scholarly journals Enduring Cell Lines: Parents’ Experiences of Postmortem Tumor Banking in Childhood Cancer

2021 ◽  
pp. 107484072110014
Author(s):  
Nancy J. Moules ◽  
Catherine M. Laing ◽  
Wendy Pelletier ◽  
Gregory M. T. Guilcher ◽  
Jennifer A. Chan
Keyword(s):  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Common Factors ◽  
Living Cells ◽  
The Past ◽  
The Family ◽  
Deceased Donors ◽  
Cure Rates ◽  
The Impact ◽  
Parents Experiences

While cure rates in pediatric oncology have improved over the past 30 years, childhood cancer remains the second leading cause of death in children aged 1 to 14. Developing therapies often require using cancerous tissues, which may come from deceased donors. Tumor banks collect, store, and distribute these donated samples. While tumor banking is more common, factors that contribute to parents’ decision and the impact of it on the family are not well understood. The purpose of this hermeneutic study was to understand the meaning and impact of tumor banking for parents of children who have died from cancer. Findings suggest that parents donating their child’s tumors unexpectedly found a sense of meaning in their loss. They also found a legacy of their child’s life; the living cells in some ways assisted the parents with grief. Aspects of this sensitive conversation and decision are discussed from the perspective of the parents’ experiences.

The Impact of Childhood Cancer on the Family

1991 ◽  
Vol 8 (4) ◽  
pp. 71-85 ◽  
Author(s):  
James Overholser ◽  
Gregory Fritz
Keyword(s):  
Childhood Cancer ◽  
The Family ◽  
The Impact

scholarly journals SARS-CoV-2 Infection in Children; What Do We Know So Far?

2020 ◽  
pp. 76-85
Author(s):  
Benhur Şirvan Çetin
Keyword(s):  
Middle East ◽  
Child Health ◽  
Severe Acute Respiratory Syndrome ◽  
Infectious Complications ◽  
Middle East Respiratory Syndrome ◽  
Radiological Findings ◽  
The Past ◽  
The Family ◽  
The Impact ◽  
Post Infectious

After Severe Acute Respiratory Syndrome Coronavirus (SARS-CoV) and the Middle East Respiratory Syndrome Coronavirus (MERS-CoV), SARS-CoV-2 is the newest member of the family of coronaviruses that are pathogenic to humans. The disease which occurs with SARS-CoV-2 is called coronavirus disease 2019 (COVID-19). COVID-19 was first described in December 2019 and has caused millions of people to get sick and hundreds of thousands of deaths over the past year. In this review, the epidemiology, diagnosis, clinical and aboratory features, radiological findings, treatment, and management of the disease are all reviewed from a pediatrician’s perspective. Post-infectious complications, the impact of COVID-19 on global child health, and vaccine developments were also discussed in this review.

The temporary return to the homeland in Michael Ondaatje’s Running in the Family

2020 ◽  
Vol 8 (3) ◽  
pp. 157-169
Author(s):  
Ahmed Joudar
Keyword(s):  
Historical Documents ◽  
Cultural Revival ◽  
The Past ◽  
The Family ◽  
Non Linear ◽  
The Impact

Abstract This study concentrates on memory in Michael Ondaatje’s Running in the Family because it is the foundation for the whole novel. Ondaatje’s attempt creates a relationship with the past by performing all acts of the journey in physical and imaginary performances of listening and reproducing. His attempt depends on his own memory; however, his memory does not coincide with stories he has heard, and the historical documents tend to conflict with each other. In the interior of his travels, Ondaatje reveals the extent of his isolation and the impact of his displacement. As he narrates the stories, he faces difficulties in distinguishing between rumors and lies, in organizing fragments of knowledge, and in explaining challenges tied to his methods of cultural revival. These challenges are met in the non-linear and sometimes stunning text plans which he uses.

Impact of Parental Conflict and Emotional Abuse on Children and Families

Partner Abuse ◽  
2012 ◽  
Vol 3 (3) ◽  
pp. 379-400 ◽  
Author(s):  
Melissa L. Sturge-Apple ◽  
Michael A. Skibo ◽  
Patrick T. Davies
Keyword(s):  
Emotional Abuse ◽  
Family System ◽  
Family Stress ◽  
Parental Conflict ◽  
Review Of The Literature ◽  
Children And Families ◽  
Couple Conflict ◽  
The Past ◽  
The Family ◽  
The Impact

The goal of this review is to summarize empirical research conducted over the past several decades examining the impact of parental conflict and emotional abuse on children and families. Toward this goal, four different subtopics are categorized and reviewed. These include the impact of mutual couple conflict, verbal, and emotional abuse/control on children; the impact of father-perpetrated verbal and emotional abuse/control on children; the impact of mother-perpetrated verbal and emotional abuse/control on children; and the impact of partner abuse on the family system including consideration of family stress, boundaries, alliances, and family structure. A review of the literature revealed 105 empirical papers, which are referenced in tables. Overarching theoretical and conceptual frameworks proposed within the field of interparental conflict and child development are used to organize and distill the broad findings evident across these studies. Recommendations for future avenues of research are presented.

