scholarly journals Protocol for constructing a support model for family caregivers of people with dementia: Barriers and requirements

2019 ◽  
Vol 7 ◽  
pp. 205031211882486
Author(s):  
Chia-Ming Yen
Keyword(s):  
Family Caregivers ◽  
Problem Behaviors ◽  
Family Relationships ◽  
Healthcare Professionals ◽  
Medical Center ◽  
Skills Training ◽  
Dementia Patients ◽  
People With Dementia ◽  
Central Taiwan ◽  
Support Model

Background: This report describes a protocol for determining the barriers and requirements of family caregivers for people with dementia. The perspectives of healthcare professionals, family caregivers, and dementia patients will be collected and analyzed to construct a support model of requirements. Methods: An in-depth interview and care diary will be adopted during Phase I. Subsequently, the Delphi technique will be conducted to transform opinions from participants into a group consensus. In total, 38 participants are expected to be recruited from the outpatients of the neurology, psychiatry, geriatrics, and family medicine departments of a medical center in central Taiwan. Five domains are to be examined systematically in terms of the barriers and requirements of family caregivers for people with dementia: (1) knowledge of dementia and care skills to cope with problem behaviors; (2) medication and comorbidity management; (3) family relationships and psychological support; (4) resources and benefits; and (5) education and skills training. Conclusion: Overall, the proposed protocol will construct a support model of requirements for family caregivers, which is expected to provide healthcare professionals, family caregivers, researchers, and policymakers with more concise information and insights into associated problems.

Norway

2019 ◽  
pp. 211-218
Author(s):  
Knut Engedal
Keyword(s):  
Quality Of Life ◽  
Health Services ◽  
Welfare State ◽  
Family Caregivers ◽  
Residential Care ◽  
Healthcare Professionals ◽  
Tax System ◽  
People With Dementia ◽  
At Home

Norway has 5 million inhabitants, of whom 200,000 are aged above 80 years. The country is a welfare state, with a tax system covering most health services for its citizens. It is estimated that 78,000 people in Norway suffer from dementia, of whom 60% live at home and the remainder in residential care. In 2007, the first National Dementia Plan was launched (2007–2015), and the second in 2016 (2016–2020). The main goals of the two Plans are to develop services across the country to improve the care and quality of life for all people with dementia and their family caregivers, as well as increase the knowledge of dementia among healthcare professionals. In addition, the Plans also aim to improve awareness of dementia in society as a whole and to develop and implement measures to help create a more dementia-friendly society.

scholarly journals What is good communication for people living with dementia? A mixed-methods systematic review

2017 ◽  
Vol 29 (11) ◽  
pp. 1785-1800 ◽  
Author(s):  
Sarah Alsawy ◽  
Warren Mansell ◽  
Phil McEvoy ◽  
Sara Tai
Keyword(s):  
Systematic Review ◽  
Mixed Methods ◽  
Family Caregivers ◽  
Interpersonal Relationships ◽  
Healthcare Professionals ◽  
Eligibility Criteria ◽  
Good Communication ◽  
Person Centered Care ◽  
People With Dementia ◽  
Centered Care

ABSTRACTBackground:Many strategies have been recommended to support caregivers in communicating with people who live with dementia. However, less is known about what makes communication a good and meaningful experience from the perspective of people with dementia. Understanding this may enhance the person with dementia's sense of connectedness, strengthen their relationships, and facilitate person-centered care. The current review aimed to evaluate research that examined experiences of communication in people living with dementia. Studies that examined reports provided by people with dementia, healthcare professionals, and family caregivers were included.Methods:A mixed-methods systematic review was conducted using PsychINFO, MEDLINE, and EMBASE databases.Results:After applying the eligibility criteria, 15 studies were included. Although eight of these recruited people with dementia, only one focused on their perspectives of communication experiences and the remaining studies focused on the perspectives of family caregivers and healthcare professionals. These studies either explored experiences without suggestions of communication methods, “open exploration,” or through examining experiences of strategies, “exploration of strategies.” A significant theme was around communication difficulties that affected interpersonal relationships and activities of daily living. Conversely, personhood strategies and a strong underlying relationship were believed to facilitate communication. The one study that examined the perspectives of people with dementia emphasized the importance of retaining valued relationships and feeling respected during communication.Conclusions:The need to involve people with dementia in research, particularly around their experiences of communication, is evident. Such research would be imperative for facilitating person-centered care, strengthening social relationships, and informing training programs.

