scholarly journals What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study

2018 ◽  
Vol 16 (1) ◽  
Author(s):  
Suzanne Parsons ◽  
◽  
Wendy Thomson ◽  
Katharine Cresswell ◽  
Bella Starling ◽  
...  
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Research Involvement ◽  
Rheumatic Conditions ◽  
The Uk

scholarly journals Between the Rhetoric of Employability and the Reality of Youth (Under)Employment: NEET Policy Rhetoric in the UK and Scotland

2021 ◽  
Author(s):  
Charlotte McPherson
Keyword(s):  
Discourse Analysis ◽  
Young People ◽  
Qualitative Study ◽  
Policy Analysis ◽  
Critical Discourse Analysis ◽  
Empirical Data ◽  
School To Work ◽  
Critical Discourse ◽  
The Uk ◽  
Problem Agenda

AbstractIn the UK and Scotland, considerable resources have been devoted to tackling the persistent issue of young people who are, or are at risk of becoming, not in education, employment or training (NEET), a pathologized status that incurs significant penalties for young people and the economy. Using critical discourse analysis, this paper analyses and evaluates policy rhetoric to explore how the NEET ‘problem’, agenda and population are constituted by the UK and Scottish governments. In doing so, numerous unifying and problematic NEET policy tropes are identified, challenging the popular notion of significant policy divergence between the punitive reputation of Westminster and the image of Scottish governance as more socially democratic. Moreover, this paper differs from traditional policy analysis by also evaluating policy from the perspective of young people, drawing on empirical data from a qualitative study of the school-to-work transitions of NEET and marginally employed young people in Scotland.

scholarly journals Mapping the current psychology provision for children and young people with juvenile dermatomyositis

2021 ◽  
Vol 5 (3) ◽  
Author(s):  
Polly Livermore ◽  
Faith Gibson ◽  
Kathleen Mulligan ◽  
Lucy R Wedderburn ◽  
Liza J McCann ◽  
...  
Keyword(s):  
Health Care ◽  
Young People ◽  
Health Care Professionals ◽  
Juvenile Dermatomyositis ◽  
Children And Young People ◽  
Autoimmune Condition ◽  
Rheumatic Conditions ◽  
Psychosocial Implications ◽  
Current Psychological ◽  
The Uk

Abstract Objectives Juvenile Dermatomyositis (JDM) is a rare, chronic autoimmune condition of childhood, with known psychosocial implications. In this study, we sought to establish current psychological support for children and young people across the UK with rheumatic conditions, with a specific focus on those with JDM. Methods Electronic surveys were distributed to the 15 centres that belong to the JDM Research Group in the UK, collecting responses from health-care professionals in the fields of medicine, nursing and psychology. Results One hundred per cent of professionals from medicine and nursing replied from all 15 centres. Of these, 7 (47%) did not have a named psychologist as part of their rheumatology team, despite the majority [13 (87%)] having >200 paediatric rheumatology patients. Of the remaining centres, hospital psychology provision varied considerably. When rating their service, only 3 (8%) of 40 professionals scored their service as five (where one is poor and five is excellent); there were wide discrepancies in these scores. Many challenges were discussed, including limited psychology provision, lack of time and difficulties in offering support across large geographical areas. Conclusion Many of the challenges discussed are applicable to other centres worldwide. Suggestions have been proposed that might help to improve the situation for children and young people with rheumatic conditions, including JDM. Based on these findings, we suggest that rheumatology teams maximize use of these data to advocate and work toward more comprehensive psychology provision and support in their individual centres.

scholarly journals Psychological adaptation and recovery in youth with sarcoma: a qualitative study with practical implications for clinical care and research

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e038799
Author(s):  
Urska Kosir ◽  
Lucy Bowes ◽  
Rachel M Taylor ◽  
Craig Gerrand ◽  
Rachael Windsor ◽  
...  
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Clinical Care ◽  
Psychosocial Care ◽  
Psychological Adaptation ◽  
Individual Level ◽  
Face To Face ◽  
Framework Approach ◽  
The Uk ◽  
Meaningful Connections

ObjectivesThis study explored factors that play a role in psychological adaptation and recovery of young people with sarcoma.DesignQualitative study.SettingNational Health Service hospitals in the UK.MethodsUsing purposive sampling, participants were recruited for semistructured interviews over the telephone or face to face in order to answer questions about how cancer impacted various domains of their life. Data were analysed using a framework approach.ResultsThirty participants, aged 15–39 years with primary sarcoma diagnosis provided in-depth accounts of their experience. Emerging themes from the interviews were grouped into two overarching themes that relate to one’s adaptation to illness: individual level and environmental level. The qualitative nature of our study sheds light on meaningful connections between various factors and their role in one’s psychological adaptation to sarcoma. We devised a visual matrix to illustrate how risk and protective factors in adaptation vary between and within individuals.ConclusionsThis study demonstrates that young people with sarcoma report an array of both positive and negative factors related to their illness experience. The route to recovery is a multifactorial process and a one-size-fits-all approach to psychosocial care proves inadequate. We propose that moving beyond the latent constructs of resilience and psychopathology towards a dynamic model of psychological adaptation and recovery in this population can result in optimisation of care. We offer some recommendations for professionals working with young people with sarcoma in clinic and research.

YOUTH WELLBEING IN SOUTH AFRICA: WHAT DIMENSIONS SHOULD WE MEASURE?

2016 ◽  
Vol 13 (1) ◽  
pp. 1-17 ◽  
Author(s):  
Dabesaki Mac-Ikemenjima
Keyword(s):  
South Africa ◽  
Health Education ◽  
Young People ◽  
Qualitative Study ◽  
South African ◽  
Time Use ◽  
Economic Relationships ◽  
African Cities ◽  
South African Cities ◽  
Selection Of

There is growing interest in the development of measures and indexes of youth wellbeing. However, there has been a limited discussion on indicators to measure and select them. This paper reports on the results of a qualitative study on the selection of indicators to measure the wellbeing of young people in South Africa, and reflects on the relevance of the content of their values in choosing indicators for measuring their wellbeing. The data used in this analysis is based on telephone (9) and email (6) interviews conducted with 15 young people (male=5, female=10) aged 22 to 32 from five South African cities during July 2010. In the interviews, participants were asked to identify five issues they considered important to their lives, after which they were asked to rank them in order of importance. The issues indicated by the participants are described and discussed in six dimensions: economic, relationships, spiritual and health, education, time use and material. The indicators developed from this study are discussed in terms of their relevance for use in a measure of youth wellbeing in South Africa.

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