The parenting experiences and needs of Asian primary caregivers of children with autism: A meta-synthesis

Autism ◽  
2019 ◽  
Vol 24 (3) ◽  
pp. 591-604 ◽  
Author(s):  
Shefaly Shorey ◽  
Esperanza D Ng ◽  
Gørill Haugan ◽  
Evelyn Law
Keyword(s):  
Environmental Factors ◽  
Cultural Values ◽  
Social Services ◽  
Primary Caregivers ◽  
Children With Autism ◽  
Immigrant Parents ◽  
Asian Immigrant ◽  
Interpretive Method ◽  
And Coping ◽  
Parents Experiences

Parents of children with autism are faced with higher risks of unemployment, divorce, and poorer mental health than parents of children with other disorders. Such parenting stress can be further exacerbated by cultural and environmental factors such as the more conservative and collectivistic Asian values. Therefore, this review identifies and synthesizes literature on the parenting experiences and needs of Asian primary caregivers of children with autism using a critical interpretive method. A qualitative meta-summary was conducted. Seven electronic databases (CINAHL, Embase, ProQuest, PsycINFO, PubMed, Scopus, and Web of Science) were searched from each database’s date of inception to November 2018. In total, 44 studies were included in this review. Thirteen studies examined Asian immigrant parents’ experiences, and 31 studies were done among Asia-based parents. Six domains were identified: “personal parenting journey”; “adaptation and coping strategies”; “family, community, and social support”; “experiences with healthcare, education, and social services”; “future hopes and recommendations”; and “unique experiences of immigrants.” The distinctive influence of religious beliefs, cultural values, and environmental factors on Asian parenting experiences were discussed, and recommendations were proposed to better meet the needs of parents with autistic children.

scholarly journals Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

2017 ◽  
Vol 29 (4) ◽  
pp. 61-73 ◽  
Author(s):  
Clara Choi ◽  
Hong-Jae Park ◽  
Michael O'Brien
Keyword(s):  
New Zealand ◽  
Cultural Values ◽  
Children With Disabilities ◽  
Service Providers ◽  
Cultural Barriers ◽  
Immigrant Parents ◽  
Korean Immigrant ◽  
Aotearoa New Zealand ◽  
Korean Parents ◽  
Parents Experiences

INTRODUCTION: This article aims to provide an overview of the experiences of Korean immigrant parents raising children with disabilities in Aotearoa New Zealand, primarily focusing on their experience of disability services and systems.METHODS: As the present exploratory study aimed to gain a deeper understanding of immigrant parents’ experiences and perceptions, a qualitative approach was employed to collect rich and lived information from participants. Ten participants were recruited and interviewed among Korean parents of children with disabilities and professionals working with those families.FINDINGS: Lack of trust among Korean parents living in Aotearoa New Zealand was frequently discussed by the participants in the present study. Lack of information around available services and alternative support and cultural barriers were often identified to have a significant impact on Korean parents’ experiences with services. A sense of obligation to integrate into the host society and the services provided was also evident. Further, there was a contradictory perception between parents and associated professionals in relation to services’ expectations of Korean parents. CONCLUSIONS: From analysis of the findings, three main themes emerged: experiences of services and its relations with trust, cultural values and expectations, and looking to the future. The study suggests that there is a need for professionals, service providers and government to consider ways to build trusting relationships with Korean parents and their children with disabilities, and makes a number of recommendations.  

scholarly journals Social-Emotional Difficulties in Irish Children Aged Five and Nine Years: A National, Longitudinal Study

Children ◽  
2021 ◽  
Vol 8 (8) ◽  
pp. 656
Author(s):  
Ann Swift ◽  
Roy McConkey ◽  
Philip Curry ◽  
Edurne Garcia Iriarte
Keyword(s):  
Social Services ◽  
Family Relations ◽  
Secondary Analysis ◽  
Primary Caregivers ◽  
Emotional Difficulties ◽  
Children And Families ◽  
Social Emotional ◽  
Early Intervention Services ◽  
Nationally Representative ◽  
The Impact

A small proportion of children experience social-emotional difficulties from early childhood onwards. Longitudinal studies with nationally representative samples are needed to identify the prevalence and the characteristics of children and families persistently experiencing these difficulties. Secondary analysis of data collected on over 7500 Irish children and with the Strengths and Difficulties Questionnaire as the primary indicator, found that 6% of children when they were five year olds and 8% when they were nine-years, had above threshold scores that warranted further investigation. A smaller proportion—2.9% had elevated scores at both ages. Logistic regression analyses found that children with one or more developmental disabilities were up to six times more likely to have sustained difficulties. There were also significant associations with the lower education attainment of primary caregivers and the socio-economic deprivation of families. Primary caregivers and teachers reported higher conflict in their relationships with these children. Although the number of Irish children presenting with continuing social-emotional difficulties is small, they can present an ongoing and future societal cost in terms of the impact on family relations and demands placed on educational, health and social services. This study identified the children and families who are at greatest risk and for whom targeted early intervention services could be provided.