The impact of childhood cancer on the family: a qualitative analysis of strains, resources, and coping behaviors

2004 ◽  
Vol 13 (6) ◽  
pp. 390-407 ◽  
Author(s):  
Joän M. Patterson ◽  
Kristen E. Holm ◽  
James G. Gurney
Keyword(s):  
Qualitative Analysis ◽  
Childhood Cancer ◽  
Coping Behaviors ◽  
The Family ◽  
And Coping ◽  
The Impact

scholarly journals My Forty Years in Studying and Helping Family Businesses

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Gibb Dyer
Keyword(s):  
Family Business ◽  
Family Firms ◽  
Family Businesses ◽  
Theory And Practice ◽  
The Past ◽  
Family Capital ◽  
The Family ◽  
The Impact

This article will describe the trends in the field of family business over the past forty years in terms of theory and practice. Topics such as succession, consulting with family businesses, the effectiveness of family firms, the role of socio-emotional wealth in family firms, heterogeneity in family businesses, and the impact of family capital on the business and the family will be discussed.

scholarly journals A Strategy of Networking and Colaboration to Promote Early Diagnosis of Childhood Cancer in Rio De Janeiro

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 159s-159s
Author(s):  
R. Marques ◽  
L.D.J.A. Pires ◽  
E.K.d. Santos
Keyword(s):  
Primary Care ◽  
Early Diagnosis ◽  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Health Professionals ◽  
Rio De Janeiro ◽  
Family Health ◽  
Health Strategy ◽  
The Family ◽  
Family Health Strategy

Background and context: It is known the chances of healing in developed countries might be of 90%, depending on the type of tumor and, especially, its early diagnosis. In Brazil, cancer is the leading cause of death by disease among ages from 1 to 19, and because it is rare, health professionals have difficulties in diagnosing and referring cases to treatment. Aim: The “Unidos pela Cura” aims to promote early diagnosis of childhood cancer in Rio de Janeiro in a coresponsible and integrated way to the principles of Brazilian Unified Health System (universalization, equity and integrality). Strategy/Tactics: This initiative included the Desiderata Institute as the leader of civil society organization, having as its bases: i) Mobilization of managers from the government, heads and professionals of the pediatric oncology services, health practitioners (primary care) and social organization to identify the main problem with pediatric oncology in the public system and to collectively think solutions. The identified problem was related to the early diagnosis; ii) Knowledge about the identified problem, with studies: one pointed out the main epidemiologic trends of childhood cancer in the state of Rio de Janeiro ( Koiffman, 2004 ); and another showed the system problems by revealing that suspicions of childhood cancer took an average of 60 days to be investigated when they arrived from primary care ( Brito, 2005 ); iii) Advocacy: the collective construction of coresponsibilities and priorities regarding childhood cancer in a term of commitment, and marked the definition of the initiative as public policy; and iv) Communication: bulletins with the results of the Unidos pela Cura are to be annually produced and sent to managers and health professionals to monitor cases and disseminate the results. Program/Policy process: Unidos pela Cura is a collective and coresponsible initiative to promote the early diagnosis of childhood cancer, created in 2005 and organized into three axes: i) Education - training health professionals in the family health strategy for cancer suspicion; ii) Flow - organization of referral flow and referral of suspected cases of childhood cancer from primary care to specialized hospitals to start the diagnostic investigation within 72 hours; and iii) Information - online system for monitoring suspected cases referred by primary care until diagnostic confirmation, with annual results disclosure. Outcomes: As results, the Unidos pela Cura has been included in the State Cancer Care Plan (2018-2021) and the Municipal Health Plan (2009-2012); 535 doctors and 3038 professionals from the family health strategy; 1311 children and adolescents were referred and 127 confirmed cases of cancer; 37 meetings of the managing group of Unidos pela Cura, among others. What was learned: Collaborative actions between society and governments can contribute to better outcomes and chances of cure.

