scholarly journals Quality of Life Among Parents of Adolescent and Young Adult Brain Tumor Survivors

2017 ◽  
Vol 39 (8) ◽  
pp. 579-584 ◽  
Author(s):  
David K. Buchbinder ◽  
Michelle A. Fortier ◽  
Kathryn Osann ◽  
Justin Wilford ◽  
Violet Shen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Young Adult ◽  
Adult Brain ◽  
Adolescent And Young Adult

scholarly journals Female Reproductive Health After Childhood, Adolescent, and Young Adult Cancers: Guidelines for the Assessment and Management of Female Reproductive Complications

2013 ◽  
Vol 31 (9) ◽  
pp. 1239-1247 ◽  
Author(s):  
Monika L. Metzger ◽  
Lillian R. Meacham ◽  
Briana Patterson ◽  
Jacqueline S. Casillas ◽  
Louis S. Constine ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Reproductive Health ◽  
Hormonal Regulation ◽  
Pubertal Development ◽  
Adolescent And Young Adult ◽  
Primary Therapy ◽  
Ongoing Research

Purpose As more young female patients with cancer survive their primary disease, concerns about reproductive health related to primary therapy gain relevance. Cancer therapy can often affect reproductive organs, leading to impaired pubertal development, hormonal regulation, fertility, and sexual function, affecting quality of life. Methods The Children's Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancer (COG-LTFU Guidelines) are evidence-based recommendations for screening and management of late effects of therapeutic exposures. The guidelines are updated every 2 years by a multidisciplinary panel based on current literature review and expert consensus. Results This review summarizes the current task force recommendations for the assessment and management of female reproductive complications after treatment for childhood, adolescent, and young adult cancers. Experimental pretreatment as well as post-treatment fertility preservation strategies, including barriers and ethical considerations, which are not included in the COG-LTFU Guidelines, are also discussed. Conclusion Ongoing research will continue to inform COG-LTFU Guideline recommendations for follow-up care of female survivors of childhood cancer to improve their health and quality of life.

Quality of Life in Adolescent and Young Adult Women With Dyspareunia and Endometriosis

2020 ◽  
Vol 67 (4) ◽  
pp. 557-561 ◽  
Author(s):  
Madeline P. Schneider ◽  
Allison F. Vitonis ◽  
Ayotunde B. Fadayomi ◽  
Brittany M. Charlton ◽  
Stacey A. Missmer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Adolescent And Young Adult ◽  
Adult Women ◽  
Young Adult Women

scholarly journals Health-related quality of life of adolescent and young adult survivors of childhood brain tumors

2014 ◽  
Vol 24 (7) ◽  
pp. 804-811 ◽  
Author(s):  
Lamia P. Barakat ◽  
Yimei Li ◽  
Wendy L. Hobbie ◽  
Sue K. Ogle ◽  
Thomas Hardie ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Adult Survivors ◽  
Adolescent And Young Adult ◽  
Health Related Quality ◽  
Childhood Brain Tumors ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors

Health related quality of life in adolescent and young adult survivors of lower extremity bone tumors

2011 ◽  
Vol 58 (2) ◽  
pp. 265-273 ◽  
Author(s):  
Maru Barrera ◽  
Tanya Teall ◽  
Ronald Barr ◽  
Mariana Silva ◽  
Mark Greenberg
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Bone Tumors ◽  
Adult Survivors ◽  
Adolescent And Young Adult ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors

scholarly journals “She Was a Little Social Butterfly”: A Qualitative Analysis of Parent Perception of Social Functioning in Adolescent and Young Adult Brain Tumor Survivors

2017 ◽  
Vol 34 (4) ◽  
pp. 239-249 ◽  
Author(s):  
Justin Wilford ◽  
David Buchbinder ◽  
Michelle A. Fortier ◽  
Kathryn Osann ◽  
Violet Shen ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Young Adult ◽  
Social Competence ◽  
Social Functioning ◽  
Social Adjustment ◽  
Social Neuroscience ◽  
Adult Brain ◽  
Adolescent And Young Adult ◽  
Diagnosis And Treatment ◽  
The Social

Psychosocial sequelae of diagnosis and treatment for childhood brain tumor survivors are significant, yet little is known about their impact on adolescent and young adult (AYA) brain tumor survivors. Interviews were conducted with parents of AYA brain tumor survivors with a focus on social functioning. Semistructured interviews were conducted with English- and Spanish-speaking parents of AYA brain tumor survivors ≥10 years of age who were >2 years postdiagnosis, and analyzed using emergent themes theoretically integrated with a social neuroscience model of social competence. Twenty parents representing 19 survivors with a survivor mean age 15.7 ± 3.3 years and 10.1 ± 4.8 years postdiagnosis were interviewed. Several themes relevant to the social neuroscience social competence model emerged. First, parents’ perceptions of their children’s impaired social functioning corroborated the model, particularly with regard to poor social adjustment, social withdrawal, impaired social information processing, and developmentally inappropriate peer communication. Second, ongoing physical and emotional sequelae of central nervous system insults were seen by parents as adversely affecting social functioning among survivors. Third, a disrupted family environment and ongoing parent psychosocial distress were experienced as salient features of daily life. We document that the aforementioned framework is useful for understanding the social impact of diagnosis and treatment on AYA brain tumor survivorship. Moreover, the framework highlights areas of intervention that may enhance social functioning for AYA brain tumor survivors.

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