Family caregivers' experience of activities of daily living handling in older adult with stroke: a qualitative research in the Iranian context

2016 ◽  
Vol 31 (3) ◽  
pp. 515-526 ◽  
Author(s):  
Ali Hesamzadeh ◽  
Asghar Dalvandi ◽  
Sadat Bagher Maddah ◽  
Masoud Fallahi Khoshknab ◽  
Fazlollah Ahmadi ◽  
...  
2019 ◽  
Vol 32 (2) ◽  
pp. 67-75 ◽  
Author(s):  
Julia Burgdorf ◽  
Alicia Arbaje ◽  
Jennifer L. Wolff

Family caregivers make important contributions to home health care for older adults, but knowledge of the specific roles they assume is lacking. We analyzed data from 1,758 community-dwelling Medicare beneficiaries aged 65+ receiving Medicare-funded home health care between 2011 and 2016, using linked National Health and Aging Trends Study and Outcomes and Assessment Information Set data. Most (86.7%) beneficiaries receiving home health care had an identified need for family caregiver assistance, and nearly 6 in 10 (57.9%) had identified need for caregiver assistance with five or more tasks. After examining significant associations between older adult characteristics and identified needs for caregiver assistance with specific tasks, we identified three profiles of older adults who demonstrate similar patterns of identified need for family caregiver assistance during home health. These profiles include: (1) older adults with greater functional impairment who more often had identified need for assistance with Instrumental Activities of Daily Living, advocacy, or Activities of Daily Living; (2) older adults with cognitive impairment who more often had identified need for assistance with medication administration or supervision; and (3) older adults with greater clinical severity who more often had identified need for assistance with medical procedures and equipment. Findings support calls to develop training interventions and strengthen the partnership between home health providers and family caregivers. These three profiles present a potential framework for the development of family caregiver training programs.


1995 ◽  
Vol 3 (1) ◽  
pp. 39-53 ◽  
Author(s):  
Hee Sik Kim ◽  
Kiyoji Tanaka

The purpose of this study was to assess the extent to which a battery of 24 activities of daily living (ADL) performance tasks could be used to determine functional age in a sample of older women. The subjects were 253 older adult Korean women, aged 60 to 91 years. All subjects completed a comprehensive battery of 24 performance tests related to common activities of daily living. Correlations between the measures were computed, and principal component analysis was applied to the 24 × 24 correlation matrix. A principal component score was computed for each subject and was found to decrease significantly with advancing age. Multiple regression analysis revealed that out of the initial 24 variables, 5 variables accounted for 81% of the variability. An equation was developed to determine ADL age; the equation was considered useful for the assessment of daily living activities of older adult Korean women.


2020 ◽  
Vol 35 ◽  
pp. 153331752096087
Author(s):  
Kalpana P. Padala ◽  
Christopher M. Parkes ◽  
Prasad R. Padala

We present a case report to showcase that behavioral, cognitive, and functional decline may be associated with COVID-19 stay-home guidance among older adults with pre-existent cognitive impairment. In a functionally independent and physically active older adult with Mild Cognitive Impairment, there was worsening in depression and anxiety symptoms associated with the restrictions of COVID-19. Functional decline was also noted as assessed by Instrumental Activities of Daily Living. We discuss solutions to mitigate the effects of COVID-19 restrictions in this vulnerable population.


Author(s):  
Jing Huang ◽  
Pui Hing Chau ◽  
Edmond Pui Hang Choi ◽  
Bei Wu ◽  
Vivian W Q Lou

