Relationship-centred CogniCare: an academic–digital–dementia care experts interface

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Leah Macaden ◽  
Kevin Muirhead ◽  
Giulia Melchiorre ◽  
Ruth Mantle ◽  
Geraldine Ditta ◽  
...  
Keyword(s):  
Social Care ◽  
Well Being ◽  
Dementia Care ◽  
Service Development ◽  
Family Carers ◽  
Content Type ◽  
Symptom Monitoring ◽  
Combined Dementia ◽  
Support Family ◽  
At Home

Purpose This paper aims to reports on an academic–industry service development innovation to advance the symptom monitor and track feature within the CogniCare app to support family carers of people living with dementia. Expert opinion from dementia care professionals identified key monitoring strategies for enhanced carer competence and confidence in the early identification of relevant symptoms that would help facilitate meaningful hospital/social care consultations. Design/methodology/approach A co-production approach between industry and academia included stakeholder representation from NHS Highland and Alzheimer Scotland. Dementia care experts validated items to be included for symptom monitoring and tracking using a newly developed A2BC2D2EF2 framework as part of this project and recommended additional strategies for monitoring symptom change, including carer well-being. Findings Dementia care experts perceived the symptom monitoring and track feature to have the potential to support family carers with dementia care at home and foster a relationship-centred approach to dementia care to facilitate meaningful hospital/social care consultations. Originality/value The CogniCare app is the first platform of its kind that aims to support family carers to care for people living with dementia at home. This unique service development collaborative combined dementia and digital expertise to create innovative digital solutions for dementia care. The proposed monitoring and tracking feature is perceived by dementia care experts as a tool with the potential to enhance carer confidence and thus enable safe and effective dementia care within the home environment.

Trauma-informed servant leadership in health and social care settings

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Daryl Mahon
Keyword(s):  
Servant Leadership ◽  
Conceptual Model ◽  
Social Care ◽  
Large Body ◽  
Well Being ◽  
Service Users ◽  
Content Type ◽  
Starting Point ◽  
Health And Social Care ◽  
Trauma Informed

Purpose Practitioners, organisations and policy makers in health and social care settings are increasingly recognising the need for trauma-informed approaches in organisational settings, with morbidity and financial burdens a growing concern over the past few years. Servant leadership has a unique focus on emotional healing, service to others as the first priority, in addition to the growth, well-being and personal and professional development of key stakeholders. This paper aims to discuss Trauma Informed Servant Leadership (TISL). Design/methodology/approach A targeted review of the servant leadership and trauma-informed care literature was conducted. Relevant studies, including systematic review and meta-analysis, were sourced, with the resulting interpretation informing the conceptual model. Findings Although there are general guidelines regarding how to go about instituting trauma-informed approaches, with calls for organisational leadership to adapt the often cited six trauma-informed principles, to date there has not been a leadership approach elucidated which takes as its starting point and core feature to be trauma informed. At the same time, there is a paucity of research elucidating trauma outcomes for service users or employees in the literature when a trauma-informed approach is used. However, there is a large body of evidence indicating that servant leadership has many of the outcomes at the employee level that trauma-informed approaches are attempting to attain. Thus, the author builds on a previous conceptual paper in which a model of servant leadership and servant leadership supervision are proposed to mitigate against compassion fatigue and secondary trauma in the health and social care sector. The author extends that research to this paper by recasting servant leadership as a trauma-informed model of leadership that naturally operationalises trauma-informed principles. Research limitations/implications A lack of primary data limits the extent to which conclusions can be drawn on the effectiveness of this conceptual model. However, the model is based on robust research across the differential components used; therefore, it can act as a framework for future empirical research designs to be studies at the organisational level. Both the servant leadership and trauma-informed literatures have been extended with the addition of this model. Practical implications TISL can complement the trauma-informed approach and may also be viable as an alternative to trauma-informed approaches. This paper offers guidelines to practitioners and organisations in health and social care on how to operationalise important trauma-informed principles through leadership. Social implications This conceptual model may help reduce the burden of trauma and re-traumatisation encountered by practitioners and service users in health and social care settings, impacting on morbidity. Originality/value To the best of the author’s knowledge, this is a novel approach, the first of its kind.

