Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries

Translate, culturally adapt, and validate the “Parkinson's Disease Quality of Life” (PDQL) BR, into Brazilian Portuguese. Fifty-two patients answered the PDQL-BR. Twenty-one patients answered the PDQL-BR again 14 days later. The UPDRS and HY scale was applied. Validation was evaluated using psychometric properties, checking the quality of the data, reliability, and validity. Quality of the data was evaluated based on occurrence of ceiling and floor effects. Reliability was evaluated based on: internal consistency of an item, homogeneity, and reproducibility. Validation was checked through the evaluation of convergent and discriminatory validation. There was no ceiling and floor effect. When evaluating reliability, items 20, 30, and 37 showed correlation of 0.34, 0.26, and 0.37, respectively, to your scale; the other items was higher than 0.4. The alpha Cronbach coefficient was higher than 0.7 for most domains. There was good reproducibility. There were no meaningful changes in the PDQL-BR translation and cross-cultural adaptation.

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Frenchay dysarthria assessment (FDA-2) in Parkinson’s disease: cross-cultural adaptation and psychometric properties of the European Portuguese version

Journal of Neurology ◽

10.1007/s00415-016-8298-6 ◽

2016 ◽

Vol 264 (1) ◽

pp. 21-31 ◽

Cited By ~ 6

Author(s):

Rita Cardoso ◽

Isabel Guimarães ◽

Helena Santos ◽

Rita Loureiro ◽

Josefa Domingos ◽

...

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Psychometric Properties ◽

Cultural Adaptation ◽

Cross Cultural ◽

Cross Cultural Adaptation ◽

Portuguese Version ◽

European Portuguese

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Rasch analysis of the living with chronic illness scale in Parkinson’s disease

BMC Neurology ◽

10.1186/s12883-020-01926-7 ◽

2020 ◽

Vol 20 (1) ◽

Author(s):

Leire Ambrosio ◽

Carmen Rodriguez-Blazquez ◽

Alba Ayala ◽

Maria João Forjaz

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Chronic Illness ◽

Latin American ◽

Rasch Model ◽

Rasch Analysis ◽

Response Scale ◽

Clinical Tool ◽

Cross Sectional ◽

The Rasch Model

Abstract Background Neurologists play an essential role in facilitating the patient’s process of living with Parkinson’s disease (PD). The Living with Chronic Illness Scale-PD (LW-CI-PD) is a unique available clinical tool that evaluates how the patient is living with PD. The objective of the study was to analyse the LW-CI-PD properties according to the Rasch model. Methods An open, international, cross-sectional study was carried out in 324 patients with Parkinson’s disease from four Latin American countries and Spain. Psychometric properties of the LW-CI-PD were tested using Rasch analysis: fit to the Rasch model, item local independency, unidimensionality, reliability, and differential item functioning by age and gender. Results Original LW-CI-PD do not fit Rasch model. Modifications emerged included simplifying the response scale and deleting misfit items, the dimensions Acceptance, Coping and Integration showed a satisfactory fit to the Rasch model, with reliability indices greater than 0.70. The dimensions Self-management and Adjustment to the disease did not reach fit to the Rasch model. Conclusion Suggestions for improving the LW-CI-PD include a multidimensional and shorter scale with 12 items grouped in three subscales with a simpler response scheme. The final LW-CI-PD Scale version is a reliable scale, with good internal construct validity, that provides Rasch transformed results on linear metric scale.

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