“Out-of-the-Mainstream” Youth as Partners in Collaborative Research: Exploring the Benefits and Challenges

1999 ◽  
Vol 26 (2) ◽  
pp. 250-265 ◽  
Author(s):  
Gary W. Harper ◽  
Lisa J. Carver

Forming collaborations between university-based researchers and community-based organizations (CBOs) serves to improve health promotion research and service. Unfortunately, members of the targeted populations are typically not included in such collaborations. This article describes the development and maintenance of a successful university-CBO collaboration that was formed to explore HIV-related risk rates and prevention strategies for suburban street youth and discusses the benefits and challenges of including out-of-the-mainstream youth as full collaborative partners in the research. Specific benefits included population-specific modifications of the research methods and instruments, recruitment of hard-to-reach youth, greater ease in tracking participants, and increased project acceptability and credibility. Among the challenges were issues related to boundaries, confidentiality, commitment, and burnout. Although such collaborations require increased time and commitment, the synergistic knowledge and experience of university researchers, community-based service providers, and out-of-the-mainstream youth can result in the development of unique and informative research and service programs.

Medical Care ◽  
2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Amanda L. Brewster ◽  
Traci L. Wilson ◽  
Leslie A. Curry ◽  
Suzanne R. Kunkel

2011 ◽  
Vol 13 (4) ◽  
pp. 544-552 ◽  
Author(s):  
Christopher M. Fisher ◽  
Michael Reece ◽  
Eric Wright ◽  
Brian Dodge ◽  
Catherine Sherwood-Laughlin ◽  
...  

Refuge ◽  
2008 ◽  
pp. 44-54 ◽  
Author(s):  
Laura Simich ◽  
Lisa Andermann ◽  
Joanna Anneke Rummens ◽  
Ted Lo

After the 2004 Asian tsunami, a group of concerned scientists, physicians, and community service providers united to form a Local Distress Relief Network (LDRN) to provide information, referral, and care to affected members of the large Sri Lankan Tamil community in Toronto. The LDRN organized a workshop that brought together community-based organizations and international and local experts in mental health and disaster response to review existing knowledge on disaster response and to share community knowledge and experience. This article summarizes the development of the network, the workshop proceedings and joint recommendations for communitybased, culturally appropriate mental distress relief.


2021 ◽  
Author(s):  
Natalia M. Rodriguez ◽  
Alexa M. Lahey ◽  
Justin J. MacNeill ◽  
Rebecca G. Martinez ◽  
Nina E. Teo ◽  
...  

Abstract Background: The COVID-19 pandemic laid bare some of the United States’ most devastating health and social inequities faced by people experiencing homelessness. Homeless populations experience disproportionate rates of underlying health conditions, stigma and marginalization that often disenfranchise them from health and social services, and living conditions that potentiate the risk of COVID-19 transmission and adverse outcomes. Methods: Guided by the socio-ecological model, this community-based participatory research study examined the impacts of the COVID-19 public health crisis on people experiencing homelessness in Tippecanoe County, Indiana, and the ways in which homeless service providers prepared for, experienced, and responded to the pandemic. Eighteen (18) semi-structured interviews were conducted with representatives of 15 community-based organizations, including shelters and other homeless service providers.Results: Qualitative content analysis revealed multilevel challenges and responses to COVID-19 impact mitigation in this community, including the implementation of diverse safety measures, policies and novel service delivery innovations.Conclusions: Community-based organizations, including homeless shelters, are uniquely qualified to inform pandemic response and disaster risk mitigation in order to respond appropriately to the specific needs of people experiencing homelessness. Many of the emergency measures put in place by homeless service providers in Tippecanoe County, Indiana created opportunities for innovative solutions to longstanding challenges faced by homeless populations that can inform better service delivery moving forward, long after the COVID-19 pandemic. The lessons learned and shared by homeless service providers on the frontline during the COVID-19 pandemic have important implications to improve future disaster response for homeless and other vulnerable populations.


2019 ◽  
Vol 42 (4) ◽  
pp. 839-847
Author(s):  
Emma R Lawlor ◽  
Margaret E Cupples ◽  
Michael Donnelly ◽  
Mark A Tully

Abstract Background There is a gradient relationship between socio-economic status and health. We investigated the views and perceptions of health promotion service providers regarding factors that affect lack of engagement in public health initiatives by residents in socio-economically disadvantaged (SED) communities. Methods We conducted semi-structured interviews with a purposive sample of key providers (n = 15) of community-based health promotion services to elicit their views about engagement-related factors and their experiences of the provision, delivery and impact of health promotion in SED areas. Interviews were analysed using thematic analysis. Results Failure to (i) recognise within SED communities, socio-cultural norms of health-related behaviour and (ii) communicate to local residents an understanding of complex lifestyle influences appeared to affect adversely service engagement and contribute to the development of negative attitudes towards health promotion. Engagement is more likely when services are delivered within familiar settings, peer support is available, initiatives are organized within existing groups, external incentives are offered and there are options regarding times and locations. Collaborative working between providers and communities facilitates efficient, context-sensitive service delivery. Conclusions Knowledge of a local community and its socio-environmental context alongside a collaborative, facilitative and tailored approach to delivery are required to ensure successful engagement of SED communities in health promotion.


2021 ◽  
pp. 109019812097714
Author(s):  
Sarah Switzer ◽  
Soo Chan Carusone ◽  
Alex McClelland ◽  
Kamilah Apong ◽  
Neil Herelle ◽  
...  

Community engagement is considered a cornerstone of health promotion practice. Yet engagement is a fuzzy term signifying a range of practices. Health scholarship has focused primarily on individual effects of engagement. To understand the complexities of engagement, organizations must also consider relational, structural, and/or organizational factors that inform stakeholders’ subjective understandings and experiences. Community engagement processes are not neutral; they can reproduce and/or dismantle power structures, often in contradictory or unexpected ways. This article discusses diverse stakeholders’ subjective experiences and understandings of engagement within the HIV sector in Toronto, Canada. In our study, a team of community members, service providers, and academics partnered with three HIV community–based organizations to do this work. We used photovoice, a participatory and action-oriented photography method, to identify, document, and analyze participants’ understandings at respective sites. Through collaborative analysis, we identified seven themes that may catalyze conversations about engagement within organizations: reflecting on journey; honoring relationships; accessibility and support mechanisms; advocacy, peer leadership, and social justice; diversity and difference; navigating grief and loss; and nonparticipation. Having frank and transparent discussions that are grounded in stakeholders’ subjective experiences, and the sociopolitical and structural conditions of involvement, can help organizations take a more intersectional and nuanced approach to community engagement. Together, our findings can be used as a framework to support organizations in thinking more deeply and complexly about how to meaningfully, ethically, and sustainably engage communities (both individually and collectively) in HIV programming, and organizational policy change. The article concludes with questions for practice.


2010 ◽  
Vol 5 (5) ◽  
pp. 503-508 ◽  
Author(s):  
Richard K. Eisner ◽  
◽  

In 2006 Fritz Institute initiated the development and implemention of a process to create “disaster resilience” in faith and community based organizations that provide services to vulnerable populations in California. The process included undertaking background research on the attributes of disaster resilient organizations; development of intervention strategies to promote organizational resilience, developing a definition of “soft” and “hard” resilience applicable to the non-government sector; and the development and implementation of A Disaster Resilience Standard for Community- and Faith-Based Service Providers. This process necessitated the creation of a constituency for a standard, convening of peer networks to support organizational change, and the formulation of a strategy to sustain application of the standard.


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