scholarly journals What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services?

2009 ◽  
Author(s):  
Nicola Iles ◽  
Karen Lowton
Keyword(s):  
Cystic Fibrosis ◽  
Young People ◽  
Health Services ◽  
Parental Care ◽  
Adult Health ◽  
Care And Support

Transition from paediatric to adult healthcare for young people with cystic fibrosis: Parents’ information needs

2018 ◽  
Vol 22 (4) ◽  
pp. 646-657 ◽  
Author(s):  
Imelda Coyne ◽  
Helen Malone ◽  
Emma Chubb ◽  
Alison E While
Keyword(s):  
Cystic Fibrosis ◽  
Young People ◽  
Health Services ◽  
Information Needs ◽  
Online Survey ◽  
Legal Status ◽  
Healthcare Providers ◽  
Adult Child ◽  
Child Health Services ◽  
Adult Health

Parents of young people with cystic fibrosis (YPWCF) play an important role during the transition from paediatric to adult health services. There is limited evidence on parental information needs and the extent to which they are met. An online survey was conducted targeting a finite population of 190 parents of YPWCF in Ireland. Fifty-nine parents responded (31% response rate). Parents reported the need for more general preparation and timing of the transfer, more information regarding the differences between adult and child health services and how their child will self-manage his/her illness in the future. Most parents received information on the timing of transfer and new healthcare providers but reported being insufficiently informed about their legal status relating to medical confidentiality for their adult child and community resources available for their child after transition to adult health services. The findings highlight the importance of information and preparation for caregivers as well as young people to promote successful transition to adult healthcare. Providing parents with clear information and anticipatory guidance are simple changes in practice that may lead to improvements in transition experiences.

scholarly journals Transition from paediatric to adult health services in Scotland for young people with cerebral palsy

2015 ◽  
Vol 20 (2) ◽  
pp. 205-213 ◽  
Author(s):  
Alice E Wright ◽  
James Robb ◽  
Morven C Shearer
Keyword(s):  
Cerebral Palsy ◽  
Young People ◽  
Health Services ◽  
Adult Health

scholarly journals Lost in transition? Access to and uptake of adult health services and outcomes for young people with type 1 diabetes in regional New South Wales

2010 ◽  
Vol 193 (8) ◽  
pp. 444-449 ◽  
Author(s):  
Lin Perry ◽  
Katharine S Steinbeck ◽  
Janet S Dunbabin ◽  
Julia M Lowe
Keyword(s):  
Type 1 Diabetes ◽  
Young People ◽  
Health Services ◽  
New South ◽  
New South Wales ◽  
Adult Health ◽  
South Wales

scholarly journals Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services

2016 ◽  
Vol 59 (3) ◽  
pp. 345-353 ◽  
Author(s):  
Jenni Hislop ◽  
Helen Mason ◽  
Jeremy R. Parr ◽  
Luke Vale ◽  
Allan Colver
Keyword(s):  
Young People ◽  
Health Services ◽  
Chronic Conditions ◽  
Adult Health

scholarly journals The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: A scoping review of the literature and a synthesis of the evidence

2018 ◽  
Vol 22 (3) ◽  
pp. 332-358 ◽  
Author(s):  
Lauren Burke ◽  
Jamie Kirkham ◽  
Janine Arnott ◽  
Victoria Gray ◽  
Matthew Peak ◽  
...  
Keyword(s):  
Health Care ◽  
Juvenile Idiopathic Arthritis ◽  
Young People ◽  
Health Services ◽  
Scoping Review ◽  
Health Care Services ◽  
Transitional Care ◽  
Adult Health ◽  
Review Of The Literature ◽  
Care Services

Young people with long-term health conditions (LTCs) can face challenges when making the transition to adult health services. This paper sought to identify studies that assess and explore transitional care for young people with LTCs. Two conditions were used as exemplars: juvenile idiopathic arthritis (JIA) and epilepsy. A scoping review of the literature was conducted by using search terms to search for papers in English between 2001 and 2016 concerning transitional care on four databases. Qualitative papers were reviewed and synthesized using thematic analysis. Quantitative papers using health outcomes were also synthesized. Twenty-eight papers were selected for review. Despite the wealth of literature concerning aspects of transitional care that are key to a successful transition for young people with JIA or epilepsy, there is a paucity of outcomes that define ‘successful’ transition and consequently a lack of reliable research evaluating the effectiveness of transitional care interventions to support young people moving to adult health services.

scholarly journals Transition from child to adult health services for young people with cerebral palsy in Ireland: a mixed-methods study protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (12) ◽  
pp. e041425
Author(s):  
Jennifer M Ryan ◽  
Jennifer Fortune ◽  
Aisling Walsh ◽  
Meriel Norris ◽  
C Kerr ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Mixed Methods ◽  
Young People ◽  
Health Services ◽  
Regression Models ◽  
Qualitative Data ◽  
Service Providers ◽  
Adult Health ◽  
Related Factors ◽  
Provider Characteristics

IntroductionThe transition from child to adult health services is a challenging and complex process for young people with cerebral palsy (CP). Poorly managed transition is associated with deterioration in health, increased hospitalisations and reduced quality of life. While international research identifies key practices that can improve the experience and outcomes of transition, there is a paucity of data in the Irish context. This research study aims to gain an insight into the experience of transition for young people with CP in Ireland.Methods and analysisA convergent parallel mixed-methods design will be used to collect, analyse and interpret quantitative and qualitative data. Participants will be young people aged 16–22 years with CP, their parent(s)/carer(s) and service providers. Quantitative and qualitative data will be collected through questionnaires and interviews, respectively. Quantitative data will be reported using descriptive statistics. Where sufficient data are collected, we will examine associations between the experience of transition practices and sociodemographic and CP-related factors, respectively, using appropriate regression models. Associations between service provider characteristics and provision of key transition practices may also be explored using appropriate regression models. Qualitative data will be analysed using the Framework Method. A coding matrix based on key transitional practices identified from the literature will be used to identify convergence and divergence across study components at the integration stage.Ethics and disseminationThe study has been approved by the RCSI University of Medicine and Health Sciences Research Ethics Committee (REC201911010). Results will be presented to non-academic stakeholders through a variety of knowledge translation activities. Results will be published in open access, peer-reviewed journals and presented at national and international scientific conferences.

scholarly journals Role of education settings in transition from child to adult health services for young people with ADHD

2021 ◽  
pp. 1-18
Author(s):  
Simon Benham-Clarke ◽  
Tamsin Ford ◽  
Siobhan B Mitchell ◽  
Anna Price ◽  
Tamsin Newlove-Delgado ◽  
...  
Keyword(s):  
Young People ◽  
Health Services ◽  
Adult Health
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