‘Access necessitates being seen’: Queer visibility and intersectional embodiment within the health information practices of queer community leaders

2021 ◽  
pp. 016555152110406
Author(s):  
Travis L Wagner ◽  
Vanessa L Kitzie
Keyword(s):  
South Carolina ◽  
Health Information ◽  
Information Seeking ◽  
Community Leaders ◽  
Health Information Seeking ◽  
Structured Interviews ◽  
Queer Identity ◽  
Non Profit ◽  
Information Practices ◽  
Information Professionals

Navigating healthcare infrastructures is particularly challenging for queer-identifying individuals, with significant barriers emerging around stigma and practitioner ignorance. Further intersecting, historically marginalised identities such as one’s race, age or ability exacerbate such engagement with healthcare, particularly the access to and use of reliable and appropriate health information. We explore the salience of one’s queer identity relative to other embodied identities when navigating health information and care for themselves and their communities. Thirty semi-structured interviews with queer community leaders from South Carolina inform our discussion of the role one’s queer visibility plays relational to the visibility of other identities. We find that leaders and their communities navigate these intersectional visibilities through unique and iterative approaches to health information seeking, sharing and use predicated upon anti-queer, racist, ableist and misogynistic sentiments. Findings can inform queer-inclusive, intersectionally informed interventions by health and information professionals such as non-profit advocacy organisations and medical librarians.

Discursive power and resistance in the information world maps of lesbian, gay, bisexual, transgender, queer, intersex and asexual community leaders

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Vanessa Kitzie ◽  
Travis Wagner ◽  
A. Nick Vera
Keyword(s):  
South Carolina ◽  
Health Information ◽  
Information Science ◽  
Science Research ◽  
Community Leaders ◽  
Situational Analysis ◽  
Structured Interviews ◽  
Content Type ◽  
Information Practices ◽  
Discursive Power

PurposeThis qualitative study explores how discursive power shapes South Carolina lesbian, gay, bisexual, transgender, queer, intersex and asexual (LGBTQIA+) communities' health information practices and how participants resist this power.Design/methodology/approachIn total, 28 LGBTQIA+ community leaders from South Carolina engaged in semi-structured interviews and information world mapping–a participatory arts-based elicitation technique–to capture the context underlying how they and their communities create, seek, use and share health information. We focus on the information world maps for this paper, employing situational analysis–a discourse analytic method for visual data–to analyze them.FindingsSix themes emerged describing how discursive power operates both within and outside of LGBTQIA+ communities: (1) producing absence, (2) providing unwanted information, (3) commoditizing LGBTQIA+ communities, (4) condensing LGBTQIA+ people into monoliths; (5) establishing the community's normative role in information practices; (6) applying assimilationist and metronormative discourses to information sources. This power negates people's information practices with less dominant LGBTQIA+ identities and marginalized intersectional identities across locations such as race and class. Participants resisted discursive power within their maps via the following tactics: (1) (re)appropriating discourses and (2) imagining new information worlds.Originality/valueThis study captures the perspectives of an understudied population–LGBTQIA+ persons from the American South–about a critical topic–their health–and frames these perspectives and topics within an informational context. Our use of information world mapping and situational analysis offers a unique and still underutilized set of qualitative methods within information science research.

scholarly journals I Wouldn’t Search That With My Mobile Phone: Credibility and Trust in OHIRs Among Lower-Income Black Older Adults

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 509-509
Author(s):  
Christina Harrington ◽  
Amanda Woodward
Keyword(s):  
Older Adults ◽  
Health Information ◽  
Digital Literacy ◽  
Information Seeking ◽  
Smart Devices ◽  
Health Information Seeking ◽  
Lower Income ◽  
Web Searching ◽  
Structured Interviews ◽  
Technology Proficiency

