Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 30-30
Author(s):  
Leah L. Zullig ◽  
Callie Berkowitz ◽  
Julie Miller ◽  
Katherine Ramos ◽  
Rowena Dolor ◽  
...  

30 Background: Survivorship care plans (SCPs) are individualized documents that summarize cancer treatment received and provide guidelines for monitoring and maintaining survivors’ health. While SCPs are intended to facilitate care coordination, they are rarely used in the primary care setting. We aimed to understand the informational needs and delivery preferences of PCPs, cancer survivors, cancer specialists, and nurses related to SCPs. Methods: We conducted semi-structured interviews with a purposeful sample of PCPs (n = 10), cancer specialists (n = 5), nurses (n = 5), and cancer survivors (n = 5). After reviewing a sample SCP based on the published ASCO template, participants were asked about acceptability, appropriateness, feasibility, fidelity, implementation, and sustainability. De-identified transcripts were qualitatively analyzed using NVivo software. Results: 25 interviews were completed (RR 45%). Emergent themes included informational needs and delivery preferences. Informational needs include clarifying roles and responsibilities of allied professionals; the roles of the PCP for follow-up care should be clear, outlined and with content summarizing their responsibilities regarding screening, and surveillance. Additionally, SCPs should emphasize side and late effects of cancer treatment for the benefit of patients and providers. Delivery preferences include using sustainable and accessible electronic formats to improve provider communication and streamlining documentation for the intended audience. Electronic SCPs could be frequently updated with pertinent information about patient needs and care over time. Conclusions: Understanding the needs and preferences of PCPs may address current limitations of SCPs in coordinating survivor care. Future SCPs may be electronic and accessible, with content and guidance targeted to the PCP’s role.

2017 ◽  
Vol 35 (5_suppl) ◽  
pp. 55-55
Author(s):  
Ksenya Shliakhtsitsava ◽  
Sally A. D. Romero ◽  
Samantha Roberts ◽  
Irene Su

55 Background: For cancer survivors who were diagnosed with cancer during childhood, adolescence and young adulthood years, transitioning into survivorship and post-cancer treatment care remains challenging and may be aided by treatment summaries (TS) and/or survivorship care plans (SCP). Little research has been conducted on receipt of SCP and/or TS from the patient perspective. The objective of this study was to determine patient- and cancer-specific characteristics that are associated with receipt of SCP and/or TS (SCP/TS). Methods: 240 female young adult cancer survivors (YCS) between ages 18-44 were recruited to a national cohort study on reproductive health and completed a web-based survey that included report of receiving SCP and TS. We used logistic regression models to estimate odds ratios (OR) for characteristics associated with receipt of SCP/TS. Results: Mean age (standard deviation) was 32.8 (5.8) years; mean age at cancer diagnosis was 27.2 (7.1) years. Forty-eight (20%) participants were diagnosed with cancer at < 21 years of age. Only 47% of participants reported receipt of SCP/TS. In unadjusted analyses, current age, younger age at diagnosis, education level, receiving chemotherapy and receiving bone marrow transplant were significantly associated with report of SCP/TS receipt. In multivariable analyses, survivors diagnosed at younger age ( < 21 years) had 2-fold higher odds of SCP/TS receipt (OR 2.0, 95% CI 1.0-3.9). Chemotherapy treatment (OR 2.3, 95% CI 1.2-4.6) and bone marrow transplantation (OR 7.2, 95% CI 1.5-33.3) were also significantly associated with SCP/TS receipt. Conclusions: A significant proportion of YCS do not recall receiving a TS or SCP to aid in the transition to post-cancer treatment survivorship care. Receipt of these documents is not uniform across the young cancer survivor population. Improved integration of TS and SCP into cancer survivorship care is needed.


2014 ◽  
Vol 41 (3) ◽  
pp. 266-273 ◽  
Author(s):  
Deborah K. Mayer ◽  
Adrian Gerstel ◽  
AnnMarie Lee Walton ◽  
Tammy Triglianos ◽  
Teresa E. Sadiq ◽  
...  

2016 ◽  
Vol 56 (2) ◽  
pp. 183-189 ◽  
Author(s):  
Nicole A. Kinnane ◽  
Amanda J. Piper ◽  
Michael Jefford

Cancer ◽  
2018 ◽  
Vol 124 (22) ◽  
pp. 4292-4300 ◽  
Author(s):  
Amye J. Tevaarwerk ◽  
Jennifer R. Klemp ◽  
Gijsberta J. van Londen ◽  
Bradford W. Hesse ◽  
Mary E. Sesto

2016 ◽  
Vol 10 (6) ◽  
pp. 956-963 ◽  
Author(s):  
Heather Greenlee ◽  
Christine L. Sardo Molmenti ◽  
Katherine D. Crew ◽  
Danielle Awad ◽  
Kevin Kalinsky ◽  
...  

2008 ◽  
Vol 9 (5) ◽  
pp. 298
Author(s):  
J.M. Metz ◽  
C.E. Hill-Kayser ◽  
M.K. Hampshire ◽  
L.A. Jacobs ◽  
C. Vachani

2010 ◽  
Vol 06 (02) ◽  
pp. 10
Author(s):  
Christine Hill-Kayser ◽  
Carolyn Vachani ◽  
Margaret K Hampshire ◽  
James M Metz ◽  
◽  
...  

Over the past decade, the world has demonstrated an increased interest in and awareness of the unique needs of cancer survivors. Survivorship care plans are a communication tool intended to provide guidelines for the healthcare of survivors as they complete active cancer care, and for the duration of their lives. The Internet represents a unique way to communicate with cancer survivors, and data from several groups indicate that increasing numbers of survivors both desire information about their care and seek this information on the Internet. A handful of US-based groups have developed Internet-based tools for the creation of survivorship care plans. The first of these, the LIVESTRONG Care Plan (www.livestrongcareplan.org), is available via theOncoLinkcancer information website based at the University of Pennsylvania. Data from the first three years since the launch of this tool demonstrate increasing use by survivors from nearly every continent, with international users accounting for 16% of total users. Data from these users also demonstrate wide variability with regard to receipt of previous survivorship information and treatment summaries based on location of residence. This variation emphasises the vital role that Internet-based survivorship care plans may continue to play in the care of survivors worldwide.


Sign in / Sign up

Export Citation Format

Share Document