The effects of a multi-component dyadic intervention on the psychological distress of family caregivers providing care to people with dementia: a randomized controlled trial

2015 ◽  
Vol 27 (12) ◽  
pp. 2031-2044 ◽  
Author(s):  
Anna-Eva Prick ◽  
Jacomine de Lange ◽  
Jos Twisk ◽  
Anne Margriet Pot
Keyword(s):  
Randomized Controlled Trial ◽  
Physical Exercise ◽  
Family Caregivers ◽  
Controlled Trial ◽  
Skills Training ◽  
Community Dwelling ◽  
Randomized Controlled ◽  
People With Dementia ◽  
The Us ◽  
Person With Dementia

ABSTRACTBackground:Earlier research showed that multi-component dyadic interventions – including a combination of intervention strategies and addressing both the person with dementia and caregiver – have a beneficial impact on the mental and physical health of people with dementia and their family caregivers. A randomized controlled trial (RCT) of a multi-component dyadic intervention, which is a translated and adapted version of an intervention that has been shown to be effective in the US by Teri et al. (2003), was performed. The effects on caregivers’ mood (primary outcome), burden, general health, and salivary cortisol levels (secondary outcomes) were studied.Methods:Community-dwelling people with dementia and their family caregivers (N = 111 dyads) were randomly assigned. The experimental group received eight home visits during three months, combining physical exercise and support (psycho-education, communication skills training, and planning of pleasant activities). Both the physical exercise and support component were directed at both the person with dementia and the caregiver. The comparison group received monthly information bulletins and phone calls. There were three measurements at baseline (prior to the intervention), at three months, and at six months into the intervention. Data were analyzed with Generalized Estimating Equations (GEE) based on an intention-to-treat analysis of all available data.Results:All analyses showed no benefits of the intervention over time on any of the outcomes.Conclusion:The negative results might be explained by the translation and adaptation of the intervention that has been shown to be effective in the US: the intervention was shortened and did not include cognitive reframing. However, only the health effects on people with dementia and not on caregivers were studied in the US. Several other factors might also have played a role, which are important for future studies to take into account. These are: the usual health care in the country or region of implementation; the wishes and needs of participants for specific intervention components; the room for improvement regarding these components; the inclusion of positive outcome measures, such as pleasure, and the quality of the relationship.

scholarly journals GunitaHu: A VR Serious Game with Montessori Approach for Dementia Patients During COVID-19

2021 ◽  
Author(s):  
Aira Jazel Y. Ang ◽  
Roberto D. Principio ◽  
Richelle Ann B. Juayong ◽  
Jaime D.L. Caro
Keyword(s):  
Serious Games ◽  
Healthcare Professionals ◽  
Family Members ◽  
Serious Game ◽  
Therapeutic Approaches ◽  
Dementia Patients ◽  
People With Dementia ◽  
Montessori Method

The study aims to explore VR Serious Games as a form of therapy for people with dementia. It seeks to establish the utility of VR-based interventions with the application of Montessori Method. This study also serves as a basis for researchers, healthcare professionals, and developers who plan to incorporate VR therapy with other therapeutic approaches and to create a system that may be replicated for other illnesses via telemedicine to address the most vulnerable sectors. The main beneficiaries of this study are people with dementia and those who directly interact with them such as their doctors, caregivers, and family members of the patient.

Evaluation of the Reitman Centre CARERS program for supporting dementia family caregivers: a pre–post intervention study

2021 ◽  
pp. 1-12
Author(s):  
Joel Sadavoy ◽  
Sima Sajedinejad ◽  
Mary Chiu
Keyword(s):  
Family Caregivers ◽  
Group Intervention ◽  
Adult Child ◽  
Cost Effective ◽  
Skills Training ◽  
Well Being ◽  
Community Dwelling ◽  
Rank Test ◽  
Post Intervention ◽  
People With Dementia

