scholarly journals Emotional well‐being in people with dementia – A comparative study of farm‐based and regular day care services in Norway

2021 ◽  
Author(s):  
Bjørnar Finnanger‐Garshol ◽  
Ingeborg Pedersen ◽  
Grete Patil ◽  
Siren Eriksen ◽  
Lina Harvold Ellingsen‐Dalskau
Keyword(s):  
Comparative Study ◽  
Day Care ◽  
Well Being ◽  
Care Services ◽  
People With Dementia

Comparative Study of Outcomes for Older People with Long Term Conditions Attending Day Care Services Delivered by Paid Staff or by Volunteers

2020 ◽  
Author(s):  
Catherine Lunt ◽  
Chris Shiels ◽  
Christopher Dowrick ◽  
Mari Lloyd-Williams
Keyword(s):  
Older People ◽  
Comparative Study ◽  
Day Care ◽  
Symptom Burden ◽  
Well Being ◽  
Long Term Conditions ◽  
North West ◽  
Age In Place ◽  
Care Services

Abstract Background Day care services can support older people living with multiple long term conditions (LTCs), to age in place, but little research on outcomes of Day Care attendance. Aims The aims of this comparative study were to determine outcomes for older people with LTCs attending day care services run entirely by paid staff or predominantly volunteers Methods Newly referred older people with LTCs to nine day care services in North West of England and North Wales were invited to participate in this longitudinal study with data being collected at baseline attendance and at 6 and 12 weeks. Demographic information was collected and the EQ-5D-3L and De Jong Loneliness 6 item questionnaire were completed at each time point.RESULTS 94 older people (64% female),age range 65 - 99 years (mean 82 years) were recruited. The mean number of LTCs was 4.3 (range 2-9) and 52% people lived alone. More than a third (36%) lived in one of the 20% most deprived local authorities in England and Wales. The outcomes in this exploratory study over 12 weeks appeared to be similar for paid, blended (paid staff and volunteers) and for volunteer led service, with those attending volunteer led services were significantly more likely to report fewer health problems in follow-up (OR=3.45, 95% CI 1.01-12.8, P=0.04). CONCLUSIONS This study suggests that Day Care Services for older people with long term conditions provide benefits in terms of self-rated physical and emotional well-being. Older people attending paid staff services were more likely to have greater number of LTCs associated with a higher symptom burden. However, at baseline there was no difference in self-reported health by service type. This study suggests that Day Care Services provided by volunteers can provide comparable outcomes. Following the Covid-19 pandemic, it is increasingly urgent to support older people with long term conditions who have lost physical and cognitive function during lockdown and to maintain and improve their function. Our study suggests that volunteers may be able to complement the care provided by paid staff freeing up resources and enabling increasing numbers of people to be supported.

Decentralisation of long-term care in the Netherlands: the case of day care at green care farms for people with dementia

2013 ◽  
Vol 35 (4) ◽  
pp. 704-724 ◽  
Author(s):  
STÉPHANIE J. M. NOWAK ◽  
CLAUDIA C. M. MOLEMA ◽  
CAROLINE A. BAAN ◽  
SIMON J. OOSTING ◽  
LENNEKE VAANDRAGER ◽  
...  
Keyword(s):  
The Netherlands ◽  
Day Care ◽  
Central Government ◽  
Municipal Services ◽  
Term Care ◽  
Care Services ◽  
People With Dementia ◽  
Health And Social Care ◽  
Green Care Farms

ABSTRACTResponsibility for health and social care services is being delegated from central to local authorities in an increasing number of countries. In the Netherlands, the planned transfer of responsibility for day care for people with dementia from the central government to municipalities is a case in point. The impacts of this decentralisation process for innovative care concepts such as day care at green care farms are largely unknown. We therefore interviewed representatives of municipalities and green care farms to explore what consequences they expected of decentralisation for their organisations and people with dementia. Our study shows that communication and collaboration between municipalities and green care farms is relatively limited. Consequently, municipalities are insufficiently aware of how green care farms can help them to perform their new tasks and green care farmers know little about what municipalities expect from them in the new situation. We therefore recommend that municipalities and green care farms keep each other informed about their responsibilities, duties and activities to ensure a tailored package of future municipal services for people with dementia.

scholarly journals Living Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort

2020 ◽  
Vol 78 (3) ◽  
pp. 1207-1216
Author(s):  
Linda Clare ◽  
Anthony Martyr ◽  
Catherine Henderson ◽  
Laura Gamble ◽  
Fiona E. Matthews ◽  
...  
Keyword(s):  
Home Care ◽  
Significant Proportion ◽  
Well Being ◽  
Living Alone ◽  
Living Situation ◽  
Care Services ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Health And Social Care ◽  
The Ideal

