scholarly journals Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
N. S. Goedhart ◽  
C. A. C. M. Pittens ◽  
S. Tončinić ◽  
T. Zuiderent-Jerak ◽  
C. Dedding ◽  
...  

AbstractAlthough public engagement in research is increasingly popular, the involvement of citizens living in vulnerable circumstances is rarely realized. This narrative review aims to describe and critically analyse concerns and corresponding strategies, tools, and methods that could support the inclusion of these citizens in health research. The 40 studies that are included were thematically analysed using the socioecological model. Concerns originate most often on the intrapersonal level of the socioecological model, but concerns were also identified at institutional, community, and policy levels. It is thought-provoking that there is a lack of attention for the research and policy structure in which engagement practices are designed, implemented and evaluated. More research is needed to explore how these cultures could be changed in a way that promotes rather than restrains the engagement of citizens living in vulnerable circumstances in research and policymaking.

2014 ◽  
Vol 29 (2) ◽  
pp. 1 ◽  
Author(s):  
Jann Paquette-Warren ◽  
Mariam Naqshbandi Hayward ◽  
Jordan W. Tompkins ◽  
Stewart B. Harris

2021 ◽  
Vol 26 (3) ◽  
pp. 163
Author(s):  
Ifeoma Ndubuisi ◽  
IjeomaL Okoronkwo ◽  
Chisom Mbadugha ◽  
Ijeoma Maduakolam ◽  
Chijioke Nwodoh

2018 ◽  
Vol 24 (1) ◽  
pp. 1-7 ◽  
Author(s):  
Alison Carver ◽  
Alanna Lorenzon ◽  
Jenny Veitch ◽  
Ashley Macleod ◽  
Takemi Sugiyama

Author(s):  
Mhairi Aitken ◽  
Annette Braunack-Mayer ◽  
Felicity Flack ◽  
Kimberlyn M McGrail ◽  
Michael Burgess ◽  
...  

Introduction“The Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research”, recent data breaches, and growing public awareness and controversy associated with secondary use of health data all highlight the need to understand what data sharing the public will support, under what circumstances, for what purposes and with whom. Objectives and ApproachThis symposium explores methods and findings from public engagement at all stages of data linkage research, beginning with short presentations (~6-8 minutes) on recent work: Mhairi Aitken: Consensus Statement - principles and an application using deliberative workshops to explore public expectations of public benefits from data-intensive health research Annette Braunack-Mayer/Felicity Flack: Surveys and citizens’ juries: Sharing government data with private industry Kim McGrail/Mike Burgess: Public deliberations on cross-sector data linkage, and combining public and private sources of data Alison Paprica: Plain language communication informed by Health Data Research Network Canada’s Public Advisory Council. Half the session will be spent interacting with the audience through live polling. The moderator will post a series of poll question such as “What is the most important thing for meaningful public engagement?” to prompt audience thinking on the topic. After the audience responses are revealed, panelists will share their own views about what they think is the best answer, and the main reason(s) behind their choice. The last 10-15 minutes of the session will be reserved for Q&A and dialogue with the audience. ResultsWe anticipate that this approach will surface emerging and tacit knowledge from presenters and the audience, and augment that through generative discussion. Conclusion / ImplicationsSession attendees will leave with a better understanding of the current state of knowledge and ways to talk about that understanding with other researchers, policy makers and the public.


2018 ◽  
Vol 41 (3) ◽  
pp. 632-637 ◽  
Author(s):  
J McAteer ◽  
E Di Ruggiero ◽  
A Fraser ◽  
J W Frank

Abstract This article presents a critical commentary of specific organizational models and practices for bridging ‘the gap’ between public health research and policy and practice. The authors draw on personal experiences of such models in addition to the wider knowledge translation and exchange literature to reflect on their strengths and weaknesses as implemented in Scotland and Canada since the early 1990s.


Author(s):  
Erica Di Ruggiero ◽  
Sarah Viehbeck ◽  
Modi Mwatsama ◽  
Alannah Brown ◽  
Hannah Graff ◽  
...  

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