scholarly journals SAT0719-HPR “and suddenly you are a person at risk of developing rheumatoid arthritis!” different perspectives of individuals on predictive testing – results of an international qualitative interview study

Author(s):  
E Mosor ◽  
M Stoffer ◽  
G Steiner ◽  
K Raza ◽  
RJ Stack ◽  
...  
BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e028719 ◽  
Author(s):  
Caroline Feldthusen ◽  
Kaisa Mannerkorpi

ObjectivePhysical activity plays an important role in the treatment of persons with rheumatoid arthritis (RA) and is the non-pharmacological intervention with the strongest evidence to reduce fatigue. However, physical activity can be challenging for persons who are fatigued. The aim of this study was to investigate factors of importance for reducing fatigue in persons with RA.DesignThis is a qualitative interview study based on semistructured, indepth individual interviews. Interviews were analysed using qualitative content analysis.ParticipantsParticipants were 12 people with RA recruited from a previous randomised controlled trial of a person-centred treatment model focusing on health-enhancing physical activity and daily balance to lessen fatigue in persons with RA.SettingInterviews were conducted in a hospital setting.ResultsThe analysis resulted in one theme:an intellectual and embodied understanding that sustainable physical activity is important to handle fatigue. This included five categories describing barriers and facilitating factors for sustainable physical activity:mentally overcoming the fatigue in order to be active,making exercise easy,reaching for balance,receiving support to be physically activeanddealing with RA disease to be physically active.ConclusionThe participants in this study expressed that physical activity was important in handling fatigue, but also that this insight could only come from personal experience. The use of a person-centred ethic in physiotherapy coaching for patients with fatigue appears to promote sustainable physical activity behaviours by facilitating patients’ resources to overcome barriers to physical activity.


2020 ◽  
Author(s):  
Emma Anderson ◽  
Amberly Brigden ◽  
Anna Davies ◽  
Emily Shepherd ◽  
Jenny Ingram

Abstract Background Covid-19 triggered the rapid roll-out of mass social distancing behavioural measures for infection control. Pregnant women were categorised as ‘at risk’ requiring extra vigilance with behavioural guidelines. Their understanding and ability to adhere to recommendations was unknown.Objectives To complete a behavioural analysis of the determinants of recommended social distancing behaviour in pregnant women, according to the ‘capability, opportunity, motivation and behaviour’ (‘COM-B’) model to inform the development of recommendations/materials to support pregnant women in understanding and adhering to behavioural guidelines.Design Qualitative interview study with pregnant women in the Bristol area (UK).Methods Semi-structured telephone/videoconference interviews were conducted following a topic guide informed by the COM-B model, transcribed verbatim and subjected to framework analysis. Infographic materials were iteratively produced with stakeholder consultation, to support pregnant women’s behaviour.Results Thirty-one women participated (selected for demographic range). Women reported adhering to social distancing recommendations and intended to continue. COM-B analysis identified gaps in understanding around risk, vulnerability, and the extent of required social distancing, as well as facilitators of social distancing behaviour (e.g. social support, motivation to stay safe, home environment/resources). Additional themes around detrimental mental health effects and changes to maternity healthcare from the social distancing measures were identified. Infographic resources (plus midwife report) addressing women’s key concerns were produced and disseminated.Conclusions The COM-B model provided useful details of determinants of pregnant women’s adherence to social distancing behaviours. The confusion of what being ‘at risk’ meant and varying interpretation of what was expected indicates a need for greater clarity around categories and guidance. The loss of maternity care and negative mental health effects of social distancing suggests a growing area of unmet health needs to be addressed in future.


2013 ◽  
Vol 36 (3) ◽  
pp. 242-249 ◽  
Author(s):  
Annette Sverker ◽  
Ingrid Thyberg ◽  
Gunnel Östlund ◽  
Eva Waltersson ◽  
Mikael Thyberg

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Emma Anderson ◽  
Amberly Brigden ◽  
Anna Davies ◽  
Emily Shepherd ◽  
Jenny Ingram

Abstract Background Covid-19 triggered the rapid roll-out of mass social distancing behavioural measures for infection control. Pregnant women were categorised as ‘at risk’ requiring extra vigilance with behavioural guidelines. Their understanding and ability to adhere to recommendations was unknown. Objectives To complete a behavioural analysis of the determinants of recommended social distancing behaviour in pregnant women, according to the ‘capability, opportunity, motivation and behaviour’ (‘COM-B’) model to inform the development of recommendations/materials to support pregnant women in understanding and adhering to behavioural guidelines. Design Qualitative interview study with pregnant women in the Bristol area (UK). Methods Semi-structured telephone/videoconference interviews were conducted following a topic guide informed by the COM-B model, transcribed verbatim and subjected to framework analysis. Infographic materials were iteratively produced with stakeholder consultation, to support pregnant women. Results Thirty-one women participated (selected for demographic range). Women reported adhering to social distancing recommendations and intended to continue. COM-B analysis identified gaps in understanding around risk, vulnerability, and the extent of required social distancing, as well as facilitators of social distancing behaviour (e.g. social support, motivation to stay safe, home environment/resources). Additional themes around detrimental mental health effects and changes to maternity healthcare from the social distancing measures were identified. Infographic resources (plus midwife report) addressing women’s key concerns were produced and disseminated. Conclusions The COM-B model provided useful details of determinants of pregnant women’s adherence to social distancing behaviours. The confusion of what being ‘at risk’ meant and varying interpretation of what was expected indicates a need for greater clarity around categories and guidance. The loss of maternity care and negative mental health effects of social distancing suggest a growing area of unmet health needs to be addressed in future.


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