A self-determination theory perspective on customer participation in service development

2015 ◽  
Vol 29 (6/7) ◽  
pp. 511-521 ◽  
Author(s):  
Jon Engström ◽  
Mattias Elg
Keyword(s):  
Lung Cancer ◽  
Health Care ◽  
Cancer Patients ◽  
Well Being ◽  
Self Determination Theory ◽  
Self Determination ◽  
Customer Participation ◽  
Service Development ◽  
Content Type ◽  
Lung Cancer Patients

Purpose – The purpose of this paper is to explore what motivates patients to participate in service development and how participation may influence their well-being. Health-care providers are increasingly adopting practices of customer participation in such activities to improve their services. Design/methodology/approach – This paper builds on an analysis of data from a service development project in which lung cancer patients contributed by sharing their ideas and experiences through diaries. Out of the 86 lung cancer patients who were invited to participate, 20 agreed to participate and 14 fully completed the task. The study builds on participants’ contributions, in-depth interviews with six participants and the reasons patients gave for not participating. Findings – This paper identifies a number of motives: non-interest in participating, restitution after poor treatment, desire for contact with others, volunteerism, desire to make a contribution and the enjoyment of having a task to complete. A self-determination theory perspective was adopted to show how the need to satisfy basic human needs for autonomy, competence and relatedness determines if and how patients participate. Participation may have important benefits for patients, especially an improved sense of relatedness. Practical implications – Service providers must be prepared to meet different patient needs in service development, ranging from the need to express strong distress to expressing creativity. By understanding the dynamics of motivation and well-being, organizers may achieve better results in terms of improved services and in patient well-being. Originality/value – This study makes a significant contribution to the study of customer participation in service development, especially in relation to health care, by offering a self-determination-based typology for describing different styles of patient participation.

Micro‐enterprise:

2013 ◽  
Vol 21 (1) ◽  
pp. 26-33 ◽  
Author(s):  
Sian Lockwood
Keyword(s):  
Health Inequalities ◽  
Design Methodology ◽  
Social Care ◽  
Community Support ◽  
Well Being ◽  
Local Health ◽  
Content Type ◽  
Local Case ◽  
The Uk ◽  
Health And Well Being

PurposeThis paper seeks to explore the potential of micro‐enterprises to assist local health and well‐being boards in delivering their strategies, especially in relation to tackling health inequalities, prevention and community support.Design/methodology/approachThis paper draws on experience gained by Community Catalysts from its work supporting social care and health micro‐enterprise across the UK. There has been little formal research into social care and health micro‐enterprise and so the paper relies heavily on data gathered by Community Catalysts in the course of its work and uses local case studies to illustrate points.FindingsThe paper explains the importance of social care and health micro‐enterprise to the work of health and well being boards, emphasising its potential to help tackle health inequalities and contribute to effective health and well‐being strategies.Originality/valueThere are no examples as yet of imaginative health and well‐being boards engaging effectively with micro‐providers, but boards can draw on learning from local authorities actively stimulating and supporting local micro‐enterprise.

Can using a servant-leadership model of supervision mitigate against burnout and secondary trauma in the health and social care sector?

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Daryl Mahon
Keyword(s):  
Servant Leadership ◽  
Compassion Fatigue ◽  
Social Care ◽  
Secondary Trauma ◽  
Meta Analysis ◽  
Well Being ◽  
Primary Data ◽  
Content Type ◽  
Health And Social Care ◽  
Core Characteristics

Purpose This paper aims to set out a model of servant leadership that can be infused within a supervisory setting to mitigate employee burnout and negative stressful experiences in the health and social care sector. Design/methodology/approach A brief targeted review of the literature was undertaken to assess the prevalence of burnout in the health and social care sectors. The supervision literature was also explored. The outcomes associated with servant leadership were also distilled, focusing on employee well-being. Findings Research suggests that burnout and related concepts such as secondary trauma and compassion fatigue impact these professions disproportionately. At the same time, servant leadership is suggested to mitigate some of these factors. The author presents a conceptual model of servant leadership supervision consisting of an ideographic model of servant leadership, Servant Leadership Scale-28 (SLS-28), using the most recent meta-analysis defining this construct, and previously validated measures in the extant literature to inform its design. A Servant Leadership Supervision Scale (SLSS) is also presented aligning its use to several of the core characteristics of servant leadership practice. Research limitations/implications In doing so, the author proposes that this approach will help reduce burnout of health and social care sector employees. Limitations are considered in light of the conceptual paper and no primary data. Practical implications A model of servant leadership supervision that can be infused into health and social care supervision. Originality/value This is the first model of servant leadership supervision articulated for the health and social care sector.

