scholarly journals Parent engagement in co-design of clinical trials: the PARENT trial

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Leigh M. Vanderloo ◽  
Shelley M. Vanderhout ◽  
Erika Tavares ◽  
Jonathon Maguire ◽  
Sharon Straus ◽  
...  

AbstractEvidence generated from partnering with parents to design and conduct research together may be used to refine, adjust, and modify future research approaches. This study aimed to describe the initial approaches to parent engagement in the design of the PARENT trial as well as understand parent perspectives on the acceptability and relevance of the PARENT trial and potential barriers and facilitators to participation.Parents participating in the TARGet Kids! cohort were invited to participate in a focus group, called the PARENT panel, to co-design the PARENT trial. This focus group was conducted to capture diverse individual and collective parents’ experiences. Overall methodological approaches for the PARENT panel were informed by the CIHR Strategy for Patient Oriented Research (SPOR) guiding principles (mutual respect, co-building, inclusiveness, and support) for patient engagement in research, and facilitated through the Knowledge Translation Program in the Li Ka Shing Knowledge Institute at Unity Health Toronto. Using a Nominal Group Technique, the PARENT panel provided feedback on the feasibility, relevance, and acceptability of the proposed intervention. Findings from this work will be used to further refine, adjust, and modify the next iteration of the PARENT trial, which will also serve as an opportunity to discuss the efforts made by researchers to incorporate parent suggestions and what additional steps are required for improved patient engagement.

2016 ◽  
Vol 5 (1) ◽  
pp. 46
Author(s):  
Abdul Talib Hashim ◽  
Azli Ariffin ◽  
Abdul Razalli ◽  
Abd Aziz Shukor ◽  
Mohd Nizamnasrifan ◽  
...  

The purpose of this study is to identify consensus by experts on appropriate activities to enhance the development of preschool children's imagination through the use of musical instruments. In order to obtain an in-depth understanding of teachers’ conceptions on imagination in creativity development and their beliefs about the best way to promote imagination in the classroom, the nominal group technique (NGT) was used to structure each focus group meeting. Finding shows a list of activities that have been sorted according to ranking as determined by the experts. All the experts also believe that the list of activities can boost the child's imagination because such activities have the characteristics that suit well with children.


2018 ◽  
Vol 16 ◽  
pp. 147997311881644 ◽  
Author(s):  
Lisa Jane Brighton ◽  
India Tunnard ◽  
Morag Farquhar ◽  
Sara Booth ◽  
Sophie Miller ◽  
...  

Chronic breathlessness is highly distressing for people with advanced disease and their informal carers, yet health services for this group remain highly heterogeneous. We aimed to generate evidence-based stakeholder-endorsed recommendations for practice, policy and research concerning services for people with advanced disease and chronic breathlessness. We used transparent expert consultation, comprising modified nominal group technique during a stakeholder workshop, and an online consensus survey. Stakeholders, representing multiple specialities and professions, and patient/carers were invited to participate. Thirty-seven participants attended the stakeholder workshop and generated 34 separate recommendations, rated by 74 online survey respondents. Seven recommendations had strong agreement and high levels of consensus. Stakeholders agreed services should be person-centred and flexible, should cut across multiple disciplines and providers and should prioritize breathlessness management in its own right. They advocated for wide geographical coverage and access to expert care, supported through skills-sharing among professionals. They also recommended recognition of informal carers and their role by clinicians and policymakers. Overall, stakeholders' recommendations reflect the need for improved access to person-centred, multi-professional care and support for carers to provide or access breathlessness management interventions. Future research should test the optimal models of care and educational strategies to meet these recommendations.


