scholarly journals Perceived needs and experiences with healthcare services of women with spinal cord injury during pregnancy and childbirth — a qualitative content analysis of focus groups and individual interviews

2015 ◽  
Vol 15 (1) ◽  
Author(s):  
Sue Bertschy ◽  
Szilvia Geyh ◽  
Jürgen Pannek ◽  
Thorsten Meyer
2020 ◽  
Vol 5 (4) ◽  
pp. 199-206
Author(s):  
Elham Sepahvand ◽  
◽  
Hamidreza Khankeh ◽  
Mohammadali Hosseini ◽  
Behnam Akhbari ◽  
...  

Background: During traffic accidents, professional staff provide care to the patient at the scene of the accident and then transport the victim to the hospital by ambulance. But sometimes this transition is carried out by relatives and laypeople. The purpose of this study was to explore the factors affecting people’s involvement and transmission of the victims of the traffic accident. Materials and Methods: This study was done with a qualitative content analysis method in 2018. The study participants were 16 people. In this study, a purposeful sampling method with maximum diversity was used. Semi-structured interviews were used to collect data using guiding questions. To observe the research ethics, the researcher, after obtaining permission from the University Ethics Committee, conducted interviews (IR.USWR.REC.1395.399). Results: In total, 15 spinal cord injury victims and their relatives or laypeople and medical emergency technicians were interviewed. The class of wrong belief of delay was the main class in all interviews. Concepts such as past experiences, the pressure time, the lack of emergency time, cultural beliefs, and the tension explaining the wrong belief concept. Conclusion: Wrong belief of delay was a concept that was extracted from the present study. It is recommended that the scene of the accident be examined in-depth and how to create a spinal cord injury in the injured with a grounded theory approach.


BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e031012 ◽  
Author(s):  
Verna Stavric ◽  
Nicola Saywell ◽  
Nicola Maree Kayes

IntroductionChronic shoulder pain is common after spinal cord injury (SCI) and limits community mobility. This leads to loss of independence and reduced quality of life. Evidence suggests that exercises can help reduce shoulder pain. However, cost, expertise and transport barriers frequently limit access to treatment services. The objective of this study is to develop an evidence-based, acceptable, usable and persuasive self-guided web-based exercise intervention to treat shoulder pain in people living with SCI.Methods and analysisAn iterative and phased person-based approach (PBA) will capture users’ perspectives on usability and acceptability to develop guiding principles that will shape the design of the intervention. The intervention will be based on key elements identified through participant input and from evidence identified through systematic and narrative reviews, to ensure the intervention addresses participants’ needs and increase the likelihood of uptake. The prototype will be iteratively refined through focus groups and think-aloud sessions. Review data will be synthesised drawing on systematic and narrative review conventions. Qualitative data will be analysed using conventional content analysis (planning phase) and directed content analysis (development phase) to inform intervention design and refinement.Ethics and disseminationEthical approval has been granted by the Auckland University of Technology Ethics Committee (AUTEC) in Auckland, New Zealand. The results of the study will be published in a peer-reviewed journal and presented at relevant national and international conferences. A summary of findings will be presented to key stakeholder groups. We will progress to a definitive trial should the findings from this intervention development study indicate the intervention is acceptable and usable.


2002 ◽  
Vol 90 (3_suppl) ◽  
pp. 1153-1160 ◽  
Author(s):  
Laura A. Cushman ◽  
Marcia J. Scherer

Persons with new spinal cord injury have varying perceptions of their own needs in multiple life domains such as readiness and need to use assistive technologies, but these are often not directly addressed. These areas were the focus of the present study. This descriptive study looked at subjective need in a variety of areas with a new measure and also assessed perceptions related to assistive technology and quality of life. Perceptions of various needs were compared at baseline and at 1- and 6-mo. follow-up. The Perceived Needs Inventory, the Assistive Technology Device Predisposition Assessment, and the Diener Satisfaction with Life Scale were the main outcome measures given 22 patients with new injuries in an inpatient service for acute spinal cord injury with community follow-up. As the Perceived Needs Inventory provided distinct information and showed good test-reliability and some evidence of construct validity, it may be a useful adjunctive tool with such patients.


2002 ◽  
Vol 90 (3_part_2) ◽  
pp. 1153-1160
Author(s):  
Laura A. Cushman ◽  
Marcia J. Scherer

Persons with new spinal cord injury have varying perceptions of their own needs in multiple life domains such as readiness and need to use assistive technologies, but these are often not directly addressed. These areas were the focus of the present study. This descriptive study looked at subjective need in a variety of areas with a new measure and also assessed perceptions related to assistive technology and quality of life. Perceptions of various needs were compared at baseline and at 1- and 6-mo. follow-up. The Perceived Needs Inventory, the Assistive Technology Device Predisposition Assessment, and the Diener Satisfaction with Life Scale were the main outcome measures given 22 patients with new injuries in an inpatient service for acute spinal cord injury with community follow-up. As the Perceived Needs Inventory provided distinct information and showed good test-reliability and some evidence of construct validity, it may be a useful adjunctive tool with such patients.


Author(s):  
Kirsti Skavberg Roaldsen ◽  
Vivien Jrgensen ◽  
Wiebke Höfers ◽  
Susanne Sällström ◽  
Marika Augutis ◽  
...  

PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13–17 years at least 6 months’ post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents’ plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.


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