Experience of caring for someone with anorexia nervosa: qualitative study

BackgroundCaring for someone with anorexia nervosa is distressing.AimsTo gain a detailed understanding of carers' illness models and caregiving experiences.MethodQualitative analysis and computerised text analysis were conducted on narratives written by parents as part of a family intervention at a specialist in-patient unit (20 mothers, 20 fathers)ResultsThemes concerned illness perceptions, impact on the family and carers' emotional, cognitive and behavioural responses towards the illness. Parents perceived anorexia nervosa to be chronic and disabling. Carers blamed themselves as contributing to the illness and perceived themselves as helpless in promoting recovery. Mothers illustrated an intense emotional response, whereas fathers produced a more cognitive and detached account.ConclusionsPart of the distress in living with anorexia nervosa may be explained by unhelpful assumptions and maladaptive responses to the illness. Training parents in skills to manage the illness may improve outcome by reducing interpersonal maintaining factors.

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Family Work in Anorexia Nervosa: A Qualitative Study of Carers' Experiences of Two Methods of Family Intervention

European Eating Disorders Review ◽

10.1002/erv.1077 ◽

2011 ◽

Vol 20 (2) ◽

pp. 132-141 ◽

Cited By ~ 17

Author(s):

Jenna Whitney ◽

Laura Currin ◽

Joanna Murray ◽

Janet Treasure

Keyword(s):

Anorexia Nervosa ◽

Qualitative Study ◽

Family Intervention ◽

Family Work

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Review of "The family intervention guide to mental illness: Recognizing symptoms and getting treatment"

PsycEXTRA Dataset ◽

10.1037/e404132008-016 ◽

2008 ◽

Author(s):

Michelle D. Sherman ◽

Lauren Ridener

Keyword(s):

Mental Illness ◽

Family Intervention ◽

The Family

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The Family Intervention Action Team (FIAT): Putting Family Systems to Work in the Schools

PsycEXTRA Dataset ◽

10.1037/e410052005-013 ◽

1992 ◽

Author(s):

Jay Cerio ◽

Keyword(s):

Family Systems ◽

Family Intervention ◽

Action Team ◽

The Family

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A Qualitative Study on Traumatic Experiences of Suicide Survivors

OMEGA - Journal of Death and Dying ◽

10.1177/00302228211024486 ◽

2021 ◽

pp. 003022282110244

Author(s):

Júlia Camargo Contessa ◽

Carolina Stopinski Padoan ◽

Jéssica Leandra Gonçalves da Silva ◽

Pedro V. S. Magalhães

Keyword(s):

Qualitative Study ◽

Family Member ◽

Traumatic Experience ◽

Traumatic Experiences ◽

Suicide Survivors ◽

Loved One ◽

The Family

The suicide of a loved one can be a traumatic experience. The objective of this study was to investigate trauma-related experiences of suicide survivors. This is a qualitative study with people who had recently lost a family member or a close one to suicide, conducted at least two months after the event. Forty-one participants agreed to take part in the study and were interviewed. The interviewees' perception was that suicide brought harm, symptoms, and suffering. Traumatic experiences can begin immediately after the event, with many reporting symptoms lasting many months and persistent impact, both personal and to the family. Postvention models after suicide should incorporate such findings, and investigate trauma consistently.

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Patients’ and healthcare professionals’ beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study

BMJ Open ◽

10.1136/bmjopen-2020-044059 ◽

2021 ◽

Vol 11 (3) ◽

pp. e044059

Author(s):

Hongxia Shen ◽

Rianne M J J van der Kleij ◽

Paul J M van der Boog ◽

Wenjiao Wang ◽

Xiaoyue Song ◽

...

Keyword(s):

Chronic Kidney Disease ◽

Kidney Disease ◽

Qualitative Study ◽

Healthcare Professionals ◽

Illness Perceptions ◽

Chinese Patients ◽

Self Management ◽

Tertiary Referral Hospital ◽

Chinese Context ◽

Management Interventions

ObjectivesTo support the adaptation and translation of an evidence-based chronic kidney disease (CKD) self-management intervention to the Chinese context, we examined the beliefs, perceptions and needs of Chinese patients with CKD and healthcare professionals (HCPs) towards CKD self-management.DesignA basic interpretive, cross-sectional qualitative study comprising semistructured interviews and observations.SettingOne major tertiary referral hospital in Henan province, China.Participants11 adults with a diagnosis of CKD with CKD stages G1–G5 and 10 HCPs who worked in the Department of Nephrology.ResultsFour themes emerged: (1) CKD illness perceptions, (2) understanding of and motivation towards CKD self-management, (3) current CKD practice and (4) barriers, (anticipated) facilitators and needs towards CKD self-management. Most patients and HCPs solely mentioned medical management of CKD, and self-management was largely unknown or misinterpreted as adherence to medical treatment. Also, the majority of patients only mentioned performing disease-specific acts of control and not, for instance, behaviour for coping with emotional problems. A paternalistic patient–HCP relationship was often present. Finally, the barriers, facilitators and needs towards CKD self-management were frequently related to knowledge and environmental context and resources.ConclusionsThe limited understanding of CKD self-management, as observed, underlines the need for educational efforts on the use and benefits of self-management before intervention implementation. Also, specific characteristics and needs within the Chinese context need to guide the development or tailoring of CKD self-management interventions. Emphasis should be placed on role management and emotional coping skills, while self-management components should be tailored by addressing the existing paternalistic patient–HCP relationship. The use of electronic health innovations can be an essential facilitator for implementation.

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Illness perceptions of Turkish Cypriot patients receiving haemodialysis: A qualitative study

Journal of Renal Care ◽

10.1111/jorc.12377 ◽

2021 ◽

Vol 47 (2) ◽

pp. 71-71

Keyword(s):

Qualitative Study ◽

Illness Perceptions ◽

Turkish Cypriot

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Implementation of the Family HELP Protocol: A Feasibility Project for a West Texas ICU

Healthcare ◽

10.3390/healthcare9020146 ◽

2021 ◽

Vol 9 (2) ◽

pp. 146

Author(s):

Rebecca McClay

Keyword(s):

Strong Support ◽

Family Intervention ◽

Successful Implementation ◽

Positive Perception ◽

Family Presence ◽

West Texas ◽

The Family ◽

Control And Prevention ◽

High Level ◽

Near Future

The purpose of this project was to determine if bedside intensive care unit (ICU) nurse buy-in to the Family Hospital Elder Life Program (HELP) protocol was sufficient to make implementation feasible at one county hospital in West Texas. Surveys were anonymous with ballot box collection being available to the bedside ICU nurses for one week each. Questions were based on literature findings of expected outcomes, identified barriers and facilitators, Calgary Family Intervention Method framework domains, and the Centers for Disease Control and Prevention Framework for program evaluation. Outcome measures were taken from the stated aims of the project and evaluated from paired baseline and summative survey questions. Survey participation was approximately half of nurses employed in the studied ICU. Analysis of the surveys showed a positive perception of family presence decreasing patient delirium symptoms, and a positive perception of the Family HELP protocol. The results described a high perception of family members as partners in care and high intention to implement the Family HELP protocol, indicating strong support of a full implementation of the protocol. The high level of bedside nurse buy-in present in this study has large implications for successful implementation of the Family HELP protocol in the near future, with sustainability and continued use supported by potential inclusion of the task in the electronic health record charting.

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