2002 ◽  
Vol 2 (2) ◽  
pp. 45-49 ◽  
Author(s):  
Marie Gervais ◽  
Geneviève Pépin

TRIAGE, or Technique for Research of Information by Animation of a Group of Experts, is an inductive and structured method for collecting information that aims to obtain a group consensus. The goal of this technique is to provide quality informative material quickly and efficiently to enable decision-making or to develop more sophisticated survey tools. TRIAGE both distinguishes itself from, and complements, the main group techniques used in evaluation up until now. These are the Delphi technique, the Nominal Group Technique (NGT) and the focus group (Delbecq, Van de Ven & Gustafson, 1975). The definition, the context for use as well as the different parts of the usual process of TRIAGE technique (recruiting of participants, individual production phase, collective production phase with visual support, validation of results) will firstly be presented then compared to these advocated in the Delphi, NGT and focus group techniques. Also, examples of TRIAGE being applied in different evaluation contexts, such as the development of measurement instruments and the evaluation of health programs, will be presented. These examples will illustrate the richness, the flexibility and the potential of this technique as an assessment tool. Finally, the strengths and shortcomings of TRIAGE will be discussed.


2013 ◽  
Vol 11 (2) ◽  
pp. 61-72 ◽  
Author(s):  
Bhibha M. Das ◽  
Anna I. Rinaldi-Miles ◽  
Ellen M. Evans

Introduction: Physical inactivity is a leading cause of morbidity and mortality. Worksites provide an ideal environment for physical activity (PA) interventions. The aim was to use the Nominal Group Technique (NGT) to examine university employees’ perceptions of worksite PA barriers and benefits. Methods: A focus group using the NGT and the Health Belief Model was conducted to assess employees’ perceived susceptibility of physical inactivity, perceptions of barriers and benefits to PA, and cues to action. Results: Findings showed university employees experienced similar barriers to PA as employees in other sectors, including lack of time and knowledge. Participants reported unique benefits to being physical active, notably being physically active allowed them to maintain demanding professional and personal lifestyles. Discussion: Results imply university employees experienced benefits to PA consistent with other worksite populations; the surprising benefits of PA for this population are strong motivators and would provide an excellent basis for interventions. Results also indicate although university employees face similar barriers to PA as other worksites, the unique barriers for this worksite should be the focus for worksite programs for this population. Similarly to the benefits, the unique barriers of this population should influence development of interventions to promote PA on campuses.


2019 ◽  
Author(s):  
Adanna Chukwuma ◽  
Uche Obi ◽  
Ifunanya Agu ◽  
Chinyere Mbachu

Abstract Background: Variation in clinical performance is attributable to factors outside academic and clinical skills. Selection processes and training programs for medical professionals should be adapted to consider these behavioral factors, which may vary across contexts. This study was conducted to identify behavioral competencies considered relevant for effective medical practice among medical students and practitioners in Nigeria.Methods: We drew on a scoping review to develop a starting list of behavioral attributes that correlate with effective service provision. Drawing on nominal group technique exercises with 17 medical students and 11 physicians, this starting list was modified with scoring and ranking of selected competencies. We compared the list of competencies and rankings between medical students, doctors, and the scoping review.Results: The scoping review identified nine articles for full-text review, resulting in a starting list of 21 behavioral competencies defined in studies conducted in non-African countries. The nominal group technique exercises conducted with medical students and doctors yielded a condensed list of 32 and 27 behavioral competencies respectively. For doctor-client interactions, the behavioral competencies considered most important included effective communication and patient-centeredness. Whereas, for doctor-colleague interactions, team work, respectfulness, and management ability were ranked highly. However, there were clear divergences between groups and with the scoping review.Conclusions: This study is one of the first to identify the perspectives of medical students and physicians on behavioral competencies considered essential for effective medical practice in an African country. We found differences in the perspectives of medical physicians and students, and in the prioritized competencies across contexts. This illustrates the need for careful consideration in identifying subject matter experts and in generalizing competencies across contexts. Future research in this field in Nigeria should examine effective ways of testing for key behavioral competencies among medical students and for residency programs. Also, investigating the perspectives of medical faculty and administrators on important competencies, and exploring the generalizability of these competencies across cultures in Nigeria should be considered.


