HIV Infection in Children: Family Stress, Social Support, and Adaptation

1995 ◽  
Vol 62 (3) ◽  
pp. 224-236 ◽  
Author(s):  
Sharon Lesar ◽  
Michael M. Gerber ◽  
Melvyn I. Semmel

This study examined the relationships of family functioning, parenting stress, and social support of caregivers who are parenting children with HIV infection. A family adaptational model integrated the concepts of stress, coping, and ecological systems for understanding the impact of an HIV-infected child on family adaptation and functioning. Data were collected from 48 caregivers of HIV-exposed children. Hierarchical multiple-regression analysis showed that a number of factors contributed significantly to the prediction of parenting stress and family functioning. Results showed significant relationships among parenting stress, children's developmental delay status, children and caregivers' HIV status, and caregiving burden.

2019 ◽  
Author(s):  
Sydney Chauwa Phiri ◽  
Sandra Mudhune ◽  
Margaret L Prust ◽  
Prudence Haimbe ◽  
Hilda Shakwelele ◽  
...  

Abstract Background Public health systems in resource-constrained settings have a critical role to play in the elimination of HIV transmission but are often financially constrained. This study is an evaluation of a mother-infant-pair model called “Umoyo”, which was designed to be low cost and scalable in a public health system. Facilities with the Umoyo model dedicate a clinic day to provide services to only HIV-exposed-infants (HEIs) and their mothers. Such models are in operation with reported success in Zambia but have not been rigorously tested. This work establishes whether the Umoyo model would improve 12-month retention of HEIs. Methods A cluster randomized trial including 28 facilities was conducted across two provinces of Zambia to investigate the impact on 12-month retention of HEIs in care. These facilities were offering prevention of mother to child transmission (PMTCT) services and supported by the same implementing partner. Randomization was achieved by use of the covariate constrained optimization technique. Secondary outcomes included the impact of Umoyo clinics on social support and perceived HIV stigma among mothers. For each of the outcomes, a difference-in-difference analysis was conducted at the facility level using the unweighted t-test. Results From 13 control (12-month retention at endline: 45%) and 11 intervention facilities (12-month retention at endline: 33%), it was found that Umoyo clinics had no impact on 12-month retention of HEIs in the t-test (-11%; 99% CI: -40.1%, 17.2%). Regarding social support and stigma, the un-weighted t-test showed no impact though sensitivity tests showed that Umoyo had an impact on increasing social support (0.31; 99% CI: 0.08, 0.54) and reducing perceived stigma from health care workers (-0.27: 99% CI: -0.46, -0.08). Conclusion The Umoyo approach of having a dedicated clinic day for HEIs and their mothers did not improve retention of HEIs though there are indications that it can increase social support among mothers and reduce stigma. Without further support to the underlying health system, based on the evidence generated through this evaluation, the Umoyo clinic day approach on its own is not considered an effective intervention to increase retention of HIV-exposed infants.


2018 ◽  
Vol 30 (1) ◽  
pp. 29-36 ◽  
Author(s):  
Violeta J Rodriguez ◽  
Stefani A Butts ◽  
Lissa N Mandell ◽  
Stephen M Weiss ◽  
Mahendra Kumar ◽  
...  

Childhood trauma (CT) – emotional, physical or sexual abuse, or emotional or physical neglect – has been associated with HIV infection and can lead to poor health outcomes and depression in adulthood. Though the impact of CT on depression may be decreased by social support, this may not be true of individuals living with HIV, due to the additive traumatic effects of both CT and acquisition of HIV. This study examined social support, depression, and CT among HIV-infected (n = 134) and HIV-uninfected (n = 306) men and women. Participants (N = 440) were assessed regarding sociodemographic characteristics, CT, depression, and social support. Participants were racially and ethnically diverse, 36 ± 9 years of age on average, and 44% had an income of less than USD$500 a month. Among HIV-uninfected individuals, social support explained the association between depression in persons with CT ( b = 0.082, bCI [0.044, 0.130]). Among HIV-infected individuals, after accounting for sociodemographic characteristics, social support did not explain the association between depression and CT due to lower levels of social support among HIV-infected individuals [95% CI: −0.006, 0.265]. The quality of social support may differ among HIV-infected persons due to decreased social support and smaller social networks among those living with HIV. Depressive symptoms among those living with HIV appear to be less influenced by social support, likely due to the additive effects of HIV infection combined with CT.


2021 ◽  
Vol 52 (3) ◽  
pp. 317-343
Author(s):  
Soyoung Lee ◽  
Meejung Chin ◽  
Miai Sung

The contemporary neighborhood literature discusses the complex relationships among neighborhood environments, social support, and parenting. Grounded in the Person-Process-Context-Time (PPCT) model, we examined how different sources of social support interact with Korean mothers’ perception of disorder in their neighborhoods, and if social support increases or decreases their parenting stress in rural and metropolitan areas. Using STATA 14.0, we conducted multiple regression modeling including tests for interaction effects. Our sample (from the 8th Wave PSKC) included 1,300 mothers of seven-year-old children who were transitioning to first grade. The results showed that for metropolitan mothers, support from neighbors was important. Interestingly, receiving social support from friends/colleagues could increase or reduce their parenting stress depending on the type of residential neighborhood. Both rural and metropolitan mothers who reported negative impressions of their neighborhood environment experienced more parenting stress. However, these relationships disappeared when controlling for the interactions between mothers’ perception of disorder in their neighborhood and social support. These findings suggest that the social support that mothers receive from neighbors, and friends/colleagues, in general, play an important role in relieving parenting stress when raising first graders. However, living in disorganized, unsafe, or stressful neighborhood environments may restrict mothers’ parenting choices due to anxiety and limited outdoor space, resulting in increased parenting stress. Therefore, careful consideration of neighborhood characteristics is required to develop community-based parenting support services as part of family-friendly policies to effectively reduce the burden of parenting school-aged children in Korea.