ABSTRACT Objectives: While family caregivers (CGs) of persons with dementia are cost-effective for the health system, this form of caregiving leads to disproportionate vulnerability to physical, mental, and social adverse health consequences among CGs. The study goal was to determine the effect of the Reitman Centre CARERS program on key outcomes in family CGs of people with dementia. The Reitman Centre CARERS program is an innovative, group psychotherapeutic skills training intervention based on integrated problem-solving techniques (PST), simulation learning, and group psychotherapy designed to address each CGs’ unique situation. Design: A quasi-experimental, non-randomized, pre–post evaluation, multiple groups, multisite trial. Setting: Multisite group intervention provided in community agencies and hospital-based locations. Participants: Spousal or adult child family CGs (n = 264) living in the community and providing care to community-dwelling family members with dementia. Measurement: CGs were assessed for depression (CES-D); stress (PSS); burden (12-item SZBI); role overload, mastery, caregiving competence, and role captivity (Perlin scales), coping (CISS – Coping Inventory for Stressful Situations), CG reactions to CR’s memory and behavioral symptoms (RMBPC). Care recipients (CRs) were assessed on basic and complex activities of daily living (Katz and Lawton). Paired t-tests and Wilcoxon signed-rank test were used for statistical analysis of both the whole group and a more compromised subgroup of CGs. Results: For the group as a whole, CGs showed significant positive change on post-intervention outcome measures of stress, depression, burden, competence, role captivity, overload, mastery, coping, and reaction to memory issues. The intervention showed especially robust effect sizes (ES) in more compromised CGs. These positive outcomes emerged despite a significant measured deterioration in CRs’ function. Conclusion: The CARERS program may be an effective multicomponent intervention to improve the well-being, functioning, and coping skills of dementia CGs.

The REACH OUT Caregiver Support Program

2021 ◽  
Author(s):  
Louis D. Burgio ◽  
Matthew J. Wynn
Keyword(s):  
Family Caregivers ◽  
Family Relationships ◽  
Challenging Behaviors ◽  
Well Being ◽  
Physical And Mental Health ◽  
Risk Area ◽  
Caregiver Support ◽  
Caregiver Health ◽  
People With Dementia ◽  
Risk Areas

Our nation increasingly relies on family members or friends (i.e., informal caregivers) for needed care and support as we age. Family caregivers typically assume their caregiving role willingly and reap personal fulfilment from helping a family member, developing new skills, and strengthening family relationships. For these benefits, however, caregivers often sacrifice their own health and well-being. Depression, anxiety, poor physical health, and compromised immune function are more common among family caregivers than in adults not providing such care. The REACH OUT (Resources for Enhancing Alzheimer’s Caregiver Health: Offering Useful Treatments) program is a multicomponent, tailored, and flexible intervention for caregivers of people with dementia focused on the evidence-based therapeutic strategy of problem solving. This work is designed to guide clinicians through the process and provide them the necessary tools to share with caregivers with the goal of enhancing caregiver physical and mental health. Five common risk areas (home safety, caregiver health, social support, challenging behaviors, and emotional well-being) are described in the manual; and interventions are described that respect the nuances of each risk area. By beginning with an individualized risk assessment and being flexible to the needs and issues of the caregiver, the REACH OUT intervention helps clinicians identify risk areas and provide caregivers with tailored action plans to reduce risk and promote well-being.

MultiTANDEM

GeroPsych ◽  
2017 ◽  
Vol 30 (4) ◽  
pp. 165-175
Author(s):  
Anne Messemaker ◽  
Arthur Schall ◽  
Julia Haberstroh ◽  
Johannes Pantel
Keyword(s):  
Family Caregivers ◽  
Skills Training ◽  
Nursing Facilities ◽  
Staff Members ◽  
Implementation Outcomes ◽  
People With Dementia ◽  
High Penetration ◽  
Management Staff ◽  
Family Caregiver Burden

Abstract. The MultiTANDEM system trains management staff at outpatient nursing facilities to be TANDEM trainers (i.e., multiplicators for social-skills training) of professional and family caregivers for people with dementia. We used a pre-post-1-post-2 follow-up design to evaluate intervention and implementation success. Results showed a significant increase in the communication skills of caregivers and a significant reduction in family caregiver burden. Analyses of the implementation showed high acceptability among multiplicators and a high penetration of TANDEM trainings among their fellow staff members. An evaluation of the sustainability yielded heterogeneous results. Evaluation of impeding factors showed a reluctance among family caregivers to participate. Further studies with larger sample sizes and including all implementation outcomes are recommended.

