Multiple Sclerosis Nursing

2016 ◽  
Author(s):  
Kirstin Nygren ◽  
Gail Hartley
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Young Adults ◽  
Symptom Management ◽  
Disease Burden ◽  
Life Changes ◽  
Major Life ◽  
Disease Spectrum ◽  
The Brain

At each point across the disease spectrum, the MS nurse plays a pivotal role in the symptom management and comprehensive care of patients with multiple sclerosis. Multiple sclerosis most often affects young adults in the prime of life, derailing and interrupting goals and plans for the future. Whereas a neurologist might look at the disease burden of the brain, the MS nurse looks at the burden on a patient’s life. This nursing approach enables the MS nurse to help patients adjust and adapt to changes and symptoms as disease progression occurs and to empower them to live with the highest quality of life possible. As patients adjust to major life changes or advancing levels of disability, MS nurses can offer support and instill a sense of hope. This support is also important in promoting empowerment and wellness for persons with MS.

Symptomatic Treatment in Multiple Sclerosis

US Neurology ◽  
2013 ◽  
Vol 09 (01) ◽  
pp. 35
Author(s):  
Sandra Bigi ◽  
E Ann Yeh ◽  
◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Young Adults ◽  
Sexual Dysfunction ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Negative Impact ◽  
Treatment Options ◽  
Symptomatic Treatment

Multiple sclerosis (MS) is a progressive and disabling neurodegenerative disease that primarily affects young adults. Despite significant therapeutic advances in the prevention of relapses, individuals with MS experience a variety of symptoms, most notably fatigue, spasticity, depression, gait and balance difficulties, and sexual dysfunction. These symptoms may interfere with activities of daily living and have a negative impact on quality of life. This review discusses treatment options for these symptoms.

How Behavioral and Quality of Life Changes Affect Social Cognition in Multiple Sclerosis Patients (P02.042)

Neurology ◽  
2012 ◽  
Vol 78 (Meeting Abstracts 1) ◽  
pp. P02.042-P02.042
Author(s):  
S. Vanotti ◽  
G. Rojas ◽  
R. Allegri ◽  
F. Caceres ◽  
RELACCEM Workgroup
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Social Cognition ◽  
Life Changes ◽  
Multiple Sclerosis Patients

Health-Related Quality of Life Among Young Adults with Multiple Sclerosis

2010 ◽  
Vol 12 (4) ◽  
pp. 190-199 ◽  
Author(s):  
Robert J. Buchanan ◽  
Chunfeng Huang ◽  
Michael Kaufman
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Young Adults ◽  
Social Life ◽  
Regression Models ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Physical Dimensions

Multiple sclerosis (MS) is an unpredictable disease that can have physical, psychological, and social impacts, reducing health-related quality of life (HRQOL). The objective of this study was to identify factors associated with HRQOL among young adults with MS. Survey data were collected from 100 people with MS aged 18 to 31 years, with 93 participants providing all data needed for analyses of our regression models. The survey cohort was recruited from the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry (now the NARCOMS/Global Patient Registry). Multiple linear regression models were used to analyze the data, with the Physical Component Summary and the Mental Component Summary of the 8-item Short Form Health Status Survey serving as dependent variables. Independent variables were other survey responses, including demographic, disease, and treatment characteristics. The results indicated that full-time employment, relapsing-remitting course of MS, and satisfaction with access to MS-focused care were associated with better physical dimensions of HRQOL. Conversely, MS symptoms that interfered with daily life and perceptions of not having as good a social life as other people of comparable age were linked to poorer physical dimensions of HRQOL. Worsening MS symptoms, not having as good a social life as other people of comparable age, and seeing a mental health professional in the previous 12 months were associated with poorer mental dimensions of HRQOL. Our study highlights the association of MS-focused care with better physical dimensions of HRQOL among young adults with MS.

scholarly journals Quality of Life, Cognition and Mood in Adults with Pediatric Multiple Sclerosis

2016 ◽  
Vol 43 (3) ◽  
pp. 368-374 ◽  
Author(s):  
Kristen M. Krysko ◽  
Paul O’Connor
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Young Adults ◽  
Cognitive Function ◽  
Physical Disability ◽  
Normative Data ◽  
Short Form ◽  
Physical Hrqol ◽  
Pediatric Onset

AbstractBackground: Pediatric onset multiple sclerosis (MS) negatively affects cognitive function, mood and health related quality of life (HRQOL). We aimed to explore the cognitive, psychological and HRQOL impacts of pediatric MS on young adults and to explore the relationships between disability, disease duration, cognition, mood and HRQOL in this hypotheses generating study. Methods: Thirty-four young adults with pediatric onset MS at St. Michael’s Hospital in Toronto were included in this cross-sectional study (mean age 21.3 years, 56% female). Participants completed assessments of physical disability (Expanded Disability Status Scale (EDSS)), cognitive function (Symbol Digit Modalities Test (SDMT)), mood (Beck Depression Inventory II (BDI-II)), and HRQOL (Short Form Health Survey (SF-36v2)). Findings were compared to age- and gender- matched normative data. Results: Individuals with pediatric MS performed worse on the SDMT compared to normative data, with 53% demonstrating cognitive impairment. There was no difference in BDI-II scores from normative data, but 21% showed at least mild depression. There was a non-significant impairment in physical HRQOL compared to normative data. Decreased physical HRQOL was related to disability (EDSS), while mental HRQOL was related to depression (BDI-II). Conclusions: Young adults with pediatric MS have reduced cognitive function. Non-significant reductions in HRQOL may be partly attributed to physical disability and depression. These factors should be addressed in the care of adults with pediatric MS. Further studies including control groups and longitudinal design are needed to confirm these findings.

Symptomatic Treatment in Multiple Sclerosis

2013 ◽  
Vol 8 (2) ◽  
pp. 130
Author(s):  
Sandra Bigi ◽  
E Ann Yeh ◽  
◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Young Adults ◽  
Sexual Dysfunction ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Negative Impact ◽  
Treatment Options ◽  
Symptomatic Treatment

Multiple sclerosis (MS) is a progressive and disabling neurodegenerative disease that primarily affects young adults. Despite significant therapeutic advances in the prevention of relapses, individuals with MS experience a variety of symptoms, most notably fatigue, spasticity, depression, gait and balance difficulties and sexual dysfunction. These symptoms may interfere with activities of daily living and have a negative impact on quality of life. This review discusses treatment options for these symptoms.

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