scholarly journals The use of digital legacies with people affected by motor neurone disease for continuing bonds: An interpretative phenomenological analysis study

2019 ◽  
Vol 33 (7) ◽  
pp. 812-822 ◽  
Author(s):  
Oliver Clabburn ◽  
Katherine Knighting ◽  
Barbara A Jack ◽  
Mary R O’Brien
Keyword(s):  
Young People ◽  
Interpretative Phenomenological Analysis ◽  
Young Person ◽  
Phenomenological Analysis ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Continuing Bonds ◽  
The United Kingdom ◽  
Psychotherapeutic Approach ◽  
Ethical Approval

Background: Motor neurone disease is a progressive neurodegenerative disease without cure. Little is known about how young people are affected when a family member has the illness and subsequently dies, resulting in a gap in understanding of how best to support them. One psychotherapeutic approach involves creating a legacy to pass onto the young person, but little research has investigated the use of an emerging format, digital legacies, where videos document a person’s life, memories and achievements. Aim: To investigate the views, perceptions and experiences of digital legacies with people affected by motor neurone disease. Design: A qualitative study underpinned by interpretative phenomenological analysis. Setting/participants: People living with motor neurone disease (n = 4) and bereaved young people (n = 3) in the United Kingdom. Open-ended interviews were conducted in person. Ethical approval was granted by a University ethics committee. Results: Five key themes emerged exemplifying mutual challenges and benefits for people with motor neurone disease and bereaved young people. Creating a digital legacy provides a sense of purpose for people with motor neurone disease and a way to convey personality and life experiences. Bereaved young people can modify disease-related memories of the person and gain comfort from hearing and seeing videos. Conclusion: This study expands the existing continuing bonds model of grief to include an ‘autobiographical chapter’, creating ‘The Model of Reciprocal Bonds Formation’.

scholarly journals Delivering cognitive therapy for adolescent social anxiety disorder in NHS CAMHS: a qualitative analysis of the experiences of young people, their parents and clinicians-in-training

2021 ◽  
pp. 1-15
Author(s):  
Lucy Taylor ◽  
Cathy Creswell ◽  
Samantha Pearcey ◽  
Emma Brooks ◽  
Eleanor Leigh ◽  
...  
Keyword(s):  
Mental Health ◽  
Anxiety Disorder ◽  
Social Anxiety ◽  
Young People ◽  
Health Services ◽  
Qualitative Analysis ◽  
Social Anxiety Disorder ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Qualitative Exploration

Abstract Background: Social anxiety disorder (SAD) is common. It usually starts in adolescence, and without treatment can disrupt key developmental milestones. Existing generic treatments are less effective for young people with SAD than with other anxiety disorders, but an adaptation of an effective adult therapy (CT-SAD-A) has shown promising results for adolescents. Aims: The aim of this study was to conduct a qualitative exploration to contribute towards the evaluation of CT-SAD-A for adoption into Child and Adolescent Mental Health Services (CAMHS). Method: We used interpretative phenomenological analysis (IPA) to analyse the transcripts of interviews with a sample of six young people, six parents and seven clinicians who were learning the treatment. Results: Three cross-cutting themes were identified: (i) endorsing the treatment; (ii) finding therapy to be collaborative and active; challenging but helpful; and (iii) navigating change in a complex setting. Young people and parents found the treatment to be useful and acceptable, although simultaneously challenging. This was echoed by the clinicians, with particular reference to integrating CT-SAD-A within community CAMHS settings. Conclusions: The acceptability of the treatment with young people, their parents and clinicians suggests further work is warranted in order to support its development and implementation within CAMHS settings.

scholarly journals Exploring the functions of music in the lives of young people on the autism spectrum

2021 ◽  
pp. 030573562110089
Author(s):  
Melissa L Kirby ◽  
Karen Burland
Keyword(s):  
Young People ◽  
Everyday Life ◽  
Interpretative Phenomenological Analysis ◽  
Autism Spectrum ◽  
Phenomenological Analysis ◽  
Multiple Methods ◽  
Social Functions ◽  
Interview Technique ◽  
Autistic People ◽  
Insight Into

