Factors supporting self-management in Parkinson’s disease: implications for nursing practice

2008 ◽  
Vol 3 (3) ◽  
pp. 187-193 ◽  
Author(s):  
Lynn Chenoweth ◽  
Robyn Gallagher ◽  
June N. Sheriff ◽  
Judith Donoghue ◽  
Jane Stein-Parbury
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Nursing Practice ◽  
Self Management

Nursing Research in Parkinson’s Disease From 2006 to 2015

2016 ◽  
Vol 26 (2) ◽  
pp. 142-156 ◽  
Author(s):  
Ju Young Shin ◽  
Barbara Habermann
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Family Caregiving ◽  
Symptom Management ◽  
Family Members ◽  
Theoretical Models ◽  
Self Management ◽  
Nursing Research

Most people with Parkinson’s disease (PD) reside in their homes with their family members. Nurses are in a good position to partner with people with PD and their family members for better self-management of the disease and improved quality of life. The purpose of this systematic review was to assess the state of the science of nursing research related to PD during the 10-year period, 2006 to 2015. A total of 27 studies were included in this review. Family caregiving was the most studied topic, followed by symptom management/medication adherence, quality of life, end-of-life/palliative care, and functional status/improving function. Recommendations for future studies in PD include (a) developing and testing interventions based on theoretical models in the areas of self-management, symptom management, and function improvement in people with PD and for caregivers caring for people with advanced stage PD, and (b) building programs of research with interprofessional teams.

scholarly journals Acceptability and practicability of self-management for patients with Parkinson's disease based on smartphone applications in China

2019 ◽  
Author(s):  
Jie Hu ◽  
Dezhi Yuan ◽  
Qiuye Zhao ◽  
Xuefei Wang ◽  
Xiaotian Zhang ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Chronic Condition ◽  
Positive Attitude ◽  
Medication Compliance ◽  
Self Management ◽  
Smartphone Apps ◽  
Smartphone Applications ◽  
Promising Strategy ◽  
Initial Stage

Abstract Background China has had about 1.2 billion mobile-phone users, and usage continues to grow. However, mobile-health services (mHealth) are currently in the initial stage, and have not yet prevailed in China. Additionally, the prevalence of Parkinson's disease (PD) in China is 190/100,000. Indeed, these PD patients would benefit from mHealth to manage their disease. Therefore, we designed a study to determine attitudes toward smartphone applications (apps) for chronic condition self-management, and to discover the practicality of these apps among PD patients in China.Methods We selected 204 participants with PD between 52 and 87 years old and surveyed their attitudes concerning the use of smartphone apps for chronic condition management via questionnaires.Results Among the participants, 65.19％ had smartphones. Among these smartphone users, 82.84％ expressed a preference for using apps for PD management. This group tended to be younger and more frequent web users with higher education and better medication compliance, and they tended to have a longer PD course and worse conditions (P < 0.001, P = 0.001, P < 0.001, P = 0.041, P < 0.001, P = 0.013.) Additionally, the willingness to apply apps for PD self-management was positively related to education (P < 0.001) and negatively related to age and PD course (P = 0.017, P < 0.001).Conclusion In China, patients with PD have a generally positive attitude towards self-management through smartphone apps. Consequently, improving the coverage of smartphones with practical and handy apps is a promising strategy for PD self-management.

Benefits of a Self-Management Program for the Couple Living With Parkinson’s Disease: A Pilot Study

2020 ◽  
pp. 073346482091813 ◽  
Author(s):  
Karen S. Lyons ◽  
Alex Zajack ◽  
Melissa Greer ◽  
Holly Chaimov ◽  
Nathan F. Dieckmann ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Pilot Study ◽  
Intervention Group ◽  
Management Program ◽  
Self Management ◽  
Relaxation Techniques ◽  
Community Based ◽  
Aerobic Activity ◽  
Mental Relaxation

The goal of this pilot study was to explore health benefits for couples participating together in an existing community-based self-management workshop for Parkinson’s disease (PD). A quasi-experimental two-wave design explored the effects of the Strive to Thrive program in comparison to a wait-list control condition. Preliminary data ( n = 39 couples) showed that spouses in the intervention group had greater engagement in mental relaxation techniques at 7 weeks than those in the control condition (large effect size). Small effects were observed for increases in aerobic activity and mental relaxation for the adult with PD, increases in strength-based activities and self-efficacy for spouses, declines in depressive symptoms for spouses, and decreases in protective buffering for both adults with PD and spouses. The program showed potential for existing community-based programs to benefit couples living with chronic illness.

The use of mobile health technology for Parkinson's disease self-management: a Systematic Review (Preprint)

2019 ◽  
Author(s):  
Sylvie Grosjean ◽  
Eliza Bate ◽  
Tiago Mestre
Keyword(s):  
Systematic Review ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Mobile Health ◽  
Self Management ◽  
Social Acceptability ◽  
Qualitative Systematic Review ◽  
The Social ◽  
Mhealth Technology

BACKGROUND The use of mobile health (mHealth) technology for Parkinson’s disease management has developed quickly in recent years. Research in this area often focuses on evaluation of the technology in terms of accuracy and reliability. The social dimension and patient perspectives have not been systematically evaluated and are vital considerations in terms of acceptability and long-term use of novel mHealth technologies. OBJECTIVE This qualitative systematic review aims to investigate the barriers to and facilitators of using mHealth technologies for disease self-management from the perspective of People with Parkinson's disease. METHODS MedLine, Embase, PsychInfo, Scopus and CINAHL databases were searched using specific key words, and published peer-reviewed articles from 2008 to 2018 were scanned for inclusion criteria. RESULTS A total of 10 articles were included in this qualitative systematic review. The articles highlight the social and technical factors including: usability, social acceptability, perceived benefits to treatment and quality of life that have the potential to impact mHealth technology use from the perspective of People with Parkinson's disease. CONCLUSIONS The results of this systematic review suggest that it is important to strongly consider social dimensions in the design of mHealth technologies for People with Parkinson's in order to improve their social acceptability, a key feature of mHealth. We suggest that a co-design approach could contribute to the design and development of mHealth technologies that are more socially acceptable to People with Parkinson's, and enable their successful long term use in the context of daily life.

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