Necessity for including quality of life diagnostics and therapy in routine oncological care: Evaluation by methods of clinical guideline implementation

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 18594-18594
Author(s):  
M. Klinkhammer-Schalke ◽  
M. Koller ◽  
C. Ehret ◽  
B. Steinger ◽  
B. Ernst ◽  
...  

18594 Background: Application of quality of life assessment has become an important topic in oncology. Current approaches, however, have focused on technical issues within single center settings overlooking the requirements of routine care. We report on implementing of structural elements of a quality of life diagnostics and therapy system (QoL system). It was designed as integral part of the health care program for breast cancer patients in a regional tumor center. Methods: The QoL system was implemented by a systematic approach (Med. Care, 39, Suppl.2, 2(2001). Its elements comprised (a) coordinating practitioners (CPs) who functioned as gate keepers for QoL related therapies, (b) experts in the QoL unit who provided QoL reports and specific therapeutic recommendations based on patients’ responses to the EORTC questionnaire, (c) professional health care providers in psychotherapy, pain therapy, social support, physiotherapy/lymph drainage, and fitness (nutrition, sports), (d) clinicians (gynecologists) for patient recruitment and (e) opinion leaders for educational influence on the CPs to keep the QoL system in daily practice. Success of implementation (as indicated by CPs’ QoL-related changes in knowledge, attitude and behavior) was evaluated in a prospective study with breast cancer patients. Results: The QoL system was applicable in all of 170 patients recruited between Dec. 2002-June 2004 (age 34–86yrs, UICC 0–4, breast conserving surgery 67%). From 75 CPs (mostly gynecologists) in the area only 39 fulfilled criteria for the QoL system, 1 refused to participate. 38 CPs showed knowledge about QoL following educational outreach visits. Concerning attitudes and behavior, 64% of CPs found the experts’ reports comprehensible, 56% followed their recommendations, 20% made additional actions. Follow-up 4 months after first QoL measurement revealed improvements in pain, body image and social life (p < .05). Conclusion: The study—in combining doctor’s approach and patient’s demands—showed success using methods of guideline implementation by improving QoL deficits within a routine oncological care. Effectiveness will be analyzed in an ongoing randomized trial. No significant financial relationships to disclose.

2018 ◽  
Vol 4 (2) ◽  
pp. 96-98
Author(s):  
Soumi Pathak ◽  
Ajay Kumar Bhargava

Breast cancer is the commonest cancer in women worldwide. In the developing countries of Asia, the health care burden on account of breast cancer has been steadily mounting. Over 100,000 new breast cancer patients are estimated to be diagnosed annually in India.1 As per the ICMR-PBCR data, breast cancer is the commonest cancer among women in urban registries of Delhi, Mumbai, Ahmedabad, Calcutta, and Trivandrum where it constitutes > 30% of all cancers in females. Previous literature on mastectomy indicates that the operation may be perceived by the patient as a threat to her feminity. Breast cancer survivors have dissatisfaction with appearance, perceived loss of femininity and body integrity, self-consciousness about appearance, and dissatisfaction with surgical scars… Journal of Society of Anesthesiologists of NepalVol. 4, No. 2, 2017, Page: 96-98 


2019 ◽  
Author(s):  
Joachim Graf ◽  
Nina Sickenberger ◽  
Katharina Brusniak ◽  
Lina Matthies ◽  
Thomas M. Deutsch ◽  
...  

BACKGROUND One in eight women is diagnosed with breast cancer in the course of her life. As systematic palliative treatment has an only limited effect on survival rates, the concept of Health-related Quality of Life (HRQoL). Various studies have already demonstrated the reliability of paper-based PRO (pPRO) and ePRO and that the two means of assessment are equally valid. OBJECTIVE The aim of this study was to analyze the acceptance and evaluation of a tablet-based ePRO applica-tion for breast cancer patients and to examine its suitability, effort, and difficulty in the context of HRQoL and sociodemographic factors. METHODS In all, 106 women with adjuvant or advanced breast cancer were included in a two-center study at two major university hospitals in Germany. Patients were asked to answer HRQoL (EORTC QLQ-C 30, FACT-B) and PRO questionnaires both on a tablet on-site using a specific eHealth assessment website and on paper. The suitability, effort, and difficulty of the application and self-reported technical skills were also assessed. Only the results of the electronically acquired data are presented here, results of reliability to pPRO data have already been published elsewhere. RESULTS Patients regarded the ePRO assessment as more suitable (74.8%), less stressful (69.8%), and less difficult than pPRO (65.2%). The majority of patients stated that ePRO improves health care in hospitals (82.1%). However, evaluation of ePRO depends on the level of education (p=0.003) and patients’ experience in using a computer (p=0.041). The application was rated highly in all categories. HRQoL data did not show significant correlations to the application’s evaluation parameters. CONCLUSIONS The results indicate that ePRO surveys are also feasible for measuring HRQoL in breast cancer pa-tients and that those patients prefer ePRO to pPRO assessment. It can also be seen that patients consider ePRO to be improve hospital health care. However, studies with larger numbers of patients are needed to develop applications that address the needs of patients with lower levels of education and technical skills.


2005 ◽  
Vol 23 (16_suppl) ◽  
pp. 758-758 ◽  
Author(s):  
W. Lorenz ◽  
M. Klinkhammer-Schalke ◽  
B. Ernst ◽  
C. Jakob ◽  
B. Steinger ◽  
...  

2017 ◽  
Vol 63 (2) ◽  
pp. 316-319 ◽  
Author(s):  
Valentina Chulkova ◽  
Tatyana Semiglazova ◽  
Margarita Vagaytseva ◽  
Andrey Karitskiy ◽  
Yevgeniy Demin ◽  
...  

Psychological rehabilitation is an integral part of rehabilitation of a cancer patient. Psychological rehabilitation is aimed at a patient adaptation in the situation of the disease and improvement his quality of life. Understanding of an oncological disease is extreme and (or) crisis situation and monitoring dynamics of the psychological statement of a patient allows using differentiated approach in the provision of professional psychological assistance. The modified scale of self-esteem level of distress (IPOS) was used for screening of mental and emotional stress of cancer patients. There were selected groups of cancer patients who were most in need of professional psychological assistance. Results of a psychological study of one of these groups - breast cancer patients - are presented.


Author(s):  
Lorena Gutiérrez-Hermoso ◽  
Lilian Velasco-Furlong ◽  
Sofía Sánchez-Román ◽  
Elisabeth Berzal-Pérez ◽  
Natasha Alcocer-Castillejos ◽  
...  

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