scholarly journals Wrong Belief of Emergency Delay: A Qualitative Content Analysis in Iranian Context

2020 ◽  
Vol 5 (4) ◽  
pp. 199-206
Author(s):  
Elham Sepahvand ◽  
◽  
Hamidreza Khankeh ◽  
Mohammadali Hosseini ◽  
Behnam Akhbari ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Content Analysis ◽  
Qualitative Content Analysis ◽  
Cultural Beliefs ◽  
Professional Staff ◽  
Medical Emergency ◽  
Theory Approach ◽  
Structured Interviews ◽  
Cord Injury

Background: During traffic accidents, professional staff provide care to the patient at the scene of the accident and then transport the victim to the hospital by ambulance. But sometimes this transition is carried out by relatives and laypeople. The purpose of this study was to explore the factors affecting people’s involvement and transmission of the victims of the traffic accident. Materials and Methods: This study was done with a qualitative content analysis method in 2018. The study participants were 16 people. In this study, a purposeful sampling method with maximum diversity was used. Semi-structured interviews were used to collect data using guiding questions. To observe the research ethics, the researcher, after obtaining permission from the University Ethics Committee, conducted interviews (IR.USWR.REC.1395.399). Results: In total, 15 spinal cord injury victims and their relatives or laypeople and medical emergency technicians were interviewed. The class of wrong belief of delay was the main class in all interviews. Concepts such as past experiences, the pressure time, the lack of emergency time, cultural beliefs, and the tension explaining the wrong belief concept. Conclusion: Wrong belief of delay was a concept that was extracted from the present study. It is recommended that the scene of the accident be examined in-depth and how to create a spinal cord injury in the injured with a grounded theory approach.

scholarly journals Development of a self-guided web-based exercise intervention (SPIN) to treat shoulder pain in people living with spinal cord injury: protocol of a mixed methods study

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e031012 ◽  
Author(s):  
Verna Stavric ◽  
Nicola Saywell ◽  
Nicola Maree Kayes
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Content Analysis ◽  
Shoulder Pain ◽  
Exercise Intervention ◽  
Intervention Development ◽  
Access To Treatment ◽  
Web Based ◽  
Cord Injury ◽  
Transport Barriers

IntroductionChronic shoulder pain is common after spinal cord injury (SCI) and limits community mobility. This leads to loss of independence and reduced quality of life. Evidence suggests that exercises can help reduce shoulder pain. However, cost, expertise and transport barriers frequently limit access to treatment services. The objective of this study is to develop an evidence-based, acceptable, usable and persuasive self-guided web-based exercise intervention to treat shoulder pain in people living with SCI.Methods and analysisAn iterative and phased person-based approach (PBA) will capture users’ perspectives on usability and acceptability to develop guiding principles that will shape the design of the intervention. The intervention will be based on key elements identified through participant input and from evidence identified through systematic and narrative reviews, to ensure the intervention addresses participants’ needs and increase the likelihood of uptake. The prototype will be iteratively refined through focus groups and think-aloud sessions. Review data will be synthesised drawing on systematic and narrative review conventions. Qualitative data will be analysed using conventional content analysis (planning phase) and directed content analysis (development phase) to inform intervention design and refinement.Ethics and disseminationEthical approval has been granted by the Auckland University of Technology Ethics Committee (AUTEC) in Auckland, New Zealand. The results of the study will be published in a peer-reviewed journal and presented at relevant national and international conferences. A summary of findings will be presented to key stakeholder groups. We will progress to a definitive trial should the findings from this intervention development study indicate the intervention is acceptable and usable.

scholarly journals Adaptive Coping Strategies in Patients With Spinal Cord Injury: A Phenomenological Study

2021 ◽  
Vol 26 (4) ◽  
pp. 478-489
Author(s):  
Mahmood Shamshiri ◽  
◽  
Behzad Eskandar Oghli ◽  
Maryam Vafaee ◽  
Behnam Molaei ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Coping Strategies ◽  
Phenomenological Study ◽  
Structured Interviews ◽  
Hermeneutic Phenomenological ◽  
Cord Injury ◽  
Common Causes ◽  
Hermeneutic Phenomenological Study ◽  
Coping Factor