Current research investigating the functions of music in everyday life has identified cognitive, emotional, and social functions of music. However, previous research focuses almost exclusively on neurotypical people and rarely considers the musical experiences of autistic people. In addition, there is limited research which focuses explicitly on the musical experiences of young people on the autism spectrum. Current research exploring the functions of music may therefore not accurately represent the experiences of the autistic community. This article aims to explore the function of music in the lives of young people on the autism spectrum through a series of interviews. Eleven young people on the autism spectrum age 12 to 25 ( M = 19.4) were interviewed about the function of music in their lives. An adaptive interview technique, utilizing multiple methods of communication, was employed to account for the participants’ broad communicative and personal needs. Interpretative phenomenological analysis revealed four key functions of music in the participants’ lives: Cognitive, Emotional, Social, and Identity. Collectively, these results provide a unique insight into the musical experiences of young people on the autism spectrum.

scholarly journals The ethics of service work in a neoliberal healthcare context: doing embodied and “dirty” emotional labor

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Lilith Arevshatian Whiley ◽  
Gina Grandy
Keyword(s):  
Emotional Labor ◽  
Interpretative Phenomenological Analysis ◽  
Design Methodology ◽  
Well Being ◽  
Phenomenological Analysis ◽  
Service Work ◽  
Dirty Work ◽  
Service Workers ◽  
Content Type ◽  
The United Kingdom

PurposeThe authors explore how service workers negotiate emotional laboring with “dirty” emotions while trying to meet the demands of neoliberal healthcare. In doing so, the authors theorize emotional labor in the context of healthcare as a type of embodied and emotional “dirty” work.Design/methodology/approachThe authors apply interpretative phenomenological analysis (IPA) to their data collected from National Health Service (NHS) workers in the United Kingdom (UK).FindingsThe authors’ data show that healthcare service workers absorb, contain and quarantine emotional “dirt”, thereby protecting their organization at a cost to their own well-being. Workers also perform embodied practices to try to absolve themselves of their “dirty” labor.Originality/valueThe authors extend research on emotional “dirty” work and theorize that emotional labor can also be conceptualized as “dirty” work. Further, the authors show that emotionally laboring with “dirty” emotions is an embodied phenomenon, which involves workers absorbing and containing patients' emotional “dirt” to protect the institution (at the expense of their well-being).

scholarly journals The two faces of secondary headship

2017 ◽  
Vol 31 (2) ◽  
pp. 69-74 ◽  
Author(s):  
Laura Guihen
Keyword(s):  
Young People ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
The Other ◽  
Teacher Role ◽  
Meaningful Difference ◽  
Head Teacher ◽  
Structured Interviews ◽  
Head Teachers ◽  
Analysis Methodology

Men continue to outnumber women at the secondary head teacher level. This article reports on some of the preliminary findings of a larger study exploring the ways in which women deputy head teachers, as potential aspirants to headship, perceive the secondary head teacher role. Using an Interpretative Phenomenological Analysis methodology, semi-structured interviews were conducted with 12 participants. The data revealed that, while making decisions about their professional futures, the majority of the women held dual, contradictory images of secondary headship. One image consisted of a role plagued by risk, performativity and stress, whereas the other focused on the agentic capacity head teachers have to transform lives and communities. The article highlights the ways in which a belief in the power of headship to make a meaningful difference to the lives of young people can encourage some women to aspire towards headship regardless of the precarity they perceive as being ingrained within the head teacher role.

scholarly journals ‘I Sort of Never Felt Like I Should be Worried About it or That I Could be Worried About it’: An Interpretative Phenomenological Analysis of Perceived Barriers to Disclosure by Young People with Coeliac Disease

2021 ◽  
Author(s):  
Miranda Wheeler ◽  
Annabel David ◽  
Juliet Kennedy ◽  
Matthew Knight
Keyword(s):  
Young People ◽  
Coeliac Disease ◽  
Interpretative Phenomenological Analysis ◽  
Information Provision ◽  
Phenomenological Analysis ◽  
Perceived Barriers ◽  
Structured Interviews ◽  
Support Design ◽  
Psychological Difficulties

