, the world beyond our familiar trails remains largely one of learned lore, with connections to our own limited forays often vague at best. Unless, of course, we are fortunate enough to come across something which provides an almost magical link between the narrow and the wide, the micro and the macro.

Statistical analysis plan of the head position in acute ischemic stroke trial pilot (HEADPOST pilot)

2016 ◽  
Vol 12 (2) ◽  
pp. 211-215
Author(s):  
Verónica V Olavarría ◽  
Hisatomi Arima ◽  
Craig S Anderson ◽  
Alejandro Brunser ◽  
Paula Muñoz-Venturelli ◽  
...  
Keyword(s):  
Ischemic Stroke ◽  
Statistical Analysis ◽  
Pilot Study ◽  
Acute Ischemic Stroke ◽  
Transcranial Doppler ◽  
Controlled Trial ◽  
Statistical Analysis Plan ◽  
Head Position ◽  
Process Of Care ◽  
Anterior Circulation

Background The HEADPOST Pilot is a proof-of-concept, open, prospective, multicenter, international, cluster randomized, phase IIb controlled trial, with masked outcome assessment. The trial will test if lying flat head position initiated in patients within 12 h of onset of acute ischemic stroke involving the anterior circulation increases cerebral blood flow in the middle cerebral arteries, as measured by transcranial Doppler. The study will also assess the safety and feasibility of patients lying flat for ≥24 h. The trial was conducted in centers in three countries, with ability to perform early transcranial Doppler. A feature of this trial was that patients were randomized to a certain position according to the month of admission to hospital. Objective To outline in detail the predetermined statistical analysis plan for HEADPOST Pilot study. Methods All data collected by participating researchers will be reviewed and formally assessed. Information pertaining to the baseline characteristics of patients, their process of care, and the delivery of treatments will be classified, and for each item, appropriate descriptive statistical analyses are planned with comparisons made between randomized groups. For the outcomes, statistical comparisons to be made between groups are planned and described. Results This statistical analysis plan was developed for the analysis of the results of the HEADPOST Pilot study to be transparent, available, verifiable, and predetermined before data lock. Conclusions We have developed a statistical analysis plan for the HEADPOST Pilot study which is to be followed to avoid analysis bias arising from prior knowledge of the study findings. Trial registration The study is registered under HEADPOST-Pilot, ClinicalTrials.gov Identifier NCT01706094.

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