The influence of environmental factors and coping style on children's coping and distress

1991 ◽  
Vol 11 (1) ◽  
pp. 93-116 ◽  
Author(s):  
Ronald L. Blount ◽  
Nancy Davis ◽  
Scott W. Powers ◽  
Michael C. Roberts
Keyword(s):  
Environmental Factors ◽  
Coping Style ◽  
Children's Coping ◽  
And Coping

Family Matters: Cross-Cultural Differences in Familism and Caregiving Outcomes

2021 ◽  
Author(s):  
Francesca Falzarano ◽  
Jerad Moxley ◽  
Karl Pillemer ◽  
Sara J Czaja
Keyword(s):  
Social Support ◽  
African Americans ◽  
Cultural Values ◽  
Self Efficacy ◽  
Cross Cultural ◽  
Subsequent Increase ◽  
Cross Cultural Differences ◽  
Positive Caregiving ◽  
Caregiver Network ◽  
And Coping

Abstract Objectives The increasing number of minority older adults, and the subsequent increase in family members providing care to these individuals, highlights the need to understand how cultural values contribute to differential caregiving outcomes. Using the sociocultural stress and coping model as a guiding framework, the current study examined cross-cultural relationships among familism, social support, self-efficacy, and caregiving outcomes, and examines how these relationships vary as a function of caregiver background characteristics. Method Baseline data were collected from 243 participants in the Caring for the Caregiver Network randomized controlled intervention trial. Participants completed measures assessing familism, social support, self-efficacy, positive aspects of caregiving, depression, and burden. Results African American and Hispanic participants exhibited higher levels of familism compared to Whites. Compared to White participants, African Americans’ endorsement of familism predicted more positive caregiving appraisals. African Americans also reported greater levels of social support, which in turn, predicted lower burden and depressive symptoms as compared to Whites. Exploratory analyses demonstrated significant associations between familism and self-efficacy. In the Hispanic subgroup, familism varied as a function of acculturation. Discussion Results indicate that greater levels of familism and social support may exert a protective influence against adverse psychosocial caregiving outcomes. These findings can be used to inform intervention efforts targeting culturally congruent, family-centered approaches.

Parents' experiences of introducing everyday object use to their children with autism

Autism ◽  
2005 ◽  
Vol 9 (5) ◽  
pp. 495-514 ◽  
Author(s):  
Emma Williams ◽  
Linda Kendell-Scott ◽  
Alan Costall
Keyword(s):  
Children With Autism ◽  
Everyday Object ◽  
Object Use ◽  
Parents Experiences

Examining the Needs of Culturally Diverse Rural Caregivers who Have Adults with Severe Developmental Disabilities Living with Them

2000 ◽  
Vol 81 (2) ◽  
pp. 174-185 ◽  
Author(s):  
Elizabeth Ann Gammon
Keyword(s):  
Developmental Disabilities ◽  
Social Services ◽  
Culturally Diverse ◽  
Developmental Delays ◽  
Coping Skills ◽  
Service Needs ◽  
Policy Makers ◽  
Rural Caregivers ◽  
Severe Developmental Disabilities ◽  
And Coping

This article presents the results of a study of rural caregivers who have adults with severe developmental delays living at home with them. It examines their demographic characteristics, their perceived levels of stress, and the coping skills they use to deal with that stress. This article provides information on the availability and utilization of social services for the adults with mental retardation and developmental disabilities (MR/DD) and their families. In addition, the service needs, stresses experienced, and coping skills of these families are examined according to majority and minority racial status. This type of information should be valuable to policy makers, agency administrators, and program planners to improve the development, targeting, and accessibility of rural programs and services. For the purpose of this study, the term “developmental disability” refers to both mental and physical delays and is sometimes represented as MR/DD, which is consistent with the literature on this population.

Sensory processing in children with autism spectrum disorder and the mental health of primary caregivers

2019 ◽  
Vol 41 (4) ◽  
pp. 341-351 ◽  
Author(s):  
Kanae Suzuki ◽  
Shu Takagai ◽  
Masatsugu Tsujii ◽  
Hiroyuki Ito ◽  
Tomoko Nishimura ◽  
...  
Keyword(s):  
Mental Health ◽  
Autism Spectrum Disorder ◽  
Sensory Processing ◽  
Primary Caregivers ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder
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