Abstract Objectives This study identified the classes (i.e., patterns) of caregivers’ activities, based on their engagements in caregiving activities, and explored the characteristics and the caregiver burden of these classes. Methods This study was a secondary analysis of a cross-sectional survey on the profiles of family caregivers of older adults in Hong Kong. A latent class analysis approach was adopted to classify family caregivers (N = 932) according to their routine involvements in 17 daily caregiving activities: 6 activities of daily living (ADLs) and 8 instrumental activities of daily living activities (IADLs) in addition to emotional support, decision making, and financial support. Multinomial logistic regression and multiple linear regression illuminated the characteristics of the classes and compared their levels of caregiver burden. Results The family caregivers fell into 5 classes: All-Round Care (High Demand, 19.5%), All-Round Care (Moderate Demand, 8.2%), Predominant IADLs Care (High Demand, 23.8%), Predominant IADLs Care (Moderate Demand, 32.5%), and Minimal ADLs and IADLs Care (Low Demand, 16.0%). These classes exhibited different characteristics in terms of care recipients’ cognitive statuses and caregiver backgrounds. The levels of caregiver burden differed across classes; the All-Round Care (High Demand) class experienced the highest levels of caregiver burden. Discussion This study contributes to existing scholarship by turning away from a predefined category of care tasks to explore the patterns of caregiving activities. By identifying caregiving activity patterns and understanding their associated characteristics and caregiver burden, prioritizing and targeting caregiver support interventions better is possible.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S924-S925
Author(s):  
Rita A Jablonski ◽  
Winstead Vicki ◽  
Giovanna Pilonieta ◽  
David Geldmacher

Abstract Problem: Two-thirds of family caregivers of persons living with dementia have encountered rejection-of-care behavior, usually during assistance with activities of daily living. Purpose: To describe the feasibility of an online videoconferencing platform to help caregivers prevent and reduce ROC behavior. Design: Quasi-experimental. Sample: Twenty-six family caregivers: 54% female, 77% white, 62% spouses (31% wives, 31% husbands), mean age 65 years, and college-educated (92%). Their care recipients were 61% female, 77% white, mean age of 76 years, and college-educated (88%). Procedure: Family caregivers who endorsed problematic ROC behaviors in their care recipients participated in six online, individual, synchronous, sequential, and weekly 1-hour coaching sessions. We measured general burden (Zarit Burden Inventory) and the frequency, severity, and associated distress of responsive behaviors (Neuropsychiatric Inventory Questionnaire). Data collection intervals were before coaching (baseline), immediately after the final session (Time 1), and six weeks (Time 2) and 12 weeks (Time 3) after the final session, respectively. Results: Caregivers reported less overall distress scores at Time 2 compared to baseline: 13.58 (SD 6.44) versus 17.42 (SD 6.90), t=2.56, p=0.017). Distress scores returned to baseline by Time 3. Caregivers reported less severe ROC behavior at Time 2 which was not statistically significant. Burden remained unchanged throughout the 24 weeks. Conclusion: Online caregiver coaching that targets ROC behavior is feasible. Qualitative review of the encounters suggests that a longer period of intervention and an outcome measure more sensitive to ROC effects on activities of daily living may be needed in future studies.


2021 ◽  
pp. 073346482110538
Author(s):  
Shannon T. Mejía ◽  
Tai-Te Su ◽  
Qingyi Lan ◽  
Ajiang Zou ◽  
Aileen Griffin ◽  
...  

Falls are not only a leading cause of death and disability, but also a strain on the capacity for caregivers to provide care. This study examined how the context of caregiving relates to the importance of caregiver-defined mobile fall prevention feature sets. A sample of 266 family caregivers, recruited from a Chinese social media platform, reported care for an older adult and interest in mobile fall prevention technology features. Factor analysis identified three caregiver-defined feature sets: automatic fall response, digitized fall prevention tools, and social features. Multiple regression showed caregivers’ concern about falling was the most robust predictor of a feature set’s importance. Poisson regression revealed that caregiver concern and assistance with instrumental activities of daily living were associated with rating more features as important. Our findings suggest that caregivers are interested in mobile fall prevention technologies that support older adults’ independence while also alleviating concerns about falling.


