scholarly journals Patient-Reported oral health outcome measurement for children and adolescents

2016 ◽  
Vol 16 (1) ◽  
Author(s):  
Honghu Liu ◽  
Ron D. Hays ◽  
Marvin Marcus ◽  
Ian Coulter ◽  
Carl Maida ◽  
...  
Keyword(s):  
Health Outcome ◽  
Oral Health ◽  
Children And Adolescents ◽  
Outcome Measurement ◽  
Patient Reported ◽  
Health Outcome Measurement

scholarly journals Web-Based Patient-Reported Outcomes Using the International Consortium for Health Outcome Measurement Dataset in a Major German University Hospital: Observational Study (Preprint)

2018 ◽  
Author(s):  
Maria M Karsten ◽  
Dorothee Speiser ◽  
Claudia Hartmann ◽  
Nele Zeuschner ◽  
Kai Lippold ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Outcome ◽  
Outcome Measurement ◽  
Return Rate ◽  
University Hospital ◽  
Web Based ◽  
International Consortium ◽  
Breast Center ◽  
Patient Reported ◽  
Health Outcome Measurement

BACKGROUND Collecting patient-reported outcome (PRO) data systematically enables objective evaluation of treatment and its related outcomes. Using disease-specific questionnaires developed by the International Consortium for Health Outcome Measurement (ICHOM) allows for comparison between physicians, hospitals, and even different countries. OBJECTIVE This pilot project aimed to establish a digital system to measure PROs for new patients with breast cancer who attended the Charité Breast Center This approach should serve as a blueprint to further expand the PRO measurement to other disease entities and departments. METHODS In November 2016, we implemented a Web-based system to collect PRO data at Charité Breast Center using the ICHOM dataset. All new patients at the Breast Center were enrolled and answered a predefined set of questions using a tablet computer. Once they started their treatment at Charité, automated emails were sent to the patients at predefined treatment points. Those emails contained a Web-based link through which they could access and answer questionnaires. RESULTS By now, 541 patients have been enrolled and 2470 questionnaires initiated. Overall, 9.4% (51/541) of the patients were under the age of 40 years, 49.7% (269/541) between 40 and 60 years, 39.6% (214/541) between 60 and 80 years, and 1.3% (7/541) over the age of 80 years. The average return rate of questionnaires was 67.0%. When asked about the preference regarding paper versus Web-based questionnaires, 6.0% (8/134) of the patients between 50 and 60 years, 6.0% (9/150) between 60 and 70 years, and 12.7% (9/71) over the age of 70 years preferred paper versions. CONCLUSIONS Measuring PRO in patients with breast cancer in an automated electronic version is possible across all age ranges while simultaneously achieving a high return rate.

scholarly journals Short form development for oral health patient-reported outcome evaluation in children and adolescents

2018 ◽  
Vol 27 (6) ◽  
pp. 1599-1611 ◽  
Author(s):  
Honghu Liu ◽  
Ron Hays ◽  
Yan Wang ◽  
Marvin Marcus ◽  
Carl Maida ◽  
...  
Keyword(s):  
Oral Health ◽  
Children And Adolescents ◽  
Short Form ◽  
Patient Reported Outcome ◽  
Outcome Evaluation ◽  
Patient Reported ◽  
Form Development

scholarly journals 82 Person-Centred Emergency Care Outcome Measurement For Older People Living with Frailty

2021 ◽  
Vol 50 (Supplement_1) ◽  
pp. i12-i42
Author(s):  
J van Oppen
Keyword(s):  
Health Outcome ◽  
Emergency Care ◽  
Outcome Measurement ◽  
Field Testing ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Structured Interviews ◽  
Outcome Goals ◽  
Outcome Framework ◽  
Patient Reported

Abstract Introduction Health outcome goals are the results individuals seek from healthcare. These may incorporate holistic themes including function, mood, and quality of life. People living with frailty have poorer outcomes from even short hospital stays. They benefit from person-centred, goal-directed care over protocol-driven pathway approaches. This could be improved by monitoring attainment of health outcome goals. Methods A systematic review for older people’s health outcome goals in emergency care was conducted using narrative synthesis. A qualitative study based on grounded theory expanded the outcome framework to include people living with frailty. People with cognitive and communication barriers were included in semi-structured interviews. Discussions focussed on the events and outcomes sought from emergency care. Results Older people’s health outcome goals for emergency care were classified as efficient and comprehensive care, sensitivity towards vulnerability, and person-centred informed care. The importance of understanding individual perceptions was explicit. Research generally recruited based on age rather than physiological and functional state, and did not assess for impact of frailty on healthcare perceptions. The interview study was paused due to the COVID-19 pandemic. Initial results showed a predominance of person-centred and holistic care themes among health outcome goals. Participants’ most common goal for emergency care was relief of symptoms: people often had pain. Participants mostly had severe frailty and wanted their mobility to be assessed, with goals of recovering their functional baseline. While participants had confidence in healthcare professionals and were generally willing to “do as we are told to feel better”, they expected to undergo at least basic tests in order to receive a working diagnosis for their problem. People wanted to understand their illness and for explanations to be communicated to their relatives. Next steps Patient-reported outcome measures (PROMs) for this range of emergency care outcomes are being identified for field-testing in acute settings.

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