Background: A significant proportion of people with dementia live alone, but little is known about their specific needs. Objective: To understand the profile of people living alone with mild-to-moderate dementia in the UK and identify any systematic differences associated with living situation. Methods: We analyzed cross-sectional data from 1,541 people with mild-to-moderate dementia and 1,277 caregivers participating in the IDEAL cohort at the first wave of assessment. Results: There were 1,256 (81.5%) people with dementia living with others and 285 (18.5%) living alone, of whom 51 (3% of whole sample) reported little or no informal support. There were relatively few differences associated with living situation and odds ratios were generally small. People living alone were older on average, and more likely to be female, than those living with others. Those living alone were more likely to have higher cognitive ability and self-reported functional ability, and more social contact with those from other households. They were also lonelier, expressed less satisfaction with life, and used home care services and equipment more. There were no differences in symptoms, mood, quality of life, or well-being. Conclusion: The findings support the view that it is possible to ‘live well’ with mild-to-moderate dementia while living alone, given appropriate support, including home care and equipment. Nevertheless, it is important to consider how those living alone may be supported to have a more satisfactory experience, and how health and social care services can best respond to their needs.

scholarly journals 159 Geographic Accessibility and Capacity of Day Care Services for People with Dementia

2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii17-iii65 ◽  
Author(s):  
Tom Pierse ◽  
John Cullinan ◽  
Fiona Keogh ◽  
Eamon O'Shea
Keyword(s):  
Day Care ◽  
Catchment Area ◽  
Care Provision ◽  
Limited Capacity ◽  
Qualitative And Quantitative ◽  
Geographic Accessibility ◽  
Care Services ◽  
People With Dementia ◽  
Day Care Centres ◽  
Day Care Centre

Abstract Background Day care is an important service for some people with dementia and their carers. In Ireland, day care services for people with dementia are delivered by a mix of dementia specific day-care centres and generic centres that cater for people with dementia to various degrees. In this paper we map the geographic variation in the supply of day care services for people with dementia relative to potential need. Methods Using a national HSE survey of day care centres, we estimate the current supply of day care services for people with dementia in both generic and dementia specific centres by combining a number of qualitative and quantitative measures. To identify the variation in supply, we map day care provision at local and regional levels to the number of people with dementia in the area. To consider geographic accessibility, we map and analyse the population living outside the catchment area of the day care centres. Results There is significant variation across the country in the existing capacity of day care centres to cater for people with dementia. The number of places per 100 persons with dementia varies from 9 to 16 across the Community Health Organisation areas. We show that 20 per cent of people with dementia are not living within a 15km radius of a day care centre that caters for people with dementia. Conclusion Day care has a place in the menu of service for people with dementia living in the community. As the number of people with dementia grows, investment in day care centres needs to be targeted to areas of greatest need. In many parts of the country, the current day care centres have limited capacity to provide a service for people with dementia that live in their catchment area. There is considerable geographical inequity in day care provision for people with dementia across the country.

scholarly journals Day Care for People with Dementia: A Qualitative Study Comparing Experiences from Norway and Scotland

Dementia ◽  
2017 ◽  
Vol 18 (4) ◽  
pp. 1393-1409 ◽  
Author(s):  
Anne Marie M Rokstad ◽  
Louise McCabe ◽  
Jane M Robertson ◽  
Margit G Strandenæs ◽  
Signe Tretteteig ◽  
...  
Keyword(s):  
Day Care ◽  
Evidence Base ◽  
Positive Outcomes ◽  
Structured Interviews ◽  
Caregiver Support ◽  
Care Services ◽  
People With Dementia ◽  
Potential Benefits ◽  
Satisfaction With Services ◽  
Cross National

Potential benefits from day care attendance are reported in the literature for both people with dementia and caregivers, although the evidence-base is limited. The study aimed to explore and compare experiences of day care services for people with dementia as described by day care attendees and their caregivers in Norway and Scotland. Whereas day care receives prominence in Norway’s national dementia plan, Scotland does not highlight day care in its national dementia strategy. A qualitative cross-national comparative study was undertaken. Semi-structured interviews were conducted with 17 people with dementia and 17 caregivers in Norway, and 19 people with dementia and 15 caregivers in Scotland. Data were analyzed thematically and comparatively to explore the experiences and outcomes of the participants. Findings indicate positive outcomes from day care for both people with dementia and caregivers. Satisfaction with services related to meaningful activities, getting out of the home, strengthening social connections and careful staff facilitation to create a positive and welcoming atmosphere. There were strong similarities in the content of services and experiences reported in the two countries. Some minor differences were noted, with caregiver support being an area of notable divergence in experiences. Specialist day care for people with dementia seems to provide important support and positive outcomes for people with dementia, and respite and reassurance for their caregivers. More research is needed to further explore the effect of day care designed for people with dementia both on the attendees and their caregivers.

scholarly journals Caregivers’ interactions with health care services – Mediator of stress or added strain? Experiences and perceptions of informal caregivers of people with dementia – A qualitative study

Dementia ◽  
2018 ◽  
Vol 18 (7-8) ◽  
pp. 2526-2542 ◽  
Author(s):  
Despina Laparidou ◽  
Jo Middlemass ◽  
Terence Karran ◽  
A Niroshan Siriwardena
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Process Model ◽  
Healthcare Professionals ◽  
Informal Caregivers ◽  
Well Being ◽  
Care Recipient ◽  
Stress Process ◽  
Care Services ◽  
People With Dementia