Author(s):  
James C. Bernier ◽  
Deborah H. Siegel

Little has been written about attention-deficit hyperactive disorder from a family systems perspective. The authors describe the impact of this neurologically based disorder on family functioning and explore the utility of systems theory in addressing families needs. Suggestions for widening the levels of intervention beyond traditional treatment parameters are offered.


2012 ◽  
Vol 29 (1) ◽  
pp. 36-62 ◽  
Author(s):  
Leah Brennan ◽  
Ray Wilks ◽  
Jeff Walkley ◽  
Steve F. Fraser ◽  
Kate Greenway

This study explores the impact of a cognitive behavioural lifestyle program, theChoose HealthProgram, on psychosocial wellbeing in overweight and obese adolescents. The sample comprised 29 male and 34 female adolescents aged 11.5 to 18.9 years (M= 14.3,SD= 1.9) and classified as overweight (n= 15) or obese (n= 48). Participants were randomly allocated to treatment or wait-list control conditions; participants allocated the wait-list condition were offered treatment after 6 months. Adolescents and parents completed self-report measures of psychopathology, psychosocial and family functioning. Treatment did not have detrimental effects on the psychosocial factors assessed. It resulted in significant improvements in weight control behaviour, impulse regulation, social support from family and parent–adolescent problem communication (p< .05). Similar results were obtained with completer and intention-to-treat analyses. Treatment acceptability was high, with all respondents indicating that they made progress. Combined, results indicate that treatment did not have detrimental effects on psychopathology, psychosocial functioning, or family functioning. Treatment resulted in significant improvements in impulse regulation, social support from family and parent–adolescent communication. Thus, parents and professionals can be assured that a comprehensive, multifaceted, parent-supported, cognitive behavioural intervention for overweight and obese adolescents does not cause psychological harm.


2019 ◽  
Author(s):  
Sydney Chauwa Phiri ◽  
Sandra Mudhune ◽  
Margaret L Prust ◽  
Prudence Haimbe ◽  
Hilda Shakwelele ◽  
...  

Abstract Background Public health systems in resource constrained settings have a critical role to play in the elimination of vertical HIV transmission but are unable to carry out some of the promising interventions such as mother-to-mother peer support programs due to financial constraints. This study is an evaluation of a mother-infant-pair clinic called Umoyo, which was designed to be scalable in a public health system due to the relatively low costs required. Umoyo clinics dedicate a clinic day to provide services to only HIV-exposed-infants (HEIs) and their mothers. Such models are in operation with reported success in Zambia but have not been rigorously tested. Methods A cluster randomized trial including 28 facilities was conducted across two provinces of Zambia to investigate 12-month retention of HEIs in care. These were facilities that were offering prevention of mother to child transmission (PMTCT) services and supported by the same implementing partner. Random allocation was achieved by use of the covariate constrained optimization technique. The primary outcome of interest was to establish whether Umoyo clinic days would improve 12-month retention of HEIs. Secondary outcomes included the impact of Umoyo clinics on social support and perceived HIV stigma among mothers. For each of the outcomes, a difference-in-difference analysis was conducted at the facility level using unweighted t-test. Results From 13 control and 11 intervention facilities, it was found that Umoyo clinics had no impact on 12-month retention of HEIs in the t-test (-11%; 99% CI: -40.1%, 17.2%). Regarding social support and stigma, the un-weighted t-test showed no impact though sensitivity tests showed that Umoyo had an impact on increasing social support and reducing perceived stigma from health care workers. Conclusion The Umoyo approach of having a dedicated clinic day for HEIs and their mothers did not improve retention of HEIs though there are indications that it can increase social support among mothers and reduce stigma. Without further support to the underlying health system, based on the evidence generated through this evaluation, the Umoyo clinic day approach on its own is not considered an effective intervention to increase retention of HIV-exposed infants.Trial Registration Pan African Clinical Trial Registry (PACTR201702001970148) Prospectively registered on January 13, 2017. URL https://pactr.samrc.ac.za/TrialDisplay.aspx?TrialID=1970


2021 ◽  
pp. 0192513X2110307
Author(s):  
Tania Gaspar ◽  
Diego Gomez-Baya ◽  
Joana S. Trindade ◽  
Fábio Botelho Guedes ◽  
Ana Cerqueira ◽  
...  

The main objective of this study is to explore the impact of the psychosocial factors (social support, resilience, and mental health) on the family functioning and on the parent’s perception of their children’s well-being. Participants were 1757 parents of children aged 6 to 16 years, 77.3% female ( N = 1359), and 22.7% male ( N = 398), aged between 20 and 80 years ( M = 41.61 and SD = 5.71). A path analyses model indicated that social support and resilience, which were positively associated, presented positive effects on parental mental health and on family functioning. No effect was observed on family functioning by parental mental health after including the effects by social support and resilience. Finally, this model pointed out that better family functioning, more social support, and more resilience skills were related to better child well-being. Implications to research and to prevention and psychological intervention in relation to parental skills and family functioning are presented in order to promote children well-being and healthy development.


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