scholarly journals Burden and Depressive Symptoms Associated with Adult-Child Caregiving for Individuals with Heart Failure

2014 ◽  
Vol 2014 ◽  
pp. 1-6 ◽  
Author(s):  
Selma Bozkurt Zincir ◽  
Murat Sunbul ◽  
Serkan Zincir ◽  
Esra Aydin Sunbul ◽  
Mustafa Oguz ◽  
...  

Background. The primary purpose of this study was to investigate adult-child caregiver burden in heart failure (HF) patients. Secondary purpose of the study was to identify the possible influencing factors for caregiver burden and depressive symptoms in a young adult-child caregiver group.Methods. A total of 138 adult-child caregivers and 138 patients with HF participated in this study. Caregivers’ burden, depressive symptoms, and anxiety levels were assessed by using Zarit Caregiver Burden Scale (ZCBS), Beck Depression Inventory, and State-Trait Anxiety Inventory, respectively.Results. The mean ZCBS scores of the female caregivers were significantly higher than male caregivers. Approximately one-third of the adult-child caregivers had at least mild depressive symptoms. Caregivers with higher depressive symptoms had higher levels of caregiver burden. There were positive correlations between caregiving time, severity of depressive symptoms, and perceived caregiver burden. There was a negative correlation between education level of caregivers and perceived caregiver burden. Age, socioeconomic level, and marital status of patients were affecting factors for depressive symptoms in caregivers. Among caregiver characteristics, gender, marital status, and ZCBS scores seem to influence the depression in caregivers.Conclusions. The study findings suggest significant levels of burden and depressive symptoms even in adult-child caregivers of HF patients.

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 319-320
Author(s):  
Jaime Goldberg ◽  
Jooyoung Kong ◽  
Sara Moorman

Abstract Combining the stress process model of caregiving and life course perspective, this study examined the long-term influences of childhood abuse on perpetrating parent-adult child relationships and adult child well-being in the context of caregiving. Using a sample of family caregivers from the Wisconsin Longitudinal Study (969 caregivers of mothers; 280 caregivers of fathers), we investigated whether contact frequency and emotional closeness with an abusive parent mediate the longitudinal effects of parental childhood abuse on adult child caregivers’ depressive symptoms and the moderating effects of self-acceptance and mastery on this mediational association. Key findings indicate that maternal childhood abuse may negatively affect emotional closeness between an adult child caregiver and perpetrating mother (b = -0.24, p < .001). This could lead the adult child caregiver to experience increased depressive symptoms (b = 0.02, p < .05). Although the mediation paths for the effect of maternal childhood abuse on depressive symptoms via emotional closeness with mothers did not differ by caregivers’ level of psychological resources, we found that psychological resources significantly moderated the association between maternal childhood abuse and depressive symptoms (b = -0.08, p < .05). Further research may explore this phenomenon in light of the heterogeneity of contemporary families. Practitioners working with adults with a history of parental childhood abuse who are caregiving for their perpetrator are encouraged to employ a trauma-informed approach to maximize the caregivers’ health and well-being.


Author(s):  
Mark D. Miller

Chapter 8 discusses the involvement of the family or caregivers into the interpersonal psychotherapy (IPT) treatment process. Using illustrative case studies, it outlines the roles of the adult child caregiver (including the issues that adult caregivers may face, shared caregiving duties, inadequate care), spouses are caregivers, adult child/intact spouse collaboration, and nonfamily caregivers.


Circulation ◽  
2008 ◽  
Vol 118 (suppl_18) ◽  
Author(s):  
Misook L Chung ◽  
Susan J Pressler ◽  
Terry A Lennie ◽  
Debra K Moser

Millions of family members deliver informal care and support to patients with heart failure (HF). Accumulating evidence suggests that caregivers of patients with HF suffer from depressive symptoms, but factors associated with depressive symptoms are unknown. Identification of such factors could provide targets for intervention. Three possible factors that are amenable to intervention are caregivers’ functional status, their sense of caregiving burden, and perceived control. (1) To examine differences in functional status, perceived control, and caregiving experiences (time, difficulty, and burden) between depressed and non-depressed caregivers; (2) To examine whether these factors predict caregivers’ depressive symptoms. A total of 92 caregivers (mean age of 57 years; female 75%; spousal caregiver 80%) of patients with HF were recruited from outpatient clinics at two community hospitals and an academic medical center in central Kentucky. Their depressive symptoms were assessed using the Beck Depression Inventory-II (BDI-II). Functional status was assessed using the Duke Activity Status Index. Perceived control was assessed using the Control Attitudes Scale-Revised. Caregiving difficulty, time, and burden were assessed using the Bakas Caregiving Inventory and the Zarit Caregiver Burden Scale. Caregivers were grouped using the standard cut point of 13 on the BDI-II score. The 27% of caregivers with depressive symptoms had poorer functional status (21± 20 vs. 34 ± 19; p =.007), lower perceived control (22 ± 4 vs. 25 ± 4; p = .005), and higher caregiving burden (26 ± 14 vs. 13 ± 10; p< .001) than caregivers without depressive symptoms. Controlling for age and gender in a multiple regression, functional disability (sβ= −.298, p<.001), perceived control (sβ= −.298, p<.001), and caregiver burden (sβ= .328, p=.002) explained 45% of the variance in caregivers’ depressive symptoms. Caregivers’ functional disability, poor controllability, and burden related to caregiving were associated with depressive symptoms. These findings suggest that depressed caregivers of patients with HF may benefit from interventions that improve perceived control, address caregiving burden and functional status.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 624-624
Author(s):  
Jinyu Liu

