scholarly journals Visioning change: Co-producing a model of involvement and engagement in research (Innovative Practice)

Dementia ◽  
2016 ◽  
Vol 18 (7-8) ◽  
pp. 3165-3172 ◽  
Author(s):  
Caroline M Swarbrick ◽  
Open Doors ◽  
EDUCATE ◽  
Katie Davis ◽  
John Keady ◽  
...  
Keyword(s):  
Lived Experience ◽  
Health Research ◽  
Working Group ◽  
Research Council ◽  
Social Research ◽  
Research Process ◽  
Innovative Practice ◽  
The Uk ◽  
The University ◽  
University Of Manchester

The involvement of people living with dementia in research has traditionally been located in the realms of ‘subject’ or ‘participant’. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014–2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.

scholarly journals Re-thinking and re-positioning ‘being in the moment’ within a continuum of moments: introducing a new conceptual framework for dementia studies

2020 ◽  
pp. 1-22
Author(s):  
John David Keady ◽  
Sarah Campbell ◽  
Andrew Clark ◽  
Robyn Dowlen ◽  
Ruth Elvish ◽  
...  
Keyword(s):  
Conceptual Framework ◽  
Lived Experience ◽  
Research Team ◽  
Social Research ◽  
The Moment ◽  
Definition Of ◽  
Sensory Processes ◽  
Embodied Engagement ◽  
The University ◽  
University Of Manchester

Abstract This article draws upon six social research studies completed by members of the Dementia and Ageing Research Team at The University of Manchester and their associated networks over an eight-year period (2011–2019) with the aim of constructing a definition of ‘being in the moment’ and situating it within a continuum of moments that could be used to contextualise and frame the lived experience of dementia. Using the approach formulated by Pound et al. (2005) in synthesising qualitative studies, we identified this continuum of moments as comprising four sequential and interlinked steps: (a) ‘creating the moment’, defined as the processes and procedures necessary to enable being in the moment to take place – the time necessary for this to occur can range from fleeting to prolonged; (b) ‘being in the moment’, which refers to the multi-sensory processes involved in a personal or relational interaction and embodied engagement – being in the moment can be sustained through creativity and flow; (c) ‘ending the moment’, defined as when a specific moment is disengaged – this can be triggered by the person(s) involved consciously or subconsciously, or caused by a distraction in the environment or suchlike; and (d) ‘reliving the moment’, which refers to the opportunity for the experience(s) involved in ‘being in the moment’ to be later remembered and shared, however fragmentary, supported or full the recall.

scholarly journals The Causal Effects of Education on Health, Mortality, Cognition, Well-being, and Income in the UK Biobank

2016 ◽  
Author(s):  
Neil M Davies ◽  
Matt Dickson ◽  
George Davey Smith ◽  
Gerard van den Berg ◽  
Frank Windmeijer
Keyword(s):  
Natural Experiment ◽  
Research Council ◽  
Social Research ◽  
Well Being ◽  
Causal Effects ◽  
Uk Biobank ◽  
Link Type ◽  
The Uk ◽  
University Of Bristol ◽  
The University

AbstractEducated people are generally healthier, have fewer comorbidities and live longer than people with less education. Previous evidence about the effects of education come from observational studies many of which are affected by residual confounding. Legal changes to the minimum school leave age is a potential natural experiment which provides a potentially more robust source of evidence about the effects of schooling. Previous studies have exploited this natural experiment using population-level administrative data to investigate mortality, and relatively small surveys to investigate the effect on mortality. Here, we add to the evidence using data from a large sample from the UK Biobank. We exploit the raising of the school-leaving age in the UK in September 1972 as a natural experiment and regression discontinuity and instrumental variable estimators to identify the causal effects of staying on in school. Remaining in school was positively associated with 23 of 25 outcomes. After accounting for multiple hypothesis testing, we found evidence of causal effects on twelve outcomes, however, the associations of schooling and intelligence, smoking, and alcohol consumption may be due to genomic and socioeconomic confounding factors. Education affects some, but not all health and socioeconomic outcomes. Differences between educated and less educated people may be partially due to residual genetic and socioeconomic confounding.Significance StatementOn average people who choose to stay in education for longer are healthier, wealthier, and live longer. We investigated the causal effects of education on health, income, and well-being later in life. This is the largest study of its kind to date and it has objective clinic measures of morbidity and aging. We found evidence that people who were forced to remain in school had higher wages and lower mortality. However, there was little evidence of an effect on intelligence later in life. Furthermore, estimates of the effects of education using conventionally adjusted regression analysis are likely to suffer from genomic confounding. In conclusion, education affects some, but not all health outcomes later in life.FundingThe Medical Research Council (MRC) and the University of Bristol fund the MRC Integrative Epidemiology Unit [MC_UU_12013/1, MC_UU_12013/9]. NMD is supported by the Economics and Social Research Council (ESRC) via a Future Research Leaders Fellowship [ES/N000757/1]. The research described in this paper was specifically funded by a grant from the Economics and Social Research Council for Transformative Social Science. No funding body has influenced data collection, analysis or its interpretations. This publication is the work of the authors, who serve as the guarantors for the contents of this paper. This work was carried out using the computational facilities of the Advanced Computing Research Centre -http://www.bris.ac.uk/acrc/ and the Research Data Storage Facility of the University of Bristol — http://www.bris.ac.uk/acrc/storage/. This research was conducted using the UK Biobank Resource.Data accessThe statistical code used to produce these results can be accessed here: (https://github.com/nmdavies/UKbiobankROSLA). The final analysis dataset used in this study is archived with UK Biobank, which can be accessed by contacting UK Biobank [email protected].

Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations

2021 ◽  
pp. 000486742199879
Author(s):  
Selma Musić ◽  
Rosiel Elwyn ◽  
Grace Fountas ◽  
Inge Gnatt ◽  
Zoe M Jenkins ◽  
...  
Keyword(s):  
Mental Health ◽  
Eating Disorders ◽  
Eating Disorder ◽  
Lived Experience ◽  
Health Research ◽  
Research Process ◽  
Mental Health Research ◽  
Direct Involvement ◽  
The Voice ◽  
Process Benefits

Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is concluded that in addition to existing guidelines on working with lived experience collaborators in mental health research, more specific procedures are required when working with those with eating disorders.

scholarly journals Users and Social Science Research: Policy, Problems and Possibilities

1997 ◽  
Vol 2 (3) ◽  
pp. 69-81 ◽  
Author(s):  
B. Rappert
Keyword(s):  
Research Policy ◽  
Social Research ◽  
Public Funding ◽  
Social Science Research ◽  
Academic Research ◽  
User Involvement ◽  
Science Research ◽  
Research Process ◽  
The Uk ◽  
Policy Problems

Recent times have seen a significant reorientation in public funding for academic research across many countries. Public bodies in the UK have been at the forefront of such activities, typically justified in terms of a need to meet the challenges of international competitiveness and improve quality of life. One set of mechanisms advanced for further achieving these goals is the incorporation of users’ needs into various aspects of the research process. This paper examines some of the consequences of greater user involvement in the UK Economic and Social Research Council by drawing on both empirical evidence and more speculative argumentation. In doing so it poses some of the dilemmas for conceptualizing proper user involvement.

scholarly journals Hardware-in-the-loop simulator of wind turbine emulator using labview

2019 ◽  
Vol 10 (2) ◽  
pp. 971
Author(s):  
Himani Himani ◽  
Navneet Sharma
Keyword(s):  
Wind Turbine ◽  
Condition Monitoring ◽  
Wind Turbines ◽  
Control Strategies ◽  
Hardware In The Loop ◽  
Data Acquisition Card ◽  
Terminal Voltage ◽  
The Uk ◽  
The University ◽  
University Of Manchester

<p><span>This paper describes the design and implementation of Hardware in the Loop (HIL) system D.C. motor based wind turbine emulator for the condition monitoring of wind turbines. Operating the HIL system, it is feasible to replicate the actual operative conditions of wind turbines in a laboratory environment. This method simply and cost-effectively allows evaluating the software and hardware controlling the operation of the generator. This system has been implemented in the LabVIEW based programs by using Advantech- USB-4704-AE Data acquisition card. This paper describes all the components of the systems and their operations along with the control strategies of WTE such as Pitch control and MPPT. Experimental results of the developed simulator using the test rig are benchmarked with the previously verified WT test rigs developed at the Durham University and the University of Manchester in the UK by using the generated current spectra of the generator. Electric subassemblies are most vulnerable to damage in practice, generator-winding faults have been introduced and investigated using the terminal voltage. This wind turbine simulator can be analyzed or reconfigured for the condition monitoring without the requirement of actual WT’s.</span></p>

Monetary Union: A Desperate Gamble

1998 ◽  
Vol 33 (S1) ◽  
pp. 63-88
Author(s):  
Patrick Minford
Keyword(s):  
Monetary Union ◽  
Research Group ◽  
Business School ◽  
Social Research ◽  
Town Hall ◽  
150Th Anniversary ◽  
The North ◽  
The Uk ◽  
The University ◽  
Special Meeting