Abstract Online health information resources (OHIRs) such as conversational assistants and smart devices that provide access to consumer health information in the home are promoted as viable options for older adults to independently manage health. However, there is question as to how well these devices are perceived to meet the needs of marginalized populations such as lower-income Black older adults who often experience lower digital literacy or technology proficiency. We examined the experiences of 34 lower-income Black older adults aged 65-83 from Chicago and Detroit with various OHIRs and explored whether conversational resources were perceived to better support health information seeking compared to traditional online web searching. In a three-phase study, participants tracked their experiences with various OHIRs and documented health-related questions in a health diary. Participants were then interviewed about their diaries in focus groups and semi-structured interviews, followed by a technology critique and co-design session to re-envision a more usable and engaging conversational device. We present preliminary results of the themes that emerged from our analysis: cultural variables in health information seeking practices, perceptions of credibility, likelihood of use, and system accessibility. Participants indicated that their trust of different resources depended on the type of information sought, and that conversational assistants would be a useful resource that require less technology proficiency, even among those with lower e-health literacy. Although our findings indicate that familiarity and trust were salient constructs associated with perceptions of OHIRs, these devices may address digital literacy and technology familiarity with certain design considerations.

scholarly journals The Role of Health Literacy and Social Networks in Arthritis Patients' Health Information-Seeking Behavior: A Qualitative Study

2012 ◽  
Vol 2012 ◽  
pp. 1-6 ◽  
Author(s):  
Janette Ellis ◽  
Judy Mullan ◽  
Anthony Worsley ◽  
Nagesh Pai
Keyword(s):  
Social Network ◽  
Health Literacy ◽  
Qualitative Study ◽  
Health Information ◽  
Information Seeking ◽  
Health Information Seeking ◽  
Structured Interviews ◽  
Information Seeking Behaviour ◽  
Wide Range ◽  
Selection Of

Background. Patients engage in health information-seeking behaviour to maintain their wellbeing and to manage chronic diseases such as arthritis. Health literacy allows patients to understand available treatments and to critically appraise information they obtain from a wide range of sources. Aims. To explore how arthritis patients' health literacy affects engagement in arthritis-focused health information-seeking behaviour and the selection of sources of health information available through their informal social network. Methods. An exploratory, qualitative study consisting of one-on-one semi-structured interviews. Twenty participants with arthritis were recruited from community organizations. The interviews were designed to elicit participants' understanding about their arthritis and arthritis medication and to determine how the participants' health literacy informed selection of where they found information about their arthritis and pain medication. Results. Participants with low health literacy were less likely to be engaged with health information-seeking behaviour. Participants with intermediate health literacy were more likely to source arthritis-focused health information from newspapers, television, and within their informal social network. Those with high health literacy sourced information from the internet and specialist health sources and were providers of information within their informal social network. Conclusion. Health professionals need to be aware that levels of engagement in health information-seeking behaviour and sources of arthritis-focused health information may be related to their patients' health literacy.

Older adults and internet health information seeking

2005 ◽  
Author(s):  
Tamer El-Attar ◽  
Jarvis Gray ◽  
Sankaran N. Nair ◽  
Raymond Ownby ◽  
Sara J. Czaja
Keyword(s):  
Older Adults ◽  
Health Information ◽  
Information Seeking ◽  
Health Information Seeking ◽  
Internet Health Information

scholarly journals Young children’s information-seeking practices in center-based childcare

2021 ◽  
pp. 096100062096216
Author(s):  
Sarah Barriage
Keyword(s):  
Young Children ◽  
Information Seeking ◽  
Day Care ◽  
Participant Observation ◽  
Photo Elicitation ◽  
Structured Interviews ◽  
Information Practices ◽  
The Usa ◽  
Concept Of Information ◽  
Classroom Resources

Many children in the USA spend a significant amount of time in center-based childcare. However, research has yet to explore their information practices in this setting. This study investigates young children’s perceptions of the concept of information and their own information-seeking practices within the context of their day care classroom. The participants included 13 children between three and five years of age. Data was collected using participant observation, semi-structured interviews, child-led photo tours, and photo-elicitation interviews. The findings indicate that the children did not perceive the concept of information in a manner consistent with adult understandings of the term, and that they engaged in information-seeking related to finding out new things on their own, through interactions with others, and through classroom resources, activities, and routines. The findings have implications for both researchers and practitioners working with young children.

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