Validity and reliability of the Family Empowerment Scale for parents of children with cleft lip and/or palate

Author(s):  
Handan Boztepe ◽  
Sevil Çınar ◽  
Yalçın Kanbay ◽  
Burcu Acımış ◽  
Figen Özgür ◽  
...  
2013 ◽  
Vol 70 (4) ◽  
pp. 927-936 ◽  
Author(s):  
Maaret Vuorenmaa ◽  
Nina Halme ◽  
Päivi Åstedt-Kurki ◽  
Marja Kaunonen ◽  
Marja-Leena Perälä

2021 ◽  
pp. 106648072110230
Author(s):  
Çiğdem Yavuz Güler

Objective: According to the family systems theory, triangulation is defined as reflecting and conveying the tension between two individuals to a third individual to reduce the existing tension, stress, and anxiety. This study was conducted to adapt the “Triangular Relationship Inventory” to Turkish and to assess psychometric properties. Method: The sample of the study included 337 individuals (234 women and 103 men) aged between 18 and 25 years. The structure validity of the inventory was evaluated with the confirmatory factor analysis and reliability was evaluated with Chronbach's alpha internal consistency coefficient, test–retest method, and item analyses. Results: The result showed that the Turkish form of the Triangular Relationship Inventory showed similar psychometric properties to the original inventory. The structure which consists of the balanced, mediator, cross-generational coalition, and scapegoat subdimensions of 24 items displayed acceptable goodness-of-fit values in the Turkish sample with the 0.91 Cronbach's alpha coefficient while the reliability values of the subdimensions changed between 0.86 and 0.91. Considering the convergent validity of the inventory, there was a negative correlation between the triangular relationship and satisfaction with life and the differentiation of self, and a significant positive correlation with depression, anxiety, and stress. Conclusion: The psychometric properties revealed in this study show that the Turkish form of the Triangular Relationship Inventory is a valid and reliable measurement tool that can be used to measure the triangulation levels and roles of the individuals, who are in the Turkish sample and between the ages of 18 and 25 years, within the family system.


2020 ◽  
Vol 57 (6) ◽  
pp. 671-677 ◽  
Author(s):  
Yah-Huei Wu-Chou ◽  
Kuo-Ting Philip Chen ◽  
Yi-Chieh Lu ◽  
Yin-Ting Lin ◽  
Hsien-Fang Chang ◽  
...  

Objective: Nonsyndromic oral clefts are common birth defect with complex etiology. In the present study, we attempt to further validate the possible role for ABCA4 and ARHGAP29 in the susceptibility to nonsyndromic oral clefts. Design: We performed allelic transmission disequilibrium test analysis, on 10 eligible single nucleotide polymorphisms (SNPs) and SNP haplotypes using the Family-Based Association Test. Participants: The study sample consisted of 334 case–parent trios of nonsyndromic oral clefts from Taiwanese population, separated into nonsyndromic cleft lip with or without cleft palate (NSCL/P) and nonsyndromic cleft palate only (NSCPO) groups. Results: We found only the SNP rs560426 within the ABCA4 gene showed strong association with NSCPO ( P = .03498; Permuted P = .05382). No association between other 9 selected SNPs in ABCA4-ARHGAP29 region and the risk of nonsyndromic oral clefts was found. For the haplotype analyses, we found only haplotype T-C (rs570926 and rs3789431) in ABCA4 block 2 showed significant association with nonsyndromic NSCL/P in these Taiwanese trios. Conclusions: We used a family-based analysis in 334 Taiwanese case–parent trios to validate the possible role for ABCA4 and ARHGAP29 in the susceptibility to nonsyndromic oral clefts. This study provides a new evidence for an association between the intron variant rs560426 within ABCA4 and nonsyndromic cleft palate which may contribute their regulatory role in craniofacial development.


Jurnal NERS ◽  
2016 ◽  
Vol 10 (2) ◽  
pp. 265 ◽  
Author(s):  
Nursalam Nursalam ◽  
Ah. Yusuf ◽  
Ika Yuni Widyawati ◽  
Candra Panji Asmoro

Introduction: Human Immunodeficiency Virus (HIV) is a retrovirus that infects cells of the immune system, destroying or damaging the function of cells of the immune system. This makes the immune system becomes weaker, and people become more liable to infection. A lot of new detected HIV transmission source comes from former workers who work abroad. The challenge in dealing the number of transmission performed comprehensive care of patients and their family empowerment and peer support groups. The aimed of this study was to develop the ability of a family of Indonesian Workers who are infected with HIV and Peer Support Group in independence of care. Methods: This study was used an explanatory design and quasy-experimental. Population in this study were the closest family who care for patients infected with HIV during work abroad as migrant workers in East Java. Samples were selected using simple random sampling technique. The independent variable was the peer group and family support, the dependent variable is the level of independence of care on the respondent. Data were collected using a questionnaire that has been tested for validity and reliability and results were tested using the Wilcoxon Signed Rank Test with alpha ≤0.05. Results: The results showed that this method can improve the independence of the family of the HIV-infected client care during labor as migrant workers abroad with a significance value of p=0.004. Conclusion: Empowerment of family and peer group support can be used to increase the independence of families and patients in the treatment of HIV-infected patients during work abroad as migrant workers. Future studies are expected to use a larger sample.Keywords: empowerment of the family, peer group support, independence treatment, TKI (Indonesian Labor), Human Immunodeficiency Virus (HIV)


2019 ◽  
Vol 8 (2) ◽  
pp. 102
Author(s):  
Iril I Panes ◽  
Cyruz P. Tuppal ◽  
Mark Donald C. Reñosa ◽  
Ma. Elizabeth P. Baua

Background: The care for people with mental illness falls on the family and community. The support system is a quintessential aspect of patient’s recuperation. However, some families experience the feeling of burden, loss, and stigma having a significant impact on the family’s quality of life.Purpose: This meta-synthesis explored the available literature on the experiences of the family about mental illness.Methods: A web-based literature search was conducted. An initial 1,952 studies were retrieved from Web of Science, Scopus, PsycINFO, CINAHL and Ovid-based MEDLINE. Six qualitative studies were included in the review.Results: Findings revealed that family empowerment as the grand theme emerged from the perceived effects of mental illness on the family, the process of coping and their perspectives on family empowerment.Conclusion: Family empowerment offers an openness, readiness, and acceptance towards a holistic care for a family member with a mental illness.


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