Participatory design-based requirements elicitation involving people living with dementia towards a home-based platform to monitor emotional wellbeing

157 Background: There is increasing appreciation for the insight provided by combining low-burden home-based remote digital measurements with patient and observer reported outcomes. In this study, we assessed perspectives of cancer patients and their caregivers on the utility of a mobile app combined with a smartwatch for collection of specific outcomes and to provide clinically actionable data. Methods: In a decentralized clinical trial we consented and enrolled (10/12/2020-4/30/2021) dyads that consisted of a cancer patient and their informal caregiver. All participants had to own an Apple iPhone 6 or higher. Patients were provided with an Apple watch 3 or 4 and downloaded a patient informed mobile app (DigiBioMarC). Caregivers only download a caregiver informed mobile app (TOGETHERCare). Participants were asked to use their respective app for 28 days during which time specific surveys and activity requests were delivered through the mobile app; digital measures of physical activity were collected via the smartwatch. At the end of the app usage period, questions were asked in a video interview about the patient and caregiver perspectives on use of their respective apps and what they believed could be impacted if their doctor were to receive the app information. Respondents could select Strongly Agree, Agree, Neutral, Disagree, or Strongly Disagree. Results: Fifty-four dyads were enrolled; four were unable to continue due to a decline in health. Questions were drafted and IRB approved in time to be asked of 45 dyads. The Table lists some results and the percent of respondents that selected Strongly Agree or Agree. Conclusions: Patients and caregivers reported that both apps would encourage them to take better care of themselves/be more physically active and would improve emotional wellbeing. A high proportion of respondents also felt the apps would improve communication with their doctor and provide early important information for the doctor to act upon compared to usual care. Additional work in a large randomized trial is planned to evaluate specific care outcomes. [Table: see text]

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The level of participation during the development of a mobile care data application for home-based healthcare in a developing context: An actor-network theory perspective

South African Computer Journal ◽

10.18489/sacj.v54i0.238 ◽

2014 ◽

Vol 54 ◽

Cited By ~ 1

Author(s):

Retha De la Harpe

Keyword(s):

Network Theory ◽

Participatory Design ◽

Actor Network Theory ◽

Design And Development ◽

Actor Network ◽

Professional Activities ◽

Care Givers ◽

Technology Products ◽

Home Based ◽

Data Application

The context of this study is home-based healthcare in a South African resource-restricted community. The research case involved the design and development of a mobile care data application, created to assist community caregivers in their professional activities. The development principles of a suitable application for feature phones (limited functionality) in this context are not fully established, however. For the mobile care data application, a participatory design approach was employed. It was observed, conversely, that the level of participation of all stakeholders differed significantly. It was especially observed that the designer and end-users were less involved in the actual development of the prototype. These differences may have an influence on the end product/result. Actor-network theory may provide the mechanism to describe how the human and non-human actors formed relations as they participate in these processes. Considering the alignment of such networks, the coordination, devices and passages during the four translation moments provide valuable insights in the design and development of technology products. This paper will consider these elements in more depth. With a social embeddedness perspective the level of participation was high during the design of the proposed ICT solution with the active participation of the care givers from the developing context. The socio-economic factors of the developing context influenced the development of the mobile application with the complexities of the socio-technical context evident in the difficult translations between the participants

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Using Scenarios and Drama Improvisation for Identifying and Analysing Requirements for Mobile Electronic Patient Records

Requirements Engineering for Sociotechnical Systems ◽

10.4018/978-1-59140-506-1.ch016 ◽

2011 ◽

pp. 266-283 ◽

Cited By ~ 3

Author(s):

Inger Dybdahl Sørby ◽

Line Melby ◽

Gry Seland

Keyword(s):

Participatory Design ◽

System Development ◽

Hospital Information Systems ◽

Sociotechnical Systems ◽

Requirements Elicitation ◽

Patient Records ◽

Acting Out ◽

Electronic Patient Records ◽

Everyday Work ◽

Hospital Wards

This chapter presents two different techniques for elicitation and analysis of requirements for a mobile electronic patient record (EPR) to be used in hospital wards. Both techniques are based on human-centred and participatory design principles. The first technique uses observational studies as a basis for identifying and analysing requirements for a mobile EPR. The observations are structured and systematised through a framework. The second technique is named “Creative system development through drama improvisation”, and it enables users (in this case healthcare professionals) to contribute to the requirements engineering (RE) process by acting out everyday work situations in one-day workshops. Both techniques presented in this chapter focus on user requirements elicitation, and we believe that they are promising and complementary contributions to more traditional requirements elicitation and analysis methods, not only for hospital information systems but for a wide variety of complex, sociotechnical systems.

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Elicitation and Development of Requirements Through Integrated Methods

Volume 2: 29th Computers and Information in Engineering Conference, Parts A and B ◽

10.1115/detc2009-87720 ◽

2009 ◽

Cited By ~ 2

Author(s):

Beshoy Morkos ◽

Joshua D. Summers

Keyword(s):

Participatory Design ◽

Single Mode ◽

Requirements Elicitation ◽

Modeling And Analysis ◽

Requirements Modeling ◽

Computational Support ◽

Use Case Modeling ◽

Requirements Development ◽

Multiple Domains

This paper presents a case study of requirements elicitation for the development of computational support tools at an automotive OEM. The challenges presented in the requirements development necessitated the fusion of three distinct requirements elicitation approaches: traditional design, participatory design, and use case modeling through UML. The findings suggest that a single mode of operation is not sufficient and that to capture the requirements, it is preferred to borrow tools and methods from multiple domains. This case study serves as a broader motivation for a systematic development of engineering requirements modeling and analysis methods.

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On participatory design of home-based healthcare

Cognition Technology & Work ◽

10.1007/s10111-012-0226-7 ◽

2012 ◽

Vol 15 (4) ◽

pp. 389-401 ◽

Cited By ~ 32

Author(s):

Erik Grönvall ◽

Morten Kyng

Keyword(s):

Participatory Design ◽

Home Based

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Organizational Semiotics and Participatory Design to Requirements Elicitation - A Case Study

10.5753/sbsi.2011.14587 ◽

2011 ◽

Author(s):

Flávia Linhalis Arantes

Keyword(s):

Information System ◽

Information Systems ◽

Participatory Design ◽

Requirements Elicitation ◽

Work Practices ◽

Web Information System ◽

Web Information ◽

Web Information Systems ◽

Organizational Semiotics

It is already agreed that requirements have a critical impact on the quality and users satisfaction of the resulting software. In this work, web information systems are reviewed from the perspective of organizational semiotics as being part of an organization, which comprises work practices, rules and views of the same system by different stakeholders. This paper presents a case study, where artifacts of the organizational semiotics are exploited in a collaborative and participatory way to requirements elicitation of a web information system.

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