Objectives: Spinal Cord Injury (SCI) is one of the most common causes of disability worlwide. Perception of coping strategies is important in these patients. This study aims to investigate the coping strategies in patients with SCI. Methods: This is a hermeneutic phenomenological study using van Mann’s approach. participants werre 15 adults (4 females, 11 males) with SCI living in Ardail, Iran who were recruited using a purposive sampling method. Semi-structured interviews were used to collect data. Interviews were recoreded and then transcribed and finally analyzed by using the thematic analysis approach proposed by van Mann. Results: The lived experiences related to coping strategies in patients were summarized in six main themes including acceptence of the incurability, desire for being independent, praying for divine help, patience & persuasion, time as a coping factor, and marriage. Conclusion: Patients with SCI use their own strategies to cope with their disability. Therefore, it is necessary for clinicians and psychiatrists to strengthen their coping strategies to help them better adapt to their injury

scholarly journals Sustaining the National Spinal Cord Injury Registry of Iran (NSCIR-IR) in a Regional Center: Challenges and Solutions

2020 ◽  
Author(s):  
Zahra AZADMANJIR ◽  
Zahra MOHTASHAM-AMIRI ◽  
Seyed-Mahdi ZIABARI ◽  
Leila KOCHAKINEJAD ◽  
Hamid HAIDARI ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Human Resources ◽  
Thematic Analysis ◽  
Hospital Admissions ◽  
Structured Interviews ◽  
Identification Rate ◽  
Case Identification ◽  
Regional Center ◽  
Cord Injury

Background: The National Traumatic Spinal Cord Injury Registry in Iran (NSCIR-IR), was implemented initially in three hospitals as a pilot phase from 11 Oct 2015 to 19 Jun 2016 and has been active in eight centers from 19 Jun 2016. Poursina Hospital, a trauma care referral center in Rasht, Guilan Province of Iran is one of the registry sites, and has been involved in registering eligible patients since 1 Jan 2016. This study aimed to identify the challenges and solutions for sustaining the NSCIR-IR in a regional center. Methods: This was a mixed-methods study. For the quantitative analysis, a retrospective observational design was used to measure case capture or case identification rate, mapping cases in the registry against those eligible for registry inclusion amongst the register of hospital admissions. For the qualitative component, data was collected using focus group discussions and semi-structured interviews, followed by thematic analysis. Results: From 19 Jun 2016 to 24 Jan 2018, the proportion of case capture (case identification rate) was 17%. The median time between case identification and data entry to the system was 30.5 d (range: 2 to 193 d). Thematic analysis identified a lack of trained human resources as the most important cause of low case identification rate and delay in data completion. Conclusion: Recruitment and education to increase trained human resources are needed to improve case capture, the timeliness of data input and registry sustainability in a regional participating site.

scholarly journals The experiences of individuals with cervical spinal cord injury and their family during post-injury care in non-specialised and specialised units in UK

2020 ◽  
Author(s):  
Jackie McRae ◽  
Christina Smith ◽  
Anton Emmanuel ◽  
Suzanne Beeke
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cervical Spinal Cord ◽  
Family Members ◽  
Cervical Spinal Cord Injury ◽  
Specialist Care ◽  
Structured Interviews ◽  
Post Injury ◽  
Experience Of Care ◽  
Cord Injury

Abstract Background Individuals with acute cervical spinal cord injury require specialised interventions to ensure optimal clinical outcomes especially for respiratory, swallowing and communication impairments. This study explores the experiences of post-injury care for individuals with cervical spinal cord injury and their family members during admissions in specialised and non-specialised units in the United Kingdom.Methods Semi-structured interviews were undertaken with individuals with a cervical spinal cord injury and their family member, focussing on the experience of care across units. Eight people with spinal cord injury levels from C2 to C6, were interviewed in their current care settings. Six participants had family members present to support them. Interviews were audio-recorded and transcribed with data inputted into NVivo for thematic analysis.Results The study identified six themes from the participant interviews that highlighted different experiences of care in non-specialised and specialised settings. A number of these were related to challenges with the system, whilst others were about the personal journey of recovery. The themes were titled as: adjustment, transitions, “the golden opportunity”, “when you can’t eat”, communication, and “in the hands of the nurses and doctors”.Conclusions Whilst participants reported being well cared for in non-specialised units, they felt that they did not receive specialist care and this delayed their rehabilitation. Participants were dependent on healthcare professionals for information and care and at times lost hope for recovery. Staff in non-specialised units require training and guidance to help provide support for those with dysphagia and communication difficulties, as well as reassurance to patients and families whilst they wait for transfer to specialised units.