Challenges raising a gifted child

2016 ◽  
Vol 33 (2) ◽  
pp. 145-162 ◽  
Author(s):  
Roberta Renati ◽  
Natale Salvatore Bonfiglio ◽  
Steven Pfeiffer
Keyword(s):  
Family Life ◽  
Research Data ◽  
Gifted Children ◽  
Anecdotal Evidence ◽  
Risk And Resilience ◽  
Gifted Child ◽  
The Past ◽  
The Family ◽  
Preliminary Research ◽  
The Impact

The research on families of the gifted is extremely limited. In the past, families of the gifted have been studied mainly for two reasons: to discover how family life creates or supports giftedness or eminence, or to understand how one gifted child affects siblings. Few studies, however, have examined the impact of gifted children on the lives of parents. Most studies highlight that many gifted have unique needs and vulnerabilities. Although there is limited empirical research on the experience of parenting a gifted child, there is clinical and anecdotal evidence that the role presents unique parenting challenges. This article presents preliminary research data on the experiences of parenting a gifted child within the family. The authors embrace a risk and resilience model, supported by clinical data obtained from families with a gifted child seen at a leading center for gifted children in Milan.

scholarly journals MENGENAL KONFLIK AKAR PENOLAKAN DAN DAMPAKNYA DALAM MEMBANGUN RUMAH TANGGA KRISTEN

2020 ◽  
Vol 6 (2) ◽  
pp. 241-258
Author(s):  
Pangarapen Sembiring
Keyword(s):  
Negative Effects ◽  
The Past ◽  
The Family ◽  
Sexual Immorality ◽  
The Impact

In building a household, conflicts often occur, one of the biggest conflicts heard by marriage counselors in the household is a statement like the following: "My wife really doesn't understand me", or my husband never listens to me. So that makes most of the wavering marriage currently foundered experiencing divorce. Because many couples fail and do not have the ability to understand the roots of rejection experienced by their partners, or do not really know the dark past the partner can also be due to the lack of openness from the couple related to the past in the family of each partner. Negative effects will be seen after a few months or a few years in marriage then comes the original negative nature that causes anger and hatred towards the couple. The problem is not only that the impact of refusal can lead to sexual immorality or live in uncleanness in the household and even many infidelities occur because of dissatisfaction from each partner. The point in building a partner's household is not to be blind to see and pay attention to their partner enough just to fall in love to see the appearance and sympathetic nature and attention shown by their partner, but more importantly we can see the background of the past and are ready to accept all the weaknesses that are owned by his partner and completes and helps both partners to build a harmonious and happy home.

Turkish National Pediatric Cancer Registry 2002-2008 (Turkish Pediatric Oncology Group and Turkish Pediatric Hematology Society).

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. 10067-10067 ◽  
Author(s):  
M. Tezer Kutluk ◽  
Akif Yesilipek ◽  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registry ◽  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
Germ Cell Tumors ◽  
Developed Countries ◽  
Renal Tumors ◽  
Cancer Data ◽  
Pediatric Hematology ◽  
Cure Rates

10067 Background: In childhood cancers cure rates increased up to 80% in the developed countries. On the other hand cure rates goes down 10-20% percent in countries with low resource settings. Reliable pediatric cancer data is essential for all countries. We established a nationwide pediatric cancer registry. Methods: Turkish Pediatric Oncology & Pediatric Hematology Society established a web-based database for the registry of all pediatric cancers. 11898 cases were registered between 2002-2008 from 65 centers. Various demographic data & survival endpoints were recorded & analyzed. Diseases were grouped according to the International Classification of Childhood Cancer. Results: In all 11898 cases, median age was 6 years (M/F= 6786/5112=1.32). Distribution in age groups were: 0-4 years, 42.5%; 5-9 years, 27.2%; 10-14 years, 23.4%; 15-19 years, 6.8%; >19 years, 0.1%. Only 3.8% of cases were diagnosed with clinical+radiological, the rest with histopathological data Distribution of cases in disease groups were [median age in yrs, M/F]: Leukemias (n=3777) 31.7% [5.5, 2137/1640=.31]; Lymphomas (n=2040) 17.1% [8.3, 1405/635=2.21]; CNS tumors (n=1588) 13.3% [6.9, 913/675=1.3 ]; Sympathetic tumors (n=889) 7.5% [2.1, 453/436=1.03]; Retinoblastoma (n=371) 3.1% [2, 181/190=0.95]; Renal tumors (n=655) 5.5% [3, 333/322=1.03]; Hepatic (n=166) 1.4% [1.8, 101/65=1.5]; Bone tumors (n=717) 6% [12.2, 407/310=1.3]; Soft tissue tumors (n=773) 6.5% [6.5, 442/331=1.3]; Germ cell tumors (n=531) 4.5% [5, 210/321=0.6 ]; Carcinomas and other malignant epithelial tumors (n=323) 2.7% [12, 164/159=1.03]; Others/unspecified malignant tumors (n=68) 0.6% [4.5, 40/28=1.4]. Five-year overall survival in all cases was 65%. Conclusions: This registry provides a critical information about the distribution of childhood cancer since this is the only nationwide pediatric cancer registry in Turkey. With the recent trends in non-communicable diseases at global level, registry data will be very helpful for national cancer control plans, which will also be used to compare at national and international level. This will also be a good example for many other countries with similar resources to do such projects.

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