Beyond the Individual: Evaluating Community-Based Health Promotion and Prevention Strategies and Palliative Care Domains of Effect

2017 ◽  
pp. 91-106
Author(s):  
Simon Eckermann ◽  
Nicola McCaffrey
Keyword(s):  
Health Promotion ◽  
Palliative Care ◽  
Prevention Strategies ◽  
Community Based ◽  
The Individual

“Out-of-the-Mainstream” Youth as Partners in Collaborative Research: Exploring the Benefits and Challenges

1999 ◽  
Vol 26 (2) ◽  
pp. 250-265 ◽  
Author(s):  
Gary W. Harper ◽  
Lisa J. Carver
Keyword(s):  
Health Promotion ◽  
Collaborative Research ◽  
Service Providers ◽  
Street Youth ◽  
Prevention Strategies ◽  
Community Based ◽  
Community Based Organizations ◽  
Service Programs ◽  
Related Risk ◽  
Improve Health

Forming collaborations between university-based researchers and community-based organizations (CBOs) serves to improve health promotion research and service. Unfortunately, members of the targeted populations are typically not included in such collaborations. This article describes the development and maintenance of a successful university-CBO collaboration that was formed to explore HIV-related risk rates and prevention strategies for suburban street youth and discusses the benefits and challenges of including out-of-the-mainstream youth as full collaborative partners in the research. Specific benefits included population-specific modifications of the research methods and instruments, recruitment of hard-to-reach youth, greater ease in tracking participants, and increased project acceptability and credibility. Among the challenges were issues related to boundaries, confidentiality, commitment, and burnout. Although such collaborations require increased time and commitment, the synergistic knowledge and experience of university researchers, community-based service providers, and out-of-the-mainstream youth can result in the development of unique and informative research and service programs.

What should be measured to assess the quality of community-based palliative care? Results from a collaborative expert workshop

2021 ◽  
pp. 1-7
Author(s):  
Nicole Williams ◽  
Nicole Boumans ◽  
Nicole Luymes ◽  
Nancy E. White ◽  
Manon Lemonde ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Care Professionals ◽  
Population Aging ◽  
Well Being ◽  
Substantial Contribution ◽  
Special Importance ◽  
Community Based ◽  
Expert Opinions ◽  
The Individual

Abstract Objectives The need for palliative care (PC) will continue to increase in Canada with population aging. Many older adults prefer to “age in place” and receive care in their own homes. Currently, there is a lack of standardized quality indicators (QIs) for PC delivered in the community in Canada. Methods A one-day workshop collected expert opinions on what should be measured to capture quality PC. Three brainstorming sessions were focused on addressing the following questions: (1) what is important to measure to support quality PC, regardless of setting? (2) Of the identified measures, are any of special importance to care provided in the home? (3) What are the challenges, barriers, and opportunities for creating these measures? The National Consensus Project (NCP) for Quality Palliative Care framework was used as a guide to group together important comments into key themes. Results The experts identified four themes that are important for measuring quality, regardless of care setting, including access to care in the community by a multidisciplinary team, care for the individual with PC needs, support for the informal caregiver (e.g., family, friends), and symptom management for individuals with PC needs. Two additional themes were of special importance to measuring quality PC in the home, including spiritual care for individuals with PC needs and home as the preferred place of death. The challenges, barriers, and potential opportunities to these quality issues were also discussed. Significance of results PC experts, through this collaborative process, made a substantial contribution to the creation of a standardized set of QIs for community-based PC. Having a standardized set of QIs will enable health care professionals and decision makers to target areas for improvement, implement interventions to improve the quality of care, and ultimately, optimize the health and well-being of individuals with a serious illness.

Community-based Health Promotion: An Analysis of Projects Conducted by Divisions of General Practice

1998 ◽  
Vol 4 (1) ◽  
pp. 49 ◽  
Author(s):  
Lucio Naccarella
Keyword(s):  
Health Promotion ◽  
General Practice ◽  
Descriptive Analysis ◽  
Community Based ◽  
Diverse Range ◽  
Individual Level ◽  
The Individual ◽  
Almost All ◽  
Goals And Objectives ◽  
Individual Service

A descriptive analysis of community-based health promotion projects conducted by Divisions of General Practice between 1993 and 1994 and in 1996 is provided, and their design, evaluation, impact and appropriateness are considered. A total of 55 community-based health promotion projects were funded between 1993 and 1994. Analysis of the 1993 and 1994 projects revealed that: most project goals and objectives lacked clarity and measurability; almost all projects undertook some form of needs assessment; projects tended not to be targeted; participation rates and reporting varied greatly; and project evaluations were designed to measure process and impact at the individual level, rather than on a system wide level. Fifty comparable community-based health promotion projects were funded in 1996.An analysis of project proposals revealed that they were designed on the whole to be more targeted, intersectoral, collaborative and to use multiple settings and strategies than their 1993 and 1994 counterparts. Projects have increased the visibility and capacity of general practitioners (GPs) to engage in community-based health promotion, and provide evidence that they can do more than individual service provision activities, such as community-based health promotion in a diverse range of settings, and with a broad range of population groups.

