scholarly journals QOL-34. CAREER FAIR AND RESOURCE EXPO: ADVOCATING FOR THE LONG TERM SUCCESS OF BRAIN TUMOR SURVIVORS

2020 ◽  
Vol 22 (Supplement_3) ◽  
pp. iii437-iii438
Author(s):  
Clay Hoerig ◽  
Karlie Allen ◽  
Kara Noskoff ◽  
Jamie Frediani ◽  
Jody Pathare ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Academic Success ◽  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Adolescent And Young Adult ◽  
Long Term Effects ◽  
School Reintegration ◽  
Non Profit ◽  
Pediatric Cancer Survivors

Abstract Pediatric cancer survivors have increased unemployment and lower educational attainment rates. This is most significant in brain tumor survivors who show five-fold relative odds increase in unemployment over other pediatric cancer survivors. The long-term effects of brain tumor treatment potentiate the difficulty with work and school reintegration seen in the broader Adolescent and Young Adult (AYA) population. To address this, our team designed an annual job fair for AYA Neuro-Oncology survivors. Vendors were invited representing disability advocacy groups, legal services, scholarship organizations, and employers with strong disability services, several who offered on-site interviews. Additionally, brain tumor survivors served as inspirational speakers for the event. Between thirty to forty survivors have attended each event. Pre- and post-surveys, as well as 3- and 6- month follow up was obtained. Universally, the day was engaging and motivating, both for survivors and staff, and stimulated conversation for pursuing career or academic success within families and the care team. While all the patients took applications, none of the patients completed the on-site interviews, finding them overwhelming. Even at the 3- and 6-month follow-ups following the first event, the survivors continued to be at varying levels of application completion; no one who was previously unemployed attained new employment. This improved after pre-event meetings were held with survivors to participate in resume building and interview preparation. Currently, two survivors obtained employment and are still employed at 1 year and five survivors were able to advocate for their disabilities services in college with help of a non-profit legal assistant.

Exercise cardiac MRI unmasks cardiac dysfunction in childhood and adolescent cancer survivors with reduced cardiopulmonary fitness

2020 ◽  
Vol 41 (Supplement_2) ◽  
Author(s):  
S Foulkes ◽  
B Costello ◽  
E.J Howden ◽  
K Janssens ◽  
H Dillon ◽  
...  
Keyword(s):  
Heart Failure ◽  
Cardiac Function ◽  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Cardiac Dysfunction ◽  
Cardiopulmonary Fitness ◽  
Cardiac Reserve ◽  
Pediatric Cancer Survivors ◽  
Increased Risk

Abstract Background Young cancer survivors are at increased risk of impaired cardiopulmonary fitness (VO2peak) and heart failure. Assessment of exercise cardiac reserve may reveal sub-clinical abnormalities that better explain impairments in fitness and long term heart failure risk. Purpose To investigate the presence of impaired VO2peak in pediatric cancer survivors with increased risk of heart failure, and to assess its relationship with resting cardiac function and cardiac reserve Methods Twenty pediatric cancer survivors (aged 8–24 years) treated with anthracycline chemotherapy underwent cardiopulmonary exercise testing to quantify VO2peak, with a value <85% of predicted defined as impaired VO2peak. Resting cardiac function was assessed using 3-dimensional echocardiography, with cardiac reserve quantified from resting and peak exercise heart rate (HR), stroke volume index (SVi) and cardiac index (CI) using exercise cardiac magnetic resonance imaging. Results 12 of 20 survivors (60%) had impaired VO2peak (97±14% vs. 70±16% of age and gender predicted). There were no differences in echocardiographic or CMR measurements of resting cardiac function between survivors with normal or impaired VO2peak. However, those with reduced VO2peak had diminished cardiac reserve, with a lesser increase in CI (Fig. 1A) and SVi (Fig. 1B) during exercise (Interaction P=0.001 for both), whilst the HR response was similar (Fig. 1C; P=0.71). Conclusions Resting measures of cardiac function are insensitive to significant cardiac dysfunction amongst pediatric cancer survivors with reduced VO2peak. Measures of cardiopulmonary fitness and cardiac reserve may aid in early identification of survivors with heightened risk of long-term heart failure. Figure 1 Funding Acknowledgement Type of funding source: Foundation. Main funding source(s): National Heart Foundation

scholarly journals Knowledge of hepatitis C virus screening in long-term pediatric cancer survivors

Cancer ◽  
2010 ◽  
Vol 116 (4) ◽  
pp. 974-982 ◽  
Author(s):  
Meagan Lansdale ◽  
Sharon Castellino ◽  
Neyssa Marina ◽  
Pamela Goodman ◽  
Melissa M. Hudson ◽  
...  
Keyword(s):  
Hepatitis C Virus ◽  
Hepatitis C ◽  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Pediatric Cancer Survivors ◽  
Virus Screening

scholarly journals Long-term follow-up for incident cirrhosis among pediatric cancer survivors with hepatitis C virus infection

