scholarly journals ‘I Sort of Never Felt Like I Should be Worried About it or That I Could be Worried About it’: An Interpretative Phenomenological Analysis of Perceived Barriers to Disclosure by Young People with Coeliac Disease

2021 ◽  
Author(s):  
Miranda Wheeler ◽  
Annabel David ◽  
Juliet Kennedy ◽  
Matthew Knight

Objectives: There has been little research in the UK regarding young people’s experiences of disclosure of psychological difficulties relating to coeliac disease (CD) to others, particularly healthcare professionals. This study sought to address this systematically with a focus on the lived experiences of young people with CD. This study aimed to gain insight into how paediatric gastroenterology services could improve patient experience for those with CD and support identification of patients who may benefit from further psychological support. Design: This study used interpretive phenomenological analysis (IPA) of patient accounts.Methods: Seven young people with CD (aged 11-16 years) were recruited from a UK hospital paediatric gastroenterology service. Semi-structured interviews were carried out and verbatim transcripts were analysed using IPA to explore young people’s experiences of CD and why they might feel able or unable to disclose psychological difficulties associated with their condition to clinicians. Results: Three superordinate themes emerged from the data. The first encapsulated experiences of adjusting to the diagnosis within a developmental context, including the role of adults in information provision and the importance of peer support. The second outlined experiences of managing perceived or actual stigma regarding others’ perceptions of the condition and themselves. The third incorporated perceived barriers to disclosure relating to power, safety, and beliefs about the role of medical professionals.Conclusions: Findings highlight the importance of clinicians continually providing developmentally appropriate information to young people and actively breaking down barriers to disclosure through body language and use of clear questions regarding emotional experiences.

2017 ◽  
Vol 22 (3) ◽  
pp. 418-427
Author(s):  
Anna Einarsson

How is performing with responsive technology in a mixed work experienced by performers, and how may the notion of embodied cognition further our understanding of this interaction? These questions are addressed here analysing accounts from singers performing the author’s mixed work Metamorphoses (2015). Combining semi-structured interviews and inspiration from Interpretative Phenomenological Analysis, questions concerning the ‘self’ when listening, singing, moving and relating to fellow musicians, as well as the relationship towards the computer, are explored. The results include a notion of the computer as neither separated nor detached but both, and highlight the importance of the situation, including not only the here and now but also social and cultural dimensions. The discussion emphasises the role of sensorimotor interaction and bodily experience in human meaning-making.


2017 ◽  
Vol 31 (2) ◽  
pp. 69-74 ◽  
Author(s):  
Laura Guihen

Men continue to outnumber women at the secondary head teacher level. This article reports on some of the preliminary findings of a larger study exploring the ways in which women deputy head teachers, as potential aspirants to headship, perceive the secondary head teacher role. Using an Interpretative Phenomenological Analysis methodology, semi-structured interviews were conducted with 12 participants. The data revealed that, while making decisions about their professional futures, the majority of the women held dual, contradictory images of secondary headship. One image consisted of a role plagued by risk, performativity and stress, whereas the other focused on the agentic capacity head teachers have to transform lives and communities. The article highlights the ways in which a belief in the power of headship to make a meaningful difference to the lives of young people can encourage some women to aspire towards headship regardless of the precarity they perceive as being ingrained within the head teacher role.


2020 ◽  
Vol 44 (2) ◽  
pp. 156-172
Author(s):  
Joshua Eldridge ◽  
Mary John ◽  
Kate Gleeson

In the general population, confiding is typically associated with increased well-being, reduced distress and strengthened relationships. However, there is a lack of research exploring the role of confiding among young people who have been in the care system. The current study employed Interpretative Phenomenological Analysis (IPA) to guide the analysis of semi-structured interviews with eight young people with a range of care experiences, looking at the topic of confiding in others. Five themes emerged from the data analysis that indicated difficulties with confiding related to: holding unacceptable identities that are difficult to reveal to others; holding anticipations and expectations that confiding leads to harm; experiencing internal conflict between wanting to be open versus wanting to remain closed; and varying opportunities to develop trusted, confiding relationships across different environments within the care system. The findings suggest a need for safe, secure and stable care placements that can support the potential development of trusted confiding relationships wherein young people may be able to develop greater attachment security, and the capacity to build safe, supportive and trusted relationships through their lives. Implications for practice are discussed.


Sociologija ◽  
2020 ◽  
Vol 62 (2) ◽  
pp. 171-192
Author(s):  
Milica Skocajic ◽  
Biljana Stankovic

Even though the experience of abortion is a relatively common experience among women in Serbia, personal accounts in relation to abortion are rarely examined. International findings show that having social support is crucial in coping with this experience. The main objective of this research was to examine the ways in which women rely on social support and the ways in which this shapes their experiences. After six semi-structured interviews with women who terminated their first pregnancy, their personal accounts were analyzed using interpretative phenomenological analysis. The role of significant others remains important during the whole experience but with qualitative shifts throughout the phases. In the earliest phases, other people could be perceived as a double threat - they could cause the feeling of shame or be an obstacle in the pregnancy termination. During and after the medical procedure, the need for social support becomes stronger and more complex, although in some cases it remains unmet. Most prominent social figures are mothers and romantic partners. Participants with responsive and supportive social surroundings coped more easily than others whose support is nonexistent or overly normalizing. Research contribution of this study is the analysis of personal accounts of women who had abortion. Practical contribution is raisin awareness of the importance of legitimization of complex and ambiguous feelings during abortion, both by significant others and health psychologists.