2017 ◽  
Vol 28 (1) ◽  
pp. 29-35 ◽  
Author(s):  
Lindsey M. Dorflinger ◽  
Sanjay Kulkarni ◽  
Carrie Thiessen ◽  
Sharon Klarman ◽  
Liana Fraenkel

The need for kidneys for transplantation continues to far surpass the number of donors. Although studies have shown that most people are aware of and support the idea of living donation, it remains unclear what motivates individuals who are aware, knowledgeable, and in support of donation to actually donate, or conversely, what deters them from donating. Utilizing nominal group technique, 30 individuals participated in 4 groups in which they brainstormed factors that would impact willingness to be a living donor and voted on which factors they deemed most important. Responses were analyzed and categorized into themes. Factors that influence the donation decision, from most to least important as rated by participants, were altruism, relationship to recipient, knowledge, personal risk/impact, convenience/access, cost, support, personal benefit, and religion. Participants reported a significant lack of information about donation as well as lack of knowledge about where and how to obtain information that would motivate them to donate or help make the decision to donate. Findings suggest that public campaign efforts seeking to increase rates of living donation should appeal to altruism and increase knowledge about the impact (or lack thereof) of donation on lifestyle factors and future health, and transplant programs should aim to maximize convenience and minimize donor burden. Future research should examine whether tailoring public campaigns to address factors perceived as most salient by potential donors reduces the significant gap in supply of and demand for kidneys.


2019 ◽  
Vol 11 (23) ◽  
pp. 6599 ◽  
Author(s):  
Uroš Kramar ◽  
Dejan Dragan ◽  
Darja Topolšek

The urban mobility system is an important factor in social development and must, therefore, be tackled in a way that enables balanced, sustainable development. The purpose of the present work was to introduce a new holistic approach to urban mobility system (UMS) planning, which involves a strategic decision-making process with a broad involvement of various stakeholders. For this purpose, an innovative model was created by synthesizing the focus group (FG) method with the nominal group technique (NGT), SWOT (Strengths, Weaknesses, Opportunities, and Threats) analysis, and the fuzzy analytical hierarchical process (FAHP) method. The fuzzy approach was chosen for its ability to incorporate imprecise and vague information and make a decision-making UMS process more realistic. Accordingly, the objective of the paper was to propose a newly developed model that will (considering the integration of various urban mobility subsystems) enable the detection, identification, and ranking of key priorities required for a more holistic approach to UMS planning. The results revealed that the developed integrated model enables acquired areas to be ranked according to priorities, which further allows the development of scenarios. Moreover, the model allows a better understanding of how to search for compromises when one is faced with multi-criteria decision-making and coordination of frequently contradictory goals. A new integrated urban mobility model, as proposed herein, was also successfully tested in a real-life application, which proves its potential for use in sustainable urban mobility planning in a holistic way.


2016 ◽  
Vol 58 (4) ◽  
pp. 422-438 ◽  
Author(s):  
Raina M. Rutti ◽  
Joanne LaBonte ◽  
Marilyn Michelle Helms ◽  
Aref Agahei Hervani ◽  
Sy Sarkarat

Purpose – The purpose of this paper is to summarize the benefits of including a service learning project in college classes and focusses on benefits to all stakeholders, including students, community, and faculty. Design/methodology/approach – Using a snowball approach in academic databases as well as a nominal group technique to poll faculty, key topics for service learning across college disciplines are presented. Findings – Findings include a wide range of service learning projects across disciplines. Research limitations/implications – Areas for future research are identified to expand the service learning topic list as well as guide studies on the long-term benefit of service learning for each identified stakeholder. Practical implications – For new faculty or faculty new to service learning, the list of paper ideas is a good first step to identify projects. While not comprehensive, the list serves to stimulate topic ideas and fills a void in the service learning literature. Social implications – Service learning exists to provide real-world learning for students, but the projects provide benefits for community groups, agencies, and organizations. Societal benefits from the student effort are numerous and there are little or no costs to the agencies who participate. Originality/value – The abundance of service learning literature has studied learning across disciplines and has quantitatively and qualitatively presented benefits, but no studies have worked to compile project ideas across major college disciplines. This research addresses this issue and provides the key first step to implement the service learning pedagogy: the topic idea.


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