The Capture Gap: Implantable Cardioverter–Defibrillator Quality of Life

2018 ◽  
Vol 29 (2) ◽  
pp. 97-107
Author(s):  
Daniel A. Hopgood ◽  
Richard J. Czosek ◽  
Tamilyn Bakas ◽  
Nicole Garritano ◽  
Gordon L. Gillespie
Keyword(s):  
Quality Of Life ◽  
Implantable Cardioverter Defibrillators ◽  
Semistructured Interview ◽  
Convenience Sample ◽  
Financial Status ◽  
Demographic Questionnaire ◽  
The Family ◽  
The Individual ◽  
Cardioverter Defibrillators

We aimed to compare salient characteristics and antecedents of quality of life (QOL) in adolescents and young adults with implantable cardioverter–defibrillators (ICDs) from qualitative methods with quantitative measurement of QOL and correlations between QOL (PedsQL) and measured participant characteristics. Concurrent parallel mixed methods design was used to collect survey data from the PedsQL electronic health record, demographic questionnaire, and semistructured interview data. A convenience sample of 16 individuals with ICDs, aged 13 to 25 years, was obtained from a tertiary pediatric facility. Overall QOL and subdomains of physical, psychosocial, and academic/work were examined by PedsQL and visual analog scale. Select demographics were collected to develop a participant profile. Females with ICDs appear to be at risk of poor QOL given some unknown factors. Financial status of the individual and the family was positively related to QOL. For new ICD persons involved in physical activities that must be stopped, peer support appears to improve QOL.

Quality-of-Life Measurement in Advanced Cancer: Assessing the Individual

1999 ◽  
Vol 17 (11) ◽  
pp. 3603-3611 ◽  
Author(s):  
Dympna Waldron ◽  
Ciaran A. O'Boyle ◽  
Michael Kearney ◽  
Michael Moriarty ◽  
Desmond Carney
Keyword(s):  
Quality Of Life ◽  
Advanced Cancer ◽  
Internal Validity ◽  
Semistructured Interview ◽  
Incurable Cancer ◽  
Life Measurement ◽  
The Difference ◽  
The Individual ◽  
Very High

PURPOSE: Despite the increasing importance of assessing quality of life (QoL) in patients with advanced cancer, relatively little is known about individual patient's perceptions of the issues contributing to their QoL. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL) and the shorter SEIQoL–Direct Weighting (SEIQoL-DW) assess individualized QoL using a semistructured interview technique. Here we report findings from the first administration of the SEIQoL and SEIQoL-DW to patients with advanced incurable cancer. PATIENTS AND METHODS: QoL was assessed on a single occasion using the SEIQoL and SEIQoL-DW in 80 patients with advanced incurable cancer. RESULTS: All patients were able to complete the SEIQoL-DW, and 78% completed the SEIQoL. Of a possible score of 100, the median QoL global score was as follows: SEIQoL, 61 (range, 24 to 94); SEIQoL-DW, 60.5 (range, 6 to 95). Psychometric data for SEIQoL indicated very high levels of internal consistency (median r = .90) and internal validity (median R2 = 0.88). Patients' judgments of their QoL were unique to the individual. Family concerns were almost universally rated as more important than health, the difference being significant when measured using the SEIQoL-DW (P = .002). CONCLUSION: Patients with advanced incurable cancer were very good judges of their QoL, and many patients rated their QoL as good. Judgments were highly individual, with very high levels of consistency and validity. The primacy given to health in many QoL questionnaires may be questioned in this population. The implications of these findings are discussed with regard to clinical assessment and advance directives.

Predictors of Quality of Life in Patients With Implantable Cardioverter Defibrillators

2005 ◽  
Vol 46 (5) ◽  
pp. 451-457 ◽  
Author(s):  
Samuel F. Sears ◽  
Tara Saia Lewis ◽  
Emily A. Kuhl ◽  
Jamie B. Conti
Keyword(s):  
Quality Of Life ◽  
Implantable Cardioverter Defibrillators ◽  
Cardioverter Defibrillators

Health-Related Quality of Life Consequences of Implantable Cardioverter Defibrillators

Medical Care ◽  
2007 ◽  
Vol 45 (5) ◽  
pp. 377-385 ◽  
Author(s):  
Katia Noyes ◽  
Ethan Corona ◽  
Jack Zwanziger ◽  
W Jackson Hall ◽  
Hongwei Zhao ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Implantable Cardioverter Defibrillators ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Cardioverter Defibrillators

Psychosocial Issues of Patients With Implantable Cardioverter Defibrillators

2005 ◽  
Vol 14 (4) ◽  
pp. 294-303 ◽  
Author(s):  
Sandra B. Dunbar
Keyword(s):  
Quality Of Life ◽  
High Risk ◽  
Standard Therapy ◽  
Ventricular Arrhythmias ◽  
Evidence Based ◽  
Psychosocial Issues ◽  
Implantable Cardioverter Defibrillators ◽  
Life Threatening ◽  
Cardioverter Defibrillators

Use of implantable cardioverter defibrillators has become standard therapy for patients at high risk for life-threatening ventricular arrhythmias. Although acceptance of the device is generally high among patients and their families, quality of life and psychosocial issues associated with use of the defibrillators deserve greater attention to improve outcomes. Psychosocial issues, their ramifications, and theory-and evidence-based approaches to improving outcomes are described.

Quality-of-Life in Patients Receiving Implantable Cardioverter Defibrillators At or Before Age 40

1996 ◽  
Vol 19 (11) ◽  
pp. 1555-1559 ◽  
Author(s):  
ANNE M. DUBIN ◽  
WILLIAM P. BATSFORD ◽  
RICHARD J. LEWIS ◽  
LYNDA E. ROSENFELD
Keyword(s):  
Quality Of Life ◽  
Implantable Cardioverter Defibrillators ◽  
Cardioverter Defibrillators
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