2017 ◽  
Author(s):  
GEORGIOS KESISOGLOU

The purpose of this qualitative study was to explore the ‘neo-homeless’ participants’ lived experiences in the shelters and the streets, within the context and the adversities of the economic crisis in Greece. Semi-structured interviews were conducted with 6 participants (4 women and 2 men) at a municipal shelter in Athens, Greece. An Interpretative Phenomenological analysis was used to document their experiences and stories. Research findings revolved around the accounts and the negative effects of neo-homelesness such as detrimental personal consequences, stress, depression, depersonalization , a sense of hopelessness and lack of hope for the future. However, the participants spoke also about positive growth, a deeper apprehension of life’s meanings, and the mobilization of personal and interpersonal resources. ‘Neo-homelessness’ hardship in the shelter was incremental in the experiential conscientization and critical consciousness of the oppression of the social context of crisis and austerity. Implications for the work of counseling psychologists are discussed in terms of working towards empowering persons in homeless trajectories towards resilience in mental health, taking a stance of social justice.


Author(s):  
Nicola Amari ◽  
Adam Mahoney

AbstractThe study explores practitioners’ experiences of working with adolescents with complex interpersonal trauma. Five mental health professionals were recruited via purposive and snowball sampling. Semi-structured interviews were conducted, audio-recorded and transcribed. Interpretative phenomenological analysis was employed to identify themes related to the research question. Three superordinate themes emerged: “The distance-relationship dynamic”; “The unknown self”; “Practitioners’ presence”. Participants reported the fragility of their relationships with clients, enhanced awareness of their professional and personal identity, and highlighted the importance of meeting their clients as persons. Results are discussed within the literature that considers the role of the person of the therapist to foster therapeutic change. Future research could explore the role of therapeutic distance, the interplay between transference-countertransference and attachment dynamics, and the relevance of practitioners’ playfulness with traumatised youth. Finally, this study proposes a model of use of self as “compassion-in-action” to express practitioners’ ‘response-ability’ to their clients’ trauma as commitment to social justice.


2018 ◽  
Vol 14 (2) ◽  
pp. 104-111
Author(s):  
Camille Alexis-Garsee ◽  
Stephanie Meehan ◽  
Olga van den Akker

Introduction: Many UK smokers use e-cigarettes as a quitting aid; however, a substantial number discontinue use of the e-cigarette and revert to smoking. Understanding why this may happen is important both for individuals and for stop smoking services.Aims: To explore young adult smokers’ experiences of use and discontinued use of the e-cigarette.Methods: Semi-structured interviews were conducted with six participants who tried e-cigarettes for at least seven days and returned to smoking. Data was transcribed and analysed using interpretative phenomenological analysis.Results: Findings suggested participants held conflicting attitudes about using e-cigarettes, which undermined attempts to quit smoking, and led to the discontinuation of the e-cigarette. These conflicts centred on participants’ discomfort with the e-cigarette or vaping identity, lack of abstinence self-efficacy and navigation of barriers to e-cigarette use. The complex interplay of these factors may have led to an underestimation of the individual effort required to continue vaping and reinforced participants’ perception of the e-cigarette as an inferior product to the cigarette.Conclusions: Future research should focus on the role of identity, self-efficacy, control and smokers’ expectations of e-cigarettes on smoking cessation as these may be important factors to consider for a more tailored service for e-cigarette users.


2015 ◽  
Vol 44 (1) ◽  
pp. 92-103 ◽  
Author(s):  
Peter Dargan ◽  
Graeme Reid ◽  
Suzanne Hodge

Background: Research has implicated causal, mediating and meaningful roles for mental imagery in the experience of psychological distress, including self-injury. Aims: The present study aimed to further the understanding of this relationship through exploring the lived experiences of mental imagery from the perspective of those who self-injure. Method: This study employed an inductive qualitative design using semi-structured interviews and Interpretative Phenomenological Analysis (IPA). Ten participants were recruited from universities in North West England. Results: Three main themes were identified from the analysis: (i) The origins and precipitants of self-injurious imagery; (ii) What it is like to experience self-injurious imagery; and (iii) The meaning and interpretation of self-injurious imagery. Conclusions: The study findings indicate that mental imagery is an important experience for those who self-injure. Clinical and research implications of the findings are discussed.


2016 ◽  
Vol 46 (1) ◽  
pp. 138-155 ◽  
Author(s):  
Laura Friesen ◽  
Rebecca J. Purc-Stephenson

A university education can provide an individual with greater employment options, higher income potential, and improved health and quality of life, yet young persons from rural areas remain less likely to attend university than their urban counterparts. This study explores the perceived personal, social, and cultural factors that might create barriers for young persons from rural areas. Semi-structured interviews were conducted with 17 individuals living in rural areas in Alberta, aged 18 to 23 years, who had not attended university. Using interpretative phenomenological analysis, we identified 11 major themes, which were then organized into a conceptual model to illustrate the interacting nature of these factors and their influence on a person’s decision to pursue a university education. An examination of this model and its associated themes may help reveal the possible barriers young persons from rural areas experience when deciding whether or not to attend university.  


2017 ◽  
Vol 63 (4) ◽  
pp. 307-313 ◽  
Author(s):  
József Rácz ◽  
Zsuzsa Kaló ◽  
Szilvia Kassai ◽  
Márta Kiss ◽  
Judit Nóra Pintér

Background: Auditory verbal hallucinations (AVHs) played an important role in the psychiatric diagnostics, but in the last few decades the diagnostic-free complex phenomenological understanding of the phenomena of voice hearing became the focus of studies. Materials: Six semi-structured interviews with recovering voice hearers were conducted and analysed using interpretative phenomenological analysis (IPA). Discussion: The self-help group gives significant help in identification and dealing with the voices; therefore, it serves as turning point in the life story of voice hearers. Conclusion: Applying self-help group in clinical context contributes to better outcomes in treatment of voice hearers.


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