Working in a prison: Challenges, rewards, and the impact on mental health and well-being

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sophie Dennard ◽  
Derek K. Tracy ◽  
Aaron Beeney ◽  
Laura Craster ◽  
Fiona Bailey ◽  
...  
Keyword(s):  
Coping Strategies ◽  
Well Being ◽  
Development Project ◽  
Service Development ◽  
Future Research ◽  
Staff Support ◽  
Prison Staff ◽  
Content Type ◽  
Data Driven Approach ◽  
The Impact

Purpose Prisons are uniquely challenging working environments. Staff are often exposed to direct and indirect trauma, impacting negatively on their mental well-being. Due to the limited research into prison staff experience, this paper aims to explore what staff find most challenging, how they cope, what support they would like and rewarding aspects of their work. Design/methodology/approach This service development project was facilitated through a staff well-being event. A qualitative approach was used and 74 staff members provided anonymised responses. An inductive and data-driven approach was used to analyse the data, and the trustworthiness of the analysis was considered using criteria established by Lincoln and Guba (1985). Findings Thematic analysis identified six themes, namely, the challenging nature of the work, interactions with prisoners, staff interactions, inadequate resources, staff support and development and coping strategies. Key findings include managing distress, self-harm and violence and limited resources presenting challenges. Role variety and opportunities to support prisoners were reported as positive. A variety of coping strategies were identified. Wider availability of supervision and reflective practice was suggested by staff. Practical implications Recommendations for increased staff support are made. Suggestions for future research investigating methods to increase rewarding aspects of work within prisons are given. Originality/value This analysis adds to the limited body of qualitative research investigating prison staff experiences; in particular, aspects of the work that they find rewarding such as the role variety and opportunities to make positive changes to prisoners’ lives. Novel coping strategies were identified, including cognitive reframing and behavioural strategies for managing stress, which could be encouraged to increase resilience.

scholarly journals Commentary on “depression and people with a learning disability: a way forward”

2020 ◽  
Vol 25 (1) ◽  
pp. 22-25
Author(s):  
Peter McGill
Keyword(s):  
Learning Disability ◽  
Design Methodology ◽  
Social Care ◽  
Well Being ◽  
Care Provision ◽  
Care Needs ◽  
Eligibility Criteria ◽  
Psychological Well Being ◽  
Content Type

Purpose The purpose of this paper is to provide a commentary on Andrew Jahoda’s article “Depression and people with a learning disability: a way forward”. Design/methodology/approach The paper considers depression and other issues of psychological well-being from the perspective of the eligibility criteria for social care in England as enshrined in the 2014 Care Act. Findings There is a danger of issues of psychological well-being being seen as health rather than social care needs. A more integrated perspective is required. Originality/value The paper illustrates the importance of the role of social care provision in promoting the well-being of people with learning disabilities.

Transnationalism and parenthood in a new country

2019 ◽  
Vol 15 (4) ◽  
pp. 294-305 ◽  
Author(s):  
Lisa Merry ◽  
Nancy Edwards
Keyword(s):  
Social Care ◽  
Well Being ◽  
Migrant Health ◽  
New Approach ◽  
Content Type ◽  
Transnational Ties ◽  
Migrant Families ◽  
Health And Social Care ◽  
Families With Children ◽  
Health And Well Being

Purpose The purpose of this paper is to highlight gaps in the literature regarding transnational ties, the experience of raising and caring for children in a new (high-income) country and well-being, and to propose a program of research to address these gaps. Design/methodology/approach A general review of the literature on international migration, transnationalism and parenthood was conducted. A program of research and its objectives are then described. Findings To address research gaps, the proposed program of research aims to: develop approaches and tools to examine and measure the transnational experiences of migrant families; better understand migrants’ transnational obligations, resources and movements and their impact on parenthood and the health and well-being of families; assess whether existing health and social care and services for migrant families with children consider the transnational contexts and experiences of families; and determine how health and social care and services for migrant families with children may be adapted or developed to address transnational challenges and enhance transnational resources for families. Originality/value The proposed program of research offers a new approach, transnationalism, for producing knowledge toward better understanding the health and optimizing the care of migrant families in the context of raising and caring for children in a new country. It also contributes to the agenda setting regarding the approach and priority areas for research in migrant health.

