Hospital nurses and home care providers’ experiences of participation in nutritional care among older persons and their family caregivers: a qualitative study

2019 ◽  
Vol 33 (2) ◽  
pp. 198-206 ◽  
Author(s):  
C. H. Hestevik ◽  
M. Molin ◽  
J. Debesay ◽  
A. Bergland ◽  
A. Bye
2005 ◽  
Vol 12 (5) ◽  
pp. 507-521 ◽  
Author(s):  
Eileen J Porter ◽  
Lawrence H Ganong

Little is known about older persons’ expectancies (or anticipations) about the possible actions of home-care professionals, although such data have implications for the ethics of home care and home-care policies. From a longitudinal study of older women’s experience of home care, findings are reported concerning their expectancies of professional home-care providers. A descriptive phenomenological method was used to detail the structure of the experience and its context. Data were analyzed from a series of interviews with 13 women aged 82 to 96 years. Among the five key structures of experience were ‘finding that someone has the job of helping me here’ and ‘determining where the helper’s field lies’. Two subsets within a category of expectancies were differentiated: speculations about helpers’ possible actions and expectancies about outcomes of helpers’ actions. As parameters of relational ethics, clients’ speculations and expectancies are appropriate bases for dialogue about older widows’ relationships with home-care professionals and the foci of home-care policies.


2017 ◽  
Vol 22 (1) ◽  
pp. 46-56 ◽  
Author(s):  
Krista Keilty ◽  
David Nicholas ◽  
Enid Selkirk

Increasingly, children with respiratory conditions who are dependent on medical technology (e.g. ventilators and tracheostomies) are cared for at home by family caregivers who are at risk for significant health, financial and social burdens. In many jurisdictions, access to quality respite is varied and often the availability of regulated (nursing) providers is insufficient. Rather than go without, some families have secured alternative and unregulated providers to supplement formal home care systems. The purpose of this study was to explore the experiences of family caregivers of children dependent on respiratory technologies who have used unregulated providers for in-home respite care. Through an interpretative description approach, data was gathered from 20 semi-structured parent interviews and analysed using constant comparative analysis. Four themes emerged from the data, which were conceptualized as both opportunities and tensions that parents experienced with both unregulated and regulated home care providers: finding the right fit for the child and family; trusting the provider is everything; using unregulated providers offers unique advantages; and accepting that regulated and unregulated care present challenges. Findings signal that unregulated providers play a pivotal role in supporting parents of children who are dependent on respiratory technologies. Implications for practice, policy and future research initiatives are discussed.


2020 ◽  
Author(s):  
Naomi Dhollander ◽  
Tinne Smets ◽  
Aline De Vleminck ◽  
Lore Lapeire ◽  
Koen Pardon ◽  
...  

Abstract Background: To support the early integration of palliative home care (PHC) in cancer treatment, we developed the EPHECT intervention and pilot tested it with 30 advanced cancer patients in Belgium using a pre post design with no control group. We aim to determine the feasibility, acceptability and perceived effectiveness of the EPHECT intervention.Methods: Interviews with patients (n=16 of which 11 dyadic with family caregivers), oncologists and GPs (n=11) and a focus group with the PHC team. We further analyzed the study materials and logbooks of the PHC team (n=8). Preliminary effectiveness was assessed with questionnaires EORTC QLQ C-30, HADS and FAMCARE and were filled in at baseline and 12, 18 and 24 weeks.Results: In the interviews after the intervention period, patients reported feelings of safety and control and an optimized quality of life. The PHC team could focus on more than symptom management because they were introduced earlier in the trajectory of the patient. Telephone-based contact appeared to be insufficient to support interprofessional collaboration. Furthermore, some family caregivers reported that the nurse of the PHC team was focused little on them.Conclusion: Nurses of PHC teams are able to deliver early palliative care to advanced cancer patients. However, more attention needs to be given to family caregivers as caregiver and client. Furthermore, the home visits by the PHC team have to be further evaluated and adapted. Lastly, professionals have to find a more efficient way to discuss future care.


The Lancet ◽  
2020 ◽  
Vol 395 (10242) ◽  
pp. 1957-1959 ◽  
Author(s):  
Emily Ying Yang Chan ◽  
Nina Gobat ◽  
Jean H Kim ◽  
Elizabeth A Newnham ◽  
Zhe Huang ◽  
...  

2018 ◽  
Vol 23 (3-4) ◽  
pp. 618-635 ◽  
Author(s):  
Rachel Barken ◽  
Joanie Sims-Gould

With increased longevity, growing numbers of older men are using home support services. The provision of care by (mostly female) workers to male clients raises questions regarding the negotiation of gender and age relations in the private sphere of the home. In this article, we explore how home care providers confront and respond to masculinity when supporting older men. Our analysis is based on semistructured interviews with twenty-four home care providers in Vancouver, British Columbia, Canada. We present four themes that demonstrate how masculinity is constructed and modified at the intersections of age, gender, and care: women and men are same, care and sexuality, taking control and accepting help, and health and well-being. While old age and the need for care present challenges to some aspects of masculinity, we find that many older men continue to engage in practices consistent with hegemonic versions of masculinity developed over the life course. Based on these findings, we make recommendations to equip workers with the resources needed to safely and effectively care for older men.


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