Background There are an estimated 46.8 million people worldwide living with dementia in 2015, being cared for usually by family members or friends (informal caregivers). The challenges faced by informal caregivers often lead to increased levels of stress, burden and risk of care-recipient institutionalisation. Aim The overarching aim of this study was to explore the experiences and perceptions of informal caregivers of people with dementia when interacting with the health care system, and whether the support received acted as a mediator of caregiver stress. The secondary aim was to investigate healthcare professionals’ views and current practice regarding people with dementia and their interactions with informal caregivers. Method We employed a qualitative research design, using focus groups and one face-to-face interview with a purposive sample of informal caregivers and healthcare professionals in Lincolnshire, UK. Data were collected between March and July 2015. We used the stress-process model of stress in caregivers as a theoretical framework. Results We interviewed 18 caregivers and 17 healthcare professionals. Five themes, mapped to the stress-process in caregivers’ model, captured the main challenges faced by caregivers and the type of support they wanted from health care services. Primary stressors included the challenge of diagnosing dementia; caregivers’ needs and expectations of an in-depth knowledge and understanding of dementia from healthcare professionals; and need for carer education. Secondary role strain included lack of support and mismatch of communication and expectations. Caregiver involvement in monitoring care and disease was a potential mediator tool. Conclusions Fragmentation of dementia care services, lack of training for healthcare professionals and the dearth of information for caregivers means health care services are only partially fulfilling a support role. In turn, lack of support may be intensifying caregiver stress leading to worsening in their health and well-being; thus, potentially increasing the risk of institutionalisation of their care-recipient.

scholarly journals Dropout from farm-based day care for people with dementia in Norway: a follow-up study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
T. L. Ibsen ◽  
Ø. Kirkevold ◽  
G. G. Patil ◽  
S. Eriksen
Keyword(s):  
Social Support ◽  
Residential Care ◽  
Day Care ◽  
Agricultural Landscape ◽  
Care Service ◽  
Care Facility ◽  
Individual Characteristics ◽  
Residential Care Facility ◽  
Care Services ◽  
People With Dementia

Abstract Background Farm-based day care services (FDCs) for people with dementia are intending to provide social relationships and meaningful activities in an agricultural landscape and offer respite for next of kin. As this requires a certain cognitive and physical functioning, it is of interest to investigate how this service contribute during the course of dementia. In this study we aim to explore the individual characteristics predicting dropout from FDC. Furthermore, we investigate whether the participants who drop out of the service continue to live at home with another day care service or if they move to a residential care facility. Methods The study includes 92 people with dementia attending FDCs in Norway, assessed with standardized instruments at baseline between January 2017 and January 2018. They were followed for 1 year, and dropouts from FDC during this period were mapped. The association between individual characteristics and dropout was assessed using a Cox proportional hazards regression analysis. Results Thirty-eight people stopped attending FDCs during the study. Twenty-six moved to residential care. Among the 12 who continued to live in their own homes, 9 people started in a regular day care service. Higher score on educational level and more severe dementia, as well as lower scores on social support, increased the probability of stopping FDC. Conclusion FDCs appeared as a service that is stable over time for most participants, as more than two-third could use the care facility until the need of residential care. The transfers within care services and levels of care seemed to be characterized by continuity. More research on the growing population of educated older adults with dementia are warranted, to facilitate for their course of care needs. Finally, extended knowledge is needed to improve the collaboration between private and public networks, such as day care services, to improve the experience of social support for people with dementia.

scholarly journals The experience of attending a farm-based day care service from the perspective of people with dementia: A qualitative study

Dementia ◽  
2020 ◽  
pp. 147130122094010
Author(s):  
Tanja L Ibsen ◽  
Siren Eriksen
Keyword(s):  
Social Relations ◽  
Day Care ◽  
Care Service ◽  
Nurse Education ◽  
Structured Interviews ◽  
Care Services ◽  
People With Dementia ◽  
Active Service ◽  
Education Today ◽  
The Individual

People with dementia have different needs, and it is important to have variation in the services that are offered for this population. Farm-based day care aims to meet this diversity in need, but research on such services is lacking. The present study provides knowledge about how people with dementia experience attending farm-based day care services in Norway. Ten semi-structured interviews were conducted for five different services, while the participants were at the farm. The interviews were analysed in accordance with the content analysis of Graneheim, U., & Lundman, B. (2004) [ Nurse Education Today, 24(2), 105-112] and revealed three main categories that included (1) social relations, (2) being occupied at the farm, and (3) individually tailored service. The findings were summarised in the overall theme that attending day care at a farm makes me feel like a real participant. Our findings indicate that the farm-based day cares in the present study provide person-centred care. The farm setting facilitates services that are tailored to the individual, where the participants get to use their remaining resources and spend time outdoors. Further, farm-based day care was described as being suitable for people with or without farm experience and must be seen as an important supplement to regular day care for those who could benefit from a more active service.

Sign in / Sign up

Export Citation Format

Share Document