scholarly journals Beyond the Diagnosis: Lived Experiences of Persons with Spinal Cord Injury in a Selected Town in Ghana

2019 ◽  
Vol 2019 ◽  
pp. 1-10 ◽  
Author(s):  
Abdul-Ganiyu Fuseini ◽  
Patience Aniteye ◽  
Afizu Alhassan

Background. Although several studies have been conducted on the lived experiences of persons with spinal cord injury (SCI) in high income countries, there is no published data on such experiences in Ghana. The purpose of this study was to explore the lived experiences of persons with SCI in the Tamale Metropolis of the Northern Region of Ghana. Material and Methods. A qualitative descriptive design involving thirteen participants was conducted at the Tamale Metropolis-Ghana. A purposive sampling technique was used to recruit participants, using the Neurosurgical Unit of the Tamale Teaching Hospital as an outlet for recruitment of the sample. Data was gathered mainly through face-to-face in-depth interviews. The data was analyzed concurrently with data collection, using thematic content analysis. Ethical approval was obtained for the study from the Noguchi Memorial Institute for Medical Research and the research unit of the Tamale Teaching Hospital. Results. The three main themes that emerged from the data during analysis were “physical effects,” “psychological effects,” and “social issues.” Conclusion. The findings from the study suggest that SCI is a life threatening condition and that persons with SCI grapple with a myriad of physical symptoms that range from chronic pain and paralysis of lower and/or upper limbs, to bladder and bowel incontinence. These physical symptoms have significant psychological and social effects on the functioning of the affected persons.

2021 ◽  
Vol 28 (2) ◽  
pp. 139
Author(s):  
CorneliusMahdi Ishaku ◽  
BubaKabaju Jawa ◽  
StanleyMonday Maduagwu ◽  
AuwalBello Hassan ◽  
Aliyu Lawan ◽  
...  

2015 ◽  
Vol 25 (3) ◽  
Author(s):  
Matheus de Araújo Assis Viúdes ◽  
Josiane Moreira da Costa ◽  
Ciomara Maria Perez Nunes

2003 ◽  
Vol 17 (2) ◽  
pp. 135-156 ◽  
Author(s):  
Tim Rees ◽  
Brett Smith ◽  
Andrew C. Sparkes

This study draws upon life history data to investigate the influence of social support on the lives of 6 men who had acquired a spinal cord injury and become disabled through playing sport. Interviews were analyzed utilizing categorical-content analysis (Lieblich, Tuval-Mashiach, & Zilber, 1998). The participants experienced emotional, esteem, informational, and tangible support (Rees & Hardy, 2000) from various sources. Alongside the positive influence of social support, examples are shown of inappropriate or negatively-experienced support and where participants considered sport to be lacking. The spinal cord injured person is encouraged to be proactive in resourcing social support, but providers might also be taught to recognize the impact, either positively or negatively, that their giving support can have.


2017 ◽  
Vol 37 (3) ◽  
pp. 125-131 ◽  
Author(s):  
Kate Eglseder ◽  
Barbara Demchick

Although sexuality is an integral aspect of the human experience, individuals who sustain a spinal cord injury (SCI) often receive inadequate education to facilitate successful participation in sexual activities. Intimate partners are often not included in discussions related to sexuality during the rehabilitative process. The purpose of this study was to identify the lived experiences of intimate partners of individuals with SCI related to sexuality. Four intimate partners were selected to participate in semistructured interviews related to their lived experiences of sexuality. Participants identified aspects of SCI, extreme discomfort due to self-perceived sexual norms, and a lack of education as contributors to unsuccessful participation in sexual activity. Coupled sexual activity is a complex phenomenon which includes factors that influence both the injured individuals as well as their intimate partners. To provide effective interventions in addressing sexuality, practitioners should consider the entire issue, the couple.


Author(s):  
Nadezda Lukacova ◽  
Alexandra Kisucka ◽  
Katarina Kiss Bimbova ◽  
Maria Bacova ◽  
Maria Ileninova ◽  
...  

Traumatic spinal cord injury (SCI) elicits an acute inflammatory response which comprises numerous cell populations. It is driven by the immediate response of macro-phages and reactive M1 microglia, which triggers activation of genes responsible for the dysregulated microenvironment within the lesion site and in the spinal cord parenchyma immediately adjacent to the lesion. Recently published data indicate that microglia induces astrocyte activation and determines the fate of astrocytes. Conversely, astrocytes have the potency to trigger microglial activation and control their cellular functions. Here we review current information about the release of diverse signaling molecules (pro-inflammatory vs anti-inflammatory) in individual cell phenotypes (microglia, astrocytes, blood inflammatory cells) in acute and subacute SCI stages, and how they contribute to delayed neuronal death in a the surrounding spinal cord tissue which is spared and functional but reactive. In addition, temporal correlation in progressive degeneration of neurons and astrocytes and their functional interactions after SCI are discussed. Finally, the review highlight the time-dependent transformation of reactive mi-croglia (M1) and astrocytes (A1) into their neuroprotective phenotypes (M2a, M2c and A2) which are crucial for spontaneous post-SCI locomotor recovery. We also provide sug-gestions on how to increase functional outcome after SCI and discuss key therapeutic approaches.


2016 ◽  
Vol 2016 ◽  
pp. 1-7 ◽  
Author(s):  
Juanjuan Fu ◽  
Hongxing Wang ◽  
Lingxiao Deng ◽  
Jianan Li

The exercise training is an effective therapy for spinal cord injury which has been applied to clinic. Traditionally, the exercise training has been considered to improve spinal cord function only through enhancement, compensation, and replacement of the remaining function of nerve and muscle. Recently, accumulating evidences indicated that exercise training can improve the function in different levels from end-effector organ such as skeletal muscle to cerebral cortex through reshaping skeletal muscle structure and muscle fiber type, regulating physiological and metabolic function of motor neurons in the spinal cord and remodeling function of the cerebral cortex. We compiled published data collected in different animal models and clinical studies into a succinct review of the current state of knowledge.


2021 ◽  
Vol 4 ◽  
pp. 1-17
Author(s):  
Pallerla Srikanth ◽  
Shanivaram Reddy K. ◽  
B. P. Nirmala ◽  
Janardhana N. ◽  
Anupam Gupta

Background: SCI is a high-cost chronic disability, and it is a life-changing experience for family members and societies. For families, the unpredictable nature of the injury leads some of the members into an 'unexpected career' as family caregivers, the caregiver’s have to put enormous efforts, to provide continuous full-time caregiving for the recovery of Person with Spinal cord injury, which will affect the caregiver's physical and mental health. The current study aims to develop and test the feasibility of a well-being programme for caregivers of persons with spinal cord injury.            Methods/Design: The current study adopts a Quasi-experimental study design, which have three phases; the first phase is to explore the needs of the caregivers by conducting in-depth interviews with different stakeholders. The second phase is to develop a well-being programme, and checking the feasibility of the programme is the third phase by recruiting 24 caregivers. Qualitative data will be analyzed using thematic analysis, whereas quantitative data will be analyzed using appropriate parametric or non- parametric tests upon confirming normality of data distribution. Discussion: This study would help us to understand the psycho-social issues and unique needs of the caregivers at different time periods. It also gives information about psycho-social interventions and outcome measures for the well-being of the caregivers.


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