Author(s):  
Monica Rebouças ◽  
João Macedo Coelho-Filho ◽  
Renato Peixoto Veras ◽  
Maria Fernanda Lima-Costa ◽  
Luiz Roberto Ramos

OBJECTIVE To determine the criterion validity of the activities of daily living present in functionality questionnaires in older adults for population surveys and to identify which activities are valid to quantify the real daily need for help of this population. METHODS This is a population sample of older adults stratified by levels of functionality, according to self-perception of dependency in the activities of daily living. Self-perception was compared with the gold standard – direct observation of these activities in the household of older adults by a trained professional, blinded to the answers in the questionnaire. At the visit, it was decided if the older adult needed help to perform any of the activities of daily living for the research. The sensitivity of each activity of daily living was greater when the self-assessment that there was no need for help coincided with the assessment of the professional. Specificity indicates coincidence regarding the need for help in the activities of daily living – coefficients of sensitivity and specificity above 70% were considered as indicative of good validity. RESULTS Self-assessments showed better sensitivity than specificity – older adults and observers agreed more on daily independency than on dependency. All activities showed sensitivity above 70%. Some activities had low (go shopping: 55%) or very low specificity (brush the hair: 33%). The best specificities were to take a shower and dress up (95.8% for both), among the personal ones, and to use transportation and perform banking transactions (78% for both), among the instrumental ones. CONCLUSIONS Activities of daily living can be valid indicators of functional dependence. The best coefficients of validity were generally obtained for personal activities. Some activities with good sensitivities and specificities – walk 100 meters, take a shower, and lie down in and get out of the bed – can be used to classify older adults into low, average, and high need for help depending on the affected activities and, therefore, can help in the planning of health services aimed at them.


Author(s):  
Ukum Susan Ubenoh ◽  
Nahyeni Bassah ◽  
John Ngunde Palle

Background: Family caregivers who are the primary care providers to the elderly in communities in Cameroon, specifically in the Buea health district, are not aware of available resources and lack adequate knowledge and skills on the care of the elderly. As a result, the elderly are not receiving adequate care and support which might also affect their quality of life. In line with the World Health Organization’s (WHO) strategic proposed objectives of promoting healthy aging, the aim of this study was to develop a training program for family caregivers of the elderly. Methods: An exploratory, cross-sectional study research design was employed, with the use of qualitative methods for data collection. In-depth interviews were conducted with 15 key informants including nurses, social workers, community relay persons, personnel from the ministries (Public Health and Social Affairs), director of a geriatric nurse training school and directors of Non-Governmental Organizations (NGOs) concerned with age-care who were purposively recruited. Information on the scope of practice and available resources was obtained. The sample size was determined based on data saturation. Data was transcribed verbatim and analysed using thematic content analysis. Results: Two major themes emerged from data analysis; ‘Recognise the boundary’ for the scope of practice of family caregivers which was further divided into two categories (bridge the gap and shared responsibilities)’ and ‘Health and wellbeing’ as all available resources were aimed at improving the health and wellbeing of the elderly. Conclusion: The training program should include a pyscho-educational intervention with information on available resources such as: Geriatric nurses and social centers, the  scope of practice for family caregivers which includes: Assistance with Activities of Daily Living & Instrumental Activities of Daily Living, Psychosocial care, strategies to  involve  elderly persons in various activities and the creation of age- friendly environments.


2018 ◽  
Vol 5 (2) ◽  
pp. 97-104 ◽  
Author(s):  
Hui Xie ◽  
Pei-Wen Chen ◽  
Long Zhao ◽  
Xuan Sun ◽  
Xian-Jie Jia

Abstract Objective The purposes of this study were to explore the associations of activities of daily living (ADL) and depression among older adults with family caregivers’ quality of life and provide evidence for improving family caregivers’ quality of life. Methods Older adults (n=395) and their family caregivers (n=395) were selected as participants. The ADL scale and Geriatric Depression Scale were used to assess ADL and depression among older adults, and the 36-Item Short Form Health Questionnaire (SF-36) was used to assess family caregivers’ quality of life. Descriptive statistics and multiple linear regression were used to analyze the data. Results The older adults’ ADL and depression scores were 21±7 and 11±6, respectively. Approximately 69.9% of older adults had declining or severely impaired ADL, and 47.1% had mild or moderate-to-severe depression. Family caregivers’ mean quality of life score was 529±100. There was a negative correlation of older adults’ ADL and depression with caregivers’ quality of life. The correlation coefficient between ADL and the SF-36 mental component summary score was stronger than it was with the SF-36 physical component summary score. Conclusions The ADL and depression of older adults influenced family caregivers’ quality of life. Psychological health deserves closer attention, especially that of caregivers of disabled older adults.


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