Social Capital and Sustainable Health Care: An Analysis of Community Based Palliative Care Model of Kerala

2015 ◽  
Vol 1 (1) ◽  
Author(s):  
Abdul Azeez. E.P
Keyword(s):  
Social Capital ◽  
Palliative Care ◽  
Social Services ◽  
Social Inclusion ◽  
Well Being ◽  
Vital Role ◽  
Voluntary Organizations ◽  
Community Based ◽  
The Social ◽  
Palliative Care Units

Social Capital is the most crucial asset which significantly influence the efficacy and resilience of any community. Social capital is a dependent variable that depends upon the competence and coherence of the individuals in the community and mode of social relationships, trust and networks they maintain. It is one of the most sustainable social resources that originate from human relations and results on the mutual support of people. Utilization of Social capital has a wide applicability in the process of social inclusion, especially in dealing with the vulnerable and disadvantaged sections in the community itself. Voluntary organizations are very keen to utilize the social capital for community/social services and community development in a sustainable manner. Community based de-institutionalized Palliative Care is one of the foremost among such organizations that made social capital in a strategic way for social inclusion and community well being. This paper analyses the extent to which different elements of social capital helps in initiating the sustainable community based palliative care movement by assessing the unique intervention strategies carried out by the palliative care. This paper explores conceptual questions of how social capital and voluntary community based services are correlated. A case study method was adopted for the study in which ten palliative care units were analyzed. The results show that a number of social capital elements are playing a vital role in the sustainability of community palliative care movement in Kerala.

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review

2020 ◽  
pp. 026921632096759
Author(s):  
Fenella J Gill ◽  
Zahraa Hashem ◽  
Roswitha Stegmann ◽  
Samar M Aoun
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
English Language ◽  
Support Needs ◽  
Care Needs ◽  
Caregiver Support ◽  
Paediatric Palliative Care ◽  
Heterogenous Population ◽  
Parent Caregivers ◽  
The Individual

Background: Provision of paediatric palliative care is complex and optimally covers meeting the individual needs of a heterogenous population of children and their parent caregivers throughout a life-limiting illness. It is unclear whether existing approaches comprehensively address parent caregivers’ needs. Aim: To examine support needs of parents caring for children with life limiting illnesses and identify specific approaches used to identify and address needs. Design: A scoping review Data sources: MEDLINE, EMBASE, PsycINFO, CINAHL and ProQuest Central, were searched for peer reviewed English language full text research published from 2008 to 2019. Study quality appraisal was undertaken. Fourteen quantitative, 18 qualitative and 12 mixed methods studies were synthesised and themed using summative content analysis and mapped to the Parent Supportive Care Needs Framework (PSCNF). Results: Themes were communication, choice, information, practical, social, psychological, emotional and physical. Communication and choice were central and additional to domains of the PSCNF. Unmet were needs for supporting siblings, for respite care, out of hours, psychological, home and educational support. Six articles reported using instruments to identify parent carer support needs. Conclusion: Support needs of parent caregivers of children with life limiting illnesses are substantial and heterogenous. While studies report evidence of burden and distress in parent caregivers, this rarely translates into improvements in practice through the development of interventions. A systematic and regular assessment of individual parent caregiver support needs is required by using instruments appropriate to use in clinical practice to move the focus to palliative care interventions and improved services for parents.

scholarly journals A Multiple Stakeholder Perspective for Evaluating Community-Based Dementia Care

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 60-61
Author(s):  
Johan Suen
Keyword(s):  
Dementia Care ◽  
Structural Constraints ◽  
Care Provision ◽  
Care Providers ◽  
Structured Interviews ◽  
Community Based ◽  
Relational Factors ◽  
Care Relationships ◽  
The Individual ◽  
The Impact

Abstract For holistic interventions and research on dementia, it is fundamental to understand care experiences from the perspectives of carers, care recipients, and care professionals. While research on care dyads and triads have highlighted the effects of communication and interactional aspects on care relationships, there is a lack of knowledge on how individual-contextual and relational factors shape the provision and receipt of care in terms of decision-making processes, resource allocation, and expectations of care outcomes. Thus, this paper sheds light on (i) how carers negotiate care provision with other important life domains such as employment, household/family roles and conflicts, as well as their own health problems, life goals, values, and aspirations for ageing; (ii) how older adults with dementia perceive support and those who provide it; (iii) the structural constraints faced by care professionals in delivering a team-based mode of dementia care; and, taken together, (iv) how community-based dementia care is impeded by barriers at the individual, relational, and institutional levels. Findings were derived from semi-structured interviews and observational data from fieldwork conducted with 20 persons with dementia (median age = 82), 20 of their carers (median age = 60), and 4 professional care providers. All respondents were clients and staff of a multidisciplinary and community-based dementia care system in Singapore. Our analysis indicates the impact of dementia care is strongly mediated by the interplay between institutional/familial contexts of care provision and the various ‘orientations’ to cognitive impairment and seeking support, which we characterised as ‘denial/acceptance’, ‘obligated’, ‘overprotective’, and ‘precariously vulnerable’.