The ethical evaluation of assistive technology for practitioners: a checklist arising from a participatory study with people with dementia, family and professionals

2012 ◽  
Vol 6 (2) ◽  
pp. 123-135 ◽  
Author(s):  
Beatrice Godwin
Keyword(s):  
Assistive Technology ◽  
Ethical Dilemmas ◽  
Study Data ◽  
Dementia Care ◽  
Structured Interviews ◽  
Content Type ◽  
Ethical Evaluation ◽  
People With Dementia ◽  
Monitoring And Surveillance ◽  
At Home

PurposeUncertainty over ethical impact may hinder uptake of assistive technology (AT) in dementia. This study aims to examine whether AT contributes to person‐centred care, whether users can participate in research and to explore ethical dilemmas with users, family and professional carers.Design/methodology/approachPeople with dementia, at home or in residential care, and carers were allocated equipment and consulted about ethics. In a small, qualitative study, data were collected using semi‐structured interviews and vignettes and content‐analysed to establish themes.FindingsAT in person‐centred dementia care requires meticulous assessment, reliability and availability in rapidly evolving situations. Users displayed insight, logic and empathy in ethical evaluation. They disliked remote monitoring and surveillance, whereas carers were pragmatic, prioritising safety.Research limitations/implicationsThis research provides further evidence that users with dementia can be included in research. It demonstrates a significant potential role for AT in dementia care, with an ethical checklist to help professionals evaluate ethical dilemmas.Originality/valueAT potentially increases wellbeing, enabling users to remain longer at home, delaying or avoiding moves to or between homes.

scholarly journals Social care mentorship and employee engagement in the transformation of the Social Care Workforce

2014 ◽  
Vol 26 (3/4) ◽  
pp. 267-280 ◽  
Author(s):  
Janet McCray ◽  
Hazel Turner ◽  
Barbara Hall ◽  
Marie Price ◽  
Gill Constable
Keyword(s):  
Employee Engagement ◽  
Social Care ◽  
Management Practice ◽  
Care Service ◽  
Well Being ◽  
Small Scale ◽  
Social Care Service ◽  
Content Type ◽  
Development Framework

Purpose – This paper presents the findings of a small scale research project exploring mentorship programme participants experiences and learning about their managerial role in an adult social care service seeking to build management practice, resilience and well-being in the context of transformation. Design/methodology/approach – A case study of one public sector workforce development project is presented. The programme involved the use of an individual social care mentorship model and continuing professional development framework to support and engage 60 social care managers in the facilitation of workforce practice transformation. A small scale research study of 15 managers was undertaken. Participants provided a written reflective review and narrative of their individual experience and of learning. The narrative of a purposive sample of 15 managers was analysed using a work by Tamboukou and informed by a work byLabov and Waletzky as a guide. Findings – Thematic analysis of managers' reflective accounts, identified the adaption of coaching methods and the used of role modelling skills in the workplace. Emotional well being and resilience was maintained during the mentorship programme. Structural analysis emphasised sequences or messages in the narrative indicating manager's cooperation with the organisation in achieving its' transformational goals and gaining employee engagement. Research limitations/implications – This is a small scale study exploring one aspect of the project's goals. Practical implications – The project delivery and research findings will be of interest to other organisations considering the implementation of mentorship to support transformation and change. Originality/value – There are very few evaluations and research studies of social care mentorship in the literature and this paper and the case study presented provides interesting new insights into the process and its possible outcomes.

scholarly journals Implementing person centred dementia care: a musical intervention

2015 ◽  
Vol 19 (2) ◽  
pp. 77-84 ◽  
Author(s):  
Elaine Argyle ◽  
Tony Kelly
Keyword(s):  
Care Setting ◽  
Positive Impact ◽  
Care Service ◽  
Well Being ◽  
Dementia Care ◽  
Content Type ◽  
Eclectic Approach ◽  
Health And Social Care ◽  
Potential Benefits ◽  
Health And Well Being

Purpose – Recent years have seen the advocacy of person-centred approaches to dementia care. An important component of this approach has been the use of arts in the promotion of health and well-being. However, relatively little attention has been given to the barriers and facilitators experienced in trying to implement these types of interventions in a dementia care setting. It is therefore, the purpose of this paper is to help to redress this neglect by examining the process of implementing a personalised musical intervention for the clients of a specialist dementia home care service. Design/methodology/approach – Drawing on interviews with five project stakeholders, the paper examines, not only the potential benefits to be gained from the musical intervention but also identifies the barriers experienced in its implementation and ways in which they could be overcome. Findings – It was found that although the musical intervention had a potentially positive impact, there were multi-levelled barriers to its implementation including issues of training, leadership as well as contextual issues such as commissioning and resourcing more generally. Originality/value – The key role played by these issues in the process of implementation suggests that practice should transcend its focus on individual wellbeing and address the wider factors that can facilitate or prevent its fulfilment. While the multi-levelled nature of the obstacles identified suggest that the implementation of innovative interventions within health and social care settings should adopt a similarly eclectic approach.

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