2015 ◽  
Vol 71 ◽  
pp. 18-21 ◽  
Author(s):  
Sericea Stallings-Smith ◽  
Kevin R. Krull ◽  
Tara M. Brinkman ◽  
Melissa M. Hudson ◽  
Rohit P. Ojha
Keyword(s):  
Hepatitis C Virus ◽  
Hepatitis C ◽  
Virus Infection ◽  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Hepatitis C Virus Infection ◽  
Pediatric Cancer Survivors ◽  
Long Term Follow Up

Primary care providers as partners in long-term follow-up of pediatric cancer survivors

2012 ◽  
Vol 6 (3) ◽  
pp. 270-277 ◽  
Author(s):  
Lillian R. Meacham ◽  
Paula J. Edwards ◽  
Brooke O. Cherven ◽  
Michael Palgon ◽  
Sofia Espinoza ◽  
...  
Keyword(s):  
Primary Care ◽  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Primary Care Providers ◽  
Care Providers ◽  
Pediatric Cancer Survivors ◽  
Long Term Follow Up

scholarly journals Sarcoma as Second Cancer in a Childhood Cancer Survivor: Case Report, Large Population Analysis and Literature Review

Medicina ◽  
2020 ◽  
Vol 56 (5) ◽  
pp. 224 ◽  
Author(s):  
Thinh H. Nguyen ◽  
Monish Ram Makena ◽  
Siddhartha Yavvari ◽  
Maninder Kaur ◽  
Teresia Pham ◽  
...  
Keyword(s):  
Literature Review ◽  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Population Analysis ◽  
Large Population ◽  
Primary Cancer ◽  
Second Cancer ◽  
Pediatric Cancer Survivors ◽  
The Impact

The majority of pediatric patients are cured of their primary cancer with current advanced developments in pediatric cancer therapy. However, survivors often experience long-term complications from therapies for primary cancer. The delayed mortality rate has been decreasing with the effort to reduce the therapeutic exposure of patients with pediatric cancers. Our study investigates the incidence of sarcoma as second cancer in pediatric cancer survivors. We present a 9-year-old male who survived embryonal hepatoblastoma diagnosed at 22 months of age. At 4.5 years of age, he presented with a non-metastatic primitive neuroectodermal tumor (PNET) of the left submandibular area. He has no evidence of recurrence of either cancer for 51 months after finishing all chemotherapy and radiotherapy. We used the Surveillance, Epidemiology, and End Results (SEER) database to identify the current rate of second sarcomas in pediatric cancer survivors. Our literature review and large population analysis emphasize the impact of sarcoma as a second malignancy and provide help to physicians caring for pediatric cancer survivors.

scholarly journals Psychosocial Long-Term Effects of Young Adult Cancer Survivors: Study Protocol of the Longitudinal AYA-LE Long-Term Effects Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Kristina Geue ◽  
Anja Mehnert-Theuerkauf ◽  
Isabelle Stroske ◽  
Hannah Brock ◽  
Michael Friedrich ◽  
...  
Keyword(s):  
Young Adults ◽  
Psychological Distress ◽  
Young Adult ◽  
Cancer Survivors ◽  
Cancer Patients ◽  
Adolescent And Young Adult ◽  
Long Term Effects ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors

Background: About 3% of new cancer cases affect young adults aged between 15 and 39 years. The young age, the increasing incidence and the relatively good prognosis of this population lead to the growing importance to investigate the psychosocial long-term and late effects. The aims of the AYA-LE long-term effects study are: first, to assess the temporal course and related factors of life satisfaction and psychological distress of adolescent and young adult (AYA) cancer survivors; and second, to examine a specific topic in each of the yearly surveys in a more differentiated way.Methods: This study represents a continuation of the longitudinal AYA-LE study. The existing sample of AYA cancer patients (t1: N = 577; t2: N = 514; aged between 18 and 39 years at diagnosis; all major tumor entities) was extended by four further survey points (t3: 2018, t4: 2019, t5: 2020, t6: 2021). In addition, a comparison sample of young adults without cancer was collected. We measured longitudinal data for outcomes such as quality of life, psychological distress, and fatigue with standardized questionnaires. Furthermore, each survey point included a different cross-sectional topic (e.g., health behavior, occupational situation, and compliance).Discussion: The AYA-LE long-term effects study will show the long-term consequences of cancer in young adulthood. We expect at least complete data of 320 participants to be available after the sixth survey, which will be completed in 2021. This will provide a comprehensive and differentiated understanding of the life situation of young adults with cancer in Germany. The findings of our study enable a continuous improvement of the psychosocial care and specific survivorship programs for young cancer patients.

Sign in / Sign up

Export Citation Format

Share Document