scholarly journals Healthy Mobile Check-In Study: Barriers to exercise for women in high and low SEP suburbs in Brisbane

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
J A Carroll ◽  
J Rodgers ◽  
J Lyons-Reid ◽  
R Bennett
Keyword(s):  
Physical Activity ◽  
Health Promotion ◽  
Family Responsibilities ◽  
Social Barriers ◽  
Low Socioeconomic ◽  
Barriers To Exercise ◽  
Promotion Strategies ◽  
The Individual ◽  
Targeted Approach ◽  
Barriers To Physical Activity

Abstract Previous studies have demonstrated that physical activity (PA) promotes health and reduces risk for non-communicable diseases. However, 55% of Australian women did not meet the recommended levels of PA in 2018-19. There remains a gap in knowledge regarding the individual, household, and neighbourhood barriers to physical activity between women from high and low socioeconomic suburbs. We conducted a mixed-methods study to ascertain subjective accounts of the socioecological reasons for different daily logistics, travel, and PA between these groups. In addition to daily mobility data collated from GIS iPhone apps, in-depth interviews were held with 16 women from the high (Ashgrove) and low (Durack) SEP suburbs in Brisbane. Interview data was analysed at the individual, social, and environmental levels to unearth resistance to PA via these thematic strata. Individual psychological barriers to being active that were unique to low SE suburbs included the 'lack of enjoyment' gained from PA. Both high and low SE suburbs reported being 'time poor'. For low SEP participants, this was driven by financial demands, and for high SEP participants, this was driven by work demands. Both groups reported being burnt out. Individual physical barriers for both groups included sore joints, injury, pelvic pain and weight. Social barriers unique to participants from a high SE suburb included 'opportunities to exercise socially', and 'mother guilt'. Both groups reported 'family responsibilities' as a social barrier. Neighbourhood changes that could increase PA in the low SEP suburb included facilities to increase walkability. Participants from the high SE suburb were largely satisfied with the state of their neighbourhood. This study provides foundational insight into improved public health strategies for increasing levels of PA amongst women in Brisbane from different SEP groups. Our findings support the idea that a combination of broad strategies and a targeted approach is needed. Key messages Women from high and low socioeconomic suburbs experience different barriers to physical activity. Health promotion strategies need to accommodate this to improve overall health and reduce inequality. Women from high and low socioeconomic suburbs face psychological, physical and social barriers to exercise. Broad health promotion strategies and a targeted approach is required to address barriers.

Engaging older people in healthy and active lifestyles: a systematic review

2015 ◽  
Vol 36 (10) ◽  
pp. 2036-2060 ◽  
Author(s):  
JULIA MENICHETTI ◽  
PIETRO CIPRESSO ◽  
DARIO BUSSOLIN ◽  
GUENDALINA GRAFFIGNA
Keyword(s):  
Systematic Review ◽  
Health Promotion ◽  
World Health ◽  
Active Ageing ◽  
Individual Level ◽  
Active Lifestyles ◽  
Health Organization ◽  
The Individual ◽  
Health Promotion Interventions ◽  
Older Citizens

ABSTRACTIn 2002, the World Health Organization emphasised the concept of active ageing to manage and increase the last third of life. Although many efforts have been made to optimise treatment management, less attention has been paid to health promotion initiatives. To date, few shared guidelines exist that promote an active life in healthy older targets. To fill this gap, we conducted a systematic review to map health promotion interventions that targeted an active and healthy ageing among older citizens. Articles containing the key term active ageing and seven synonyms were searched for in the electronic databases. Because we were interested in actions aimed to promote healthier lifestyles, we connected the string with the term health. A total of 3,918 titles were retrieved and 20 articles were extracted. Twelve of the 20 studies used group interventions, five interventions targeted the individual level and three interventions targeted the community level. Interventions differed for the health focus of the programmes, which ranged from physical activity interventions to social participation or cognitive functioning. Most of the studies aimed to act on psychological components. The review suggests that different interventions promoted for active ageing are effective in improving specific healthy and active lifestyles; however, no studies were concerned directly with a holistic process of citizen health engagement to improve long-term outcomes.

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