Objectives: There has been little research in the UK regarding young people’s experiences of disclosure of psychological difficulties relating to coeliac disease (CD) to others, particularly healthcare professionals. This study sought to address this systematically with a focus on the lived experiences of young people with CD. This study aimed to gain insight into how paediatric gastroenterology services could improve patient experience for those with CD and support identification of patients who may benefit from further psychological support. Design: This study used interpretive phenomenological analysis (IPA) of patient accounts.Methods: Seven young people with CD (aged 11-16 years) were recruited from a UK hospital paediatric gastroenterology service. Semi-structured interviews were carried out and verbatim transcripts were analysed using IPA to explore young people’s experiences of CD and why they might feel able or unable to disclose psychological difficulties associated with their condition to clinicians. Results: Three superordinate themes emerged from the data. The first encapsulated experiences of adjusting to the diagnosis within a developmental context, including the role of adults in information provision and the importance of peer support. The second outlined experiences of managing perceived or actual stigma regarding others’ perceptions of the condition and themselves. The third incorporated perceived barriers to disclosure relating to power, safety, and beliefs about the role of medical professionals.Conclusions: Findings highlight the importance of clinicians continually providing developmentally appropriate information to young people and actively breaking down barriers to disclosure through body language and use of clear questions regarding emotional experiences.

Social Support in Perinatal Grief and Mothers’ Continuing Bonds: A Qualitative Study With Italian Mourners

Affilia ◽  
2020 ◽  
Vol 35 (4) ◽  
pp. 485-502
Author(s):  
Ines Testoni ◽  
Jenni Bregoli ◽  
Sara Pompele ◽  
Andrea Maccarini
Keyword(s):  
Social Support ◽  
Qualitative Study ◽  
Interpretative Phenomenological Analysis ◽  
Support Systems ◽  
Perinatal Loss ◽  
Phenomenological Analysis ◽  
Continuing Bonds ◽  
Grieving Process ◽  
The Third ◽  
Perinatal Grief

The grieving process after perinatal loss has unique properties. This qualitative study examines one aspect of the grieving process: continuing bonds experienced by the mothers. We offer an interpretative phenomenological analysis of interviews with 15 Italian mothers. Three main relevant themes emerged: “continuing bonds between externalized and internalized presence,” “a difficult guilt to manage,” and “relationships are crucial support systems.” The first one illustrates the ongoing connections to the deceased on the part of mothers and siblings, the second one explores a fixation on finding the cause of the death and related feelings of guilt, while the third one describes the mothers’ process of elaboration of the event, especially with the support of the husband and the community. The findings highlight unique qualities of continuing bonds after perinatal loss and factors that might influence mother’s griefwork, while also suggesting that psychodrama and art therapy could be useful in the management of this kind of loss.

scholarly journals Climbing to freedom on an impossible staircase: Exploring the emancipatory potential of becoming an entrepreneur-employer

2020 ◽  
pp. 026624262096761
Author(s):  
Helen C Williams ◽  
Katrina Pritchard ◽  
Maggie C Miller ◽  
Cara Reed
Keyword(s):  
United Kingdom ◽  
Women Entrepreneurs ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Men And Women ◽  
Visual Method ◽  
The United Kingdom ◽  
South Wales ◽  
Catch 22 ◽  
Perceived Constraints

This article contributes to critical discussions questioning the emancipatory potential of entrepreneurship by examining the experiences of men and women entrepreneurs who have recently become employers in South Wales, the United Kingdom. Our research uses a co-creative visual method based in interpretative phenomenological analysis (IPA) to explore transitions from entrepreneur to entrepreneur-employer in everyday contexts. Findings demonstrate how initial emancipatory experiences become increasingly bounded when becoming an entrepreneur-employer. This exposes a Catch-22 of entrepreneuring-as-emancipation as a symptom of neoliberal entrepreneurial discourses that constrain what entrepreneurs are encouraged to do: grow. We find a plurality of particular emancipations, but conclude that within a developed context entrepreneurship, and more specifically, becoming an entrepreneur-employer is a relational step through which perceived constraints become more readily experienced and emancipation never fully realised.

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