Abstract Using a mixed-methods approach, this study examines caregiver burden and depressive symptoms of Chinese American spouses and adult-children who provided care for their spouse or parents with dementia. Quantitative data were collected from a questionnaire-based survey in 124 Chinese caregivers in New York City and narrative data were gathered from in-depth interviews with 27 of these caregivers. The results of linear regression show that there was no difference in objective burden (caring tasks) between spousal and adult-child caregivers, but spousal caregivers reported significantly higher levels of subjective burden and depressive symptoms. Based on the structural equation modeling, it was found that subjective burden significantly mediated the association between being a spousal caregiver on depressive symptoms. The narrative data show that, compared to the adult-child caregivers, spousal caregivers were more likely to express their worries about the sequence of death (what will happen if they die earlier than their care receiver?).


PLoS ONE ◽  
2021 ◽  
Vol 16 (1) ◽  
pp. e0244453
Author(s):  
Waguih William IsHak ◽  
Samuel Korouri ◽  
Tarneem Darwish ◽  
Brigitte Vanle ◽  
Jonathan Dang ◽  
...  

Objectives Heart Failure is a chronic syndrome affecting over 5.7 million in the US and 26 million adults worldwide with nearly 50% experiencing depressive symptoms. The objective of the study is to compare the effects of two evidence-based treatment options for adult patients with depression and advanced heart failure, on depressive symptom severity, physical and mental health related quality of life (HRQoL), heart-failure specific quality of life, caregiver burden, morbidity, and mortality at 3, 6 and 12-months. Methods Trial design. Pragmatic, randomized, comparative effectiveness trial. Interventions. The treatment interventions are: (1) Behavioral Activation (BA), a patient-centered psychotherapy which emphasizes engagement in enjoyable and valued personalized activities as selected by the patient; or (2) Antidepressant Medication Management administered using the collaborative care model (MEDS). Participants. Adults aged 18 and over with advanced heart failure (defined as New York Heart Association (NYHA) Class II, III, and IV) and depression (defined as a score of 10 or above on the PHQ-9 and confirmed by the MINI International Neuropsychiatric Interview for the DSM-5) selected from all patients at Cedars-Sinai Medical Center who are admitted with heart failure and all patients presenting to the outpatient programs of the Smidt Heart Institute at Cedars-Sinai Medical Center. We plan to randomize 416 patients to BA or MEDS, with an estimated 28% loss to follow-up/inability to collect follow-up data. Thus, we plan to include 150 in each group for a total of 300 participants from which data after randomization will be collected and analyzed. Conclusions The current trial is the first to compare the impact of BA and MEDS on depressive symptoms, quality of life, caregiver burden, morbidity, and mortality in patients with depression and advanced heart failure. The trial will provide novel results that will be disseminated and implemented into a wide range of current practice settings. Registration ClinicalTrials.Gov Identifier: NCT03688100.


2012 ◽  
Vol 24 (8) ◽  
pp. 1335-1346 ◽  
Author(s):  
Chetna Malhotra ◽  
Rahul Malhotra ◽  
Truls Østbye ◽  
David Matchar ◽  
Angelique Chan

ABSTRACTBackground: This paper determines care recipient and caregiver characteristics and caregiving dimensions – associated with depression among caregivers of older adults, using path analysis and assesses whether the identified path model differs between spousal and adult child caregivers.Methods: Data from 1,190 dyads comprising care recipients (community-dwelling adults aged ≥75 years with at least one activity of daily living (ADL) limitation) and caregivers (family member/friend most involved in providing care/ensuring provision of care to care recipient), who were interviewed through the Singapore Survey on Informal Caregiving (2010–2011), were used. Using path analysis, we assessed the direct and indirect associations between primary stressors (care recipient's ADL and instrumental ADL status, and memory and behavior problems), caregiver health status, receipt of assistance from a foreign domestic worker/maid, amount of caregiving, negative reaction to caregiving, caregiver's self-esteem, perceived emotional support, and caregiver depressive symptoms.Results: Our analysis showed that primary stressors, receipt of assistance from a foreign domestic worker/maid, perceived emotional support, and caregiver health status were directly or indirectly associated with caregiver depressive symptoms, and this association was mediated by negative reaction to caregiving. Caregiver self-esteem mediated the relationship between perceived emotional support and negative reaction to caregiving only among adult child caregivers.Conclusions: The results provide insights into factors associated with depressive symptoms among spousal and adult child caregivers, and help identify targeted interventions for improving caregiver mood.


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