scholarly journals Toward Overcoming Physical Disability in Spinal Cord Injury: A Qualitative inquiry of the Experiences of Injured Individuals and Their Families

2019 ◽  
Author(s):  
Alireza Nikbakht-Nasrabadi ◽  
nooredin mmohammadi ◽  
Manijeh Yazdanshenas ◽  
Maryam Shabany
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Physical Disability ◽  
Qualitative Inquiry ◽  
Physical Rehabilitation ◽  
Healthcare Team ◽  
Main Theme ◽  
Structured Interviews ◽  
Cord Injury ◽  
Data Saturation

Abstract OBJECTIVES Spinal cord injury (SCI) is a life-changing experience for the individuals with SCI and their families. This study aimed to investigate physical strategies used for overcoming physical disability in individuals with SCI. METHODS In this qualitative study, 17 SCI persons and 13 family caregivers were selected by a purposeful sampling. Settings of the study were Brain and SCI research (BASIR) center of Tehran University of Medical Sciences and Southern Social Welfare Center of Tehran and SCI Association of Tehran, Iran. Data were collected by face-to-face semi-structured interviews, which were continued until data saturation. The gathered data were concurrently analyzed by the content analysis method. RESULTS The data analysis revealed one main theme (towards overcoming physical disability) and three sub-themes: 1) physical rehabilitation by various methods; 2) tendency towards the use of alternative medical methods; and 3) making effort for self-reliance. CONCLUSION The participants used physiotherapy and occupational therapy as an effective and essential approach offered by the healthcare team. Some individuals with SCI with help of their family had invented simple rehabilitation equipment for help to their physical rehabilitation. However, most participants had referred to different complimentary medicine specialists based on advice friends and relatives and they often had spent a lot of time and money ineffectively. Therefore, they need training and support of the healthcare team as well as social support to achieve physical independence and physical recovery. Further research is suggested to investigate the barriers to achieving physical empowerment in people with SCI in Iran.

scholarly journals Needs and Wishes for the Future Exoskeleton: an Interview Study Among People With Spinal Cord Injury With Community-based Exoskeleton Experience

2020 ◽  
Author(s):  
Rosanne B. van Dijsseldonk ◽  
Joke E. Vriezekolk ◽  
Noël L.W. Keijsers ◽  
Alexander C.H. Geurts ◽  
Ilse J.W. van Nes
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Social Interaction ◽  
Daily Life ◽  
Ease Of Use ◽  
Daily Activities ◽  
Full Potential ◽  
Structured Interviews ◽  
Cord Injury ◽  
The Future

Abstract Background: Exoskeleton use by people with complete spinal cord injury (SCI) in daily life is still a challenge. To optimize its daily life use, a better understanding of the purpose of use and the accompanying improvements are needed. The perspective of experienced exoskeleton users provides an important contribution to the improvement of future exoskeletons.Methods: Face-to-face semi-structured interviews were held with 13 people with SCI, who were experienced exoskeleton users. Interviews were audio-taped, transcribed and analysed thematically.Results: Participants expressed three future purposes of exoskeleton use: for daily activities, exercise, and social interaction. Exoskeleton use during daily activities was the ultimate goal. Therefore, the future exoskeleton should be: easy to use, small and lightweight, tailor made, safe, comfortable, less distinctive, durable, and affordable. Improving the ease of use was relevant for all purposes, for all participants. The other suggestions for improvement varied depending on the purpose of use and the participant. Conclusions: Increasingly more advanced improvements to future exoskeletons are needed to transition from an exercise purpose, to social interaction, and ultimately use during daily activities. In the current study, detailed suggestions for improvements from experienced exoskeleton users have been made. Only when multiple of these suggestions are adjusted, can the exoskeleton be used to its full potential.

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