Dr Tim Bunch (President, Manchester Actuarial Society): Good afternoon, ladies and gentlemen. Welcome to Manchester Town Hall for this special meeting of the Manchester Actuarial Society, which is being held to commemorate the 150th anniversary of the actuarial profession in the UK.I should like to welcome particularly various guests. There are guests invited by the Manchester Actuarial Society, and also guests of actuarial firms in the north of England. I would particularly like to welcome Paul Thornton, the current President of the Institute.Our speaker today is Professor Patrick Minford, who is Professor of Economics at Cardiff Business School, which is at the University of Wales. He has been in that position since October 1997. Prior to that, he was Professor of Economics at Liverpool University, and he maintains his contacts with the University of Liverpool through being Director of the Liverpool research group in macro-economics. He has held economic positions in a number of places, including HM Treasury, at Manchester University and at the National Institute for Economic and Social Research.

scholarly journals Critical perspectives on ‘consumer involvement’ in health research

2009 ◽  
Vol 46 (1) ◽  
pp. 63-82 ◽  
Author(s):  
Paul R. Ward ◽  
Jill Thompson ◽  
Rosemary Barber ◽  
Christopher J. Armitage ◽  
Jonathan D. Boote ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health Research ◽  
Social Care ◽  
Good Practice ◽  
Research Process ◽  
Consumer Involvement ◽  
Health And Social Care ◽  
Potential Benefits ◽  
The Uk ◽  
Critical Perspectives

Researchers in the area of health and social care (both in Australia and internationally) are encouraged to involve consumers throughout the research process, often on ethical, political and methodological grounds, or simply as ‘good practice’. This article presents findings from a qualitative study in the UK of researchers’ experiences and views of consumer involvement in health research. Two main themes are presented. First, we explore the ‘know—do gap’ which relates to the tensions between researchers’ perceptions of the potential benefits of, and their actual practices in relation to, consumer involvement. Second, we focus on one of the reasons for this ‘know—do gap’, namely epistemological dissonance. Findings are linked to issues around consumerism in research, lay/professional knowledges, the (re)production of professional and consumer identities and the maintenance of boundaries between consumers and researchers.

scholarly journals Using Technology to Enhance the Student Experience in Large Cohort Settings: Evidence from a Journey of Innovation at the University of Manchester

2015 ◽  
Vol 3 (2) ◽  
Author(s):  
Paul Middleditch ◽  
William Moindrot
Keyword(s):  
Higher Education ◽  
Social Media ◽  
Student Satisfaction ◽  
Classroom Interaction ◽  
Large Cohort ◽  
Peer Instruction ◽  
Learning Tools ◽  
The Uk ◽  
The University ◽  
University Of Manchester

The use of large cohorts in higher education poses significant challenges to institutions and lecturers required to convene in this setting. These challenges have been compounded by recent changes to higher education in the UK that have presented themselves in the form of a new fees structure, a push for student satisfaction and a technological tidal wave. This paper presents innovative approaches, from two large cohort economics courses running over three years at the University of Manchester, using methods of classroom interaction, peer instruction and social media to further engagement. We discuss data collected during this period of time through surveys and observations of how the students used these new learning tools. We have found that a move away from clickers toward utilisation of students’ own mobile devices, and in time the use of social media, meant that we were more able to adapt and evolve our teaching methods at a pace with the needs and interests of our students. We use this evidence to consider the implications and to provide advice to others teaching on large cohort courses whose ambition, like ours, is to make the large cohort class a more positive experience.

scholarly journals A design-led framework for engaged research: Using a design approach to understand and place the public at the core of health and social care

2021 ◽  
Vol 69 (3) ◽  
pp. 1-18
Author(s):  
Mary Galvin ◽  
Avril Kennan ◽  
Éidín Ní Shé
Keyword(s):  
Health Research ◽  
Social Care ◽  
Social Research ◽  
Research Process ◽  
The Public ◽  
Umbrella Organisation ◽  
Health And Social Care ◽  
Academic Partner ◽  
New Policies

Abstract This paper offers a multi-perspective approach on the role of engaged research in health and social care. Each of the authors focuses on their individual experiences of this domain, from the perspective of an academic partner of the Health Research Board’s PPI Ignite programme, a CEO of an umbrella organisation for health research charities and a researcher in design innovation, focusing on health research. The paper outlines the values which underpin public and patient involvement, as well as examples of its application as engaged research. It details how organisations like Health Research Charities Ireland support and enable engaged research within health and social research and policy. This paper offers a framework for facilitating dialogue and response across all stakeholders in the engaged research process, illustrating the importance of engaged research and how we can further our understanding and application of it within health and social care policy by adopting a design-led approach. We argue that a design-led approach can both facilitate engaged research as well as support policymakers in the design of new policies and practices.

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