Providing cancer survivorship care plans for Spanish language speakers: Overall use and satisfaction patterns.

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. e20671-e20671
Author(s):  
Christine Hill-Kayser ◽  
Carolyn Vachani ◽  
Margaret K. Hampshire ◽  
Gloria A. Di Lullo ◽  
James M. Metz

e20671 Background: Cancer survivorship care plans may be communication aides to assist healthcare providers and empower survivors. A paucity of information exists regarding the provision of survivorship care plans to the Spanish speaking population. Methods: The LIVESTRONG Care Plan is an Internet-based tool for creation of survivorship care plans, originally launched in 5/07. It is available at www.livestrongcareplan.org, and via OncoLink, a cancer information website based at the University of Pennsylvania, serving over 3.9 million pages/ month to 185,000 unique IP addresses. A direct link on the homepage directs users to the Spanish version. All information is provided and translated by oncology nurses and physicians. Results: Since launch of the tool, 293 Spanish care plans have been created (1% of total care plans). Care plans in Spanish have been created by survivors in 78% of cases, and healthcare providers in 22%. This differs from the entire user population, in which use by HCP approaches 50% (p=< 0.001). Spanish-speaking users are 52% female, and 82% Latino/a, and less likely from the US (60% vs 87% , p=0.02), also being from Mexico (15%), Spain (10%), Chile (9%), Puerto Rico (5%) and Venezuela (3%). Spanish users were most often survivors of breast (20%) GU (33%) and GI (20%) cancers (vs general population 50%, p = 0.03; 10%, p = 0.04; 11%, p = 0.03, respectively). Only 8% of Spanish-speaking users report having received previous survivorship information vs 13% in the overall group (p=0.07). All users (100%) of the Spanish version rate experience and satisfaction with the care plan as “very good” or “excellent.” Average time for completion of Spanish plans was 9:28 min. Conclusions: Most users of the Spanish plan are survivors who have not received this information before, from the US and several Central/South American countries. They are highly satisfied with the information provided. Healthcare providers are proportionally less likely to use the Spanish version of the plan than survivors are.

2010 ◽  
Vol 06 (02) ◽  
pp. 10
Author(s):  
Christine Hill-Kayser ◽  
Carolyn Vachani ◽  
Margaret K Hampshire ◽  
James M Metz ◽  
◽  
...  

Over the past decade, the world has demonstrated an increased interest in and awareness of the unique needs of cancer survivors. Survivorship care plans are a communication tool intended to provide guidelines for the healthcare of survivors as they complete active cancer care, and for the duration of their lives. The Internet represents a unique way to communicate with cancer survivors, and data from several groups indicate that increasing numbers of survivors both desire information about their care and seek this information on the Internet. A handful of US-based groups have developed Internet-based tools for the creation of survivorship care plans. The first of these, the LIVESTRONG Care Plan (www.livestrongcareplan.org), is available via theOncoLinkcancer information website based at the University of Pennsylvania. Data from the first three years since the launch of this tool demonstrate increasing use by survivors from nearly every continent, with international users accounting for 16% of total users. Data from these users also demonstrate wide variability with regard to receipt of previous survivorship information and treatment summaries based on location of residence. This variation emphasises the vital role that Internet-based survivorship care plans may continue to play in the care of survivors worldwide.


2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e22522-e22522
Author(s):  
Jared David Acoba ◽  
Sharon Tamashiro ◽  
Marci Chock

e22522 Background: Numerous studies have evaluated the impact of cancer survivorship care. However, no study to date has focused on Asian or Native Hawaiian/Pacific Islander (NH/PI) cancer survivors. It has been well documented that Asian and NH/PI patients often suffer from inferior cancer outcomes compared to White patients, and differences in their experience with cancer survivorship care could contribute to this disparity. Methods: Surveys were sent to 1410 cancer survivors who were treated at a community cancer center with curative intent and who had received survivorship care plans between Jan 2014 and June 2018. The 26-item questionnaire evaluated patients’ perception of various aspects of their survivorship care plan and follow-up physician visits. All responses were anonymous. Results: Of the 360 patients who responded, 24% were White, 54% Asian, and 13% NH/PI. Compared to Whites, Asian and NH/PI patients were younger (p = 0.004), less educated (p = 0.004), and reported a lower income (p < 0.0005). Among all patients, 62% reported that the survivorship care plan was “very helpful” and 86% rated their satisfaction with physician follow-up visits as “very good” to “excellent.” There were no racial differences in satisfaction with either survivorship care plan or physician follow-up. In a multivariate binary logistic regression, Asians and NH/PI patients were significantly more likely to rate ongoing survivorship care as helpful compared to Whites, OR 4.08 (95%CI, 2.13-7.82). Conclusions: There were no racial differences in patient satisfaction with their survivorship care plans and follow-up care. However, Asian and NH/PI patients valued ongoing cancer survivorship care follow-up significantly more than White patients. Whether more extensive survivorship care would lead to improved outcomes among Asian and NH/PI cancer patients should be investigated further.


2014 ◽  
Vol 10 (3) ◽  
pp. e150-e159 ◽  
Author(s):  
Amye J. Tevaarwerk ◽  
Kari B. Wisinski ◽  
Kevin A. Buhr ◽  
Ucheanna O. Njiaju ◽  
May Tun ◽  
...  

Rapid care plan creation and delivery within an EHR is possible. Further research is required to explore the barriers to automating importation into plans as well as the impact of EHR-integrated plans.


2011 ◽  
Vol 29 (15_suppl) ◽  
pp. 6117-6117 ◽  
Author(s):  
C. T. Stricker ◽  
L. A. Jacobs ◽  
A. DeMichele ◽  
A. Jones ◽  
B. C. Risendal ◽  
...  

Author(s):  
Nerea Elizondo Rodriguez ◽  
Leire Ambrosio ◽  
Virginia La Rosa‐Salas ◽  
Marta Domingo‐Osle ◽  
Cristina Garcia‐Vivar

Author(s):  
Lava R. Timsina ◽  
Ben Zarzaur ◽  
David A. Haggstrom ◽  
Peter C. Jenkins ◽  
Maryam Lustberg ◽  
...  

2012 ◽  
Vol 8 (1) ◽  
pp. 24-29 ◽  
Author(s):  
Larissa Nekhlyudov ◽  
Jeffrey L. Schnipper

Exploration of potential lessons from hospital discharge summaries, which may be used to facilitate development, implementation, and testing of survivorship care plans.


2013 ◽  
Vol 17 (3) ◽  
pp. 266-272 ◽  
Author(s):  
Brian L. Sprague ◽  
Kim L. Dittus ◽  
Claire M. Pace ◽  
Dorothy Dulko ◽  
Lori A. Pollack ◽  
...  

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