Communication skills training in dementia care: a systematic review of effectiveness, training content, and didactic methods in different care settings

2012 ◽  
Vol 25 (3) ◽  
pp. 345-358 ◽  
Author(s):  
Eva Eggenberger ◽  
Katharina Heimerl ◽  
Michael I. Bennett
Keyword(s):  
Family Caregivers ◽  
Communication Skills ◽  
Care Setting ◽  
Skills Training ◽  
Dementia Care ◽  
Cochrane Library ◽  
Communication Skills Training ◽  
People With Dementia ◽  
Training Content ◽  
Organizational Features

ABSTRACTBackground: Caring for and caring about people with dementia require specific communication skills. Healthcare professionals and family caregivers usually receive little training to enable them to meet the communicative needs of people with dementia. This review identifies existent interventions to enhance communication in dementia care in various care settings.Methods: We searched MEDLINE, AMED, EMBASE, PsychINFO, CINAHL, The Cochrane Library, Gerolit, and Web of Science for scientific articles reporting interventions in both English and German. An intervention was defined as communication skills training by means of face-to-face interaction with the aim of improving basic communicative skills. Both professional and family caregivers were included. The effectiveness of such training was analyzed. Different types of training were defined. Didactic methods, training content, and additional organizational features were qualitatively examined.Results: This review included 12 trials totaling 831 persons with dementia, 519 professional caregivers, and 162 family caregivers. Most studies were carried out in the USA, the UK, and Germany. Eight studies took place in nursing homes; four studies were located in a home-care setting. No studies could be found in an acute-care setting. We provide a list of basic communicative principles for good communication in dementia care. Didactic methods included lectures, hands-on training, group discussions, and role-play.Conclusion: This review shows that communication skills training in dementia care significantly improves the quality of life and wellbeing of people with dementia and increases positive interactions in various care settings. Communication skills training shows significant impact on professional and family caregivers’ communication skills, competencies, and knowledge. Additional organizational features improve the sustainability of communication interventions.

scholarly journals Caring for Moderate to Severe Dementia Patients - Malaysian Family Caregivers Experience

2020 ◽  
Vol 17 (1) ◽  
Author(s):  
Zuria Idura AM ◽  
Noorlaili MT ◽  
Rosdinom R ◽  
Azlin B ◽  
Tuti Iryani MD
Keyword(s):  
Family Caregivers ◽  
Psychological Symptoms ◽  
Kuala Lumpur ◽  
Severe Dementia ◽  
Individual Interviews ◽  
Care Giving ◽  
Dementia Patients ◽  
People With Dementia ◽  
Inadequate Knowledge ◽  
Geriatric Clinic

Introduction: Caring for those with dementia affects the quality of life for both the caregivers and the patients themselves, particularly in the informal care system here in Malaysia. To date, only a few studies have explored from the family caregivers’ perspectives in the communities of different cultural background. The purpose of this study is to describe the Malaysian family caregivers’ perspectives of their experiences in providing care to for their family members suffering from moderate to severe dementia in Kuala Lumpur, Malaysia. Methods: This qualitative study involved in-depth individual interviews with twelve caregivers to patients with moderate to severe dementia. Participants were recruited via purposive sampling from the outpatient psycho-geriatric clinic at UKM Medical Centre, Kuala Lumpur. All interviews were audio-recorded and transcribed verbatim. Transcribed data was later analysed using a thematic approach. Results: Four themes identified in this study were; i) the feeling that ‘it is like caring for a baby’, ii) the caregivers’ perception of inadequate knowledge and skills, iii) the need for caregivers’ support system and iv) the importance of spirituality in enhancing care giving experiences. Conclusions: The framework of care shared by the caregivers in this study demonstrated strong cultural and spirituality influences in addition to the common issues of the challenges in managing the behavioural and psychological symptoms in people with dementia. Hence, culture and spirituality aspects should be addressed in the development of appropriate intervention to manage the needs of informal caregivers in this community.

Working With Family Caregivers of Dementia Patients

ASHA Leader ◽  
2003 ◽  
Vol 8 (16) ◽  
pp. 25-25
Author(s):  
Rosemary Lubinski
Keyword(s):  
Family Caregivers ◽  
Dementia Patients
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